FAAN...............

Posted on: Thu, 03/29/2007 - 6:11am
chanda4's picture
Offline
Joined: 12/14/2006 - 09:00

Okay, lets bring this up to it's own topic...I want to know why you hate FAAN and why you love them....this will give you the opportuinity to voice your opinion(keep civil, these are opinions and we are all entitled). Is the majority against FAAN because of the *ban* comment, really??? Or is there more too it? How do you think FAAN helps(if at all)?? I would like to hear what you think, THANKS

------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 (milk and egg)

Posted on: Thu, 03/29/2007 - 6:57am
NicoleinNH's picture
Offline
Joined: 06/21/2003 - 09:00

FAANcy
[This message has been edited by NicoleinNH (edited June 10, 2007).]

Posted on: Thu, 03/29/2007 - 7:16am
Mom2Ian's picture
Offline
Joined: 02/26/2007 - 09:00

I had the same question. I'm really new to all of this. The very first thing I was told after ds was diagnosed was that I needed to get in touch with FANN. From what I can tell anyone trying to find a cure for this thing has my support. I would be totally lost with out the information I have gotten there and here.
On the other hand, I have not had to deal with needing a ban or any of the other issues I have read that people here disagree with them on.

Posted on: Thu, 03/29/2007 - 7:49am
booandbrimom's picture
Offline
Joined: 08/23/2000 - 09:00

Love FAAN. Agree with virtually all their stances. Have learned an amazing amount from their newsletter and conferences.
Do not believe at all that their work is influenced by the peanut lobby.
Still say there's nothing stopping any of the vocal critics from forming a more "right-leaning" nonprofit equivalent if they want to do it.

Posted on: Thu, 03/29/2007 - 8:10am
ajas_folks's picture
Offline
Joined: 04/28/2000 - 09:00

Just linking to an earlier discussion on this subject, though this may have already been linked in other thread.
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/002148.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/002148.html[/url]

Posted on: Thu, 03/29/2007 - 8:26am
chanda4's picture
Offline
Joined: 12/14/2006 - 09:00

Quote:Originally posted by ajas_folks:
[b]Just linking to an earlier discussion on this subject, though this may have already been linked in other thread.
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/002148.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/002148.html[/url] [/b]
thanks for posting that, I'll read through it, but it's from 2001...sure some opinions have changed since then.

Posted on: Thu, 03/29/2007 - 9:18am
Corvallis Mom's picture
Offline
Joined: 05/22/2001 - 09:00

This one is certainly more recent....
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/009002.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/009002.html[/url]
But no less contentious. You have to understand that there are people here who think Anne Munoz-Furlong is a demon, and those who think she's a saint. Those two extremes are accompanied by a lot of people in the middle.

Posted on: Thu, 03/29/2007 - 9:31am
amy2's picture
Offline
Joined: 09/02/2000 - 09:00

I kind of feel unaware on this topic. The thread on the CNN article is what informed me about FAAN and their involvement with the peanut industry, and their stance on bans..I have 2 children with pn/tna, and I had no idea about any of that! I have always felt as almost an "expert" myself on pa, but I was out of the loop on that one! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Goes to show, I am always learning, and I learn so much here..Anyway, I will have to research FAAN more, but my feeling is this..they can feel all they want about bans, BUT, when it comes to my kids, I will decide what is best for them, and our situation..as everyone's is different..we all know that..one rast result can say 35, and the other can say 15, but we all know that 15 can mean just as serious of a reaction as a 35. Plus, everyone's numbers here always seem to be different..just depends on the lab..one more reason to see how everyone's situation differs..as far as working with peanut industry to help find a cure, keep on keepin' on! I do really feel that a cure or at least something will come in my children's lifetime to help them with this allergy.
------------------
Amy (mom of 2)
Son PA/TNA
Daughter PA/TNA

Posted on: Thu, 03/29/2007 - 1:01pm
Greenlady's picture
Offline
Joined: 06/30/2004 - 09:00

