DS hospitalized last night

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DS (age 15 PA, tree nut, milk, egg, shellfish and coconut allergy) went to the ER last night

On Nov 9, 2003

How are you holding up? Do you have any idea what it was? Big hugs to you and ds and family. Does he have any other allergies that could have caused this? Please let us know how things are. Love this site Synthia

On Nov 9, 2003

Gosh that is horrible and brings back bad memories for me and DS also. My son is 18.

His last two reactions carried thru days because the steroids and all the meds in the ER made him sick too.

Your son should now know that the epi pen STOPS the reaction to give him enough time to get 911 help. He is learning too and next time he will use it. I can understand his reluctance to use it but now he knows.

I remember being in such an odd state of post trauma after a reaction, all of us. We wandered around the house for days, me sleeping on the couch downstairs so I could hear DS if he needed me. Such an awful scary time. Like after an earthquake here in Calif.

Well you all did fine and luckily the hospital did fine too huh? It's scary but nice to hear them be MORE concerned than you are because you know your son will get treatment that way.

Costco pie might be crosscontaminated with those muffins that have nuts in them. My DS keeps away from foods with multiple ingredients because you never know.

Good luck, rest and give your DS a hug for me

Peggy

On Nov 9, 2003

I hope your son is doing ok now.

We had a reaction on Oct 29th & had to use the Epi-pen, so I know what you are going thru. I was fine during the reaction. It wasn't until 2 days later that I broke down.

It is scary, but you came through it! Now you know even more what to do in case of another reaction (which we pray that he never has!).

I think the hardest part is not knowing exactly what caused the reaction. We are dealing with that & it is kinda scary. All the thoughts about new allergies are kind of scary too. Just keep talking to us & it gets a little easier! Many of us have been through this & understand!!

Hugs to you & your son! Lea

On Nov 9, 2003

Jana R., I am SO sorry to hear about your son's reaction. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] I hope that both he and you will take some time to recover from this.

I have to say that when I re-read your son's list of food allergies I was shocked that he had avoided an anaphylactic reaction for 14 years! I don't know why I was shocked because I know it can be done, I guess it's because I haven't been as fortunate and only have PA involved with my son.

I also really hate it when it's a *mystery* reaction because it really just leaves you wondering and not having an answer. It ticks me off actually. I know that happened last year when Jesse had his anaphylactic reaction and the school personnel would ask what I thought he had had a reaction to and my only answer was peanut residue in the school. But where? How?

I know after Jesse had his anaphylactic reaction last December month, I went into what I almost believe was a post traumatic stress situation and I can't remember now how long it lasted for me. I know that Jesse was okay, but he was just turned 7 at the time, not 15 like your son.

I really just want you to know you both have my cyber hugs and support and feel really okay about taking some time to recover from what happened.

Please let us know how your son continues to be.

I'm thinking of you and your family. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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On Nov 10, 2003

