PxPixel
FAHF-2 - Peanut Allergy Information

FAHF-2

Author:
Publish date:

Hi All,

Had an appt with Dr. Sampson a couple of weeks ago. Unfortunately he had to cancel at the last minute for an emergency-BUT-since we were coming from Florida we kept the appt. anyway. FAHF-2 is still going into trials. When all is said and done, they won't tell you to go eat nuts or shellfish or whatever you are allergic to. You simply won't have to worry about an accidental ingestion or cross contamination. Dr. Sampson is also working on a rectal vaccine. That sounds promising as well but not a lot of infor on it. Beth

On Aug 27, 2007

Thanks for asking about the chinese herbal treatment. I'm praying that it works.

On Aug 27, 2007

Just not having to worry about cross contamination or accidental ingestion would be enough for us.

I don't see my almost 10 year old taking too kindly to a rectal vaccine though.

------------------ Cheryl, mom to Jason (9 MFA including peanuts, tree nuts, shellfish, coconut, sesame, squid) Joey (8 NKA) Allison (4 milk allergic, suspect shellfish, avoiding PN/TN for now) Ryan (1) nka *knock on wood*

On Aug 31, 2007

A rectal vaccine? I think Cheryl speaks for all our kids. Not to keen on that one. Hopefully, they can find another way of administering it.

On Sep 12, 2007

We got a copy of the papers and the list of ingredients. My FIL got a chance to review it and is identifying the Chinese names for the herbs so we can take it to our herb people. We won't get a chance to caravan up to the herbal place for a few weeks but once I do I'll add a blog entry of what's said. Expect a lot of "restoring balance" and "too much fire" talk but I hope to break down at least what's in it and how it's supposed to work - by Chinese medicine standards.

The results of the July 2007 trials are out. It's still mouse models but all the earlier findings are holding up. PubMed doesn't have the doc yet and I don't have access to brand new papers through Blackwell Synergy but I should be able to beg my friend to get a hold of it.

As for the rectal vaccine I'm assuming everyone is thinking suppository and not syringe. It's not uncommon for Chinese medicinal products to go through the bottom and not the mouth. My husband went through a lot of suppositories as a kid. In our case since our boy is so young rectal compound 'pill' is better. You can't puke it out or taste it. But I can understand your son's position. I hate asking for Tylenol at home and getting handed a box of suppositories.

On Sep 13, 2007

Hi previous poster (chen?)

I am sorry I cannot remember your login name-it is late at night and my brain is already asleep. If there is any way at all you could email me the Chinese names of the herbs I would be very grateful. My husband is from China and the next time we go back I would like to speak to his uncle who has an American MD but is also a Chinese medicine practitioner about this herbal medicine. I would like to try this herbal medicine and am willing to do it before they release it in its polished, heavily researched state.

Thank you in advance! mmgshih

By madison_mom on Jul 21, 2010

Hi ijkchen,

I was wondering if you could email me either the Chinese-only version of the FAHF-2 formula or the bilingual version. I would be so grateful. My son has developed peanut and tree nut anaphylactic reactions, and I'd really like to try to make him a little safer. He's in pre-school and it's just . . . so scary!

My email is: carlageovanis@hotmail.com

Thanks so much,

Carla

On Sep 13, 2007

Absolutely. In case this formula gets stalled and never makes it to market I will keep a copy on hand. This week is tough but next week should be fine. If you want a bilingual version it will take a little longer only because FIL will write it down and I have to enter it into a word processor. I'd be happy to do that as well.

On Sep 13, 2007

Quote:

Originally posted by ijkchen: [b] As for the rectal vaccine I'm assuming everyone is thinking suppository and not syringe. It's not uncommon for Chinese medicinal products to go through the bottom and not the mouth. .[/b]

regarding the rectal vaccine. we spoke briefly with our allergist at our last visit regarding promising research. She did her fellowship with Dr Wood i believe. And has co-authored FA research with Wood, Sampson & Burks -- so i feel she is really "in tune" with the latest stuff -- i love her!