For the most part I like FAAN - I think our world is much better for having this organization.
However, I do believe that they should be upfront about funding, in particular the fact that the peanut industry has at least in the past funded their education efforts. These funds don't look like research to me - they look like propaganda.
Judge for yourself. The following projects are from the National Peanut Funding database. I've bolded the statement that seems to make it clear that FAAN's stance on bans was influenced by the peanut industry - it's written right into the grant:
Educate the Educator
Communicate with principals, nurses, and dieticians in U.S. schools about how to manage students which have peanut allergy. This education should offer the more effective programs of educating school decision makers and parents on how to manage the children with food allergies. [b[b]The decision makers and parents should also be educated that bans do not work.[/b]
Agency/Department: Virginia Tech
State: VA
Duration: April, 1999 - March, 2000
Type of Project: Research
Keywords: Education , Allergy , International Market , Allergens , Peanut Bans
Funding Source(s): Foundation Funding, $ 14000.00
Principal Investigator: Ms. Anne Munoz Furlong
Contact: Ms. Anne Munoz-Furlong
Contact Phone: 703-691-3179
Contact FAX: 703-691-2713
Contact E-mail: n/a
Food Allergy Network support of Food Allergy Education for Educators
Support programs in schools all over the US to help educate education personnel on the management of food allergic children.
Agency/Department: Peanut Foundation
State: VA
Duration: March, 2000 - April, 2001
Type of Project: Research
Keywords: Education , Allergy , Safety , Allergens
Funding Source(s): The Peanut Foundation, $ 15875.00
Principal Investigator: Ms. Anne Munoz-Furlong
Contact: Ms. Anne Munoz-Furlong
Contact Phone: 703-691-3179
Contact FAX: 703-691-2713
Contact E-mail: unknown
Food Allergy Awareness and Education: Educate the Educator
To increase awareness of food allergy and anaphylaxis among school staff. To provide school staff with the educational materials and resources they need to prevent allergic reactions and fatalities to peanuts and other common food allergens.
Agency/Department: Peanut Foundation
State: VA
Duration: May, 2004 - April, 2005
Type of Project: Education
Keywords: Allergy , Allergens , Allergy
Funding Source(s): The Peanut Foundation, $ 13000.00
Principal Investigator: Ms. Anne Furlong
Contact: Ms. Anne Furlong
Contact Phone: 703-691-3179
Contact FAX: 000-000-0000
Contact E-mail: [email]afurlong@foodallergy.org[/email]
here's the data base - just search on Anne Munez Furlong's name (you have to scroll down past the "Dr."'s to the names titled "Ms.")
[url="http://www.apps.caes.uga.edu/peanuts/"]http://www.apps.caes.uga.edu/peanuts/[/url]

Posted on: Thu, 03/29/2007 - 9:19pm
bandbmom's picture
Offline
Joined: 12/14/2005 - 09:00

Quote:Originally posted by Greenlady:
[b]For the most part I like FAAN - I think our world is much better for having this organization.
These funds don't look like research to me -they look like propaganda.
Judge for yourself. The following projects are from the National Peanut Funding database. I've bolded the statement that seems to make it clear that FAAN's stance on bans was influenced by the peanut industry - it's written right into the grant:
[b[b]The decision makers and parents should also be educated that bans do not work.[/b]
[/b]
Hi Greenlady: It is almost unbelievable to actually see this in writing from the peanut industry. The way it's written into the grant is not influencing FAAN to be anti-bans, it's TELLING them to educate the educators that bans do not work. I'm seeing no gray area here in the wording. If it stated something like "decision makers and parents should be educated on alternatives to bans" then it would be more influencial, but they are telling them what they need to do. WOW!!!!!
I do agree that FAAN does a lot of good, but this really makes it difficult to believe that they truly have our kids best interests in mind. I don't understand why they can't say that, in some cases, bans are necessary. Of course, then they would probably lose some of their grant money.
I mentioned in a previous thread about FAAN that, a few months back, I received a large poster from FAAN for the support group I was leading. It was to be given out to schools and talked about nutrition on one side of the poster and food allergies on the other. The food allergy side was very good and educational. But....the nutritional side was a different story. It had a large "peanut man" on it and talked about how nutritional peanuts and peanut butter are and then after all the peanut praise it said something like "unless you are allergic to peanuts". My PA DS said "why did they send a poster with a big peanut guy on it?". I just threw it out.....
I, too, do not like the "real world" excuse. These are children we are talking about and we have to protect them until they are old enough to protect themselves and make their own decisions.
Bans can work and have seen it work myself in DS's/DD's preschool.
Tracy

