Epi used - Fine for now

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Lengthy story (very unrelated to peanuts, though, but still a reaction...)

Saturday: Ann took Caitlin for 1 on one time, I took Sara and Meghan (2 hrs) . Ann went to the supermarket with C and department store for end of year presents for teachers. While at supermarket, Caitlin complained her throat hurt (she has cox-sackie virus), and its been hurting for days now. So Ann went to get some popsicles. She picked out one box, red the ingreds (a new box, but C liked the box). They seemed fine (red white and blue popsicles). Then as she walked further down, saw the same box (by Hood) for less money, and grabbed those. Same box shape, etc, so she inadvertently didn't check the ingreds... Left the store, and while in the car, driving home, gave Caitlin one...

Now, you have to understand this: she's been complaining 20X/day 'My mouth hurts', since this virus caused bumps in her mouth, and we've been giving her popsicles to quiet her down. And they probably help a bit, or at least quiet her down...

So when she had this NEW popsicle, and complained her mouth hurt, Ann responded, just keep licking... and while at a red light, checked the box's ingredients...

Thats when the problem began, kwim? "Oh my god Caitlin. I gave you milk. Drop the popsicle" Crying ensued and panic as well. They get home run in the house... Ann doses C with 2 tsp benadryl and sees the hives on the lips are massive now... and swelling began. Neighbor next door is wondering what the heck is happenning... She grabs the epi, swings/jabs and to the ER (5 mins away) they drive as she speed thru the lights...

I get home with Sara/Meghan, neighbor says what happenned, and they're at the ER. I panic. I drive like a banshee, trying to explain to Sara...

I get there, and shes hoooked up to an oxygen reader, screaming, hives all over body (front/back, everywhere). But swelling decreased.

They stayed for 2 hrs, for any other reaction. There was none, and home within 2 hrs.

Caitlins fine now, as she thinks we just went tot he doctor since the regular ped was closed. No idea about the epi, or anything... She hasnt asked, and we havent told... Sara.. well, she was explained everything... I showed her the epi, the trainer, and let her see the trainer... explained the whole thing, and shes just fine with it.

Ann however, is not doing well. She's in emotional hell. She absolutely feels horrible for what happenned. She's so sorry to put C thru this, especially with the bad week C's having already (with mouth hurting). I tell her C doesnt even ask and won't even remember this whole deal (especially with all the trips we make for her to BCH or the ped...)

So now our discussions (that have kept us up late at nights..):

Medic Alert Bracelet -- Now we're considering one. Or at least THINKING about cinsidering one. We dont have one, obviously...

Action Plan: She debated on using the epi, but saw the swelling, and that was what caused her to give it... So close to the hospital, and didnt want to freak C out anymore, so didn't call 911. Should we have? judgement call. If more severe, probably... Also didn't bring the epi jr with her (left at home).

What to say to C: We've talked on here about this before. We're on the side of telling her she's allergic to milk/peanuts and always ask US if the food is safe. If we dont give it to you, it's NOT.

Now: Our family gets it... My FIL had light dawn on him saying 'Geez, milk does a job on her'. He, who has a peanut allergy (see Ann and genetics) who doesn't get it.. geez... Now they do... But then he asks 'So, can she have cake, ice cream, etc...' Cmon now.

We are supposed to go to a wedding in Long Island Saturday/Sunday... Anns freaking since my MIL will be watching the girls overnight, and then on Fathers Day (we'll be home around 3 pm or so sunday). Last time MIL watched the girls, she tried to give Caitlin waffles from the freezer (you know, the milk/egg/wheat kind... not the Vans WF ones)... No reaction, but Caitlin didnt eat them, maybe tasting one, and KNOWING they were not hers.

So Ann asks how do we tell everyone not to feed C, and I said point blank. Tell them what will happen, in NO uncertain terms. She eats what we send. There ARE no exceptions (and I dont care if YOU have a bag of skittles, and we supply skittles that are the same thing.. you do NOT feed YOUR bag, kwim?)

