Excellant newspaper article!!

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Please read these two great articles that were in the paper today. In the actual newspaper there were three stories but only two on the website. This paper has a large circulation so a lot of people see it. Also on the front page of the paper was a photo and a blurb to go to the life section to read the story on food allergies.

[url="http://www.nctimes.com"]www.nctimes.com[/url] click on San Diego County edition then go down to the Life and Times section : there are two articles there. I will try to post links directly to the articles:

1. For some people, a harmless PB&J sandwich can be deadly [url="http://www.nctimes.com/news/2001/20010304/mm.html."]www.nctimes.com/news/2001/20010304/mm.html.[/url]

2. A day at school with Rachel [url="http://www.nctimes.com/news/2001/20010304/nn.html"]www.nctimes.com/news/2001/20010304/nn.html[/url] * this is me editing, for some reason the first article is not coming up, so read the second article first then click on previous story and you will get the other one. Thanks,

Linda

[This message has been edited by rilira (edited March 04, 2001).]

On Mar 4, 2001

Linda - I can't even access the main page, let alone the 2 articles. I really want to read them! Can you cut and paste them into this thread? Is the "Rachel" in the story your daughter? Help!

On Mar 4, 2001

The North County Times is having some difficulty with their home page. Keep trying, the article is worth it!! If they do not fix it today, they archive all the stories. You can do a search from their home page [url="http://www.nctimes.com"]www.nctimes.com[/url] search by reporter name Cyndie de neve and all the articles she has written will come up, just click on the ones you want to read ( titles listed above). It really is worth seeing!! Oh and yes, the Rachel in the story is my daughter!! Too bad they don't post the pictures too!! Linda

[This message has been edited by rilira (edited March 05, 2001).]

On Mar 5, 2001

Click on the above hyperlink for a day at school with Rachel. It is working fine for me this morning. Then when done reading that click on previous story at the bottom of the page for the other article.

Linda

On Mar 5, 2001

Very interesting artilce on Rachel. But Rachel's mom could you clarify somethings for me.

1. Is the classroom aide specifically designated to watch your child and no others because of pa? 2. If so who picks up the cost (why are schools so unwilling to go pn-free if would make life so much easier and cheaper) 3. If you have been able to obtain this aide as part of the 504 plan (which my school district medical officier refuses to consider for pa), I am incredibly impressed. Let us know how you achieved this. I think we could all learn from this.

On Mar 5, 2001

Hi Rilira -

Been awhile!

My mother sent me the links to the three articles - I'm still having trouble with the 1st one, but eventually it does work. Great articles and nice to put a face to the names on the board!

Thanks for the article. Debbie

[url="http://www.nctimes.com/news/2001/20010304/mm.html"]http://www.nctimes.com/news/2001/20010304/mm.html[/url]

[url="http://www.nctimes.com/news/2001/20010304/nn.html"]http://www.nctimes.com/news/2001/20010304/nn.html[/url]

[url="http://www.thirdagemedia.com/news/ap/hlth/20001204.3a2be44f.clf.4.html"]http://www.thirdagemedia.com/news/ap/hlth/20001204.3a2be44f.clf.4.html[/url]

On Mar 5, 2001

Philip's Mom - I couldn't get the last link to work - it said "you are trying to access a page which does not exist on our site". Is this the page with the pictures in it? I'd really like to read it - the other 2 article were fantastic, Linda. Thanks for posting them! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Mar 5, 2001

Linda, these articles were fabulous, especially Rachel's story. I'm SO pleased that they got such widespread circulation in "hard" copy and then had a website link too. I'm also really glad that you posted the link so you could share your family's story with all of us. Now, you already know what I think about the other two people that were in the three person article, of which Rachel was a part, so I don't need to post that here! LOL!

Eileen, yes, Linda was able to get the aide as part of her 504 plan. If you go to the Schools section, Linda has actually very graciously posted her 26 point 504 Plan in a thread there. It is truly amazing. It's amazing for a couple of reasons - how Linda and her husband were able to cover all of the bases (they had things in there that I hadn't even thought of) and how they were able to get the school to implement this plan for them. I believe it probably has a lot to do with how Linda presented the plan to the school - not aggressively, but effectively. Oh, and I'm sorry, you know me already, I don't mean to presume to speak on her behalf. I just think her 504 Plan is awesome, and although Canadian where we don't have 504 Plans, I was ashamed to have accepted a blanket school board policy re PA for my child after reading Linda's 504 Plan.