Posted on: Thu, 03/29/2007 - 9:50pm
Going Nuts's picture
Offline
Joined: 10/04/2001 - 09:00

Count me among FAAN's fans.
We've been dealing with this for a long time, in fact, since before we had internet access. Before I found FAAN I was totally lost, just following my allergist's advice to "Just not give him any peanuts". Puh-leez. Once I found FAAN, and later on, this site, a whole new world opened up to me and my son's mystery reactions ceased.
Nobody, but nobody does what they do. I don't care where their funding comes from. And please keep in mind they represent the allergy and nutritional needs of [b][i]all[/b][/i] allergic individuals, not just peanut allergic ones. And yes, peanuts are good food for the millions of people not affected by peanut allergy. We are a minority, and this is [i]our[/i] cross to bear, not everyone else's. They have their own.
As for their stance on bans, while I wish they would soften the language, I don't have strong feelings about it. I think each case should be judged on its own merit, but also think that bans aren't really necessary as often as people think they are, except in the early grades. A little cooperation and imagination on the part of schools and parents can go a long way towards keeping our kids safe.
I know that most people on this site disagree with me, but that's my $.02.
Amy
[This message has been edited by Going Nuts (edited March 30, 2007).]

Posted on: Thu, 03/29/2007 - 11:10pm
saknjmom's picture
Offline
Joined: 04/02/2003 - 09:00

I think FAAN does a lot of good things. But, if education is their goal, why do so many people still "not get it?"
I know they do work to pass new laws, and they are posted on their site. I don't know how much they directly are attributing to the changing laws though. The way they have it posted, it makes it look like they were directly responsible.
I really don't like their stance on PN free schools, I really don't. I'm not asking for one in our school right now, but I do believe it would greatly reduce risks of accidental exposure.
I read their newsletter sometimes and I get the recall alerts. Other than that, I don't like someone speaking for our situations in a neat little package like they do.
I am also wondering....doctors and FAAN really feel that the airborne theory is just pretty much non existent. BUT, we've seen many people here posting about airborne reactions. I have a friend whose daughter has had several. So, is it becoming more common, was the data they used to come to this conclusion flawed? Is their thinking about this risk outdated?
Here is a link that greenlady posted in another thread. In the area where it says Principal Investigator, find Anne's name. Do both names, one is hyphenated, the other isn't. It specifically says she is to educate that bans don't work.
[url="http://www.apps.caes.uga.edu/peanuts/"]http://www.apps.caes.uga.edu/peanuts/[/url]
[This message has been edited by saknjmom (edited March 30, 2007).]
[This message has been edited by saknjmom (edited March 30, 2007).]

Posted on: Thu, 03/29/2007 - 11:10pm
jtolpin's picture
Offline
Joined: 05/28/2003 - 09:00

Saint or demon? Im in the middle I guess... leaning towards the goodness.
To me, there is a group of people who 'get it' while most people do not, unless they walk in our shoes.
There have been great steps made in the last X yrs (IIRC from yrs ago... kwim?)
Thx to FAAN? I dunno. Thx to someone (us?) [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
You NEED a group like them though, to guide schools, docs, or whatever...
There are people who LIKE microsoft, and others who HATE them.
Like anchovies on pizza... or guacamole on fajitas... It's usually LOVE 'em or HATE 'em... I don't hate them.
Jason
------------------
[b]* Beyond Obsessed * [/b]

Posted on: Fri, 03/30/2007 - 12:15am
Peanut Militia's picture
Offline
Joined: 03/06/2007 - 09:00

Does anyone have info on why Anne and hubbie started FAAN? Sick kid??? Wanted to 'do good in the world' and make 125,000?
Just wondering.
Can someone do the link thing to the CNN thread? I tried and I end up editing a double.

Posted on: Fri, 03/30/2007 - 12:22am
booandbrimom's picture
Offline
Joined: 08/23/2000 - 09:00

They have a daughter with milk and egg allergy. Perhaps this influenced their stance on peanut bans as well - who knows? As the parent of a child with milk allergy, I can tell you a ban isn't gonna happen, even though the largest number reactions in school settings are from milk allergy.
Regarding not educating everyone in the world in the less than 20 years FAAN has been at this? I listed the accomplishments they've achieved in that time in the other thread. To me, they seem extraordinary.
Regarding their stance on inhalation allergy - I'll repost the Sicherer information as a new thread. Most allergic children are not bothered by inhalation, and most of those who are do not react in a life-threatening way. As a nonprofit you have to do the greatest good for the greatest number rather than concentrating on the most extreme cases.

