DS failed challenge today too...

Posted on: Fri, 03/09/2007 - 7:42am
ahensley's picture
Joined: 08/23/2005 - 09:00

Well, DS is still allergic to peanuts. His allergist does consider his blood test to be negative, but his spt with peanut butter and just regular spt with peanut antigen was definetly positive...

I tried so hard not to get my hopes up, but this is so disappointing. We didn't even get to the oral challenge part of the test.

If I try to look at the positive, he had peanut butter on his back (and then pricked once) for 30 min and all he had was one hive, and didn't break out in hives everywhere. The allergist seems to think that even if he had his arm in peanut butter (like at a school lunch table) he may get hives, but not develop other symptoms. He said we could take DS to a baseball game and he should be fine, but if people were eating peanuts all around him, we could move, but if someone is eating peanuts a few people away, he should be fine.

Anyway, he said DS is less likely to outgrow allergy now - even though his RAST is so low, because the skin test is very positive. Now the peanut butter prick test had a hive around the size of 1 and half quarters, but the just the spt with the peanut antigen had a hive less than a dime.

I just wanted to let you all know and thank you for the prayers. Its not God's will at this time, but hopefully someday.

This is a weird feeling, knowing nothing has changed and being okay with that, but also feeling so sad that nothing has changed. I don't know if that makes sense.


Posted on: Fri, 03/09/2007 - 8:36am
Sarahfran1's picture
Joined: 12/01/2006 - 09:00

I'm sorry he didn't pass the challenge! That must be disappointing, although I guess you're no worse off now than you were before the test. Still, it would be difficult to hang onto a bit of hope all this time and then find out that it's probably not ever going to happen.
Where did you have the challenge done? We've got one scheduled at Hopkins in May.

Posted on: Fri, 03/09/2007 - 10:21am
Carefulmom's picture
Joined: 01/03/2002 - 09:00

Sorry, I don`t mean to be dense, but did he fail the challenge or not have the challenge? It sounds like his skin was positive so they cancelled the challenge---is that right? Because I read that 50% of the time the skin test stays positive after the person outgrows. I am not saying I would be thrilled to do a challenge with a positive skin test, but I know when dd had her egg challenge, the allergist did not even bother to skin test her because 50% of the time it stays positive after they outgrow. So are you sure he is still allergic?

Posted on: Fri, 03/09/2007 - 10:36am
anonymous's picture
Joined: 05/28/2009 - 16:42

[img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] Sorry to hear that. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]

Posted on: Fri, 03/09/2007 - 11:16am
ahensley's picture
Joined: 08/23/2005 - 09:00

We did not do the oral challenge, just the peanut butter on the skin (with a prick) and the antigen spt. The allergist told us we could still try the oral challenge if we wanted, but he wasn't really recommending it, but he wasn't completely against it. He did talk about a potential false positive, but because DS reactions in the past have only presented with hives... this follows along with how he presents with the allergy. He has only had 1 ingestion rxn and it was just a smear of peanut butter on a marker that he put in his mouth when he was one, he got hives on his chest and mouth - that's it, the other reaction was contact with peanut butter on a sliding glass door - he got one hive.
He has come down from a class 4 to a class 1 over the last couple of years. I guess its not getting worse (who knows after this exposure?).
Carefulmom, where did you read that research? Did your child pass the egg oral challenge? Our allergist said that he is much more careful with oral challenges with peanuts then he is with other foods so maybe it would have been different with a different food. Maybe I should have just tried a trace amount in his mouth while I was there in a very controlled environment, but looking at those hives on his back seemed like a scary thing.
MY DS wants me to let you all know how brave he was and how he did such a good job. I am so proud of him!
Thank you all - its so great to have a board like this!

Posted on: Fri, 03/09/2007 - 11:30am
Carefulmom's picture
Joined: 01/03/2002 - 09:00

Our allergist told us about the 50% false positive skin test after outgrowing, but I have also read it in the FAAN Newsletters. I read every newsletter from cover to cover (except for the recipes), so I really cannot say which one I read it in. If you go to their website [url="http://www.foodallergy.org"]www.foodallergy.org[/url] you may find something. I am also wondering what our allergist would have said about the positive skin test and peanut. If dd had a cap rast to peanut low enough for a challenge, would he have skin tested her? I don`t know. For egg her cap rast was 0.11 It is a really hard decision; I really don`t know what I would have done in your shoes. The allergist always told us she would probably outgrow egg; peanut is a different story. On the other hand dd had an ana reaction to egg requiring epi (that was how we found out she was allergic, the first time she ate egg she went into anaphylaxis), so one would think he would be very cautious about challenging her, yet he said the skin test was pointless due to the 50% false positive after they outgrow.
Edited to add: The ana reaction to egg was at age 2, the challenge was at age 9 (did not want to make it sound that he challenged her right after the ana reaction).
[This message has been edited by Carefulmom (edited March 09, 2007).]

