FAAN...............

Posted on: Thu, 03/29/2007 - 6:11am
chanda4's picture
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Joined: 12/14/2006 - 09:00

Okay, lets bring this up to it's own topic...I want to know why you hate FAAN and why you love them....this will give you the opportuinity to voice your opinion(keep civil, these are opinions and we are all entitled). Is the majority against FAAN because of the *ban* comment, really??? Or is there more too it? How do you think FAAN helps(if at all)?? I would like to hear what you think, THANKS

------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 (milk and egg)

Posted on: Thu, 03/29/2007 - 6:57am
NicoleinNH's picture
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Joined: 06/21/2003 - 09:00

FAANcy
[This message has been edited by NicoleinNH (edited June 10, 2007).]

Posted on: Thu, 03/29/2007 - 7:16am
Mom2Ian's picture
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Joined: 02/26/2007 - 09:00

I had the same question. I'm really new to all of this. The very first thing I was told after ds was diagnosed was that I needed to get in touch with FANN. From what I can tell anyone trying to find a cure for this thing has my support. I would be totally lost with out the information I have gotten there and here.
On the other hand, I have not had to deal with needing a ban or any of the other issues I have read that people here disagree with them on.

Posted on: Thu, 03/29/2007 - 7:49am
booandbrimom's picture
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Joined: 08/23/2000 - 09:00

Love FAAN. Agree with virtually all their stances. Have learned an amazing amount from their newsletter and conferences.
Do not believe at all that their work is influenced by the peanut lobby.
Still say there's nothing stopping any of the vocal critics from forming a more "right-leaning" nonprofit equivalent if they want to do it.

Posted on: Thu, 03/29/2007 - 8:10am
ajas_folks's picture
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Joined: 04/28/2000 - 09:00

Just linking to an earlier discussion on this subject, though this may have already been linked in other thread.
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/002148.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/002148.html[/url]

Posted on: Thu, 03/29/2007 - 8:26am
chanda4's picture
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Joined: 12/14/2006 - 09:00

Quote:Originally posted by ajas_folks:
[b]Just linking to an earlier discussion on this subject, though this may have already been linked in other thread.
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/002148.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/002148.html[/url] [/b]
thanks for posting that, I'll read through it, but it's from 2001...sure some opinions have changed since then.

Posted on: Thu, 03/29/2007 - 9:18am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

This one is certainly more recent....
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/009002.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/009002.html[/url]
But no less contentious. You have to understand that there are people here who think Anne Munoz-Furlong is a demon, and those who think she's a saint. Those two extremes are accompanied by a lot of people in the middle.

Posted on: Thu, 03/29/2007 - 9:31am
amy2's picture
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Joined: 09/02/2000 - 09:00

I kind of feel unaware on this topic. The thread on the CNN article is what informed me about FAAN and their involvement with the peanut industry, and their stance on bans..I have 2 children with pn/tna, and I had no idea about any of that! I have always felt as almost an "expert" myself on pa, but I was out of the loop on that one! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Goes to show, I am always learning, and I learn so much here..Anyway, I will have to research FAAN more, but my feeling is this..they can feel all they want about bans, BUT, when it comes to my kids, I will decide what is best for them, and our situation..as everyone's is different..we all know that..one rast result can say 35, and the other can say 15, but we all know that 15 can mean just as serious of a reaction as a 35. Plus, everyone's numbers here always seem to be different..just depends on the lab..one more reason to see how everyone's situation differs..as far as working with peanut industry to help find a cure, keep on keepin' on! I do really feel that a cure or at least something will come in my children's lifetime to help them with this allergy.
------------------
Amy (mom of 2)
Son PA/TNA
Daughter PA/TNA

Posted on: Thu, 03/29/2007 - 1:01pm
Greenlady's picture
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Joined: 06/30/2004 - 09:00

