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Posted on: Wed, 08/23/2006 - 7:56am
Adele's picture
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Joined: 01/31/2005 - 09:00

pfmom2,
My reaction that sent me to the allergist to be tested for PA came after eating 1/4 cup of peanuts.
Within 15 minutes I had severe stomach cramping, followed by repeated vomiting - then diarrhea like I've never had before. The allergist said the diarrhea was caused by a drop in blood pressure, therefore my reaction my anaphylactic.
I was also confused about whether or not I should use the epi for only GI - but the information in the newsletter is from one of the top authorities on PA - so I'll listen to him first.
In fact, I think I'm going to carry the newsletter with my epi pens. When in doubt I'll read it - and shake it in the face of the ER doc if I'm questioned!

Posted on: Wed, 08/23/2006 - 9:23am
McCobbre's picture
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Joined: 04/16/2005 - 09:00

Quote:Originally posted by Adele:
[b]pfmom2,
The allergist said the diarrhea was caused by a drop in blood pressure, therefore my reaction my anaphylactic.
I was also confused about whether or not I should use the epi for only GI - but the information in the newsletter is from one of the top authorities on PA - so I'll listen to him first.
In fact, I think I'm going to carry the newsletter with my epi pens. When in doubt I'll read it - and shake it in the face of the ER doc if I'm questioned![/b]
Thank you soooo much! When I used the epi after my GI reaction, I waited until I had another symptom (I counted the GI tract as one, but I had severe cramping and diarrhea). But my first symptom was an overall spaciness (very common for that to be the first symptom for me). I did the Benadryl thing for a few hours, and the reaction progressed to include chest pains. Then I took the epi. (and later uterine contractions -- total reaction lasted for 4 days).
Now I'll know not to wait, although I don't know if I'll still try benadryl first to see if that alleviates it. I've had GI reactions that haven't been anaphylactic, too. So hard to know. But they've always involved diarrhea, so it's good to know that that indicates a drop in blood pressure.
Thank you.

Posted on: Wed, 08/23/2006 - 10:22am
Adele's picture
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Joined: 01/31/2005 - 09:00

McCobbre, I don't think this means that diarrhea ALWAYS indicates low bp. In my case, the allergist thought it did...
and I don't want to get into the gross details, but I think his diagnosis had to do with the TYPE of diarrhea. He had a term for it but I don't remember.....
I'm going to go ahead an put the Q. and A. here as it is in the newsletter just to make sure everyone knows what Dr. Wood says on the subject.
Q. I understand that epinephrine can stop respiratory and circulatory reactions. What role does it play in gastrointestinal (GI) reactions? Is it administered in the case of GI reactions just to prevent other systemic reactions?
A. It is really given for both reasons. In fact, some of the most dramatic improvements after giving ephinephrine occur in people having severe GI reactions.
Much of the stomach pain experienced in an allergic reaction is in fact likely due to swelling in the intestine due in part to dilated blood vessels. The benefit of epinephrine is, therefore, not a surprise.
[This message has been edited by Adele (edited August 23, 2006).]

Posted on: Wed, 08/23/2006 - 10:48am
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Joined: 05/28/2009 - 16:42

I have a little one with what we are referring to as "food sensitivities." I've been following the GI threads here on the boards, trying to figure out if what he is having is the kind of reaction you all are talking about, or if he really is just 'intolerant' of the offending foods.
He can eat small portions of, say, chocolate, but after too much (and you never really know when he'll reach "too much" until it's too late), he'll have diarrhea. It can last for a couple days sometimes.
We've seen the allergist, and basically she said just to avoid the foods. She never called this an allergy like PA, or a GI-type allergy like you are speaking about here.
Here's the list of offending foods: chocolate, cinnamon, paprika, annatto, soy, whole wheat, and blue no. 1. (I've also questioned the possibility of celiac, but I think he was tested for that a few years ago.)
I posted a reaction he had recently (can't remember the name of the post now), and I was wondering if maybe his "sensitivities" turned into a full-blown allergy.
Any ideas from you who deal with this every day?
Thanks,
Lam [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 08/24/2006 - 8:48am
McCobbre's picture
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Joined: 04/16/2005 - 09:00