She said that the FAHF results were encouraging, and that Burks oral immunotherapy were encouraging too (but the field has been disappointed before with oral immunotherapy for FA, so she was cautiously optimistic)

but the research she was most excited about, the one that she believed held the most promise at this point was rectal immunotherapy - because it bypasses the respiratory track and gut.

I will double check w/her at our Nov checkup, but i am fairly certain that the rectal "vaccine" isnt a vaccine.. moreover, its not FAHF being rectal administered but immunotherapy..

frankly, IMHO, any treatment with considerable promise is worth it, regardless of route of administration.. for us at least..

On Sep 14, 2007

[url="http://www.acupuncturetoday.com/archives2005/dec/12fratkin.html"]http://www.acupuncturetoday.com/archives2005/dec/12fratkin.html[/url]

On Sep 14, 2007

Dear ijkchen,

Thank you for taking the time to respond to my post. I would be very grateful if you would give me the names of the herbs in pinyin and in chinese characters if at all possible. You can also email me at [email]mariagoff@hotmail.com[/email] if that is easier. It can't hurt to try this route. Keep me posted on how well the herbs work for you.

Thank you again for sharing your knowledge with me.

mmgshih

On Sep 19, 2007

beth v, where in FL are you?

On Sep 20, 2007

Hi ctmartin, I live in Wellington, Florida. This is west of West Palm Beach. Where do you live?

On Sep 20, 2007

i'm in orlando. too bad ... i would have loved to have someone local to commiserate with. it's awfully lonely [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]

By dimitraman28 on Mar 13, 2013

Hi Brad,

I just found this post and am very interested in finding out more about this! I have two daughters who both have peanut and nut allergies. I would love if they no longer had the fear of a reaction! Could you email me the formula or where I can find this? I would appreciate any and all help.

Thanks, Dimitra

email: dimitraman28@gmail.com

By brad whisnant on Aug 5, 2010

burke, i dont know who you worked with,

but all my patients????

12 grams of the formula per day. about 1-2 dollars a day.

you need to buy the herbs, mix them together and take the formula. Its very easy and a very basic formula. The orginal formula is Wu Mei Wan, its an anti parasitic formula we all learn our first year in chinese medical school. very basic.

take the pills for about 3-4 months, allergy of peanuts will be gone....then you can take about 3 grams a day, for about 6months...and then you should be done...i.e. cured...

On Oct 17, 2007

There is actually a previous thread talking about this. I used the FAHF-2 formula 2 years ago. I got the mixture from a Chinese Herb distributor in Winnipeg. (Canada).

Ofcourse, who knows if the active compound was in the powder I got or if they were even prepared correctly or even the right herbs. The original compound was actually referenced in chinese medicine for fighting gastrointestinal parasites. I questioned them a bit on it and they seemed reputable, but, who knows. Of course, I didn't know what kind of dose to take or exactly what concentration I was talking. I took 10g a day for 6 weeks (which cost ~$100).

I took the peanut specific IgE test before and scored a 26.2. After 8 weeks I took the test again and it was 22.8. Is that within the experimental error of the test? Probably. Was I still allergic? Yes. Did it just not work at all, was the human dose way to low (that was a possibly - I was looking at the dosing of mice - how to your correlate?) Anyways, for me to do 40 or 50 grams a day would be possible, but it would cost $500 and I didn't want to spend that with far too many variables to be sure of anything.

However, I didn't detect any side effects for the time I took it, if that is anything helpful.

waiting for a cure... Burke

On Nov 26, 2007

could i also please get the list of herbs e mailed i would be grateful. [email]armartin@telusplanet.net[/email]

On Dec 7, 2007

I hear that Mt Sinai is beginning a test of FAHF-2 on adults. My primary physician has a specialty in chinese herbs. And I started doing NAET -- eventhough it seems crazy. And just WHY do I have to clear everything before we get to peanut?

