Ear Tubes advice

Posted on: Thu, 01/19/2006 - 2:20am
nomorenutz's picture
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Joined: 10/28/2005 - 09:00

Looking for someone to calm a mom's fears. Just wondering if any of you have had to put tubes in your PA kid's ears and what the outcome was --

Also wondering if taking Albuterol, Pulmicort, and being PA raises the risks of complications from anesthesia.

If any of you have had tubes put in your kids ears and they were on those medications, I'd like to hear your stories.

Thanks for the help!

Posted on: Thu, 01/19/2006 - 3:08am
Anonymous's picture
Anonymous (not verified)

When you ask what the outcome was, do you mean other then pa issues?
There is an older thread in Off Topic discussing tubes.
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum22/HTML/002123.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum22/HTML/002123.html[/url]
Not sure if any of those meds were discussed at all, but thought other information there might help you. (My son does not have food allergies and was not on any of the meds you mentioned, so I can't help you.)
Hope all goes well with your little one.

Posted on: Thu, 01/19/2006 - 3:17am
SpudBerry's picture
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Joined: 07/23/2002 - 09:00

My PA guy had his tonsils & adenoids out and tubes put in last summer - he was 5 at the time. He is PA, and has reactive airway, so he's on Pulmicort & Albuterol as needed.
He didn't bounce back from surgery as quickly as I hoped - he was kind of sluggish for several days. But all in all it was a positive experience, and he has been MUCH healthier this past cold & flu season.
Plus - his hearing improved dramatically that day. His hearing was pretty minimal out of one of his ears before the surgery due to some fluid in there that just wouldn't go away. So that in itself was reason to do it.
------------------
Sherlyn
Mom to 6 year old twins Ben & Mike - one PA & the other not.
Stay Informed And Peanut Free!

Posted on: Thu, 01/19/2006 - 3:36am
barb1123's picture
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Joined: 04/08/2000 - 09:00

I was pushed hard by our pediatric ENT to get tubes in my 3 year old. He was deaf in one ear and impaired in the other due to chronic congestion and infection for the first 18 months of his life.
I was very nervous however about the surgery. One because he wasn't even 2 yet. Two because of inherent risks in general anaesthesia (sp?), three, risk of cross infection from mad cow's disease (I live in Ireland and you cannot sterilize CJD so if they operate on someone who's a carrier it's on the instruments for a while and ears are too close to the brain as far as I'm concerned and when discussed with ENT he said it was a risk but they had no way at this point to assess how much of a risk but he assured me it would be very minimal if not nonexistant).
Then he went on to tell me that there are anaesthetics that can cause reactions with children who have dairy allergies (I believe it was dairy but it might be peanuts). So this really put me off. He assured me that once they knew of the allergy they would just use a different anaesthetic but well, I was even more nervous (what if they made a mistake?)
So I asked him for alternatives. Bear in mind that my son was really bad in his ears. He put him on a daily, fairly high dose of decongestant that was to be upped at the beginning of any cold or flu, etc. This plus time seemed to do the trick and his next exam his hearing was much improved, in fact the best it had ever been (they ran about 6 different machines and tests on his ears). The ENT said it was probably a number of factors for the improvement: 1. maturity of his ear canals, 2. decongestants 3.summer (these problems are much worse in cold and flu season)
So, I'm glad we held out. Even though the ENT had done this operation hundreds, if not thousands of times and had never lost anyone (only bad reaction was to the anaethetic but that wore off he said after 24 hours) I was more comfortable not having him undergo the surgery.
So, to make a long story end, I'd say, be very clear about your child's allergies to the ENT AND anesthesiologist (sp?) Because there is stuff out there that can be very harmful to kids with allergies (and yes, they can kill) and discuss possible options to try beforehand.
NB: Also, the most important thing we did was cut out all antibiotics. Completely. ENT said they should only be used in systemic infections with a very high fever and even then with caution. Prior to that he had been on 11 different courses of antibiotics in the first year of his life. I think this, more than anything else helped him to overcome his ear problems.
Barb

Posted on: Thu, 01/19/2006 - 4:53am
lalow's picture
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Joined: 03/24/2004 - 09:00

My son with PA had tubes put in about a year December. He had had ear infections in both ears for about a year with very little reprieve except a month or two during the summer. Each time the antibiotic was finished he would get another. He also appears to be allergic to amoxicillin. I put it off the first year but when they came back after the summer I went for the tubes. Everything came out well and he hasnt had an infection since. He had an appointment witht he ENT last week and the tubes have fallen out but he has had no more infections.. I am hoping he has outgrown them. I didnt see any difficulties because of his food allergies.. I just made sure they were aware of them.
------------------
Lalow
James 4 yrs, NKA
Ben 3 yrs, PA and MA and SA

Posted on: Thu, 01/19/2006 - 5:06am
SpudBerry's picture
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Joined: 07/23/2002 - 09:00

I'm sure this is a "given" in this crowd, but I just wanted to remind you to NEVER leave your child unattended in a hospital or surgery center, other than during the actual surgery. People with good intentions are lurking every where! They all want to give your child a popsicle or sucker or something that might not be safe. I called in advance and got it all cleared to bring our own juice & popcicles for the day. I put up a sign on his bed reminding everyone not to feed him, then NEVER left his side. I believe there were 3 different people that came in and offered him food even with the sign there. We were only there a few hours after the surgery - so it really is an issue to look after.
------------------
Sherlyn
Mom to 6 year old twins Ben & Mike - one PA & the other not.
Stay Informed And Peanut Free!