Lam--I strongly suspected my allergy after my first reaction. And this is shellfish, but I've also had some reactions after having peanuts, but they are not severe like shellfish.
The first reaction for me--there was no doubt it was an allergy really. I had crabcakes, and two hours later I felt spacy and then I had the most incredible stomach pain. It wasn't like the pain I get with reflux sometimes. It was this groaning pain, and I could feel the crabcakes travel down my GI tract--and as they went the intense pain was felt. It felt like my intestines were swelling or something as it was traveling.
75mg of liquid benadryl initially and then more doses every few hours fixed it. I should have used Epi to just stop the thing.
There was no D. with that reaction--just intense pain.
Subsequent bad reaction had both stomach pain and D (not as extreme as Adele's though). But the pain is intense.
I don't know that I could say anything else that might be helpful, but an ImmunoCap test confirmed the SFA (and that was before the second bad reaction).
Some people really are allergic to chocolate. May be worth a test if it would change things for you. You might know whether or not it's okay to allow even small amounts.

Posted on: Fri, 08/25/2006 - 4:14am
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Joined: 05/28/2009 - 16:42

McCobbre -
Thanks for sharing your experience.
I plan to contact our allergist about this - again. We've met with her before, discussed the foods that cause the problem, and she said there aren't tests for them. ? And she just told us to try to avoid them. She didn't call it an "allergic reaction."
The pain you mentioned makes this even harder to figure out. Our little one has a neurological disorder that affects his tolerance for pain. He doesn't even feel that he has to go to the bathroom until it's almost too late - and sometimes is. I'm wondering if he's feeling any pain with the diarrhea. He doesn't mention any... but that doesn't mean anything.
Anyway, thanks again for sharing, and if I learn anything useful from the allergist, I'll let you know.
Take care,
Lam [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Fri, 08/25/2006 - 5:57am
Adele's picture
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Joined: 01/31/2005 - 09:00

Hi Lam,
When you get hives it's really easy to tell it's a reaction, but not so with GI reactions, which is why I didn't know I had PA for years. I would get hives from other things but not peanuts. When I was in high school, I would get a stomach ache from eating peanuts. My Dad told me that peanuts were hard to digest - so I figured that was the cause and didn't eat many.
I was probably PA for years but didn't realize it was an allergy because it was only GI.
Looking back, I can see a pattern to all the 'reactions' I had that I didn't know were reactions. Initially, it took a couple of hours after eating pn's before I got sick but I was usually better in 5 or 6 hours. My stomach was the family joke! They all thought I was a hypochondriac.
So for me, when the PA was mild, the symptoms were relatively mild and happened quite a long time after ingestion.
The reason I'm boring you with this, is perhaps it will help you make sense of what is happening with your
little one. Maybe you'll see a pattern to the stomach problems.

Posted on: Fri, 08/25/2006 - 1:57pm
doreen's picture
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Joined: 06/23/2001 - 09:00

My first child had a test for apples and it came up positive but they said I could give them to her anyway. Well, one night I gave her a huge amount of applesauce and she was up all night! Bye bye applesauce. All of my kids were like that -- just talk to the doctor and see if you can get the test and judge for yourself.
This was my PA child I was talking about, and she does not react to the skin test and she only reacts by saying her tongue feels funny then she vomits. They really seem to have a hard time believing she is having a reaction. The ONLY time she has thrown up is by reaction in my book. There were some waffles that were in question, and now they have a warning so there are only two other mysteries and one was chocolate so chances are that was. It bugs me that they are so by the book sometimes.

Posted on: Thu, 01/25/2007 - 11:02am
Adele's picture
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Joined: 01/31/2005 - 09:00

Raising for Anna

Posted on: Thu, 01/25/2007 - 11:38am
onedayatatime's picture
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Joined: 09/11/2007 - 09:00

Thanks! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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