But, someone at school told me her kids were helped.

CAn I too please have the FAHF2 list? I am [email]alice_10025@yahoo.com[/email]

Thank you. A.

On Dec 14, 2007

We have done NAET and had some success. We are due to start up again after the holidays. We also do Bodytalk which is very similar.

On Feb 8, 2008

Hi Was wondering if I could get a list of the ingredients in FAHF-2 I have food allergies,(ige is over 250). my girl friend is chinese. If i could get the list of ingredients ( in chinese or english) we know of traditional chinese doctor we could work with.

Will be happy to let you know of the outcome.

Regards Alfred

On Feb 12, 2008

Hi I wondering if you could give me the FAHF-2 formula. I have access to a reputable chinese herb doctor. I am will to spend $500 to test this for myself with reasonable human dosage. If you can give me the list of ingredients I will test this out on myself and report back to the blog the results.

Sincerely

Alfred P.S. I recognize the responsiblity for this is mine good or bad result.

On Feb 12, 2008

If you got the list of ingredients for FAHF-2 could you give them to me. I would like to try it. Will report the results back to the blog. I suggest a number of us try it assume it meets the "chicken soup" criteria (does no harm) and report back.

Sincerely Alfred

On Feb 12, 2008

If you click on the link that Corvallis Mom listed, you will find some formulation information.

Good luck and keep us posted.

[url="http://www.acupuncturetoday.com/archives2005/dec/12fratkin.html"]http://www.acupuncturetoday.com/archives2005/dec/12fratkin.html[/url]

On Feb 26, 2008

I keep hearing about possible allergy cures being studied, but never hear about results. Where can a person find the latest information about these studies (the interleukin-12 molecule and FAHF-2 for example)? If the studies go well, when might we expect a cure to be available?

My son (10 -dairy allergy) had an allergy test today and his "milk welt" was even larger than last time. *sigh* The milk allergy is much worse than the peanut allergy (14 year old son - allergic to all nuts).

On Feb 27, 2008

Hi All, I recently e-mailed one of the Docs that we seel along with Dr. Sampson. Here's the latest....FAHF2 went to human trials. The initial safety phase was started and given to adults. It will be some time (maybe even a few years) before they know if it is effective. Dr. Sampson is still working with the FDA to get approval to start trials for the vaccine that will be administered rectally. They don't know when that will start. All and all it sounds promising. If anyone else hears any more updates please post. Thanks, Beth

On Mar 4, 2008

I would be completely willing to be a test subject for that; even though its in the nether regions! I would even welcome genetic alternation, but I don't think we have that yet.

By AKing on Mar 30, 2009

Hi Jeanne,

My daughter (2 years 10 months old) has severe peanuts and eggs allergy. She will be going to pre-school soon. I've been withholding my daughter to younger classes since she couldn't talk at the time. There's always cross-contamination or with other kids. I just enrolled her to Pre-K 3 in September '09 and is really worry even she can tell people that she has food allergy. I am sure you know what I am going through without me elaborating.

I was excited to see your post. We actually live in the NY area and thinking of going to see Dr. Li at her clinic if possible. I would like to know how's your son doing right now after having treatment? Was herbal medication given to him? Has his IgE level lowered? Could you please give me some specific information? Any info helps! Hope all is well!

Thanks, Amanda

By brad whisnant on Aug 5, 2010

carla,

any practitioner should be able to administer you Wu Mei Wan, (Fafh-2). Its a very basic formula.

it works very well, i give it to all my patients...