Posted on: Fri, 03/30/2007 - 12:49am
Peg541's picture
Offline
Joined: 12/29/2002 - 09:00

FAAN has always been extremely helpful to me way before the internet. They have bent over backwards to help me when we first started out in the PA world. I have nothing but good things to say about them.
Peggy

Posted on: Fri, 03/30/2007 - 1:13am
DRobbins's picture
Offline
Joined: 07/19/2001 - 09:00

I have big problems with FAAN's policy against peanut bans in schools. I don't feel one is necessary for my son, but there are definitely kids at my son's school whom it would really help. I think that if Anne M-F's child had a peanut allergy, FAAN's policy would be different and I also think that she wouldn't have chosen to accept funding from the peanut industry to convince people that "bans don't work."
I also am not thrilled that FAAN claims that (refined) peanut oil is safe for people with peanut allergies, which is what they told me when I first found out about my son's allergy. From the number of people here who have reacted to it, this clearly is not entirely true, and FAAN shouldn't be stating such a thing. I don't believe this is the Anne's peanut industry connection at work or anything. I just think that FAAN sometimes doesn't pay enough attention to real world experiences over the opinions of their "experts".
My biggest problem with FAAN, though, is the fact that every time someone in the media writes a story about food allergies, they always turn to FAAN for info and then end up further spreading FAAN's misinformation.
Does anyone know how much money (either in dollars or as a percentage of their budget) FAAN actually spends on medical research to find a cure for food allergies? (Not research to prove that peanut bans are unnecessary or other "social" issues.) I was always under the impression that it's the Food Allergy Initiative that is more focussed on medical research and that FAAN is more focussed on awareness.

Posted on: Fri, 03/30/2007 - 1:20am
cynde's picture
Offline
Joined: 12/10/2002 - 09:00

Quote:Originally posted by booandbrimom:
[b]They have a daughter with milk and egg allergy. Perhaps this influenced their stance on peanut bans as well - who knows? As the parent of a child with milk allergy, I can tell you a ban isn't gonna happen, even though the largest number reactions in school settings are from milk allergy.
[/b]
I thought PN was the cause of most allergic reactions at school, or is it now milk because so many schools have banned or reduced PN in the school? Not arguing with you just wondering where you got the information. I really did think it was PN.

Posted on: Fri, 03/30/2007 - 1:25am
booandbrimom's picture
Offline
Joined: 08/23/2000 - 09:00

FAAN's mission is awareness, not research. That's why they helped found the research arm - to concentrate on that area.
However, they gave $700,000 in grants through FAAN last year. Total research budget was $925,000, 25% of their income.
[url="http://www.foodallergy.org/downloads/AnnualReport2005.pdf"]http://www.foodallergy.org/downloads/AnnualReport2005.pdf[/url]

Posted on: Fri, 03/30/2007 - 1:27am
booandbrimom's picture
Offline
Joined: 08/23/2000 - 09:00

Regarding milk allergy reactions (from the thread on the CNN article):
I did note something interesting in the new Sicherer book which contradicts the conclusion in this article about peanut as the #1 cause of reactions:
"One research group has undertaken studies to determine some of the issues that arise in schools. Although there is rightly much concern about peanut or tree nut allergy in the schools, one study showed that milk was the most common trigger of food-allergic reactions in the schools, not surprisingly because milk is a more ubiquitous food than peanut. Even though a larger number of children in schools had a peanut allergy, it was the children with milk allergy who were at a higher risk for accidentally ingesting a milk product."
p. 188, Understanding and Managing Your Child's Food Allergies, Scott H. Sicherer, M.D.

