Food Challenge Today

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Hi guys, I had posted back in April about Cameron's SPT coming back negative and the allergist wanting me to "try a little" to see if he reacts...

I talked to his pediatrician, and we have scheduled a food challenge for today. He will be admitted into the hospital, they will do an EKG first as a baseline so that they can have a baseline while he is having the challenge done.

Just wanted to let everyone know and to ask that you keep him in your prayers today. It is scheduled for 4pm and I'm not sure how long it will last (if he doesn't react).

I will post tomorrow how it goes, if everything goes well....if it doesn't, I will post just as soon as I can.

Thank you guys for keeping him held up in prayer.

Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Aug 8, 2007

Good Luck!!!!! I can't wait to hear the news.

------------------ Jodi

On Aug 8, 2007

OH!!! Good luck!!!!! We'll be praying for him. (((HUGS for You)))

On Aug 8, 2007

Good luck! Keep us updated!

On Aug 8, 2007

Oh, I hope it goes well! I'll be thinking of you!

On Aug 8, 2007

Good luck today! My fingers are crossed for you. Let us know how everything goes [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Aug 8, 2007

Good luck! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Aug 8, 2007

Best of luck!

------------------ Jen DS#1--3 years old: allergic to peanuts & fish DS#2--5 months old: NKA

On Aug 8, 2007

as with all challenges, GOOD LUCK and STAY SAFE!!! HUGS

------------------ Chanda(mother of 4) Sidney-8 1/2(beef and chocolate, grasses, molds, weeds, guinea pig, hamster & asthma) Jake-6 1/2(peanut, all tree nuts, seasame seeds, (avoiding all seeds, legumes &coconut)eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma) Carson-4 (milk, tree nuts(avoiding peanuts and seeds)soy, egg, beef and pork, cats, dog, guinea pig, hamster, grass, mold, dust mite and EE) Savannah-1 1/2 (milk, beef and egg, dog(avoiding peanuts, tree nuts, strawberries, sesame seeds, legumes and corn)

On Aug 8, 2007

Hey Lana! Long time no see! I so hope he passes the challenge! Can't wait to hear.

On Aug 8, 2007

We pray God has healed him of those food allergies and that the food challenge is a good experience for you all. Cindy

On Aug 8, 2007

Hi there!

Hope it was safe and successful!

On Aug 9, 2007

How'd it go?

On Aug 9, 2007

Hi Lana! Hope all went well with Cameron yesterday. Any news to share?

On Aug 9, 2007

Oh, Cam's Mom, I'm sorry I missed this yesterday.

I hope things went well yesterday. How exciting and scary at the same time.

Thoughts and best wishes with you. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ There but for the Grace of God, go I.

On Aug 10, 2007

Thinking of you and Cameron! Hope everything is going well [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Aug 10, 2007

Hi Guys, only have a minute to type at the moment, I'll be able to post more later this afternoon, but wanted to let you guys know that he reacted. It was the worst experience for him and us and I would never ever recommend it to anyone.

He is fine today, was okay yesterday. I promise I will come back in and post more today, I've got a meeting at 9:30 with some clients and only have seconds before they get here.

Thanks for all of you support, and I'll will post the entire procedure and experience shortly.

Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Aug 10, 2007

So sorry Lana. We were rooting for you.

On Aug 10, 2007

Lana,

Sorry you and Cam had to go thru this. I know it had to be very scary. Geez, seems like most kids on these boards that try a food challenge do not pass. Hope he is feeling better today.

HUGS}}}

Have a blessed day, Bridget

On Aug 10, 2007

So sorry to hear this- hope he's feeling better today!

On Aug 10, 2007

I'm so sorry to hear that things didn't go as expected. I am glad that he is okay. Hugs to you and Cam

On Aug 10, 2007

Hi everyone....Okay so this is how it went.

We got to the hospital about 4pm - they admitted him into the pediatric floor and took the usual vitals, hooked him up to the EKG and oxygen monitor thingy. Anyone that was anyone at that hospital was in the room because it has never been done in our town/hospital, so we had the Director of Nursing, approx 4 nurses from that floor, the respitory guy, someone else can't remember what he was, the Dr.....and us.

They IV'd him and kept him on the heart monitor and blood pressure monitor - they put just a little bit of PB on the end of a plastic spoon and after much protesting on Cam's part, he relucting took some - it took several bites to finish just that tip of the teaspoon amount - he was terrified. Within minutes (less than 10) his bottom lip swelled (looked like he bit it) and he complained of his throat feeling funny...Dr. check his tongue and felt like it was not swelling, gave him a shot of some type of steriod and made everyone leave the room (from bite to medication it was approx. 10-15 minutes) Dr. thought it might be anxiety (psycological) me, I was sure it was reaction, but then said maybe it was as upset as he was, nervous with every eye on him (lab rat style, ya know)...