By madison_mom on Jul 21, 2010

Hi Jeanne,

My son just got diagnosed with peanut and tree-nut allergies, and I'm really interested in FAHF-2. Were you able to see Dr. Li and get the herbal formula? If so, how well did it work? Thanks so much,

Carla (very worried mom)

By ray38 on May 27, 2012

hi, jbud27; I am new to this forum but am seriously considering taking my daughter to Dr. Li too. She is currently 2.5 years old and is allergic to peanut, egg, possibly coconut, chickpeas. I was wondering if you did start the treatment and what has been your experience....both in terms of results as well as the logistics of administering a 2 year old multiple daily meds of which one is reportedly etremely bitter. Thanks very much for your help

On Oct 23, 2008

My son was diagnosed with a peanut allergy last spring. After reading about FAHF-2, I contacted Dr. Li at Mt. Sinai. She offered to see JoJo in NY at her traditional Chinese Medicine clinic because JoJo (only 2) was too young for the human trials. We are treating him with an herbal combination, with the hopes of lowering his IGE levels. Dr. Li has had success with the herbal combination in the past. We go back to see Dr. Li in January. We are hoping for lowered IGE levels.

By madison_mom on Jan 20, 2011

My 3-yr old son is using it right now. The immunologist we're working with has said it's very safe, but with allergic children it's best to go slowly and watch closely for any type of allergic reaction. It's my understanding that it's relatively unusual for people to be allergic to herbs, and outside of allergic reactions the formula has seemed quite safe. Dr. Li has now dropped the Wild Ling Zhi out of the formula. That said, the major problem is that one of the components is terribly bitter (seriously), which is why Mt. Sinai has been considering a suppository for children too young to swallow a capsule. Still, we do get our son to take it by steeping it in water and using an oral medicine syringe. He's not happy about it, to be sure, but he does it.

By pxleal on Jan 20, 2011

Brad, Is FAFH-2 safe for young toddlers? My 18 month-old daughter has peanut allergy and I am considering this option, not sure if her age is contraindication for this. Thanks.

By brad whisnant on Aug 5, 2010

all i can say so far, of my 22 patients, all 22 now are peanut allegy free and 16 of them do not even take the herbs anymore. all these people were wearing masks, couldt go outside, were not able to do allergy testing or allergy immunotherapy because of the condition.

FaFh-2 is amazing, it comes from an ancient formula of Wu Mei wan. Wu mei wan is an anti parasetic formula. It mitigates the T branches of the immune system. It works BECAUSE the the branch of the immune systmen that is responsible for anti-parasitic invasion is ALSO responsible for anaphlatic allergy such as peanut allergies....

I make the formula by hand and give to my patients.

Its not a "special" formula, its a very basic normal formula we all learn in school. Every practitioner in the country should be able to make it.

its not rectal, its not liquid, you just buy the herbs in the powder form, put them in capsusles. very easy.

its so surprsising to me that the world is suffering and is such a cheap, easy and effective way to treat this problem.

i treat it everyday in my clinic

By DEEPTIK on Apr 11, 2011

Hi Carla,

Could you please update me on how it is going with your son. Did you get his IgE level tested? I am also planning to take my daughter to Dr. Li. I live in Canada. It is very far for me but I will take my daughter to Dr. Li if the herbs are effective.

Thanks, Deepti

By madison_mom on Aug 6, 2010

Oh--one other thing to add--in addition to the two herbs dropped out of the traditional Wu Mei Wan formula (the 2 herbs were Zhi Fu Zi, Radix Lateralis Aconiti Carmichaeli Praeparata and Xi Xin Herba Asari) they also added in one herb, the Ling Zhi. Again, it's possible this might make a real difference in terms of efficacy.

By madison_mom on Aug 5, 2010

Hi Brad,

We actually made an appointment with Dr. Li and are flying out to New York in October to see her. It's very expensive for us, but I'm more than willing to make financial sacrifices if it can help keep him safe. My understanding is that the NIH required Mt. Sinai to remove two components of FAHF-1 (maybe the original Wu Mei Wan?) because of uncertain safety profile, which led to the creation of FAHF-2, with the following new formulation (hope this will help anyone else who's been looking for it):