I think thats it... That was our Saturday. Sara/Meghan and I had a nice lunch at McD's -- We all ate chicken nuggets, and french fries. I sat there amazed that I was feeding Meghan this food. But she liked it!

Jason Caitlin 4-17-00 Allergic to Dairy, Egg, Wheat, Bananas, Grapes, Rye, Sesame, Beef, Garlic, Mustard, Onion, Peas and Avoiding Latex and all Nuts Sara 2-13-98 NKA (avoiding nuts) Meghan 2-28-03 Outgrown Reflux - Alimentum feeder, Stopped Zantac - RAST neg to big 8 [url="http://community.webshots.com/user/jtolpin"]http://community.webshots.com/user/jtolpin[/url]

On Jun 14, 2004

Oh....Jason, that's sounds awful for your poor wife. Unfortunately for all of us, it's so easy for mistakes to happen and yet they cause such turmoil!

I hope she's doing a little better, she kept her head and got her the help she needed quickly, she didn't hesitate to use the epi, sounds like she did all the right things! And, Caitlin's ok (I'm so glad!) thanks to her mom's quick thinking.

I hear you about the inlaw thing. I've found that graphic details seem to get their attention (at least breifly!) to be only followed up with "can they have eggs?" Well, let's see, Matt's allergic to eggs, so, um, NO!!!!

Hang in there, hope the ILs "get it" while the kids stay so you two can try to relax and enjoy the wedding.

------------------ Meg, mom to: Matt 2 yrs. PA,MA,EA Sean 2 yrs. NKA

On Jun 14, 2004

I'm sorry to hear what you all have been going through. Of course your wife is beating herself up - we all do that. But, it does happen that we do make mistakes. If your wife doesn't feel secure enough, yet, to go to the wedding - it could just be too soon for you guys to go away. You sure have your hands full with your three little girls and I am sure you could both use a break and the time together.

Good luck,

Miriam

On Jun 14, 2004

Jason, I'm so sorry Caitlin had such a bad reaction. I hope she is feeling better. Please extend to Ann that we are all human. We do the best we can. She was trying to comfort her, and an accident happened. But she handled it well, and made sure she was ok. And that is all that matters now. So tell her to take it easy on herself.

As far as the medic-alert bracelet, if you think you may ever want/need one, I would get it now and get her used to it while she is so young. I got my sons at 5, put it on, and he's never taken it off. Doesn't even notice it's there. And if you read my thread in off topic (titled Concussions...you will see how we spent Sunday night!) his bracelet came in handy even though I was right next to him.

After the ER doc saw it, he made sure he wrote on the face page of his chart that he was pa, so no one would try to give him any food. I had told the triage nurse, but it wasn't on the front page. He was very educated re [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]a, which was comforting to know in case we ever have to go there for a reaction. And even though I was with him, he was alone in the room for his CT scans, so who knows if the tech. might offer a treat. (He didn't)

As far as the wedding....how important is it to you? Because Ann may not be able to go emotionally. I don't think I would be, and if I did, I wouldn't be able to relax and enjoy myself at all.

And sadly, you can try to tell people not to feed her, no matter what, etc., but for some reason I have found, people just don't understand those words. I hope it works for you.

Again, I hope you are all doing ok, and good luck if you decide to still go to the wedding.

On Jun 14, 2004

My worst nightmare. Hope you are doing OK and that C is doing OK.

Lots of issues to think about. DS wears a medic alert bracelet all the time. He knows it is his allergy bracelet and he is proud of it. We gave it to him so that if needed, all info about his allergies etc can be found out if we are either not able to provide it (God forbid in an accident or something) or not with him. Good to have.

We have matter of factly told our DS from day one that he is allergic to these foods and that is how life is and it is no big deal because there is more to life than food and that he needs to know how to keep himself safe. We are very matter of fact about it and say that 'at least you have two eyes and two legs!'