In about 15 minutes he was convinced into taking a reese peices, he ate one, had the 2nd one in his mouth not swallowed yet, and threw it up.

Dr. still was not convinced this was in fact a reaction or if it was anxiety....which in all reality might could have been. He decided to stop for the day, follow up the next week in his office and go from there. Said we could leave in 45 minutes if nothing else developed. He left the hospital.

40 minutes later, he started getting very red (like a bad sunburn), then the whelps started popping up....Nurse came and gave a shot of epinephrine, redness and the few whelps he had left. No other signs at this point, swelling, breathing problems or anything else. 25 minutes later the redness came back with a quickness and within 10 minutes or less he looked like he should be in the burn unit - unreal at the redness and huge whelps....another shot (I'm assuming was the ephinephrine again?) and a pretty high dose of benadryl in the IV.

This subsided, but took about an hour where the whelps were not raised like or should I say rough looking skin....and didn't fully leave until the next a.m. His breathing did start to affect him, even after the meds - it was not severe, it was like he was starting to have bronchitis flare up of the ashtma type problems.

Cam's reactions in the past were pretty severe - but this was just an experience that I will never ever go through again intentionally...EVER...if there are 100 tests that come back negative then oh well...it won't ever happen again.

This was a very tramatically experience for him even if he hadn't had a reaction....though he's fine now, physically and emotionally - the positive side, I won't ever have to worry about him thinking that he can "have just a little bit"....

Gotta run again, please feel free to post any questions and I'll be glad to answer them....I can email some pics also if anyone wants them - they really don't show the full reality of it, but I am having 8x10's printed as we speak for our annual presentation at school Monday a.m.

Will keep checking in thanks for all of your prayers, support and hugs....Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Aug 10, 2007

Lana,

I'm so sorry. That sounds like a horrible experience. Thank goodness he is ok.

Take care

On Aug 10, 2007

Oh Luna, How terrifying for both of you! I was afraid when we didn't hear back from you right away it was something like this. ((Hugs)) Tabitha

On Aug 10, 2007

Oooooohhhh-- I am so, so sorry for this awful ordeal. Your poor son-- for them to have goaded him into consuming even MORE after he already knew he was reacting.

I am just speechless that your physician was not (apparently) more supportive during this terrible experience.

Was this his/her own protocol? I've never heard of them jumping right to 'tasting' a macroscopic amount like that. Thank [i]heavens[/i] you didn't do as was suggested and 'try this at home.' [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img]

Wow. Wonder what your allergist will have to say about this.

So glad you are both okay. hugs}} all around.

On Aug 10, 2007

Wow, I don't even know what to say. You must have been terrified. Glad he's OK now and it's all over. ((hugs)) to both of you.

On Aug 10, 2007

Lana, my stomach was turning reading your post. How awful for both of you.

Well, I guess if you had any bit of nagging doubt it's out of your mind now. Psychological my aunt Fannie!

Amy

On Aug 10, 2007

Lana, I'm so sorry. That must have been so scary for both of you.

Aren't they supposed to hide peanut in something so he doesn't know when he is actually eating it? That way you know it isn't psychological. Double blind placebo or something?

So sorry you had to go through that, but thanks for sharing your story.

On Aug 10, 2007

This story will give me nightmares, I just know. HUGS}}} I've re-read this several times and can't stop thinking about it. I really feel for you both, at a loss for words...

Have a blessed day, Bridget

On Aug 10, 2007

I just read this. ((((Hugs)))) to you and your son.

On Aug 10, 2007

I'm so sorry this happened to both of you. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] I'm just sick about it. To think we all pray for negative SPT & RAST and it's just not enough. How scary this must have been for your guy.

You're right, he'll never take this lightly. And, maybe this experience saved his life by showing him what it would be like. My ds doesn't know what a reaction feels like and that scares me.

On Aug 10, 2007

I'd give the dr a peice of my mind. Oh, Horrible....I'm so sorry you and your son went through that. How irresponsible of him to leave until he knew all was okay....He could be on the OT for Most Inconsiderate Sod... I'm glad he's okay, you too..