Ling Zhi (Chi), Ganoderma Lucidum, Fruiting body, 28.17% Wu Mei, Fructus Pruni Mume, Fruit, 28.17% Chuan Jiao, Pericarpium Zanthoxyli Bungeani, Seed, 1.41% Huang Lian (Chuan), Rhizoma Coptidis, Root, 8.46% Huang Bai, Cortex Phellodendri, Root, 5.63% Gan Jiang, Rhizoma Zingiberis Officinalis, Root, 8.45% Gui Zhi, Ramulus Cinnamomi Cassiae, Twig, 2.81% Ren Shen (Hong), Radix Ginseng, Root, 8.45% Dang Gui (Shen), Corpus Radix Angelicae Sinensis, Root, 8.45%

I know that at Mt. Sinai they're getting reductions in IGE levels and in anaphylactic reactions in mice, but I'm not sure that they're achieving 100% tolerance. (Maybe the components they took out are important?) I would just consult with a local TCM practitioner, but I'm nervous about two things: 1) the expertise of the practitioner--I don't really have a any good way to assess this; and 2) the possibility of heavy metal or other contamination in the herbs. I'm pretty sure that if I can get access to herbs from the same source that Mt. Sinai is using they'll be clean and safe.

I have not the faintest idea how I'm going to get these herbs down my son's throat, since he's 2 & 1/2 and I'm pretty sure can't swallow a capsule. Not a clue on that, but if there's a will, there's a way . . . (hopefully)!

THANK YOU, though, for telling us the name of the formula in TCM. I might try it on myself, since I have one life-threatening allergy to pine nuts.

By trung.nguyen@shaw.ca on Sep 28, 2010

Hi Brad, My son has severer peanut allergy. He is 6 year old and weigh about 45 lbs. What is the correct daily doses for him and how long does he has to take it? Thanks. Trung

By shtwin on Nov 28, 2010

Could any of the parents who are seeing Dr. Li tell us how it is going? I am debating taking my son . . .Thank you!

By GloriaT on Jan 24, 2011

Hi Carla, It's great to hear from another parent with a child seeing Dr. Li. The Mei Huang pills we were given are small enough for my son Nick (4.5 yrs old) to swallow, so we don't have to deal with the bitterness issue. He also takes 4 Ling Zhi tablets a day (--interesting to hear that Ling Zhi has been removed from the formula. Maybe Dr. Li prescribes different herbs for her patients based on their allergies/symptoms?) The Digestion Tea goes down just fine for us as well, I separate the capsules, dissolve the tea in hot water, then I mix with honey and an ice cube and Nick drinks it with a straw. We have seen Dr. Li twice so far, we meet every month and will have Nick's blood tested after 6 months of treatment. Last month Nick had a runny nose, and Dr. Li gave us 3 new teas (Cold, Cough, Prevention). The Cold tea seemed to work, but it's much more bitter than the Digestion Tea, so not very popular here.

By madison_mom on Jan 20, 2011

Hi Gloria,

We've been doing this since October. We haven't gotten Max's IGE levels re-tested, or had the more accurate cellular (?) level testing yet, so I can't report on that. The only challenge has been having to take the bitter part of the formula twice daily. We separate out the digestion tea, which doesn't taste bad, and give that to him with 3 teaspoons of water. The Mei Huang tea tables we crush with a mortar and pestle, then stick in a shot glass (so you don't have to use much water) and put only 1 tsp of water in, then give it to him with an oral syringe. The lotion is no problem (it's a nice before bed activity), and the baths are no problem for us. Has anyone found a way to give the Mei Huang to their kid that makes the taste more tolerable? Bitter or not, if it can help keep my kid alive I'll do it, but I'd sure love to know if anyone has hit on any other solutions. We follow it up with a small spoonful of honey and some milk.

By dkwill on Apr 8, 2011

Hi Carla,

My daughter is allergic to egg and gluten. I would like to take her to Dr. Li. Could you please let me know how it is going with your son. Did his IGE levels improve after the treatment. I suppose his 6 months would be over by now.

