Epi used - Fine for now

Posted on: Mon, 06/14/2004 - 4:50am
jtolpin's picture
Joined: 05/28/2003 - 09:00

Lengthy story (very unrelated to peanuts, though, but still a reaction...)

Saturday: Ann took Caitlin for 1 on one time, I took Sara and Meghan (2
hrs) . Ann went to the supermarket with C and department store for
end of year presents for teachers. While at supermarket, Caitlin
complained her throat hurt (she has cox-sackie virus), and its been
hurting for days now. So Ann went to get some popsicles. She picked
out one box, red the ingreds (a new box, but C liked the box). They
seemed fine (red white and blue popsicles). Then as she walked
further down, saw the same box (by Hood) for less money, and grabbed
those. Same box shape, etc, so she inadvertently didn't check the
ingreds... Left the store, and while in the car, driving home, gave
Caitlin one...

Now, you have to understand this: she's been complaining 20X/day 'My
mouth hurts', since this virus caused bumps in her mouth, and we've
been giving her popsicles to quiet her down. And they probably help a
bit, or at least quiet her down...

So when she had this NEW popsicle, and complained her mouth hurt, Ann
responded, just keep licking... and while at a red light, checked the
box's ingredients...

Thats when the problem began, kwim? "Oh my god Caitlin. I gave you
milk. Drop the popsicle" Crying ensued and panic as well. They get
home run in the house... Ann doses C with 2 tsp benadryl and sees the
hives on the lips are massive now... and swelling began. Neighbor
next door is wondering what the heck is happenning... She grabs the
epi, swings/jabs and to the ER (5 mins away) they drive as she speed
thru the lights...

I get home with Sara/Meghan, neighbor says what happenned, and
they're at the ER. I panic. I drive like a banshee, trying to explain
to Sara...

I get there, and shes hoooked up to an oxygen reader, screaming,
hives all over body (front/back, everywhere). But swelling decreased.

They stayed for 2 hrs, for any other reaction. There was none, and
home within 2 hrs.

Caitlins fine now, as she thinks we just went tot he doctor since the
regular ped was closed. No idea about the epi, or anything... She
hasnt asked, and we havent told... Sara.. well, she was explained
everything... I showed her the epi, the trainer, and let her see the
trainer... explained the whole thing, and shes just fine with it.

Ann however, is not doing well. She's in emotional hell. She
absolutely feels horrible for what happenned. She's so sorry to put C
thru this, especially with the bad week C's having already (with
mouth hurting). I tell her C doesnt even ask and won't even remember
this whole deal (especially with all the trips we make for her to BCH
or the ped...)

So now our discussions (that have kept us up late at nights..):

Medic Alert Bracelet -- Now we're considering one. Or at least
THINKING about cinsidering one. We dont have one, obviously...

Action Plan: She debated on using the epi, but saw the swelling, and
that was what caused her to give it... So close to the hospital, and
didnt want to freak C out anymore, so didn't call 911. Should we
have? judgement call. If more severe, probably... Also didn't bring
the epi jr with her (left at home).

What to say to C: We've talked on here about this before. We're on
the side of telling her she's allergic to milk/peanuts and always ask
US if the food is safe. If we dont give it to you, it's NOT.

Now: Our family gets it... My FIL had light dawn on him saying 'Geez,
milk does a job on her'. He, who has a peanut allergy (see Ann and
genetics) who doesn't get it.. geez... Now they do... But then he
asks 'So, can she have cake, ice cream, etc...' Cmon now.

We are supposed to go to a wedding in Long Island Saturday/Sunday...
Anns freaking since my MIL will be watching the girls overnight, and
then on Fathers Day (we'll be home around 3 pm or so sunday). Last
time MIL watched the girls, she tried to give Caitlin waffles from
the freezer (you know, the milk/egg/wheat kind... not the Vans WF
ones)... No reaction, but Caitlin didnt eat them, maybe tasting one,
and KNOWING they were not hers.

So Ann asks how do we tell everyone not to feed C, and I said point
blank. Tell them what will happen, in NO uncertain terms. She eats
what we send. There ARE no exceptions (and I dont care if YOU have a
bag of skittles, and we supply skittles that are the same thing.. you
do NOT feed YOUR bag, kwim?)