Posted on: Fri, 03/30/2007 - 1:36am
bethc's picture
Offline
Joined: 04/18/2005 - 09:00

In general, I'm really glad they exist. They have some clout with the media and the government to at least discuss these issues and raise awareness. And they provide a generally good, standardized source of information. You know they're not just an individual person giving their opinions on food allergies, which may or may not be based on anything reliable. Therein of course lies the trouble, that they're an authority standardizing the information. If they contradict your experience, which is very possible in a medical field that is relatively new, it's hard to be believed if you're disagreeing with this official organization.
It's interesting that, on their website, I see a lot of school-related information saying that plans should be individualized, that the school and parents need to evaluate the child's needs and set things up accordingly. In all of those school documents, I saw no mention of bans. There are lots of statements about how people with food allergies all react differently and that one size doesn't fit all in school food allergy management. There's even a study about peanut protein on surfaces with a mention that airborne peanut protein hasn't been studied in schools and it's unknown whether it could cause a problem for allergic students.
Yet, so often in the media statements, it's boiled down to the idea that bans don't work. So are they really saying more in the interviews but the reporters are just using that? I know from experience that things you say to a reporter don't always get printed the way you say them. Or is that the message that FAAN really wants to make sure to get out to the general public, perhaps because of the clearly-stated goal in their funded program? And then they leave the more complicated ideas about individual needs to the school-specific documents? I don't really know.
I do wish that in media statements they wouldn't state things as established fact when the world simply doesn't know. Do school bans work? I think the jury's still out on that one. So why not say they don't advise them, that they think they're a bad idea for such & such reasons. Or say that most food allergic people don't react to airborne exposures, but some do, although medical studies have not sorted all of this out yet. Is it so wrong to say "we don't know yet"?

Posted on: Fri, 03/30/2007 - 1:51am
Anonymous's picture
Anonymous (not verified)

My two problems with FAAN - where they get funding (although I'm unclear as to whether or not the same thing can be said about Anaphylaxis Canada even) and their stance against bans (false sense of security - I don't buy into that).
HOWEVER. Before I had the internet, aside from contacting Canadian associations (AAIA, Anaphylaxis Canada), I also contacted FAAN.
I LOVE their newsletter. My guy had his picture in it even (although a couple of years after I sent it). I LOVE (and even need a stronger word) their BE A PAL program which I used when my son was young in school (not that he's not young now at 11).
But no, their BE A PAL program, I saw with my own eyes, 4 and 5 year old children feel empowered (and isn't that what we all *should* be feeling nowadays - can anyone tell I'm getting sick of labeling [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] ). They got the BE A PAL certificate and a sticker and felt thanked for what they had done (endured? [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] ) for my son by having a "peanut free" classroom. They "got it". Whether their parents did or not, no idea.
Do I use them now? No. I just come here. I just get Anaphylaxis Canada information sent to me and I'm hoping to get Allergic Living Magazine.
Oh, and also with the newsletter, what I did when my son was young was I gave my copy to the school and they put it in a resource binder for future reference.
When we sent my son's picture in (even though, again, it didn't get printed for two years and it was California Mom here who recognized my child [img]http://uumor.pair.com/nutalle2/peanutallergy/redface.gif[/img] ), it was GREAT for him to be able to send his picture in and it was also GREAT for him to see other FA children because at that point in his life, he hadn't met any other PA children.
There's another thread I started about FAAN advocating against school bans, which may or may not be helpful to this discussion.
But for me, in the journey, now, FAAN really has become a non-issue, if that makes sense (maybe as Anaphylaxis Canada gets more and more corporate sponsorships, I don't know).
This has left me with a thought though - where does Anaphylaxis Canada get their money from?
I think the $ issue wasn't even what turned me off about FAAN, it was the ban stance.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
There but for the Grace of God, go I.

Posted on: Fri, 03/30/2007 - 2:00am
Anonymous's picture
Anonymous (not verified)

Oh, and wanted to add, and make it separate, that I'm not totally 100% happy with Anaphylaxis Canada either. I had to call them re "the bench" situation at my son's school and the one person I spoke with, well, I didn't like her answer to me.
I honestly don't think that any organization can be expected to make ALL of us happy ALL of the time.
As I use as a frequent reference, when I joined the Migraine Foundation (I think it has a different name now), they receive MAJOR funding from a pharmaceutical company promoting preventative migraine medication. Conflict of interest? I'm not sure. With that, I didn't care. I wanted the migraine information.
I should also clarify that perhaps I have no right to comment on anything because I have never been a member of FAAN (I did have a subscription for one year - but I did not pay for it) and I am not a member of Anaphylaxis Canada or AAIA.
And should point out that although I didn't like ONE conversation I had with a rep of Anaphylaxis Canada - I've had to call them A LOT and they were EXTREMELY helpful. But just wanted to point out that that one day, that one *issue*, I wasn't happy with them, KWIM?
(I think I'm best off just listening to Keith Urban songs these days, really [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] )
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
There but for the Grace of God, go I.