You guys are the best! - it is so heart warming to read your responses because you guys truly care about people you've never met. Thank you for all the hugs! Synthia - we stayed about 15 hours total. Fortunately we only had to deal with one meal there - DS was very leary of the toast and oatmeal they served and didn't want me to bother following up on exact ingredients so he just ate a plain banana and orange juice just to be safe. The other thing he has tested allergic to (class 3) is wheat which he eats all the time seemingly without reaction (although he does have chronic eczema which I don't really know if it's related) I've heard a couple of references to "wheat dependant excercize induced anaphylaxis" and am wonderiing if eating wheat before and after his soccer game late that afternoon contributed to this. We had a follow up appt. this morning and our allergist didn't seem to think that would be it, though. Peggy - as usual, I always [b]really[/b] appreciate your posts because your have a couple more years of experience under your belt. I don't know how I'll ever feel living away from home will ever work for him but I know we'll have to figure out a way - your posts that your son has so successfully managed his first quarter are very encouraging! I double checked with the baker at Costco and she felt pretty confident that there is not a chance that other ingredients could find their way into the pie since they make so many at one time and there is no machinery that it has to go through that might be cross contaminated (but she didn't say it would be completely impossible, though). I brought in the pizza from Saturday night to our appt this morning and the doctor made up a skin test (my son refused the oral challenge that the dr. orinally proposed) from it - he reacted although not very much - I certainly would not have expected an anaphylactic reaction based on that skin test alone. DS had said his throat felt different after eating the pizza and before the pie that night but was not alarmed by the feeling. But based on that and the small reaction from the skin test, we think it was most likely the pizza. DS says he's still never eating Costco pie again, though! Lea - I'm sorry you've just been through this, too! I hope youe life is getting back to "normal" (whatever [b]that[/b] is for families of food allergics!) Cindy - I'm actually amazed, too that we had been "lucky" for that long (personally, I don't really think it's luck but the precautions we all take). This is just one big puzzle we're left to solve without all the pieces available! Lauren C. - thank you for the kind phone call of support. DS seems to be doing fine - he felt very inconvenienced at having to return to the doc. this morning (teens make their feeling clear in no uncertain terms!) and wants to go the movies and spend the night with some guys today as planned. He plans on taking food for back up unless they eat at someplace like McDonalds where he's eaten safely before. I'm nervous to let him out of my sight but guess I'm glad he wants "back in the saddle". I might not let him spend the night but just stay 'til midnight (no school tomorrow). Thanks again for being there!

On Nov 10, 2003

Quote:

Originally posted by Jana R: [b]You guys are the best! - it is so heart warming to read your responses because you guys truly care about people you've never met. Thank you for all the hugs! Synthia - we stayed about 15 hours total. The other thing he has tested allergic to (class 3) is wheat which he eats all the time seemingly without reaction (although he does have chronic eczema which I don't really know if it's related) I've heard a couple of references to "wheat dependant excercize induced anaphylaxis" and am wonderiing if eating wheat before and after his soccer game late that afternoon contributed to this. We had a follow up appt. this morning and our allergist didn't seem to think that would be it, though.[/b]

Oldested dd has a wheat allergy and brakes out realy bad on her face after a couple of days eating wheat or to much wheat in one day.

I just spoke to the allergiest about little V getting chocolate to take a antibiotic,his words were if the skin test showed a 3+ or more do not give her the allergen.Her skin test showed 2+ on chocolate,will try it

You might have two things going on at once,excercize induced anaphylaxis,and too much wheat in the pizza and the pie.

Let us know whats going on.

Look at his tongue after eating wheat there is a thread I started on geographic tounge ck it out Love this site Synthia

On Nov 11, 2003

Jana R., how are you? How is your son?

You know what? I'm a bit different than you. I consider it a combination of the precautions we put into place and luck but only because of what my experience with Jesse has been.

There was no way for me to control peanut residue in the hall at school last year because he was not in a peanut free school and even if he was in a peanut free school there are no guarantees.

I've been thinking about that over the last couple of days since you posted about your son's reaction. He left the breakfast room and was exposed to the residue walking to his classroom. So, there was nothing that could have been done differently from him walking through that hall and into his classroom and then touching his mouth or nose to prevent a reaction, unless it is he washes his hands each time he enters his classroom. I could just see the look on school personnel faces if I ever made that request.

So, to me, that was luck of the draw. No matter what precautions I had personally put in place and put in place for Jesse at school, that residue was unavoidable and unfortunately resulted in an anaphylactic reaction.

I'm just hoping that the precautions part does outweigh the luck part.

And I hope you didn't think I meant anything negative when I said I was shocked. Amazed would have been a better word. Only because you're dealing with more than PA and because the length of time between reactions was so long. I certainly didn't mean to sound, and hope that I didn't, as though I had ever though you didn't have precautions in place to keep your son reaction free.

As I said in my original post, I was shocked only because unfortunately with my guy, it hasn't been our experience.

I hope that you're both doing okay. You gave me so much support when Jesse had his reaction last December month and I hope I'm helping in some way. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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On Nov 11, 2003

Hi Jana,

I am so sorry to hear about your son's reaction. I am glad he is doing okay.

