FAAN requesting 504s and IHPs

Posted on: Thu, 02/13/2003 - 4:35am
Gail W's picture
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Joined: 12/06/2001 - 09:00

You may have noticed in FAANs last newsletter a blurb that FAAN is looking for 504 plans and IHPs. I had reason to talk to Chris (at FAAN) recently and he mentioned that he's received only a handful. Just thought I'd bring this up in case anyone missed their small notice. Mail to FAAN "attention Chris".

Gail

Posted on: Thu, 02/13/2003 - 5:38am
Rhonda RS's picture
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Joined: 02/24/2001 - 09:00

Gail! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Come stai!
Did Chris from FAAN happen to say what he plans on doing with them?
Why this interest...now...
How are things going by the way?
Take care,
Rhonda

Posted on: Fri, 02/14/2003 - 12:32am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Hey there, Rhonda! We're doing great... thank you for asking.
I don't know why the interest now. I wondered that myself when I saw the extremely small notice in the newsletter. Chris asked me why I thought the lack of response. My thoughts were that the request could have been missed and that it didn't address any questions we parents have about confidentiality and how FAAN would use our documents. I suggested he make another plea (that addressed these concerns), and also put it on their website.
Maybe they are getting ready to really look at this? I have been sadly disappointed with FAAN in this particualr area.
Are you thinking of getting involved in this, Rhonda? I hope so! You have so much to offer them.
Gail
P.S. I'm just curious, did FAAN ever notify you of your nomination for an award last year?

Posted on: Sun, 02/16/2003 - 8:36am
Rhonda RS's picture
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Joined: 02/24/2001 - 09:00

Hi Gail!
I am disappointed too.
No FAAN did not notify me. Thank you though.
I won't be contacting FAAN regarding the school issues. If they were to approach me, I would assist them.
I'll send you an e-mail with some detailed thoughts.
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Rhonda

Posted on: Sun, 02/16/2003 - 3:04pm
Anonymous's picture
Anonymous (not verified)

I would just LOVE to see what river has to say about this! LOL! At any rate, given my feelings re FAAN (re schools), I wouldn't be submitting anything to them.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Mon, 02/17/2003 - 1:15am
Rhonda RS's picture
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Joined: 02/24/2001 - 09:00

Hi Cindy!
I responded to you on the "504 Binding Doc" thread. -I have not been following River's threads. What is her take on the issue with 504s and FAAN?
Has FAAN helped you at all in Canada?
Cindy, what is your accommodation plan called in Canada? I don't know much about Canadian issues (my husband's mother is from Quebec though [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img])
Take care,
Rhonda

Posted on: Mon, 02/17/2003 - 5:08am
river's picture
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Joined: 07/15/1999 - 09:00

HI Rhonda, I find FAAN's request for 504s more than a little disturbing. Now, I think that I understand what the 504 is about and it's a very personal and private matter between the school and the parents, as would be an IEP, (Individual Education Plan.) To request that people send them these highly private documents is highly suspicious in my mind and completely inappropriate. The lack of professionalism is appalling to me.
Of course I do not trust FAAN at all, as I would not trust the Heart and Stroke Foundation if they were receiving funds from the cigarette companies and tobacco farmers.
I would advise that people not share this private information with FAAN---I believe that no good can come of it.
On the Main Discussion board you can find the newest thing I've dug up under the thread American Peanut invasion in Canada. Apparently Dee Dee, (as in Dee Dee the NPB peanut farmer executive, who is said to have had 'conversations' with the 48hours producers, although has been denied as the truth by 48hours), has been 'wining and dining'a couple of Canadians who are in the fore front of peanut allergy research and PR. I know they'd say it was all innocent but....

Posted on: Mon, 02/17/2003 - 7:03am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Thanks for sharing that, river. I wondered why there wasn't more enthusiasm about this topic. I was envisioning a library collection of IHPs and 504s that could be used as models by members in process of creating their own plans. I guess I'm naive as I wouldn't mind sharing my documents with FAAN if it helped another family. I have shared them (copies of originals with names blackened out) with others here on this board.
Anyone... how could FAAN used them negatively? I have not sent mine to them yet and I'm questioning if I should. Can people elaborate on this?
Gail

Posted on: Mon, 02/17/2003 - 9:15am
river's picture
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Joined: 07/15/1999 - 09:00

I guess it depends on whether or not you trust FAAN. I simply cannot trust any organization with such a financially significant relationship with the American peanut industry. Even if they have 'good intentions' (alas the path to Hell), they are still sleeping with the 'enemy', (I will call them that because I have never seen them act otherwise.) Who's to say what FAAN may blurt out in the throws of passion.
How could the 504s be used against the children they are meant to protect? Possibly by FAAN sharing that information, (directly or indirectly), with its financial backers who have a very obvious agenda to encourage and lobby for continued and increased comsumption of pb and peanut products in the public schools.

Posted on: Mon, 02/17/2003 - 11:44pm
Anonymous's picture
Anonymous (not verified)

river, I knew your opinion would be valuable in this thread. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
RhondaRS, although some Canadian PA parents have written school plans in place for their children, it is actually not common. Having said that, I do have to say that there seems to be a wave of PA parents in Canada now having written school plans implemented with their school boards. Why? Because the school boards are not adhering to school board policy re anaphylaxis.
In Ontario, Canada, where I live, each school board basically has the same policy re anaphylaxis in the schools using the Anaphylaxis Handbook. Because this is quite comprehensive and gives a PA child the *right* to a "peanut free" classroom, we basically shouldn't need written school plans. We're very different than in America, although not, apparently, if you live in British Columbia.
No, we're pretty good "up here" as far as policies already in place in the school system to deal with anaphylactic children and for the most part, we don't need written school plans. It is totally different than having to have a 504 Plan in place for your child to enter school in relative safety. In Ontario, we have that right, without any paperwork coming from home at all.
Hope I answered your question okay.
Having said that, and realizing my written school plan is a totally different thing (oh, also it is not a legally binding document as the 504 Plan is) than a 504 or IHP, I would NOT share my information with FAAN either.
I'll share my information here, with other PA.com members who want to look at my son's school plan, but no, given the information I have read here about FAAN, I wouldn't be sharing it with them.
Basically, my stance is the same as river's but I can't word it as effectively as river can. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Tue, 02/18/2003 - 12:03am
California Mom's picture
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Joined: 07/14/2000 - 09:00

I never noticed the request in the FAAN newsletter. I'm surprised I missed it; it must have been quite small. I would like to know why they want them. I have found FAAN to be a very useful resource in getting "credible seeming" information to share with our school. I don't like their stance on bans, however. I would consider sharing Leah's 504 if I felt some good could come of it. Miriam
p.s. Which newsletter was it in?

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