Posted on: Fri, 03/30/2007 - 2:54am
chanda4's picture
Offline
Joined: 12/14/2006 - 09:00

Quote:Originally posted by booandbrimom:
[b]Regarding milk allergy reactions (from the thread on the CNN article):
I did note something interesting in the new Sicherer book which contradicts the conclusion in this article about peanut as the #1 cause of reactions:
"One research group has undertaken studies to determine some of the issues that arise in schools. Although there is rightly much concern about peanut or tree nut allergy in the schools, one study showed that milk was the most common trigger of food-allergic reactions in the schools, not surprisingly because milk is a more ubiquitous food than peanut. Even though a larger number of children in schools had a peanut allergy, it was the children with milk allergy who were at a higher risk for accidentally ingesting a milk product."
p. 188, Understanding and Managing Your Child's Food Allergies, Scott H. Sicherer, M.D.[/b]
I agree with that statement...I am scared for my son(Jake) at school, but I DREAD his younger brother(Carson) entering it(the milk will scare the death out of me.....I will be asking for some contact challenges to give me some perspective to his severity, as it stands I think he is pretty low, but you never know, I've never spilled milk on him or had him drink a glass of it....) But I am more worried about it, for now.
------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 (milk and egg)

Posted on: Fri, 03/30/2007 - 4:41am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

I initially got tons of info from FAAN, but I also like the Food Allergy Initiative at [url="http://www.foodallergyinitiative.com"]http://www.foodallergyinitiative.com[/url]
Both organizations get a so-so rating on how they manage their funding from Charity Navigator ([url]http://www.charitynavigator.org[/url])
the FAAN "bans don't work" bothers me -- where is the data that they don't work? At least they bring awareness and a heightened sense of vigilance to school administrators...
------------------
mom to Ari(6) - severe nut allergies, asthma, you name it - and Maya (9), mild excema

Posted on: Fri, 03/30/2007 - 6:42am
Peanut Militia's picture
Offline
Joined: 03/06/2007 - 09:00

I checked the charity navigator. Earlier it was stated that the Furlong's make 125,000 per year. That is not true. They make: Anne-184,769 and Terrence-138,440 plus they mention fundraising expenses. FAAN's operational expenses were 3,574,071.

Posted on: Fri, 03/30/2007 - 6:52am
BaileyB's picture
Offline
Joined: 07/13/2004 - 09:00

I have a membership to FAAN but will no longer make contributions. Before supporting any charitable organization I suggest researching the organization on Guidestar. Many might be surprised at the salaries and benefits paid by FAAN.

Posted on: Fri, 03/30/2007 - 7:02am
CorinneM1's picture
Offline
Joined: 06/20/2002 - 09:00

I appreciate all that FAAN does. Food allergy alerts, walks, newsletters, kids newsletter, recipes, etc.

Posted on: Fri, 03/30/2007 - 7:39am
Corvallis Mom's picture
Offline
Joined: 05/22/2001 - 09:00

For those who are curious about the specifics about Anne and FAAN:
[url="http://www.connectionnewspapers.com/article.asp?article=79520&paper=61&cat=104"]http://www.connectionnewspapers.com/article.asp?article=79520&paper=61&cat=104[/url]
Finding Information on Allergies
Daughter's case led to national clearinghouse based in Fairfax.
Susan Rexroad
March 29, 2007
More
For more information, visit [url="http://www.foodallergy.org"]www.foodallergy.org[/url] or call 703-691-3179.
Twenty-two years ago Anne Munoz Furlong's daughter was struggling with undiagnosed food allergies. She would have welcomed a quick accurate diagnosis, a telephone support line and newsletters to consult, food labels identifying allergens and cookbooks with allergen-free recipes. None of these resources were available, but they are now.
Because Munoz Furlong of Fairfax did not want other families "to have to go through what we went through", she founded the Food Allergy and Anaphylaxis Network (FAAN) in 1991.
FAAN is a Fairfax-based national non-profit "clearinghouse for managing food allergies", said Munoz Furlong. FAAN works with schools, food manufacturers, physicians, government agencies, policy makers, research scientists and the Girl Scouts to raise public awareness, provide advocacy and education and advance research.
The greatest challenge people with food allergies face today is "convincing other people that food allergies are real ... That every bite can cause a serious reaction ... that it's a real concern, to a child, to know that birthday cake was made with milk or another allergen....The general public needs to understand there is no break, no seasonal component [as with hayfever] ... you have to eat. You have to have help from other people", said Munoz Furlong
ENLISTING HELP is something FAAN does in a variety of ways. Girl Scouts in the greater Washington, D.C. area can earn a patch after participating in FAAN's "Be a PAL (Protect a Life from Food Allergies) Patch Program."
Troop 3013 became involved when parent Ann Donnelly of Fairfax