When I saw "Costco" pie I was suspicious. At my local Costco, they said I can't eat any of the baked goods to due "cross contamination" issues (I am in Toronto Canada). My guess would be the reaction may have come from the pie. Baked goods are often a cause of reactions due to cross contamination.

It must have been quite a scary experience.. I am glad it's over now and he's feeling better.

On Nov 11, 2003

Jana R, How are you holding up? How is your son doing now? I am sorry he had such a horrible reaction and to have to hear all the things they were saying in the ER must have been very overwhelming. I just wanted to send big hugs and support!

Andrea

On Nov 11, 2003

Synthia - thank you for the information about geographic tongue - there's [b]sooo[/b] much to learn out there!

Cindy - You are such a kind-hearted person who truly cares about others! My comment about luck was more of a reminder to me since I casually say "good luck" to folks all the time and have wondered if that ever comes across as that's what we leave it up to. We all work so hard to keep our children safe so it's far from luck. But as you point out, even when we do everything possible and they still have a reaction, it does come down to luck/fate/God's vast eternal plan. I thought I'd done all the checking necessary for DS to have a safe party. DS had two new things that night and I shouldn't have allowed that because it's made it difficult to decide what to do different next time (besides not go the same pizza restaurant or eat Costco pie). Jesse's reaction last winter happened when nothing else was new - it came down to luck - we don't rely on it but since we can't control everything, it's a part of our life. I in no way was offended by your "shocked" comment. I've probably said before that it might actually make my son's life simpler to have multiple allergies - there are few choices/fewer opportunities for cross contact reactions since we don't usually branch out.

Erik - Yes, the pie will always be suspect in our minds. It is so rare that he has something from a bakery and after discussing with the baker the process and that pie making didn't involve machinery that processed nuts, I decided that I would bring one of their pies to the party so my son would feel a little more normal - folks could have cake or pie. I should've brought homemade rice crispy treats instead. His numbers are a lot higher for his milk allergy than his peanut/nut allergy so it's tough to say.

Andrea - Thank you for your hug! DS is doing great. I'm doing better - I got to use the experience as an excuse to chat with his friends and their mom's about the allergies (teens don't usually want their Mom's to have too much to do with either but this experience made it acceptable!). This is his first year in high school and these are new friends that got a quick education.

Thanks again and in Synthia's words, "Love this site"!!

[This message has been edited by Jana R (edited November 11, 2003).]

On Nov 11, 2003

I hope he is doing ok now. I must tell you Apples and nut allergies are popular. I was told because the apples are kept in the grocery store close to the peanuts and the apples get Peanut dust on them. I am not sure of how true this is but I know Chris can not eat apples without a problem. Also he has a hard time with pepperoni. Could your son have gotten pepperoni in his mouth. I have heard there is some connection to that also with the nut allergies. I there any way you could go to the pizzeria and look in there kitchen. My brother went and looked in a kitchen for me one time. He found peanut oil in the kitchen and they told me they in no way used any in their foods. Found out they were lying to us. We never ate there and the reason we asked is a long story. How is your son now? take care claire

On Nov 11, 2003

I hope he is doing ok now. I must tell you Apples and nut allergies are popular. I was told because the apples are kept in the grocery store close to the peanuts and the apples get Peanut dust on them. I am not sure of how true this is but I know Chris can not eat apples without a problem. Also he has a hard time with pepperoni. Could your son have gotten pepperoni in his mouth. I have heard there is some connection to that also with the nut allergies. I there any way you could go to the pizzeria and look in there kitchen. My brother went and looked in a kitchen for me one time. He found peanut oil in the kitchen and they told me they in no way used any in their foods. Found out they were lying to us. We never ate there and the reason we asked is a long story. How is your son now? take care claire

On Nov 12, 2003

Hi Jana,

Sorry to hear of your DS's reaction, but I'm glad he's feeling better and wants to get "back in the saddle".