Our DS had a reaction requiring epi about 3 years ago now just before he turned 3 and that was a good thing because we learned to be so much more careful (no reactions in the last 3 years!!) and he remembers it and because he remembers it, he helps keep himself safe. We had talked about why he needed it and how great it was that it made him feel better so fast etc.

I think that it was good you used the epi. Learning for everyone and better to use it than not to.

just my 2 cents. good luck! Thinking of you!

On Jun 15, 2004

Jason I am so sorry that happened. I am glad that C is ok. How is she feeling now?

Your poor wife. I agree your wife kept her head and did all the right things. I hope she feels better soon.

------------------ Have A Great Day

On Jun 15, 2004

Jason, I'm so sorry your family went through this. Glad to hear Caitlin is doing Ok now though.

Regarding some of your questions.

I do think you should get her a medic bracelet.

I'm a bit confused. Does she not know about her allergies? If not, I do think you should start teaching her about them. Obviously she's not old enough to make decisions about what is/is not safe, but she needs to start learning. (I'm not trying to sound preachy here - it's hard to type and have compassion and caring come through on the screen sometimes, but please understand those feelings are also included in this post and they are sincere.)

I also wanted to comment on the paragraph you started with "Action Plan". When in doubt about whether or not to use the epi-pen, I say err on the side of caution. As for calling 911 - [i]personally[/i] I think one adult with a child [i]should[/i] call 911 rather then driving alone. I agree with you, it is a judgement call - and there are a lot of factors to figure in to your decision (including what the ambulance service in your city it like).

How are you and Ann doing?

On Jun 15, 2004

Thank you all -- some feedback/comments

Caitlin has been told that she is allergic to milk and peanuts. End of story. We have not brought up ANY of the other foods with her... Ann's afraid (and me as well) of giving C a complex in regards to food. At some point we'll explain it to her, but for now, she has been told 'Only eat what WE give you' regardless of who it is... Hopefully, and it seems to be working, she'll adhere to that...

We're already discussing the medic alert bracelet... We weren't in denial about it.. We just didnt want to deal with it, kwim? Yes, we're aware of allergies... We just wanted to shelter her. Cant shelter forever though...

Action plan for next time -- Call 911... End of story... Didnt this time, being minutes away from hospital, but better safe than sorry.

Thank you all!

Ann is feeling better. She's stopped crying at least... good start. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Jason

On Jun 15, 2004

I don't post that often, but your story hit home. I am so sorry to hear about it. I have a 3 yr old son who is allergic to milk, egg, wheat, banana and grapes as we know. He is Deathly allergic to milk...even the touch of it on his skin creates hives/welts. I can only pray that he outgrows it at some point 5 yrs, 7, 10? The doctor said that a milk allergy can be outgrown even if it is analyphaltic at a young age...I hope and pray for the both of us...

On Jun 15, 2004

I'm glad to hear your wife has stopped crying! By the way, I'm sure it was no picnic for you to come home with two kids, hear about what happened, and have to race to the hospital. I hope you're doing ok too.

------------------ Meg, mom to: Matt 2 yrs. PA,MA,EA Sean 2 yrs. NKA

On Jun 15, 2004

Jason, I'm so sorry to hear of Caitlin's reaction. How is she doing now, days later? How is your wife doing to-day?

I checked your signature and it says Caitlin is 4. I think a MedicAlert bracelet and Epi-belt would be okay now, age wise.

I know what you mean about not wanting to freak her out about food. My son is PA only, touch wood, and yet I sometimes wonder if him being a picky eater isn't a psychological way of dealing with his ONE food allergy.

Sounds like you've figured out your action plan.

Last year when Jesse had his anaphylactic reaction, I chose not to Epi (which I don't know, I can't explain it, but a *gut* thing and the reaction did halt itself) but what I did do that was stupid was I walked him to the hospital across the street - well, three doors down and across a four lane highway across the street. Should not have done that.