Thanks, Deepti

By GloriaT on Dec 16, 2010

I would also like to talk to other parents taking their children to Dr. Li. I took my son to see her last month, and he's been taking the TCM tablets, the herbal baths and using the blue herbal cream. We're so new I don't have much to add, but would love to hear about other parents' experiences, children's IGE levels, etc. Gloria

By uma_ru on Apr 11, 2011

Hi Deepti, Have you taken your daughter to Dr.Li. My son just turned one and has several food allergies. How old is your daughter ?

Thanks, Uma

By DEEPTIK on Apr 11, 2011

Hi Uma,

Actually I forgot my password and hence had to create a new account. My daughter is 7 years old. I have not yet taken her to Dr. Li but I am thinking of taking her. I feel your son is still very young and can grow out of his allergies soon. I would like to get some input from Carla or Gloria as to how it is going for them.

By uma_ru on Jan 12, 2012

Hi Deepti - Can you please update us on how the appointment went and if you started the treatment, how the treatment is going. Also, please check your messages.

By DEEPTIK on Apr 11, 2011

Hi Uma,

Actually I forgot my password and hence had to create a new account. My daughter is 7 years old. I have not yet taken her to Dr. Li but I am thinking of taking her. I feel your son is still very young and can grow out of his allergies soon. I would like to get some input from Carla or Gloria as to how it is going for them.

By uma_ru on Apr 13, 2011

Hi Deepti - Thank you for your response. Yes, I am looking for their response too. Can you check your Message that I sent you.

By chezscoville on May 3, 2011

I took my son to a local chinese herbalist and had him make the faf2 formula for me. I gave it to my son for two weeks and then retested his IgE levels...and they went down. His peanut numbers were above 100, and now they are down to 75. I know that 75 is still very high, but I was so happy to see a decrease. Do you think the drop could be related to the herbal treatment, or can peanut numbers that high go down on their own in a four-year-old? He had 2 grams a day (one in a.m. other in p.m.). Is that the right dosage for a 40 lb. four-year-old? Any input would be appreciated!

By uma_ru on May 4, 2011

The decrease in values is significant. I am really happy for you and I truly hope that the values will go down at the same pace. Good luck to you and your son.

By chezscoville on May 3, 2011

The last time I tested him was last August. I normally test on a yearly basis, and his peanut allergy has seen significant increase every year for the past three years (even though he hasn't had any peanut exposure that we know of). I was very excited to see the levels go down instead of up. I had stopped giving him the formula, but I think I will start again to see if I can get his levels to go down even more.

By uma_ru on May 3, 2011

Chezscoville - When was the last time you got him RAST tested ? The fact that the values are going down is very exciting.

By alokorea on Apr 14, 2012

sorry it's taken me so long to post, but the appt was very good. Dr. Li is super nice. Spent lots of time with us explaining how the treatment works and what we could expect. Made it clear that this was not some kind of magic bullet--she advised us to think of it as a 2-year plan, where we would try it out, and see what kind of results happened. Showed us some pretty convincing data from patients whose ige levels went from 10,000 to 2,000, or 4000 down to 800 within two years.

In a case like ours however, where the peanut allergy is relatively speaking mild (my daughter's ige has been below 100 for 4 years, and climbed just above 100 in the latest test), she explained that we might expect to see the levels continue to rise, but that hopefully the rate of rise would moderate, and then slowly go back down. that was the case with another patient, a younger child who came in with levels around 200, her levels continued to climb for 18 months up to 300, and then turned back around and went down

we were debating whether to try enrolling our daughter in a clinical trial, but decided that we would wait for oral immunotherapy. after learning that being on the herbs would NOT disqualify her from oral immunotherapy [apparently you just have to be off treatment for 12 months to qualify for the trial, if and when it happens], we decided to go ahead with the fahf-2

the treatment protocol is pretty involved. there are granules you have to pour into their nightly bath; a claylike greyish lotion to be put on daily, and then a zillion different pills.