Posted on: Fri, 03/30/2007 - 7:57am
booandbrimom's picture
Offline
Joined: 08/23/2000 - 09:00

I don't know where you guys live, but in Chicago $185k is a reasonable salary for the head of a communications/nonprofit. I would guess my boss makes around that as a corporate VP.

Posted on: Fri, 03/30/2007 - 8:04am
TwokidsNJ's picture
Offline
Joined: 05/28/2005 - 09:00

Quote:Originally posted by cynde:
[b] I thought PN was the cause of most allergic reactions at school, or is it now milk because so many schools have banned or reduced PN in the school? Not arguing with you just wondering where you got the information. I really did think it was PN.
[/b]
The largest number of anaphalytic reactions in schools (80%) is peanut/tree nut, from what I've read. That is the crux of the peanut ban argument, the numbers and the fact that nuts are easier to avoid than dairy.

Posted on: Fri, 03/30/2007 - 9:13am
booandbrimom's picture
Offline
Joined: 08/23/2000 - 09:00

NJ, post the source, please. Thanks!

Posted on: Sat, 03/31/2007 - 9:52am
TwokidsNJ's picture
Offline
Joined: 05/28/2005 - 09:00

I think FAAN does a lot of good things (the label law, education, advocacy for new laws etc. I appreciate it and see the value of all they have done, but I cannot personally support them until Anne Munoz Furlong stops running her mouth about the "false sense of security" -- for which she has no proof -- and her stance against bans -- which she has no right to make umbrella statements that affect how our schools handle things, without knowing individual situations. She needs to step back with an "Every situation is different" stance.
The peanut industry funding is what is behind this and it's a conflict of interest, and needs to be better disclosed.

Posted on: Sat, 03/31/2007 - 9:54am
TwokidsNJ's picture
Offline
Joined: 05/28/2005 - 09:00

Quote:Originally posted by booandbrimom:
[b]NJ, post the source, please. Thanks![/b]
I've read this many times; I can't research this at the moment because I only have a couple minutes on the computer. If someone else can help, please do. Thanks.

Posted on: Sat, 03/31/2007 - 10:47am
chanda4's picture
Offline
Joined: 12/14/2006 - 09:00

Corvallis Mom...thanks for posting the info about her, I never knew.
Personally I like FAAN, I use their education and material alot...alot. I don't mind her ban statement, but I do agree that everyone is different, that includes allergies and reactions. Mayeb if she reworded it, it would sit better with everyone. I don't mind the peanut industry is involved with them, whatsoever...I am pretty sure they would like to find a cure(more $$$$$)so why nto give a little to get there, makes sense. Anyways...thanks for sharing your two-cents on the topic [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 (milk and egg)

Posted on: Sat, 03/31/2007 - 10:59am
saknjmom's picture
Offline
Joined: 04/02/2003 - 09:00

[url="http://content.nejm.org/cgi/content/abstract/327/6/380"]http://content.nejm.org/cgi/content/abstract/327/6/380[/url]
[url="http://www.hc-sc.gc.ca/fn-an/nutrition/child-enfant/anaphylaxis-anaphylaxie_e.html"]http://www.hc-sc.gc.ca/fn-an/nutrition/child-enfant/anaphylaxis-anaphylaxie_e.html[/url]
[This message has been edited by saknjmom (edited March 31, 2007).]
[This message has been edited by saknjmom (edited March 31, 2007).]
[This message has been edited by saknjmom (edited March 31, 2007).]

