Fingerlakes Area- New York

Posted on: Fri, 06/13/2003 - 9:33am
wendysco's picture
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Joined: 05/03/2003 - 09:00

We are located about midway between Rochester and Syracuse. 2 1/2 year old ds PA, 16 month old dd, would love to meet others.

Posted on: Thu, 07/03/2003 - 1:37pm
wendysco's picture
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Joined: 05/03/2003 - 09:00

Just raising and hoping....

Posted on: Sat, 03/27/2004 - 1:30pm
renny's picture
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Joined: 03/15/2004 - 09:00

I live in Rochester. Have 4yr twins, 15mo old.

Posted on: Thu, 11/11/2004 - 9:38am
anonymous's picture
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Joined: 05/28/2009 - 16:42

I live in the eastern suburbs of Syracuse! I am hoping to connect with other mom's of PA kids....my 10mos old was dx last week with 4+ PA, EA and 2 dust. It has been an emotional week. What doctors do you recommend? I am still unsure about ours at this early stage. Have you found anyone in the area for a group?

Posted on: Sun, 01/09/2005 - 1:05pm
wendysco's picture
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Joined: 05/03/2003 - 09:00

Wow, I just realized there were responses to this. We live in Waterloo, PA ds is 4 now. We do what we can with FACTS in Rochester, wonderful people. We attended the food free Halloween party, it was great. I hope to attend one of their meetings near school time to see maybe what other's have in place.
We see Dr Kubicka at AAIR in Fairport, so far I think she's great. She also does work with FACTS I believe as a consult, speaking and such.
Right now I'm beginning work on gathering info to present at a school meeting to hopefully allow ds to attend pre-K next year. The school is absolutely food obsessed so this should be interesting.
I will update my profile to make sure there's a current e-mail.
Take Care.

Posted on: Mon, 01/10/2005 - 11:26am
renny's picture
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Joined: 03/15/2004 - 09:00

Hey Wendy great to read your post. I just found info on FACTS the other day, I was going to e-mail them. I'd love to go to a meeting. Oh and Dr Kubicka is my son's dr. too, I love her. My son is 5, we did real well in pre-k, he had a great teacher. I'll update my profile, if I even have one. I wasn't on this site for a while.
PS I could use a day of shopping, outlet perhaps!
renny

Posted on: Mon, 01/10/2005 - 11:36am
renny's picture
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Joined: 03/15/2004 - 09:00

little noah's mommy
Where do you live? I used to live in Syracuse( Liverpool) and am from Utica originally. I believe where FACTS holds its meetings is about one and a half hours away from you. Good luck in finding a dr. It's really hard in the beginning, as you get more informed you get stronger.
Good Luck!
renny

Posted on: Tue, 01/11/2005 - 8:42am
wendysco's picture
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Joined: 05/03/2003 - 09:00

Renny- funny,when I want to go shopping I go to Rochester [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] .
School negotiations were successful today as far as the Pre-K program, they seem well versed. Now the school negotiations begin, I have e-mailed the principal so we'll see what transpires.
Noah's mom - I probably live 45 minutes from you. Our ds was diagnosed at about 18 mos, thankfully we had been practicing avoidance anyways by sheer luck as we noticed certain things bothered his eczema.
I think there were some other people from the Syracuse area on here before.
We totally lucked out on picking our allergist, we contacted Strong and they recommended this group. I have to say though, before we went to the allergist EVERYONE thought I was crazy about the way I fed ds, I had hope the allergist would send us away with a kind smile and a starter script of Paxil for dear old mom. Instead I got a laminated card and a script for epi-pens.
On the bright side as long as we avoid what we need to, ds has relatively few problems. DD on the other hand reacts to heaven knows what (I have to get her in for skin tests) but her bloodwork has been negative. She is almost 3, and a few monbths ago landed in two ER's in the same day because we could not control her hives with Benadryl and Zyrtec, she looked like a burn victim. We still don't know why. The week after Christmas we went mattress shopping and I think she had a reaction to the cashmere mattress covers.
Maybe try seeing if any allergists are affiliated with University, always good too if you can get one that deals with asthma and immunology as well as allergies.
If I can be of any help let me know, I'll keep my eyes peeled for a more local group for you.
I have also e-mailed FACTS about maybe the more experienced parents (schools,504's,etc...) maybe holding a meeting to help out the newbies. Even just a general prepare for school get together would be nice. I'll post if I hear anything.
Take Care,
Wendy

Posted on: Tue, 01/11/2005 - 10:50am
Polly66's picture
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Joined: 02/05/2004 - 09:00

I live in Penfield, just moved from the Boston, MA area. I have a 2yo DS with PA and an 11 month old DD. I went to the FACTS meeting in December. Their next one is this Sat, 15th at the Fairport United Methodist Church from 10-12. They are a great group, I am so glad I found them. Their web site is [url="http://www.factsplace.com."]www.factsplace.com.[/url] I hope you are able to make it.
Polly

Posted on: Tue, 01/25/2005 - 3:18am
x-contaminated's picture
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Joined: 08/04/2004 - 09:00

Also looking for a support group in the Syracuse, NY area.

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