Food challenge failure

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My son is still allergic to peanuts.

He had a negative RAST (done at Mayo) and a negative skin test, and no reaction to crushed peanut on his skin, so we did a food challenge today.

At first it went well. From 1:30pm-5:00pm no reaction, even with increasing amounts of peanut, culminating at 4:00 when he ate 10 peanuts.

At 5:00 he went into acute anaphylactic reaction...nothing that couldn't be handled by several injections of epi, a couple of doses of prednisone, benadryl, a couple of doses of zyrtec, some pepcid for good measure, and 5 hours in the ER.

I learned a bit about what anaphlyaxis looks like.

I'm too tired and just plain sad to type up the details right now. I'll come back and write it up after the weekend.

On Dec 1, 2005

OMG! How utterly frightening. I am so sorry.

I hope you are all okay. becca

On Dec 1, 2005

I'm so sorry.

On Dec 2, 2005

Yikes. Rest. Relax. Wine.

Try to enjoy your weekend and your child.

Jason

------------------ [b]* Obsessed * [/b]

On Dec 2, 2005

I'm so sorry. Hope he and you are doing better today.

On Dec 2, 2005

Sending you and your child big huge hugs. I hope he's doing better. I figure it will probably take you a while since that had to be beyond scary, that's what the hugs are for. Meg

On Dec 2, 2005

Wow, he had such a strong reaction after the skin and the bloods tests came back negative?

Are false negatives very common? This is worrying.

I'm so sorry... learning that he is still allergic must have been terribly disappointing.

On Dec 2, 2005

Wow & to think you were so close to the end you could have been send home before a reaction started! Wow that is crazy. I could only imagine that by the time you got that far into the challenge & after consuming so many peanuts that your hope were really high.

I am so sorry to hear what you & Your son experienced [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]

Are you going to have his rast retested? to see if it has increased?

On Dec 2, 2005

It must have been terrifying when the anaphylactic recation occurred. I am so sorry for your son (and you).

It sounds like things were going ok up until the 10 peanut dose. Is that any indication that maybe his threshold level of peanut tolerance has increased and maybe traces would not pose as much of a danger? Obviously after this experience, you certainly would continue avoiding even traces, but I was just wondering if any hope could be gleaned from this disappointing and frightening experience.

Agin--sorry this happened.

On Dec 2, 2005

(((Hugs))) It will be hard to put that picture aside. I remember that reaction dd had. Again (((hugs))) Sending a angel your way [img]http://www.TimeshareWeb.net/public/angel_9.gif[/img]

------------------ Love this site Synthia

On Dec 2, 2005

woah! What an eye opener for all of us. I'm sorry you had to live through this horror story.

My son had an egg challenge that he passed on Wednesday, but on Thursday morning, his eyes were all red and itchy, very similar to an allergic reaction.

Now I wonder if he truly passed or not.

Sounds like your son had a major reaction. Urgh. Big hugs to both of you.

On Dec 2, 2005

So sorry Jean- we were rooting for your son!! I'm sure this must be heartbreaking. But just remember that life now is just like life a week ago. You were doing well then, and you will continue to do well.

Did the doctor say anything about how your ds might be able to tolerate more now since it took so MANY peanuts to cause the reaction? Or might his tolerance go down due to the exposure?

We are all in this crazy boat together. When one hurts, we all hurt. I'm sending positive thoughts your way.

On Dec 2, 2005

How scary and depressing for you! At least the reaction happened in the right place for treatment.

Know that we are all thinking of you and your family. I always say a prayer for all FA kids and families.

------------------ [i][b]Allergy Eliminator [/b][/i]

On Dec 2, 2005

I just about cried when I read the title of this thread - I had been following the other thread - I always have such high hopes for anyone's child when they do a food challenge.

I hope you and your son are feeling better soon.

On Dec 2, 2005

That is horrendous! OMG - sorry that happened. Please do post later and let us know how you all are doing.

On Dec 2, 2005

SO SORRY TO HEAR THE NEWS. THANKS FOR SHARING YOUR EXPERIENCE WITH US. THINKING OF YOU, YOUR SON AND YOUR FAMILY

On Dec 2, 2005

I am so sorry also for what you and your son had to go through!

I am also sorry to say that this is not the first time I have heard this. A friend of mine had a similar experience where her dd was having a peanut challenge in the office and her reaction started after eating alot of peanuts- it was also quite severe.

I think we need to take away from these experiences that maybe it may take alot of nuts to trigger a reaction but you also never know what it may take for the next time!

I think we all need to take these allergies very seriously( As I know we all do, that is why we live on PA.com)

Anyways- very scary and again I am so sorry for your experience but will look for more from you about this experience when you are ready!

On Dec 2, 2005

So sorry to hear about your son. Ds failed food challenge after only a tiny bit and I was so disappointed. I'm sure you felt like you had it and then it was ripped away. Thoughts and prayers with you both.

Julie

On Dec 2, 2005

[img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] I'm sorry you're going through this and will be thinking of you this weekend.

