Does every kid need the same precautions?

Posted on: Tue, 02/12/2002 - 3:36am
Mom2O's picture
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Joined: 02/08/2002 - 09:00

My daughter recently had her first reaction. She had hives all over her face and neck and hands and wrists (where she had touched the peanut butter). We got her tested and she is definitely allergic to peanuts but her RAST numbers came up in the "low" category. My understanding was that allergic is allergic and that we need to take every precaution to avoid cross contamination, eating things with even a small amount of peanut oil etc because peanut allergies are unpredictable.
However, people keep telling me that "they know someone who has the same or higher RAST numbers as my daughter who were told not to worry about small amounts of nut ingestion or cross contamination". Does anyone else have a child whose test were results were in the low level of allergic category? What were you told about precautions?

Posted on: Tue, 02/12/2002 - 4:26am
anonymous's picture
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Joined: 05/28/2009 - 16:42

In my opinion, you were right the first time:
"My understanding was that allergic is allergic and that we need to take every precaution... because peanut allergies are unpredictable."
UNPREDICTABLE. That's the important word.
Now, everyone has their own "comfort zones" and so everyone handles the PA in the way that works for them - but that's OK, too.
My own "comfort zone" includes the mantra: "Better safe than sorry" and "I'd rather err on the side of caution" but I do think my child needs to experience life as 'normally' as possible. On a bad day I might wish I could (and think I should) keep my child in a bubble, but that isn't in his best interest, so I deal with those fears and forge ahead.
Sorry for going on and on... can you tell I'm trying to give *myself* a pep talk, here? (We're starting to deal with the public school for Kindergarten this Fall. Sigh.)
I don't know that I've helped at all, but WELCOME to the boards.
Take care,
Tammy

Posted on: Tue, 02/12/2002 - 4:34am
wood145's picture
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Joined: 09/10/2001 - 09:00

My son is also in the low category, his cap test was in the 2 level. But I do take every precaution because I don't want him to be exposed to peanuts. I have heard that the more exposures the worse his allergy could become. I don't know if this is true or not but I would rather be on the safe side. He was also recently diagnosed (in Sept. at the age of 5, until then he LOVED peanuts) and did react to a may contain cookie. Good luck and go with your instincts.

Posted on: Tue, 02/12/2002 - 4:42am
Mom2O's picture
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Joined: 02/08/2002 - 09:00

Thank you so much for the responses. It is very helpful to hear from people who have dealt with this. It is especially helpful to have examples of children with a similar "level" of allergy having reacted to "may contain" products. It will help me make other people take this seriously. I have only started to deal with this and I have already run into people close to me treating me like I am "overreacting" or "overprotective". It is a huge help to have people who know what they are talking about reassure me that I am doing the right thing for my daughter!

Posted on: Tue, 02/12/2002 - 10:40am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

Absolutely you are doing the right thing.
Our daughter's initial CAP RAST was also a class 2 (if barely)... since then we have not had an ingestion exposure at all. Eighteen months later, she is now off the charts allergic. Class 6. >100. SO- all those little exposures, (aerosol and contact included!) add up, in our experience.
Good luck!

Posted on: Thu, 02/14/2002 - 12:32pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

I would definitely err on the side of caution. My son tested high & also has asthma, so I'm extra cautious. I have a friend whose son tested so low the doctor said he probably wasn't allergic (they were mainly testing for dairy, and had no reason to suspect nuts until the test barely registered). Luckily the doctor still prescribed an epipen, because a few months later the grandmother gave the child a peanut butter cracker & he had full anaphlaxys -- stopped breathing and everything. That proves that test results can't predict how severe the reaction will be. Always be careful.

Posted on: Thu, 02/14/2002 - 11:14pm
smack's picture
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Joined: 11/14/2001 - 09:00

MacAllister's Mom,
You know I hear that over and over again, on how inaccurate the tests are for giving you and idea how severe a reaction would be.
I would be interested though because I find the circumstances in your friends case interesting, if she would be willing to write their story down and submit it here?
Let us know by going to the "Books" topic under "Chicken Soup",
Thanks

Posted on: Fri, 02/15/2002 - 7:04am
anonymous's picture
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Joined: 05/28/2009 - 16:42

My son just had his first reaction in over two years. The ones before diagnosis really scared me, I mean, I knew something was really wrong (major vomiting, coughing, stomach cramps), but we didn't know much about peanut allergies then. His latest one was "mild" by our previous experiences--head-to-toe hives, and the pediatrician hear mild wheezing with a stethoscope. In fact, he was coherent and quite irritated when we told him he had to go to the doctor because he was right in the middle of watching Blues Clues. His RAST score 6 mos. ago was off the charts (over 100).
So my own personal opinion is, yes, every child needs the same precautions. There is just no predictability with reactions.

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