I think thats it... That was our Saturday. Sara/Meghan and I had a
nice lunch at McD's -- We all ate chicken nuggets, and french fries.
I sat there amazed that I was feeding Meghan this food. But she liked

Caitlin 4-17-00 Allergic to Dairy, Egg, Wheat, Bananas, Grapes, Rye,
Sesame, Beef, Garlic, Mustard, Onion, Peas and Avoiding Latex and all
Sara 2-13-98 NKA (avoiding nuts)
Meghan 2-28-03 Outgrown Reflux - Alimentum feeder, Stopped Zantac -
RAST neg to big 8

Posted on: Mon, 06/14/2004 - 5:22am
mommyofmatt's picture
Joined: 03/12/2004 - 09:00

Oh....Jason, that's sounds awful for your poor wife. Unfortunately for all of us, it's so easy for mistakes to happen and yet they cause such turmoil!
I hope she's doing a little better, she kept her head and got her the help she needed quickly, she didn't hesitate to use the epi, sounds like she did all the right things! And, Caitlin's ok (I'm so glad!) thanks to her mom's quick thinking.
I hear you about the inlaw thing. I've found that graphic details seem to get their attention (at least breifly!) to be only followed up with "can they have eggs?" Well, let's see, Matt's allergic to eggs, so, um, NO!!!!
Hang in there, hope the ILs "get it" while the kids stay so you two can try to relax and enjoy the wedding.
Meg, mom to:
Matt 2 yrs. PA,MA,EA
Sean 2 yrs. NKA

Posted on: Mon, 06/14/2004 - 6:22am
California Mom's picture
Joined: 07/14/2000 - 09:00

I'm sorry to hear what you all have been going through. Of course your wife is beating herself up - we all do that. But, it does happen that we do make mistakes. If your wife doesn't feel secure enough, yet, to go to the wedding - it could just be too soon for you guys to go away. You sure have your hands full with your three little girls and I am sure you could both use a break and the time together.
Good luck,

Posted on: Mon, 06/14/2004 - 10:34am
momma2boys's picture
Joined: 03/14/2003 - 09:00

Jason, I'm so sorry Caitlin had such a bad reaction. I hope she is feeling better. Please extend to Ann that we are all human. We do the best we can. She was trying to comfort her, and an accident happened. But she handled it well, and made sure she was ok. And that is all that matters now. So tell her to take it easy on herself.
As far as the medic-alert bracelet, if you think you may ever want/need one, I would get it now and get her used to it while she is so young. I got my sons at 5, put it on, and he's never taken it off. Doesn't even notice it's there. And if you read my thread in off topic (titled Concussions...you will see how we spent Sunday night!) his bracelet came in handy even though I was right next to him.
After the ER doc saw it, he made sure he wrote on the face page of his chart that he was pa, so no one would try to give him any food. I had told the triage nurse, but it wasn't on the front page. He was very educated re [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]a, which was comforting to know in case we ever have to go there for a reaction. And even though I was with him, he was alone in the room for his CT scans, so who knows if the tech. might offer a treat. (He didn't)
As far as the wedding....how important is it to you? Because Ann may not be able to go emotionally. I don't think I would be, and if I did, I wouldn't be able to relax and enjoy myself at all.
And sadly, you can try to tell people not to feed her, no matter what, etc., but for some reason I have found, people just don't understand those words. I hope it works for you.
Again, I hope you are all doing ok, and good luck if you decide to still go to the wedding.

Posted on: Mon, 06/14/2004 - 12:11pm
AlwaysAvoidAnaphylaxis's picture
Joined: 06/23/2001 - 09:00

My worst nightmare. Hope you are doing OK and that C is doing OK.
Lots of issues to think about. DS wears a medic alert bracelet all the time. He knows it is his allergy bracelet and he is proud of it. We gave it to him so that if needed, all info about his allergies etc can be found out if we are either not able to provide it (God forbid in an accident or something) or not with him. Good to have.
We have matter of factly told our DS from day one that he is allergic to these foods and that is how life is and it is no big deal because there is more to life than food and that he needs to know how to keep himself safe. We are very matter of fact about it and say that 'at least you have two eyes and two legs!'
Our DS had a reaction requiring epi about 3 years ago now just before he turned 3 and that was a good thing because we learned to be so much more careful (no reactions in the last 3 years!!) and he remembers it and because he remembers it, he helps keep himself safe. We had talked about why he needed it and how great it was that it made him feel better so fast etc.
I think that it was good you used the epi. Learning for everyone and better to use it than not to.
just my 2 cents. good luck! Thinking of you!