Posted on: Fri, 03/09/2007 - 11:42am
McCobbre's picture
Joined: 04/16/2005 - 09:00

I'm sorry--I know what it's like to get your hopes up. I'm encouraged by what Carefulmom has written, though, and by the fact that you've got to be comforted by the amount of exposure w/o a reaction.

Posted on: Sat, 03/10/2007 - 2:26am
momma2boys's picture
Joined: 03/14/2003 - 09:00

I think you did the right thing by not doing the challenge. Yes, the spt may stay positive even if they outgrow, but the hive seems to me a sign he IS still allergic.
Why challenge if he had hives and give him an additional exposure. You did the right thing.

Posted on: Sat, 03/10/2007 - 10:03am
julieneaman's picture
Joined: 01/11/2004 - 09:00

Oh Andrea, I'm so sorry! I was so hoping for a better outcome! I keep trying to tell myself that it's OK, it's just the same as it was the day before the challenge. No worse. But, having my hopes dashed really hurts.
My DS was more upset at having to tell his sisters he failed the test than he was about failing.
BTW, is there a better way to say this than "he failed the test"? It sounds as if he didn't do something he should have done. Or makes it sound like it's his fault.
Anyway, I'm glad your ds is OK now and that he had a relatively minor rxn. Both our guys are still young so there is always hope.
We're all admiring his bravery over here!

Posted on: Sat, 03/10/2007 - 3:58pm
ahensley's picture
Joined: 08/23/2005 - 09:00

I know what you mean. I cried again today. I kept picturing us going out to dinner after the challenge to celebrate.. I tried not to picture it in my mind, but it kept coming up.
I try to make sure DS knows that he did great and "no big deal that you're still allergic" Of course, when he sees me tear up (as much as I didn't want to, when we walked out of the office) doesn't really help.
Its strange, today I was angry, not sure why, just angry - its like I am going through the stages of grief (not as severe as I have when I lost a loved one). It hit me harder this time, than it did when DS was dx, I guess because I didn't know then how much it would affect our lives. Other times, its like it isn't doesn't bother me much. Weird... whatever.
I just try to say that DS is still allergic to peanuts and that he did not pass the challenge, but I guess that also makes it sound like it is his fault. I try to talk about it when he isn't in the room in case I let something slip about our disappointment.
I hope you are doing well.

Posted on: Sun, 03/11/2007 - 12:33am
momll70's picture
Joined: 09/26/2006 - 09:00

I'm so sorry. I would be sad too. It would be so great if he outgrows it and then you can have that freedom without worrying about reactions. Is there hope that he may outgrow it in the near future?
I'm praying for you and your son and I'm glad to hear that the numbers are lower. Hoping that they will continue to go down to no allergy.

Posted on: Sun, 03/11/2007 - 11:24am
ahensley's picture
Joined: 08/23/2005 - 09:00

Thank you. Allergist said he is less likely to outgrow now that his spt was still positive but I am still hoping. We retest in a year and half, before kindergarten.

Posted on: Tue, 03/13/2007 - 1:16pm
Laifong's picture
Joined: 07/12/2004 - 09:00

I'm sorry to hear that too. I know how you feel. My family just went through something similar. We had our son (PA) tested for shellfish allergy because he is starting kindergarten in the fall, and he was positive for all the types of shellfish they tested! I was quite shaken and it was very hard to hide our sadness and disappointment. I had been envisioning celebrating with a seafood meal...
But I made a decision later that day that I was going to keep on trusting God, and believing that His plans are higher than mine. This has given me peace, unlike when my son was diagnosed with PA and it became clear that he was not likely to outgrow it...then I was really mad at God.
Just wanted to tell you that you are not alone.

Posted on: Tue, 03/13/2007 - 3:24pm
ahensley's picture
Joined: 08/23/2005 - 09:00

Thank you Laifong. God's plan is higher! I spoke with my allergist today regarding the research I was reading (thank you Carefulmom) about postive spt after outgrowing allergy. He stated that the peanut antigen wasn't so bad and he would have continued on with the oral challenge, but the peanut butter spt was very positive so he didn't. He told me basically, he may have already outgrown his peanut allergy but since we have some time before kindergarten, he would rather have us wait at least a year to do the oral challenge, regardless of spt test results. He even said Dr. Sampson was the guru of food allergies (when I mentioned he authored some of the research).
Thank you all for your thoughts. Food allergies are challenging, but I am thankful it is not something worse. I see many other families in the hospital where I work, dealing with so much more - it helps me keep things in perspective.
Take care,

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