So, really, it's all a live and learn thing and believe me, you may handle it one way one time and then the next time, for whatever reason, it's handled differently.

What are you going to do about the week-end now though?

I hope everyone is okay. Big hugs. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Jun 16, 2004

We're planning a mediac alert bracelet $$ drop. Well worth it, for sure... We'll discuss with Caitlin, and allow her to pick out her own emblem or whatever you call it...

I'll start researching th threads on which band to get (sportsband, etc..). I never followed those threads well. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

We're still going away to the wedding - C'mon, its a wedding, and it will be QUITE a party... No, we're not putting the safety behind the party...

For my MIL, who will be staying over Sat. nite, we will update our 'monster list of instructions', which include what to/not to feed the kids.

Last time she watched the girls, she opened the freezer, and grabbed a frozen waffle for Caitlins breakfast... Our list DID say waffles were ok (though we DID write 'WHEAT FREE'). Caitlin didnt eat them nonetheless, so, things were ok...

But this list will be MUCH more advanced.

THEN, our MIL is taking all 3 girls to HER house (1 hr away) for Fathers Day. We'll meet them at HER house after driving home...

Our instructions will be in duplicate... everyone at HER house, knows our situation, and will most likely handle Caitlin with kid gloves.

Jason

On Jun 16, 2004

Quote:

Originally posted by momma2boys: [b] Please extend to Ann that we are all human. We do the best we can. [/b]

Absolutely. I try to keep this running in the background wrt family, friends, the general public, [i]myself[/i].

I mean, [i]my oldest cub's last reaction (able to be correlated with consumption) was a direct result of [i]my own actions/assumptions[/i].

So, Completely Understand. Give Ann a hug from me.

ps..........how did it go at the E.R.? Just saw this post, my apologies for comming into the thread late with questions...........

On Jun 16, 2004

So sorry to hear of Caitlin's reaction. I can only imagine how Ann felt! I hope they are both recovered by now.

Have fun at the wedding!

Amy

On Jun 17, 2004

In the E.R., it probably went as well as it could... Given a hystrical 4 year old girl, and a crying mother [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Eventually, Caitlin calmed down, watched a video, and was hooked up to some oxygen checker.. But all in all, it went fine...

Jason

On Jun 17, 2004

Jason, I hope you are all feeling better now. And have fun at that wedding! I'm sure everything will be fine.

On Jun 17, 2004

Quote:

Originally posted by jtolpin: [b]In the E.R., it probably went as well as it could... Given a hystrical 4 year old girl, and a crying mother [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Eventually, Caitlin calmed down, watched a video, and was hooked up to some oxygen checker.. But all in all, it went fine...

Jason[/b]

[i]a video even.[/i] [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] I take it the care was as satisfactory as the perks? (Hope I'm not assuming too much).

Was there a follow up call from the hospital?

On Jun 17, 2004

Quote:

Originally posted by MommaBear: [b] [i]a video even.[/i] [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] I take it the care was as satisfactory as the perks? (Hope I'm not assuming too much).

Was there a follow up call from the hospital?

[/b]

This is what GETS me a bit upset...

When [I] was a child (25+ yrs ago)... My ped was frequently visited by me/my mom when I was in distress (for ANYTHING). Never took $ for an out of office visit... BARELY took $$ for IN office visits...

Now, welcome to the world of HMO's in America... Where all you are is a # (SS#). Our ped (who we like enough... and trust, and helps us out with rx'es, for what we need and to expidite them).. our ped who MUST have gotten a fax, saying we were IN the ER, since they ask who your ped is IN the ER... Our ped... Has not called us to see how we are... Nothing... That bugs me.

Maybe Im expecting too much from a ped, as they have 100's (1000's?) of patients... And sure, she has some with MFA's (very few, but more now... we were her FIRST), and Im sure some with worse conditions... But shouldnt SHE call US to see how we are? C'mon.. just a call... Yes, I know shes busy... But a phone call? Is that too much??