For the most part I like FAAN - I think our world is much better for having this organization.
However, I do believe that they should be upfront about funding, in particular the fact that the peanut industry has at least in the past funded their education efforts. These funds don't look like research to me - they look like propaganda.
Judge for yourself. The following projects are from the National Peanut Funding database. I've bolded the statement that seems to make it clear that FAAN's stance on bans was influenced by the peanut industry - it's written right into the grant:
Educate the Educator
Communicate with principals, nurses, and dieticians in U.S. schools about how to manage students which have peanut allergy. This education should offer the more effective programs of educating school decision makers and parents on how to manage the children with food allergies. [b[b]The decision makers and parents should also be educated that bans do not work.[/b]
Agency/Department: Virginia Tech
State: VA
Duration: April, 1999 - March, 2000
Type of Project: Research
Keywords: Education , Allergy , International Market , Allergens , Peanut Bans
Funding Source(s): Foundation Funding, $ 14000.00
Principal Investigator: Ms. Anne Munoz Furlong
Contact: Ms. Anne Munoz-Furlong
Contact Phone: 703-691-3179
Contact FAX: 703-691-2713
Contact E-mail: n/a
Food Allergy Network support of Food Allergy Education for Educators
Support programs in schools all over the US to help educate education personnel on the management of food allergic children.
Agency/Department: Peanut Foundation
State: VA
Duration: March, 2000 - April, 2001
Type of Project: Research
Keywords: Education , Allergy , Safety , Allergens
Funding Source(s): The Peanut Foundation, $ 15875.00
Principal Investigator: Ms. Anne Munoz-Furlong
Contact: Ms. Anne Munoz-Furlong
Contact Phone: 703-691-3179
Contact FAX: 703-691-2713
Contact E-mail: unknown
Food Allergy Awareness and Education: Educate the Educator
To increase awareness of food allergy and anaphylaxis among school staff. To provide school staff with the educational materials and resources they need to prevent allergic reactions and fatalities to peanuts and other common food allergens.
Agency/Department: Peanut Foundation
State: VA
Duration: May, 2004 - April, 2005
Type of Project: Education
Keywords: Allergy , Allergens , Allergy
Funding Source(s): The Peanut Foundation, $ 13000.00
Principal Investigator: Ms. Anne Furlong
Contact: Ms. Anne Furlong
Contact Phone: 703-691-3179
Contact FAX: 000-000-0000
Contact E-mail: [email]afurlong@foodallergy.org[/email]
here's the data base - just search on Anne Munez Furlong's name (you have to scroll down past the "Dr."'s to the names titled "Ms.")
[url="http://www.apps.caes.uga.edu/peanuts/"]http://www.apps.caes.uga.edu/peanuts/[/url]

Posted on: Thu, 03/29/2007 - 9:19pm
bandbmom's picture
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Joined: 12/14/2005 - 09:00

Quote:Originally posted by Greenlady:
[b]For the most part I like FAAN - I think our world is much better for having this organization.
These funds don't look like research to me -they look like propaganda.
Judge for yourself. The following projects are from the National Peanut Funding database. I've bolded the statement that seems to make it clear that FAAN's stance on bans was influenced by the peanut industry - it's written right into the grant:
[b[b]The decision makers and parents should also be educated that bans do not work.[/b]
[/b]
Hi Greenlady: It is almost unbelievable to actually see this in writing from the peanut industry. The way it's written into the grant is not influencing FAAN to be anti-bans, it's TELLING them to educate the educators that bans do not work. I'm seeing no gray area here in the wording. If it stated something like "decision makers and parents should be educated on alternatives to bans" then it would be more influencial, but they are telling them what they need to do. WOW!!!!!
I do agree that FAAN does a lot of good, but this really makes it difficult to believe that they truly have our kids best interests in mind. I don't understand why they can't say that, in some cases, bans are necessary. Of course, then they would probably lose some of their grant money.
I mentioned in a previous thread about FAAN that, a few months back, I received a large poster from FAAN for the support group I was leading. It was to be given out to schools and talked about nutrition on one side of the poster and food allergies on the other. The food allergy side was very good and educational. But....the nutritional side was a different story. It had a large "peanut man" on it and talked about how nutritional peanuts and peanut butter are and then after all the peanut praise it said something like "unless you are allergic to peanuts". My PA DS said "why did they send a poster with a big peanut guy on it?". I just threw it out.....
I, too, do not like the "real world" excuse. These are children we are talking about and we have to protect them until they are old enough to protect themselves and make their own decisions.
Bans can work and have seen it work myself in DS's/DD's preschool.
Tracy

Posted on: Thu, 03/29/2007 - 9:50pm
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

Count me among FAAN's fans.
We've been dealing with this for a long time, in fact, since before we had internet access. Before I found FAAN I was totally lost, just following my allergist's advice to "Just not give him any peanuts". Puh-leez. Once I found FAAN, and later on, this site, a whole new world opened up to me and my son's mystery reactions ceased.
Nobody, but nobody does what they do. I don't care where their funding comes from. And please keep in mind they represent the allergy and nutritional needs of [b][i]all[/b][/i] allergic individuals, not just peanut allergic ones. And yes, peanuts are good food for the millions of people not affected by peanut allergy. We are a minority, and this is [i]our[/i] cross to bear, not everyone else's. They have their own.
As for their stance on bans, while I wish they would soften the language, I don't have strong feelings about it. I think each case should be judged on its own merit, but also think that bans aren't really necessary as often as people think they are, except in the early grades. A little cooperation and imagination on the part of schools and parents can go a long way towards keeping our kids safe.
I know that most people on this site disagree with me, but that's my $.02.
Amy
[This message has been edited by Going Nuts (edited March 30, 2007).]

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