On Dec 3, 2005

I'm so sorry. What sad news. That must have been so frightening for you and your son. Is he feeling better now? Is he really freaked out by this?

My best to your family,

Cathy

On Dec 3, 2005

Sorry to hear what happened, and I hope that everyone is ok now.

Sending lots of (((((HUGS)))))

------------------ Liz, mom to:

B: age 14 with asthma, bee sting allergy, mild EA's and eczema

M: age 11 with asthma, peanut & nut, severe EA's and eczema

A: age 6 with asthma, peanut, nut, fish, penicillin, severe EA's and eczema

On Dec 3, 2005

I'm very sorry, Jean. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]

On Dec 3, 2005

I'm so very sorry! What a horribly frightening situation for you all! My thoughts are with you.

On Dec 4, 2005

May I ask if this was the first time he came back with negative results on the blood and skin tests?

My allergist said that she would not consider a skin test until my son's blood tests came back negative a few years running. She didn't really say why, but I wonder if she just doesn't trust the blood test.

------------------ [i][b]Allergy Eliminator [/b][/i]

On Dec 4, 2005

Jean,

I'm so sorry that you and your son had to go through this disappointment and a severe reaction. I hope that you both are starting to feel better.

Take care, Naturemom

On Dec 4, 2005

Sending you my thoughts. Bless your heart. Hope your son is okay now. Did the experience really scare him?

On Dec 9, 2005

Quote:

Originally posted by Darkmage: [b]May I ask if this was the first time he came back with negative results on the blood and skin tests?[/b]

He's had negative RASTs in the past, but positive skin test. I no longer have any faith in the RAST.

On Dec 9, 2005

Quote:

Originally posted by kkeene: [b]Are you going to have his rast retested? to see if it has increased?[/b]

Thanks for the kind thoughts.

No, we won't run another RAST.

On Dec 9, 2005

Quote:

Originally posted by Nutforce: [b]Is that any indication that maybe his threshold level of peanut tolerance has increased and maybe traces would not pose as much of a danger?[/b]

Most likely his threshold has increased, but we can't know for sure. Perhaps he has an unusually long lag time between consumption and reaction.

On Dec 9, 2005

Quote:

Originally posted by mistey: [b]Did the doctor say anything about how your ds might be able to tolerate more now since it took so MANY peanuts to cause the reaction? Or might his tolerance go down due to the exposure?[/b]

Unfortunately, there is no way to know.

Thanks to everyone for the kind thoughts.

[This message has been edited by jeancbpugh (edited December 09, 2005).]

On Dec 9, 2005

Quote:

Originally posted by mistey: [b] But just remember that life now is just like life a week ago. You were doing well then, and you will continue to do well.[/b]

Thank you, Mistey! That is a lovely sentiment.

On Dec 9, 2005

Quote:

Originally posted by jeancbpugh: [b] He's had negative RASTs in the past, but positive skin test. I no longer have any faith in the RAST.

[/b]

I'm so sorry! I've heard a few people say that they have negative RAST but positive skin so they're not challenging...did your ds have a positivie skin test right before the challenge or was his last skin test negative?

I'm very curious b/c my ds' RAST is approaching negative and now I question what our next steps should be....

Thanks -Ree

On Dec 9, 2005

What a crazy week!

Last Thursday, DS6 failed the food challenge. The next evening we were on a plane to Tampa to consider a relocation. I voted no; DH voted yes.

Nothing like living/eating in a hotel a day after anaphylaxis. We lived on McDonalds and supermarket frozen foods (had a microwave and fridge).

My older one has a really hard time with environmental allergies and Florida is going to be horrible for him.

Can you say stress?

DS6 has recovered nicely from his allergic reaction. He doesn't seem frightened by it, but I sure am.

On Dec 9, 2005

Quote:

Originally posted by Ree: [b] I'm so sorry! I've heard a few people say that they have negative RAST but positive skin so they're not challenging...did your ds have a positivie skin test right before the challenge or was his last skin test negative?

I'm very curious b/c my ds' RAST is approaching negative and now I question what our next steps should be....

Thanks -Ree[/b]

His skin test this September was negative. The positive skin test was a couple of years ago.

On Jan 14, 2006

raising for sherkelsey

On Jan 16, 2006

Jean,

I didn't see this thread when you first posted it, but I wanted to let you know how sorry I am to to read the details. It must have been so very frustrating and scary.

By now, I guess life has returned to "normal"?

Hugs to you and your son.

Anne

On Jan 16, 2006

Quote:

[b] By now, I guess life has returned to "normal"? [/b]

Unfortunately, not yet. At the same time as the food challenge we found out we are relocating 1000 miles...which is not something a 6-year-old enjoys. He is showing a lot of stress and becoming a pickier eater.

------------------ Jean DS allergic to peanuts & watermelon (9/2005 neg RAST peanut & watermelon; 9/2005 skin test neg peanut, positive watermelon; 12/2005 peanut food challenge=anaphylaxis) other DS with pollen, animal, dust allergies

[This message has been edited by jeancbpugh (edited January 16, 2006).]

[This message has been edited by jeancbpugh (edited January 16, 2006).]

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