Emily involved in Xolair trials

Posted on: Thu, 09/22/2005 - 10:49am
EmilysMom's picture
Offline
Joined: 09/03/2002 - 09:00

I read Melissa's post about her son. So I did a search to find someone doing something like that in our area.

I found that Children's Hospital in Los Angeles is doing the Xolair trials. I contacted them and we have an appointment on Monday 9-26 to meet with the Dr.

We are nervous, yet excited. Emily is thinking that this means she will get to be "normal". I think she is more for this than we are. By the way, she just turned 7.

We have a few concerns about the fact that 1/2 of the patients will be on placebo. Hopefully my husbands concerns are addressed. He has a stack of papers a couple of inches thick that he has been researching this with!

Today we saw the allergist, and spoke about all of our concerns. She knows about Xolair and is excited for us. (Side note: the doctor's child is also PA).

The allergist did another skin test on Em, since we hadn't had one in awhile. Also, the Doctor know's about Dr. Sampsons finding thats 20 percent are "outgrowing" the allergy. We were all hoping and praying. Unfortunately Emily is still a 4+ out of 4 on the scale. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]


For those of you that pray, I have a request. Pray that our entire family submits to God's will. And that we do the right thing for Emily.

Forum

Click on one of the categories below to see all forum topics.

Peanut Free Store

More Articles

Anxious food allergic kids, understandably concerned about avoiding allergens, can become so restrictive in their food choices that weight loss...

Peanuts are classified as legumes, as are chickpeas. Does this mean a child with a peanut allergy needs to avoid eating chickpeas? As with many...

A young food allergic child is unlikely to say, “My throat is swelling and I’m having difficulty swallowing - I think I’m having an allergic...

Approximately one out of 13 children under age 18 are allergic to at least one food, though many of them will outgrow their allergy by the age of...

So many wonderful recipes call for peanut butter. These recipes can still be enjoyed by experimenting with peanut butter replacements.

...