Just a note - many years ago I remember reading that warehouse clubs baked goods should be avoided due to cross-contamination. It seems their cleaning processes were (at that time at least) not as rigorous as they should be. The pizza sounds suspicious also. *Sigh*

I hope this was just a blip and that he goes [b]at least[/b] another 14 years without a reaction.

Amy

On Nov 12, 2003

Claire - I have noticed that apples are sometimes close to the nuts (and sometimes the potatoes). He's never reacted to apple before but my mom often gets oral allergy symptoms from uncooked apple skin so that's something I'll keep in mind (*sigh - apple pie and apple crisp are one of the few desserts DS loves that I can make at home without a lot of altering a regular recipe for milk and eggs - I'd hate to loose that!). He definitely ate pepperoni which is his favorite pizza topping - one ingredient of this particular pepperoni that is now suspect is "lactic acid starter culture" - lactic acid is supposed to be safe for those with milk allergies but according to FAAN ( [url="http://www.foodallergy.org/allergens.html#milk"]http://www.foodallergy.org/allergens.html#milk[/url] ) the starter culture may be derived from milk - but I hadn't committed that detail to memory until after the events of this past weekend. Amy - I'll second the recommendation to avoid eating at warehouse bakeries! I think I must have talked myself into believing her that the fact that they make so many made it really unlikely there could be cross contact issues. I appreciate your wish for him for a safe future!

On Nov 12, 2003

Jana R: I am so sorry to hear about your sons reaction. How scary for you and for him. My ds has had 2 ana reactions. Its horrible.

How is he? I hope he is doing great.

How are you doing? I am so sorry for you and your son.

On Nov 12, 2003

Sorry to hear about your son's reaction. Had one today myself. The pizza may have been contaminated with pesto if they use that in other pizzas. The pesto often has pine nuts or walnuts and the staff may be unaware of this. It may be a topping for other pizzas. One place nearby seems to have it in the crust (I can't eat their pizza though they deny any nuts in the crust).

On Nov 13, 2003

Allergymom - thank you for your concern. We're doing well - DS is tired of me talking about it and asking him every single question I can think of to get him to remember forever what symptoms to look for. erl - I'm very sorry you just had a reaction yesterday! How are you doing??? Do you know what caused it this time? I hope you are feeling well. I'm waiting to hear back from the manager that was there the night we were to ask some more questions (I'm having a difficult time understanding the English of the manager I've spoken with on the phone). I will definitely ask about pesto - the doctor wanted me to ask about Thai since a lot of places are jumping on that food fad. Thanks again.

On Nov 13, 2003

JanaR

As long as you son remembers the funny feeling he had in his throat, that's his sign right now. It might have started as tingling in his mouth when he ate. Now he knows.

Funny feeling = epi pen + 911.

Easy peasy. He will do fine, you watch.

I'm glad everything is OK and he's back to normal.

Peggy

On Nov 15, 2003

I WANT YOU TO KNOW I AM SENDING YOU A BIG HUG AND ALL THE PRAYERS I CAN. THANK GOD YOU ARE SUCH A GREAT MOTHER AND KNEW WHAT TO DO. OUR LAST REACTION WAS 5 YEARS AGO AND FEELS LIKE YESTERDAY.WHEN I READ YOUR POST I JUST SAT AND CRIED. I WISH THE POLITICAL POWERS THAT BE WOULD LOG ON TO THIS SIGHT AND SEE WHAT WE HAVE TO GO THROUGH EACH AND EVERY DAY. THIS REALLY JUST CONFIRMS THE FIGHT FOR LABELING LAWS. SOMTHING AT THAT PIZZA PLACE WAS UNSAFE. GOD BLESS YOU AND YOUR FAMILY AND LETS ALL JUST KEEP FIGHTING FOR OUR RIGHTS ON ALL LEVELS.

On Nov 18, 2003

Peggy - thank you for your encouragement! JohnTyler's Mom - Your concern for my son touched me. I agree that better labeling is so important. I hope those that make these decisions will come around soon.

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