Linda, I have sent the links to this article to as many PA and some non-PA parents that I know. It would be great if they could somehow find out how many people clicked on to read about Rachel!

Also, it was great to see this because I know I had had some questions a few months ago about whether or not you'd let your child be in a newspaper, allow their photo to be taken, etc. and I really believe that having articles written about PA help raise awareness in the people who read them and also help empower our PA children, if we present their picture being taken, article being written about them in the positive light that it should be.

You know, I wish I had been able to simply come in and say I THINK IT'S GREAT! but you know me! LOL!

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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On Mar 5, 2001

Eileen,

As Cindy already answered, yes the aide is assigned to only watch Rachel. That is the primary job responsibility. She does help in the classroom with schoolwork for the other kids. However, if Rachel has any problem she would immediately focus on her. She is considered an "independant facilitator/teacher aide". This is paid for through the funding accessed through the 504. The other little boy at Rachel's school also has an aide.

I am glad everyone liked the article!

Linda

On Mar 6, 2001

Okay, Linda, I'm going to ask you even though you know it doesn't pertain to me, here in Canada. How exactly did you get your 504 Plan to cover the costs of an aide for Rachel? What I'm trying to say is, how did you present this to the school and get them to agree to it? Are there guidelines when writing out a 504 that show you what you can or cannot have implemented for your child? The reason I'm asking is that I think a lot of people here need to know the information, for themselves, to get the same thing implemented for their child if they so desire, and also, because I think it is absolutely amazing.

I definitely know that I need Morgansmom, here in Canada, to go through my school board policy, to see exactly what I can really ask for for Jesse. I feel okay with the way things are at school right now, but next year, when he moves to Grade One, even the principal has expressed her opinion (not concern) that things will have to be dealt with differently.

Sorry, I know I'm going off-topic and I don't mean to. I'm simply quite curious and fascinated. Also, again, I apologize for answering on your behalf re the 504 Plan, but I thought if Eileen came in before you were able to post, at least she would have an answer to begin working with. I certainly didn't presume to speak on your family's behalf. I just know that you were able to have this implemented for Rachel.

Now, I'm off to e-mail the article (but not from this site! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] ) to Jesse's principal.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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On Mar 6, 2001

I e-mailed Rachel's Story to Jesse's principal. She couldn't get the link to work so I sent her a copy of the actual page. If she has any response for me whatsoever, you know me, I'll be back in here posting it. I thought it was really important for her to see what was being done at another school re PA, even if it is in another country.

The whole thing is, this woman is opening a new school is our district next year. She has really focused on opening a school as the topper of her career. Wouldn't it be great if I could somehow convince her that on top of opening a school, how about opening a "peanut free" one? I already know the answer so I haven't even tried to pursue it with her.

Opening a new school is something she considers a career maker/topper. Bring PA into it and that's a totally different thing. Somehow, I guess because I'm a PA parent I would want to open a school and have it the first PA one in Stayner. Oh well.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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On Mar 6, 2001

Cindy,

It didn't bother me at all that you answered on my behalf. You remember things better than I do anyway!!

There are no guidelines in what you can and can not ask for in a 504 plan. I just thought of what I wanted and made a list. I thought the aide would be the biggest fighting point but I was wrong. They didn't even bat an eye about the aide. I think when presented with the argument that Rachel needed immediate access to her medication ( I had several articles where this was emphasized) they couldn't say no. I went in with the attitude that all the things on my list were necessary and for them to "prove" why they weren't not for we to prove why they were.

Rachel's aide is a godsend. She is paid under the classification of IA/SPED/LH- basically it stands for Independent aide special education learning handicap. It does not mean Rachel has a learning handicap it means she could have her learning handicapped by a allergic reaction. Bottom line it just means Rachel has a wonderful aide who is paid over $10hr.

