Duke Study

Posted on: Wed, 01/24/2007 - 12:44am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Well, we are finally taking my son to Duke. We are seeing Dr. Mankad next week. She works with Dr. Burks. I called for an appt for Dr. Burks but couldn't get in until May 1, so they said I could see another Dr for the 1st visit. I am nervous. What do they do at the first visit? SPT or Cap Rast?
Nancy

Posted on: Wed, 01/24/2007 - 1:53am
saknjmom's picture
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Joined: 04/02/2003 - 09:00

If you don't mind me asking, how old is he and how did you go about being considered?

Posted on: Wed, 01/24/2007 - 2:00am
PennMom's picture
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Joined: 08/01/2006 - 09:00

Please keep us up to date on how your visit goes. Good luck- I'm sure it will go fine! It sounds like a very promising study- if we didn't live so far from Duke I'd be checking on it for DD!

Posted on: Wed, 01/24/2007 - 4:04am
anonymous's picture
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Joined: 05/28/2009 - 16:42

My ds will be 3 this weekend. I am not sure what age you have to be to participate in the study. I am really scared for him to do it. I will definetly let him do the egg desensatization, but I am truly worried about the peanut. Hopefully, they will give me some encouraging info so I can feel comfortable with it. I will definetly keep you posted on what happens [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 01/24/2007 - 9:50pm
melissa's picture
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Joined: 07/05/2004 - 09:00

Nancy,
Good luck and feel free to ask any questions you might have...my younger DS is a patient of Dr. B's and is in the peanut study.
Melissa

Posted on: Wed, 01/24/2007 - 9:51pm
melissa's picture
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Joined: 07/05/2004 - 09:00

I forgot to answer the first question you posted...at our first visit we did spt and RAST.
Melissa

Posted on: Wed, 01/24/2007 - 11:16pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

Hi Melissa,
What did they SPT? I really don't want to find out if he has any sensativity to any other foods right now. I feel he isn't having any problems with anything but peanut. He has never had a reaction to egg. Will they SPT for everything? I saw a picture on another thread of a boy getting SPT for everything and it really freaked me out!

Posted on: Wed, 01/24/2007 - 11:23pm
melissa's picture
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Joined: 07/05/2004 - 09:00

We only had a spt for egg and peanut, which we knew he was allergic to. There was some question about his initial spt at another allergist's office (the serum ran a bit) and they wanted confirmation for their records. He had never had a RAST done before that either. They won't test anything you don't ask for, I don't believe, and I have actually asked for tree nuts but Dr. B always talks me out of it...says for now we have to avoid them anyway.
Make sure you find out what meds he needs to stop prior to going and ask about a Rx for something to numb his arms if they are going to do a RAST (I can't remember the real name; we call it "magic creme" b/c he can have a blood test and it doesn't hurt)...get all your questions together b/c in our experience they'll give you as much time as you need...they'll do a very extensive "intake" question session (probably by the NP Pam or Jan) as well.
Melissa

Posted on: Thu, 01/25/2007 - 1:39am
saknjmom's picture
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Joined: 04/02/2003 - 09:00

I hope for the best for you and that you have success with the treatment.
How does one go about being considered for this study?

Posted on: Thu, 01/25/2007 - 2:28am
anonymous's picture
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Joined: 05/28/2009 - 16:42

You just call Dr. Wesley Burks office and they will make an appt for you. That is all we did. Here are the numbers from the website:
Appointments for children:
919-684-9914
Appointments for adults:
919-668-7630

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