And the ER -- I wouldnt expect them to call. They don't know us at all..

And as for the ER... I had no problems with the way we were treated... They brought C and A in fast (wouldn't YOU, with a crazy 4 year old crying, and a crazy 30+ yr old woman crying!). Nothing else can be said of the ER. They did their job. They did it right.

Jason

On Jun 17, 2004

We have always gotten a follow up call from the ER.

Even when mfa ds was in the hospital for pneumonia(sp) there was no call from the ped. We have sense changed peds and the one we have now is awsome. Have not had a reason to visit ER since changing over to her. Thank goodness.

Jason again glad everything is ok. I am glad everyone has stopped crying [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Have fun at the wedding.

------------------ Have A Great Day

On Jun 17, 2004

I've never received a follow-up call from any ER. Quite often when I've gone to the dr for follow-up after ER visit, he has not received anything from the hospital. I'm not sure if eventually he gets everything, but I do know that sometimes a week after being in ER he has not received anything from the hospital.

Don't write-off a ped. you are otherwise happy with unless you are sure she even knows about this.

On Jun 17, 2004

Jason I agree you should not leave a ped that you are otherwise comfy with. I should have made it clear that we left our former ped for many other reasons. Nothing to do with follow up phone calls.

------------------ Have A Great Day

On Jun 18, 2004

nonono...

WE're not thinking of leaving the ped! God, where would we go! I dislike HMO's [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Our ped is good with the girls (for the most part)... You cant expect 100% of anyone nowadays, but shes close enough for us!

Jason

On Jun 21, 2004

We're back from the wedding... No problems. Story follows:

Saturday - pack minivan for MIL (for Sunday) with dry goods and snacks. Take MY car to NY. Arrive, wedding starts at 10 PM (Jewish Sturday wedding - after sundown). Finishes at 3:30 AM (yawnnnnn). We awake Sunday 8:30, quick bfast, hit the road for home. Arrive home at 1 PM. Cal MIL (at her house now, as she slept over our house Sat nite) to see if she needs anything... Fathers Day Cookout, so we packed Caitlins lunchbox in fridge for her to bring... MIL forgot lunchbox. (thank god for those snacks!). They broiled chicken for lunch, all by themselves. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

We arrive, and all 3 girls are fine. We drive them home, here we are today...

We all survived, though we were VERY drained (energy-wise) Sunday night...

But MIL handled the girls fine.

Thanks all!

Jason

On Jun 21, 2004

[img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] Thanks for letting us know. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Glad you had a good time.

On Jun 21, 2004

Having a sense of humour is VERY important:

When we got to the hotel, the bridge/groom set up gift bags for the out-of-towners upon arrival...

We get to the room, and open up the very nicely decorated bag, to find the following:

2 bottles of water, with granola bars attached (oats/honey with the label saying 'contains soy, almond, and peanut'

No problem.. what else... OOh.. PB Crackers! Yum!

Some milk chocolate candies (with almonds... yum yum!)

A biscotti! (with some sort of nuts) very yum yum!

Oh yeah.... Ann get a water! And yes, there some doritoes and oreo cookie she devoured!

But the other stuff remained in the trunk, and brought into work with me, today.. Yum Yum Yum! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

The running joke between her/I was her saying 'What were they trying to do, kill me??' (Its sort of an inside joke because of the Interfaith marriage we have (and this being a VERY Jewish wedding...)

Jason

Jason

On Jun 21, 2004

Seeing this VERY late.

Sorry to hear about the reaction but happy that all went well with the wedding.

