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Posted on: Tue, 05/20/2003 - 11:04pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Does the manufacturer of Benedryl make "Fast Melts" than contain only Benedryl?
edit to correct grammar. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
[This message has been edited by MommaBear (edited May 21, 2003).]

Posted on: Fri, 10/10/2003 - 2:34pm
Jana R's picture
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Joined: 02/09/1999 - 09:00

With Sabrina Shannon's and Kate Obertelli's in the UK deaths and the posts about husbands (LaurensMom) and adults not carrying their Epi-pens (this entire thread has me scared for my now 15 YO DS in a few years [url="http://uumor.pair.com/nutalle2/peanutallergy/Forum24/HTML/000073.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum24/HTML/000073.html[/url] ), I am back to encouraging all to write Dey or maybe a competitor to design epinephrine in an easier to carry tool - here is a copy of correspondence from FAAN early this summer:
-----Original Message-----
From: The Food Allergy & Anaphylaxis Network [mailto:faan@foodallergy.org]
Sent: Wednesday, June 18, 2003 5:46 AM
Subject: Re: Epi Pen
Hi Jana,
We have often voiced the need for an epinephrine self-injector that is
smaller. There have been some attempts by pharmaceutical companies to
develop alternatives to the EpiPen, but none have achieved FDA
approval. There are, in fact, one or more that are currently in the
process. When there is something else available, we will certainly help to
spread the word.
Debbie
At 03:05 PM 6/17/03 -0700, you wrote:
>I was wondering if you could help. I am very convinced that the Epi Pen needs
>to be designed shorter. In particular I am concerned about adult men not
>carrying epi-pens wherever they go since they are an inconvenient size to
>slip into a pocket. Unlike women, they don't carry a purse and many men
>(and teen boys like mine) don't want to wear an epi-belt or fanny pack. I
>wonder if they were a little shorter if these two men would still be alive?
[url="http://www.tallahassee.com/mld/tallahassee/news/local/6091392.htm"]http://www.tallahassee.com/mld/tallahassee/news/local/6091392.htm[/url]
>Matt Schmauch, age 29
>
>and
>
[url="http://www.thecrimson.com/article.aspx?ref=256016"]http://www.thecrimson.com/article.aspx?ref=256016[/url]
>
>Trent A. Hankins age 31
>
>
>
>I d be willing to bet there are others who died because they did not carry
>their epi-pen.
>
>Do you have any suggestions or can you help approach Dey about considering
>this? Perhaps with the upcoming anti-IgE drug, they want to make their
>pen new and improved to ensure they keep customers.
>
>Thank you
>
>Jana Robertson
>
>Food Education Allergy Support Team (Seattle) co-leader
>
[url="http://www.aafawa.org/feast.htm"]http://www.aafawa.org/feast.htm[/url]
_______________________________________
Debbie Scherrer, Member Communications
The Food Allergy & Anaphylaxis Network
10400 Eaton Place, Suite 107
Fairfax, VA 22030
1-800-929-4040
Phone: 703-691-3179 Fax: 703-691-2713
[url="http://www.foodallergy.org/"]http://www.foodallergy.org/[/url]
_______________________________________
And yes, Mommabear - I just found Benadryl only (without the decongestant) in Fast Melts so we've picked some up.
I really REALLY [b]REALLY[/b] want a more conveniently sized epinephrine soon! I'm convinced that if it wasn't so cumbersome in a pocket more adults and teens would carry them.
[This message has been edited by Jana R (edited October 11, 2003).]

Posted on: Sun, 10/12/2003 - 1:02am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Jana R
Thank you for the info.
I was wondering...............
[i]do you think the overall appearance[/i] of the epi-pen carrys some psychological significance? For both the person for whom it is prescribed, the person carrying it (may be one and the same), and any other persons "involved".
It is sorta "boomstick" like.
Sometimes when I explain my childs potential for anaphylaxis to persons, and circumstances surrounding it, and potential for death ........... and feel like "nobody is home"........... I show them the epi-pen. The light usually comes on.
Of course, in no way to I take such as an accurate indicator of effective teaching, understanding, or ability in any manner or form. Just a way to elicit the response "Oh." from certain persons.

Posted on: Sun, 10/12/2003 - 1:17am
ajinnj's picture
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Joined: 05/13/2003 - 09:00

Quote:Originally posted by MommaBear:
[b]Jana R
Sometimes when I explain my childs potential for anaphylaxis to persons, and circumstances surrounding it, and potential for death ........... and feel like "nobody is home"........... I show them the epi-pen. The light usually comes on.
[/b]
I agree the epi definitely helps conveys the seriousness. I think for many, the thought of injecting the pen is enough of a motivation to be accomadating.
Allison

Posted on: Sun, 10/12/2003 - 7:42am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Gotta think of some of the medications I encounter in my profession. One in particular has "blaze orange" on the vial.

Posted on: Sun, 10/12/2003 - 7:46am
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

Jana,
I have repeatedly pleaded with Dey to do something about the size of the epipen. My almost 10 year old son is starting to balk at wearing his epimate - I can just imagine where this will go in another 4-5 years. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]
For anyone who has found the Benadryl-only fastmelts -- Where? I've searched high and low with no luck at all.
Amy

Posted on: Sun, 10/12/2003 - 8:30am
Jana R's picture
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Joined: 02/09/1999 - 09:00

MommaBear - sure the size of the pen can reinforce the seriousness of the allergy but at this point I'm more concerned about allergics being able to keep themselves safer by making it more convenient to carry therefore more [b]likely[/b] to be carried. Maybe there is room in the market for two pens - a big one (which would certainly be easier to keep track of and would leave a bigger visual impact) and a smaller one to tuck away and be handy for teens and adults.
Amy - I found Children's Benadryl Fastmelt at Target - it's a green and blue label - I don't know if this will work but I'm trying Nutternomore's suggestion about how to shrink a long URL to link to the product at [url="http://www.drugstore.com"]www.drugstore.com[/url] - (if this doesn't work go to the site and search Benadryl Fastmelt) - [url="http://tinyurl.com/qo58"]http://tinyurl.com/qo58[/url]
so you can either buy it there or see what you're looking for. My 15 year old isn't thrilled about carrying something around that says "Children's" but at least it's discreet so he'll do it.

Posted on: Sun, 10/12/2003 - 10:59am
darthcleo's picture
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Joined: 11/08/2000 - 09:00

Sheesh, after all they now manufacture compact tampons, so the girls in school can hide them better. Why not Epis???

Posted on: Sun, 10/12/2003 - 11:12am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by darthcleo:
[b]Sheesh, after all they now manufacture compact tampons, so the girls in school can hide them better. Why not Epis???[/b]
how old are these girls??

Posted on: Mon, 10/13/2003 - 8:45am
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

Thanks Jana - I swear Target is the one place I haven't looked! Figures I just bought a new box of chewables, but I'll go and buy these anyway.
Now, back to Dey, perhaps we can compile a list of these awful obituaries and send them to Dey. Maybe that will make an impression, especially if they fear that some crazy, litigious person will sue them for not making their product usable. Of course [b]I'd[/b] never put that idea in their heads...
Amy

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