emily vonder meulin

Posted on: Tue, 04/01/2008 - 2:28am
williamsmummy's picture
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Joined: 03/26/2002 - 09:00
Posted on: Tue, 04/01/2008 - 9:35am
williamsmummy's picture
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Joined: 03/26/2002 - 09:00

this month will mark the 2nd annversary of her death.
I dont think she should be forgotton.
2 yrs may not seem a long time, but for her parents it must be a very very long time. But short in getting over the raw hurt of it all.
Just my opinon. i be thinking of her parents.
sarah

Posted on: Wed, 04/02/2008 - 4:03am
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Joined: 04/23/2007 - 09:00

I will be thinking of her family also. It's hard this months marks the 2nd anniversary...
I have to say I went to the web site you posted and I read the "What we wish we knew" section. Very interesting. I had no idea that the peanut allergic who also have asthma should avoid soy. (And what I've just read about soy...ugh! Makes me wonder a lot of things!) I also had no idea Kraft was owned by Phillip Morris till 1-2007. I have also wondered why their aren't other cheaper versions of the Epipen...the expense of this has to really hurt some families finacially.
Everyone should try to read that section (if not all) from the website williamsmummy posted.

Posted on: Wed, 04/02/2008 - 5:29am
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Joined: 02/24/2008 - 12:46

Ok, this is the first time I have heard PA kids should not have soy. My son is 4 yrs old and recently diagnosed with PA/TNA, and just found out he is no longer allergic to dairy which he was allergic to for his first 4 years of life. Therefore, we are used to avoiding dairy and giving him soy products which he likes. He drinks soy milk, and eats soy yogurt on a daily basis. We are trying to introduce cows milk but he just doesn't like it. Are we doing him harm by giving him soy?? I don't get it, whats the danger here? If anyone knows please enlighten me.

Posted on: Wed, 04/02/2008 - 6:19am
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Joined: 03/27/2008 - 08:48

My kids eat soy... their allergist has never told us to avoid it.

Posted on: Wed, 04/02/2008 - 9:53am
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Joined: 04/23/2007 - 09:00

Like I said...I had not heard that PA children with asthma should avoid soy. I was surprised to read that on the website listed above about "what we wish we knew." My child with PA/TA does not have asthma so we do not avoid soy. He's never had a problem with soy either. Am I wrong or does it sound like the implication they are stating is that Furlong (FAAN CEO) was questioning why they hadn't avoided soy? I guess so, since it's under the title "What we wish we knew..."

Posted on: Wed, 04/02/2008 - 10:28am
wenrace's picture
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Joined: 08/20/2007 - 09:00

my dd is pa/soy and tna, the reason for the soy avoidance is because it is part of the legume familyand very close to peanuts and some may be allergic to it as well like my dd. the reason we had her tested when she was 5 was because she was fed a vegatarian hot dog that was made of soy and wheat and the high concentration of the soy caused her to break out in hives within minutes of taking the first bite, and she didn't like that taste sow she wouldn'teat more. We were lucky that that was the worst of that reaction... because we weren't with her she was at a VBS and they just knew that she couldn't have nuts... (that's a whole nother story). up until then we only said she couldn't have nuts... never knew about the may containing... now we are like DUH!
anyway.. speak to the allergist andask if your child should be tested for the soy allergy...

Posted on: Wed, 04/02/2008 - 10:44am
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Joined: 03/09/2008 - 15:23

such an awful story about that family and poor emily-she will be in my prayers. we need to be thankful that they are telling her story and alerting others to the dangers and the "what we wish we had known." the whole thing about soy, corn, gmo's is very suspect...just makes you wonder.

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