On Aug 10, 2007

Quote:

Originally posted by Cam's Mom: [b]Hi guys, I had posted back in April about Cameron's SPT coming back negative and the allergist wanting me to "try a little" to see if he reacts... [/b]

Lana-Is the allergist who assumed it was psychological the same one who wanted you to "try a little"? I'm pretty shocked they started with such an obvious amount of peanut butter, didn't hide it, and continued the test given that he needed an injection of something???. I am so sorry you and your son had to go through that. Was your son's CAP/RAST also negative or just SPT?

My DD failed her egg challenge at age 3.5, but it wasn't as traumatic as what you both went through.

I am so relieved your son is OK. You are a smart mom to have pushed to have this done in the hospital.

Nicole

On Aug 12, 2007

I am glad your child is okay- I was astounded at the protocol that was followed- This is very different from food challenges described by Wood, Sampson and Burks (currently at Duke). The amounts they used- in unmeasurable quantities a vs. small mg. increases of measurable protein is very surprising. It would be intresting to consult with some of these MDs and their staff to see what standard challenges are like. Glad you are safe now.

On Aug 12, 2007

Sorry for this heartbreaking experience. I am sorry for the dashed hopes and for the pain your son experienced and the fright.

May the lords of karma compensate you for this.

On Aug 13, 2007

Hi Everyone...Just wanted to say that I thank you all for your thoughts, prayers and comments.

Corvallis Mom, the Dr. was okay - I think he couldn't have really been better. To be honest, I really think that us being in such a small town, and him coming from a larger city that he kinda jumped at the chance to do something that no one else has done here. Does that make sense? He really did miss the reaction for sure - and knowing what I do about the length of time for a reaction to trigger, he shouldn't have left.

Hey Momma2boys!! The placebo thing is what we were going to do after he vomitted - before the next set of symptoms appeared...needless to say, we won't now, but that is definately how I'd suggest anyone that insisting that it be done to do.

Nicole, the Dr. that performed the food challenge is actually his Peditrician, his allergist is 2 hrs away - and though I could have done it there, we all live here and I preferred to be in our town and not 2 hrs away, so that is the reason I even brought up us doing some other testing. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Another look at the positive side of this whole thing...I did my annual presentation/speech to the entire faculty at his school this a.m. & I got to share this experience verbally and with photos - the pictures didn't give the full visual that was actually there, but it was good enough that the teachers got a wow out of it. And just for a little spite, lol, two of his teachers from several yrs ago that were so determined to think I was an overprotective freak happen to move up to this school this year and they got to hear and see the reality of my freaky overprotective self!!

Thanks guys again for all your thoughts...Talk to you all again soon,Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Aug 13, 2007

Lana -- WOW.

My stomach went into knots as I read your description of events.

I'm stunned that child was not to ordered be observed for at least 2 hours beyond end of trial . . . biphasic reaction, hello??!!

I keep asking myself if we would agree to a food challenge, should new doc we see this fall suggest it. Have my answer now.

I am so sorry you all had to go through this. (Thank heavens for the vomiting as it may have kept reaction from being even worse by reducing amount absorbed in digestive tract!)

BIG HUGS!}}

And thank you for sharing all the details on this with us here. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

~Eliz

On Aug 13, 2007

Cam's mom, I'm so sorry. How awful, for so many reasons. I hope your DS is feeling better now, and that he is healing all around. HUGS!

On Aug 14, 2007

Eliz - You know, the really worst part of the reaction didn't start until almost 2 hours after ingestion. By the time they got everything hooked up to him and in order, it was about 5:15pm before he actually ate the PB. Granted, if he hadn't had meds it would have been a lot worse, but the 1st epi medication that was given to him subsided the 2nd reaction symptom (burn look with some whelps), then 20-25 mins later (when the worst part came on) it was 7pm. I am curious to know and will find out how many mg's of the ephipherne was given to him the 1st time, because if it was the same amount given in the shots that we all carry, it would make sense that it came back 25 mins later, which is about how long the pens are suppose to last.

He should have really stayed all night, I'm glad he didn't, because the 7pm nurse that came on was not impressive at all.

Corvallis Mom, just wanted to say, I guess in my earlier post (saying the dr. was ok) I am just trying to justify for the Doc. He really didn't handle it well at all, I know that, I just think its something very new here in this small little town - I've been so impressed with him since we've moved Cam to him, that I hate to think he really screwed up....but he is human I guess and just made a huge mistake. Our limitations in this rural town is ridiculous where the medical field is concerned and it kills me. Anyhoo, rambling a lot, thinking as I type.

We are the first ones to implement in the school system, now he was the first one in the medical community here to do what we did...His older brother told him he was history making here, that kinda helped his spirits. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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