Posted on: Thu, 01/19/2006 - 12:14pm
NCMom's picture
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Joined: 04/30/2003 - 09:00

My PA son is 5 and had tubes put in this summer just before school began. He had continual ear infections starting about 9 months until he was 18 months. We almost put ear tubes in then but he cleared up. He would get ear infections occasionally after that and we were debating doing the tubes then he would clear up. He was on the list for surgery, then off. Finally, when he went for his kindergarten exam, he failed his hearing test. Then he failed it again and back to the ENT we went.
We did end up doing the tubes - mostly because he had such built up, sticky, gooey fluid in his ears (yuck!) that he couldn't hear. Oh, he is asthmatic as well and is on Flovent and Xopenex as needed. I was concerned about the anesthesia and we talked about it with everyone. No issues with PA and I think he was "under" for about 4 minutes so they didn't intubate. He had no breathing issues - they had me do a breathing treatment before we brought him in for surgery.
I remember the peanut butter crackers in the recovery area - my older son and I both had our tonsils out within one month of each other and I remember them offering crackers (not to us!) but others. I brought my son's juice and a safe snack for him (Oatmeal Squares - his favorite cereal) and told everyone who came by not to bring any food in. The ENT said everyone in the OR wears masks and scrubs so well that if they had eaten anything, there was no way it would get to him. He recovered just fine (after the initial 5 minutes of being very agitated) and I'm glad we did it. It's made an amazing difference for him.
Good luck!

Posted on: Fri, 01/20/2006 - 12:33am
austin2001's picture
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Joined: 05/03/2002 - 09:00

My son has had tubes in his ears twice. The first set at 9 months old, and the second set about a year or so later. He also had adenoids removed on the second surgery. His chart has food allergies indicated all over it, but I made it very clear about his peanut allergy to the doctor. My main concern was that the doctor doing surgery on my son's ears would be literally face to face in the operating room. Although they laughed at first, I asked the doctor to please not eat nuts (and have nut-breath) before my son's surgery...I was afraid that the smell could set off a reaction. The doctor's office made it very clear to the surgery staff as well. They even went so far as having the person doing the registration at the front desk not eat his morning peanut butter toast!! I look back on it now as a little extreme, but just think about the doctor and how close he will be to your child's face when he does the surgery. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
allison

Posted on: Fri, 01/20/2006 - 1:45am
samirosenjacken's picture
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Joined: 09/30/2002 - 09:00

Yes, my older DD had ear tubes and she was just fine.. no problems
My younger DD also PA has been in the ER quite a bit for other problems. The resident that treated her in November "forgot" she was allergic to peanuts and was eating peanut stuff in the "docs" room and sam had a contact reaction in the ER. Her ear became bright bright red and itchy and she developed hives all down her back. Needless to say that didn't go over well and I handled things much differently the next time we went.
My suggestion is to make sure they put a special colored hospital bracelet on your child that says 'PEANUT ALLERGY' besides being very vigilant and telling them not to give him any food without your permission etc..

Posted on: Fri, 01/20/2006 - 10:34am
dedwards331's picture
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Joined: 10/05/2005 - 09:00

Our daughter had tubes put in when she was just over 2 years old the day before Halloween. She is PA, 100+ and has asthma. She has taken Albuteral and Pulmicort but takes Xeoponex because Albuteral makes her hyper. We had a wonderful experience at the hospital. There was lots of candy around for Halloween, but the nurses gave my daughter stuffed animals instead. The surgery was a big success and she was playing like in the afternoon as if nothing had happened. We put off tubes for a long time because our pediatrican kept saying she could outgrow the ear infections. I wish we did it sooner! She has had 2 ear infections since but much better than 8 a year. Best of luck.

Posted on: Fri, 01/20/2006 - 10:21pm
Sandy1's picture
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Joined: 09/17/2005 - 09:00

It was the best thing I had ever done for my son. He was 6 yrs old.
When he was little he had infections after infections with high fevers of 104. Antibiotic after antibiotic every 6 weeks or so.
After the surgery because his ear canal was so plugged up, it took days and days of draining the built up fluid. It was literally draining down his ear lobe onto his shoulder the size of a quarter!! People would be grossed out saying "there is something coming out of your childs ear?"..I was so happy to see this! It would drain off and on for 2 years whenever he got a cold or his hayfever would act up. It was a release through his ears.
He never got an ear infection again. EVER. He is now 15 and his ears are normal.
It was the best thing. Don't be scared. After the surgery he was joking with the nurses in the recovery room!!
p.s. make sure he has ear plugs for when he takes a bath or goes swimming. I had custom ear plugs made and for extra protection I bought a speedo hair band to protect the ear plugs from accidently being pulled out while he was playing in the lake because what comes out, does go in too!
Sandy
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