Emily involved in Xolair trials

Posted on: Thu, 09/22/2005 - 10:49am
EmilysMom's picture
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Joined: 09/03/2002 - 09:00

I read Melissa's post about her son. So I did a search to find someone doing something like that in our area.

I found that Children's Hospital in Los Angeles is doing the Xolair trials. I contacted them and we have an appointment on Monday 9-26 to meet with the Dr.

We are nervous, yet excited. Emily is thinking that this means she will get to be "normal". I think she is more for this than we are. By the way, she just turned 7.

We have a few concerns about the fact that 1/2 of the patients will be on placebo. Hopefully my husbands concerns are addressed. He has a stack of papers a couple of inches thick that he has been researching this with!

Today we saw the allergist, and spoke about all of our concerns. She knows about Xolair and is excited for us. (Side note: the doctor's child is also PA).

The allergist did another skin test on Em, since we hadn't had one in awhile. Also, the Doctor know's about Dr. Sampsons finding thats 20 percent are "outgrowing" the allergy. We were all hoping and praying. Unfortunately Emily is still a 4+ out of 4 on the scale. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]

For those of you that pray, I have a request. Pray that our entire family submits to God's will. And that we do the right thing for Emily.

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