the pills come in two types: largish capsules, and smaller pills. my daughter actually has no prob with the capusules, cause they are coated, but we had to experiment a bit with the best way to take the pills. they are small, but not coated so they dissolve on your tongue and taste bitter. finally, we figured that just putting one or two in a spoonful of yogurt was the best way to get them down. i also decided to try herbal treatment for my seasonal allergies and have been drinking special tea and taking a different series of pills (10 pills/ 2x day).

all told, it wasn't cheap--we paid $800 that day for 2 appts and a roughly 3 month supply of pills for both of us. i have since spent another $1300 on herbs which should last through the summer [we live far away and so ordered up a big delivery]. but considering how much we spend on buying special food and epipens and doctor's visits, it seemed like it was worth a shot. just being able to go to a birthday party or easter egg hunt or ice cream shop and not worry about accidental ingestion would be worth every dime.

you are supposed to retake the allergy tests every 3 months to see how things are going; since we delayed the start of treatment we haven't done this yet, but at least anecdotally, i can say that my seasonal allergies do seem better than they have been in years past. over the past two years, i have had to go on a course of prendisone in the spring when things got bad and this year, knock on wood, i haven't had to yet. but who knows--that could be due to a million other factors like the weather or whatever.

apparently there is some research in the works about combining fahf-2 with oral immunotherapy, the same way they have been trying to see if xolair or sublingual or other things can help in the prep stage and make the oral immunotherapy go better.

we were also a little wary at first of trying something so new, and also where there were few long term studies (like what if it cures you of allergies, but gives you cancer late in life or something like that?) but the other doctors we consulted did not seem too concerned about these long term safety concerns, so we decided to give it a shot--

By uma_ru on Jan 12, 2012

Alokorea - Can you please update us on how the appointment was.

By alokorea on Jan 2, 2012

We went to see our allergist in Chicago in Sept, and she told us that there a nationwide clinical trial of FAHF-2 going on for subjects 12 and up.

I then talked to the nurse who is actually running the trial and she said that results have been very promising so far--it works, and what they are looking at mostly is how long to take the pills for, what the maintenance dosage should be, etc.

She said that younger kids, ages 6 and up would be the next group to be studied, but that they were not sure if they would take part in that part of the study since it does involve swallowing something like 20 mini pills a day.

So we contacted Dr Li directly, and made an appt to go to her Chinese medicine clinic in NYC next week. She had us do a bunch of blood work before our visit--liver, kidney enzymes, a panel of allergy blood tests, and also fill out a bunch of other forms with our health history.

She sees patients 2 Saturdays and 1 Wed a month, and it was pretty quick to get an appt once we did all of the blood work.

My 6 yr old daughter has very severe peanut allergy and I decided that I would try it out too, for my seasonal hay fever. After this first visit, it looks like we will do blood work every 3-6 months, and also go to her clinic every 6 months to be checked out.

i guess we could have also just taken the formula from the web and gotten a local Chinese doctor to make it for us, but i was thinking that with Dr Li

a) the purity/source of the herbs is guaranteed (she has a special grower and tests all the herbs in her lab) b) hopefully we will get pills, and not have to drink the super bitter tea and c) we will be under the care of someone who really knows a lot about this particular formula and is an MD and will monitor us regularly for any potential side effects

i have posted below the email we got from the administrative asst who runs her schedule, Sharon Hamlin. Contact info is at the bottom.

i'll post again with more details after our visit next week **********************************

Good afternoon: Below you will find the lab work that's needed for the visit once you get all required information please call me to set an appointment. I’m attaching the information forms so that you can fill them out ahead of time and faxed or scanned back to me before your appointment, if you have any questions please feel free to call me at 212-241-1755. Clinic address: Ming Qi Natural Health Care, 161 Madison Avenue, 12th floor, between 32nd and 33rd Streets. We will need a copy of your or your child's lab test results before visiting Dr. Li, and we would like to monitor several blood tests every 3-6 months during the traditional Chinese medicine treatment. The lab tests include the followings