Posted on: Sat, 03/31/2007 - 12:34pm
booandbrimom's picture
Offline
Joined: 08/23/2000 - 09:00

Were these studies related to the topic of which allergen causes the most reactions in schools? Not sure I see the link (first study wasn't related to school - second was not a study).
Here's the one I mentioned:
[url="http://archpedi.ama-assn.org/cgi/content/abstract/155/7/790?ijkey=a97ad2decbe34ddc4d4c99a93a532e7baa2e1f29&keytype2=tf_ipsecsha"]http://archpedi.ama-assn.org/cgi/content...pe2=tf_ipsecsha[/url]

Peanut Free Store

More Community Posts

Latest Post by kirbyjanousek410 Fri, 12/06/2019 - 10:28pm
Comments: 0
Latest Post by ezequielchambless Fri, 12/06/2019 - 9:38pm
Comments: 0
Latest Post by milesfernie46806 Fri, 12/06/2019 - 8:51pm
Comments: 0
Latest Post by etsukorlr56142607149 Fri, 12/06/2019 - 8:40pm
Comments: 0
Latest Post by AllaMemrt Fri, 12/06/2019 - 8:36pm
Comments: 0
Latest Post by jaredguevara7044 Fri, 12/06/2019 - 7:22pm
Comments: 0
Latest Post by elizabethbendrodt7 Fri, 12/06/2019 - 6:40pm
Comments: 0
Latest Post by etsukorlr56142607149 Fri, 12/06/2019 - 6:34pm
Comments: 0
Latest Post by ArtemRer Fri, 12/06/2019 - 12:06pm
Comments: 0
Latest Post by absfabs Wed, 12/04/2019 - 12:29pm
Comments: 4
Latest Post by absfabs Wed, 12/04/2019 - 12:25pm
Comments: 3
Latest Post by absfabs Wed, 12/04/2019 - 12:22pm
Comments: 4
Latest Post by penelope Tue, 12/03/2019 - 4:46pm
Comments: 9
Latest Post by penelope Tue, 12/03/2019 - 4:43pm
Comments: 2
Latest Post by sunshinestate Mon, 12/02/2019 - 2:34pm
Comments: 5

More Articles

For those with peanut allergies, baked goods present a serious risk. Many baked goods do not appear...

Those who have peanut allergies know to avoid peanut butter cookies, of course – but what about other...

For anyone who has had a peanut allergy diagnosis, it is necessary to avoid eating peanuts entirely. However,...

Are you looking for peanut-free candies as a special treat for a child with...

Are you craving sweets? Those with peanut allergies must be especially careful when indulging their...

Do you know what's in the face paint often used for Halloween costumes, school carnivals, and other events? If you're worried about smearing...

Vegetable oil is healthy before it is hydrogenated and a process that requires adding hydrogen to unsaturated fats. Oils that are often...

Peanut allergies don’t begin to cause problems for people the first time they are exposed to peanuts. Rather, the immune system first develops...

Anxious food allergic kids, understandably concerned about avoiding allergens, can become so restrictive in their food choices that weight loss...

The relationship between anxiety and food or other allergy is a complicated and puzzling one. Research has shown that stress can exacerbate...

Welcome to PeanutAllergy.com. Before you begin you must verify your email address. Please check your email and click on the link and you will...

If you have a food allergy, you will probably need to make some changes to your diet...

When love is in the air we can get caught up in the moment and throw caution to the wind. However, if you have a...

Just 30 seconds of mindfulness, of quieting our thoughts by being attentive to the present moment, can help manage stress and anxiety.

The...

Those affected by peanut allergy might have heard about basophil activation tests (BATs), a potentially accurate tool for diagnosing food allergy...

When your child has a food allergy, you want to make sure they are safe in school...

It’s the time of year when holiday parties, and family gatherings can make allergen avoidance more problematic. Whether you celebrate Christmas,...

Food allergies and sensitivities are on the rise. Almost everyone knows someone who has problems with at least one food. The most common food...

Peanuts and Nuts Can Trigger An Asthma Attack

According to the American Academy of Allergy, Asthma and Immunology (AAAI), more than 3...

According to the American College of Allergy, Asthma & Immunology, over 50 million people in the U.S. have allergies. Today's allergy tests...