Linda

On Mar 6, 2001

Linda, this brain blipping nearly 41 year old remembers things better than you do? I'm sorry, I don't think so! [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img]

I am SO pleased that you specified exactly how you were able to get the aide for Rachel and under which classification. I seem to be reading so many things on this board where people are not aware that they can even have 504 plans implemented and then, to see yours, and it is totally amazing, well, enough said.

I think the information you have posted will be helpful to a lot of PA parents when doing their 504 plans and especially on the aide point, if they so desire.

Also, if I keep babbling off-topic in this thread, it keeps bringing up the newspaper article too!

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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On Mar 7, 2001

I'm always glad, of course, when severe food allergies get recognition in the media. I also enjoyed the article about Rachel and thought it would be very informative for many people. The other article made some very good points, but there were a couple of things in it that concerned me as to how they could be taken by others. The boy who is allergic to wheat and milk but still occasionally eats pizza, for example. At first they mention how he has been rushed to the hospital with anaphylactic symptoms. Then, he mentions waking up with a rash when he eats pizza. It worries me that people could think if our kids ate peanut butter they may wake up with a rash, which doesn't sound very serious. Also, the adult woman who is allergic to wheat, nuts, and stone fruits didn't mention carrying an epi-pen. Again, she described very serious symptoms but only mentioned pulling off the side of the road.

I don't mean to be a party pooper, but I've been thinking about this for days and decided to respond.

Thanks, Miriam

On Mar 7, 2001

Miriam,

You brought up some good points. I can tell you how people have been responding to me and others in my area. The general concensus is the boy is an irresponsible teenager who is taking risks he shouldn't have. They are viewing his mom's comments as to how serious this is as carrying more weight than his idiotic comments about eating pizza. As to the woman in the article, the rough draft of the story carried a lot more information about her but the reporter choose to edit it out. The woman does carry an epi but is afraid to use it, she said something moronic about just the thought of the needle scaring her and she could "probably" use it if she had to. I am glad that part of her comments did not appear in print!

I got a wonderful phone call from a woman who had read the article today. She has a 4 year old PA daughter and was very encouraged by what she had read. She does not get the partciular paper that the story was in but two different people called her to tell her about it.

I think overall the article educated a lot of people.

Linda

On Mar 7, 2001

Hi Linda, thanks for adding in the extra info. That does help put a better perspective on it for me. I truly do think both articles had a lot of great information in them; I hope you don't mind me pointing out those two areas of concern. (I don't think you did mind, but I'm ever conscious of stepping on toes!)

Take care, Miriam

On Mar 7, 2001

California Mom, I had exactly the same thoughts about the two other people in the three person article. I had already been in touch with Linda so she knew how I felt about the people.

I thought the teenager was taking unnecessary risks. Why doesn't he feel comfortable telling his "friends" that he has his allergy and has to make a stop at a different fast food place than they do? I thought it was really quite sad. Also, I felt concern that one day he may not wake up with only a rash, as we all know that you never know the potential severity of a reaction.

It's in this area that I really think that we, as parents of younger children (not to negate parents of older children here or PA adults) can help educate our children, possibly through FAAN's BE A PAL Program so that they will not feel uncomfortable about their allergy and will make the correct choices to ensure their safety despite peer pressure.

As far as the woman. I just couldn't understand. She had suffered that many anaphylactic reactions but thought that it was okay because she had always managed to vomit. She is an adult so there is nothing I can say that will change her way of dealing with her allergies.

Out of the two articles, because of the concerns I had with the teenager and the adult woman in the one article, I only e-mailed Rachel's individual story to Jesse's school principal. She is one person, in particular, that I don't need having see anyone who takes their allergy less seriously than I take my son's life threatening allergy.

I don't think you were being a party pooper at all. I mainly focused on the article about Rachel because I thought it was wonderful. I think it shows a lot of PA parents what they can get implemented with a 504 Plan, if they so desire. I think it is wonderful for Rachel. I focused on that one and certainly read the part about Rachel in the other article, but I did question the other two people and how they dealt with their allergy. I had even mentioned to Linda that I wished that the reporter had presented four food allergy sufferers, another one that deals with their allergy the same way The Tupen Family deal with Rachel's to offset the other two.

And I just so love popping in here and bringing up this thread again and again even though I know Media doesn't have a high turnaround!

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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