Posted on: Tue, 06/15/2004 - 1:25am
ALLERGYMOM's picture
Joined: 10/09/2003 - 09:00

Jason I am so sorry that happened. I am glad that C is ok. How is she feeling now?
Your poor wife. I agree your wife kept her head and did all the right things. I hope she feels better soon.
Have A Great Day

Posted on: Tue, 06/15/2004 - 1:27am
Anonymous's picture
Anonymous (not verified)

Jason, I'm so sorry your family went through this. Glad to hear Caitlin is doing Ok now though.
Regarding some of your questions.
I do think you should get her a medic bracelet.
I'm a bit confused. Does she not know about her allergies? If not, I do think you should start teaching her about them. Obviously she's not old enough to make decisions about what is/is not safe, but she needs to start learning. (I'm not trying to sound preachy here - it's hard to type and have compassion and caring come through on the screen sometimes, but please understand those feelings are also included in this post and they are sincere.)
I also wanted to comment on the paragraph you started with "Action Plan". When in doubt about whether or not to use the epi-pen, I say err on the side of caution. As for calling 911 - [i]personally[/i] I think one adult with a child [i]should[/i] call 911 rather then driving alone. I agree with you, it is a judgement call - and there are a lot of factors to figure in to your decision (including what the ambulance service in your city it like).
How are you and Ann doing?

Posted on: Tue, 06/15/2004 - 2:45am
jtolpin's picture
Joined: 05/28/2003 - 09:00

Thank you all -- some feedback/comments
Caitlin has been told that she is allergic to milk and peanuts. End of story. We have not brought up ANY of the other foods with her... Ann's afraid (and me as well) of giving C a complex in regards to food. At some point we'll explain it to her, but for now, she has been told 'Only eat what WE give you' regardless of who it is... Hopefully, and it seems to be working, she'll adhere to that...
We're already discussing the medic alert bracelet... We weren't in denial about it.. We just didnt want to deal with it, kwim? Yes, we're aware of allergies... We just wanted to shelter her. Cant shelter forever though...
Action plan for next time -- Call 911... End of story... Didnt this time, being minutes away from hospital, but better safe than sorry.
Thank you all!
Ann is feeling better. She's stopped crying at least... good start. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 06/15/2004 - 5:29am
ks65's picture
Joined: 03/06/2002 - 09:00

I don't post that often, but your story hit home. I am so sorry to hear about it. I have a 3 yr old son who is allergic to milk, egg, wheat, banana and grapes as we know. He is Deathly allergic to milk...even the touch of it on his skin creates hives/welts. I can only pray that he outgrows it at some point 5 yrs, 7, 10? The doctor said that a milk allergy can be outgrown even if it is analyphaltic at a young age...I hope and pray for the both of us...

Posted on: Tue, 06/15/2004 - 5:53am
mommyofmatt's picture
Joined: 03/12/2004 - 09:00

I'm glad to hear your wife has stopped crying! By the way, I'm sure it was no picnic for you to come home with two kids, hear about what happened, and have to race to the hospital. I hope you're doing ok too.
Meg, mom to:
Matt 2 yrs. PA,MA,EA
Sean 2 yrs. NKA

Posted on: Tue, 06/15/2004 - 8:18am
Anonymous's picture
Anonymous (not verified)

Jason, I'm so sorry to hear of Caitlin's reaction. How is she doing now, days later?
How is your wife doing to-day?
I checked your signature and it says Caitlin is 4. I think a MedicAlert bracelet and Epi-belt would be okay now, age wise.
I know what you mean about not wanting to freak her out about food. My son is PA only, touch wood, and yet I sometimes wonder if him being a picky eater isn't a psychological way of dealing with his ONE food allergy.
Sounds like you've figured out your action plan.
Last year when Jesse had his anaphylactic reaction, I chose not to Epi (which I don't know, I can't explain it, but a *gut* thing and the reaction did halt itself) but what I did do that was stupid was I walked him to the hospital across the street - well, three doors down and across a four lane highway across the street. Should not have done that.
So, really, it's all a live and learn thing and believe me, you may handle it one way one time and then the next time, for whatever reason, it's handled differently.
What are you going to do about the week-end now though?
I hope everyone is okay. Big hugs. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]



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