I suppose you can laugh now about the groom/bride gift bags, however, I think I probably would have said the same thing!! [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] (trying ta kill me??) [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]

Btw, our ER ALWAYS does follow up calls. Kinda sucks when they do think of you as a SSN doesn't it? [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]

My BIL got married about 1 1/2 years ago. They had a VERY Jewish wedding (interfaith as well), too. DH (best man), myself (bridesmaid), and both older boys (ring bearers) were in it (I just had #3 boy 2 months before wedding so I looked like a beached whale in a Vera Wang dress [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] ) LOL However, I wouldn't let boys eat dinner there. They really tried to accommodate but I felt it was really difficult to be 100% sure and thankfully I was right because there were a ton of foods with nuts!!

Glad everything turned out well!! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

I wanted to add that I have been to several Jewish weddings and have to say that they are the most lavish weddings I have ever been to--VERY nice!

[This message has been edited by e-mom (edited June 21, 2004).]

On Jun 22, 2004

Besides all the food and the 'stuff', the most exquisite thing there was this:

On a table, was this see thru type gatorade container (like for football games, but not that type... But THAT big but REAL nice looking)

I thought it was, like an aquarium, filled with fish... silly me.. It was filled with cosmopolitan drinks (well, the alcohol that goes INTO them)... and a tap at the end, with the waitress/hostess? pouring them into glasses for you... Ann had 1/2 of one, and couldnt deal with the strength...

Jason

On Jun 22, 2004

Jason, glad you guys had a good time at the wedding and that everything went well with MIL.

Hope you had a great Fathers day as well.

On Jun 22, 2004

Jason, glad to see you went to the wedding!

My son started learning about his allergy and understanding it at about 41/2.

You can use this trip to hospital as an excuse to talk to your daughter about her allergies and that epi-pens are there to help. Most children will ask a question or two at this age,a few days after the event. In our case, William did ask if he would die from a reaction, and if he did could he be at home , rather then at school. I didnt deny that a reaction could kill, but focused on the epipens , how important they are and how they help us get to hospital and make him feel better.

We also got an epi pen trainer and started talking about how they work and had him practicing on teddys.

We had an medic alert bracelet at a very young age, I worried about car accidents, if I was hurt , and William wasnt , they needed to be aware of his allergies. It also made sense when he was young because he was of an age to grab food or play with other children who where eating food.

William has a velcro strap one with footballs on(its filthy, and grubby like my boy!, I am sure there is a nice girly version around for your little girl!

As for your wife, worrying about her mistake, well we all do make them. I have lost count of the times I have had to shove anti histamine down my sons throat and sat with the epipens on my lap! and we have forgoten the epipens and left them at home! Its hard enough making sure I am putting all four kids in the car at times! ( they do try to escape !)

I think avoiding milk is difficult as its sooooo wide spread in food. I find my sons egg allergy more of a problem than the nut.

things went ok in the end, so dont worry too much!

sarah william has allergies to, peanut/all beans/egg/kiwi fruit/bovril and marmite spreads(high yeast histamine foods ?!!) and some e-numbers in food, have no idea which one, but the colourings and additives caused a mild IGE reaction.

evironmental allergies, dog (nasty nasty , ) cat, tree pollen, hay fever, dustmite.

On Jun 22, 2004

Glad to hear all went well! I think it is very inconsiderate of people to have such LATE weddings.

By the way, my Jewish wedding was quite traditional and quite simple. It was a Sunday afternoon.

[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Miriam

On Jun 22, 2004

Quote:

Originally posted by California Mom: [b] By the way, my Jewish wedding was quite traditional and quite simple. It was a Sunday afternoon.

[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Miriam

[/b]

Mine as well, but it was Sunday AM - brunch!

Amy

On Jun 26, 2004

Amy & Miriam & Jason- stupid question coming from someone who had never met a Jewish person until she ws 35, and now deals with food requests almost daily from a diverse clientele.

We are often asked to put dishes of "nuts" out for luncheons, weddings, bar/bat mitvahs and casual dinners. We have assorted spiced and plain nuts on our catering package, but most insist on bringing their own nuts in.

We do Kosher-style functions, not kosher, though.

Is there a tradition to the "nuts" at gatherings? Really curious [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Good to see you posting, Miriam [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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