1) Liver function tests: AST, ALT 2) Kidney function tests: BUN, Creatinine 3) Total blood counts: white blood cell count, hemoglobin, and platelets 4) Total IgE: total IgE 5) IgE to specific foods and allergens: IgE for example to soy, milk, egg, peanuts, wheat & environmental things like cat, dog, dust mites, and pollens

[note: the formatting of the stuff below got messed up when i copied it from my email]

Food IGE Environmental IGE Apple A. Alternata Avocado A. Tenuis Almond A. Femigatus Cashew Birch Cod Fish C. Herbarum Egg White Cat Dander Egg Yolk Cockroach Hazel Nut D. Farinae Milk D. Pteronyssinus Peanut Dog Dander Pecan Dog Epithelia Pistachio E. Purpurascens Shrimp Elm Soy bean F. Monilforme Walnut Horse Dander Wheat Maple Sesame Seed Oak If diagnosed with asthma, please also send a copy of a recent lung function test. Please scan or fax the results at your earliest convenience; our fax number is 212-241-9999.

Warmest regards, Sharon M Hamlin Sharon M. Hamlin Administrative Coordinator Center for Chinese Herbal Therapy for Asthma and Allergy, NCCAM CERC: Center of Excellence for Research in CAM Division of Pediatric Allergy & Immunobiology Mount Sinai School of Medicine; Box 1198 One Gustave L Levy Place New York, NY 10029-6574 Phone: 212-241-1755 Fax: 212-241-9999 E-mail: sharon.hamlin@mssm.edu

By Nice1704 on Sep 23, 2011

Hi all! I know this thread is rather old but I have been following it for a while now. I would really, really appreciate it if any of the parents who have seen and/or still seeing Dr. Li can update us of their progress (even if, God forbid, there is little or none). We are taking our 4 yr. old (peanut, egg, coconut and tree nut allergies) to see Dr. Li and I would love to hear from parents who have had experience with FAHF. Thanks in advance!

By ditadiya on Dec 31, 2011

Hi

My 12 year old has very severe egg(off the charts) and some tree nut allergy.. I stumbled across this board while trying to look for some medicine that would atleast reduce her reaction in case of accidental ingestion.

Can someone pleaase share their experience with FAHF-2 and if it did help your kid outgrow their allergies?

By uma_ru on Oct 16, 2012

Hi Alokorea - Thank you very much for the update. Please update again when you get the blood work done next time.

By alokorea on Oct 15, 2012

we figured out how to take the pills and she can swallow them all just with a glass of milk now. no real change in her overall ige level or peanut ige levels, yet, but last time we went to NYC we met another mom in the waiting room who had very good results after 18 months with her 4 year old boy. his milk, cashew, and peanut ige levels all decreased sharply over that time period. so we are hopeful. it has only been 6 months so far

the nighttime routine is quite elaborate; we now have two additional creams to administer since dr. li said that one of the issues is actually getting the drugs to the cells that need them. so in addition to ingesting the stuff, they also use the skin as a means of delivery.

and yes, dr. li will treat people in her clinic who are not enrolled in a trial

for those of you who are interested in how the fahf-2 clinical trials are going, check out this blog by a mother whose son is in the trial in chicago:

http://foodallergybitch.blogspot.com/2012_10_01_archive.html

very encouraging news on that end!

By uma_ru on Oct 14, 2012

Hi alokorea - Thank you very much for post and explainign in detail about the appointment. How is your daughter doing with the pills ? Have you got the blood work again ?

By Samsdad on May 16, 2012

Hi, I'm brand new to these types of forum. I would love to know whether Dr. Li and MSSM treat children such as my son to increase tolerance or whether she only does so as part of her clinical trials?

By ditadiya on Jan 8, 2015

Any further update on the progress with FAFH-2 and how long it would be before it is FDA approved.

Also anyone knows a practitioner in SF Bay Area that could make this formula?

I have a highly allergic 15 year old daughter (Eggs, Tree Nuts, ) and on the look out for more information on this.

Related