Doctors aware of PA seriousness? Switch Dr.?

Posted on: Tue, 05/03/2005 - 2:00am
bethc's picture
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Joined: 04/18/2005 - 09:00

Do you think it's important to have a primary care doctor who is really up to speed on PA, or do you think it's okay to have a otherwise good primary doctor and a good allergist? I think I have a good doctor in general. He seems to be careful and knowledgable, which is why I switched to him 3 years ago. But he never had much to say about my DD's PA. First I'd mentioned at her 3-year check-up that we were suspecting a peanut allergy, then I told him at her 4-year check-up that she does have PA. Both times he basically said, "Oh." I asked the second time whether I needed to give her more Benadryl now that she was bigger (I'd gone to a different doctor when she had her first case of hives), and he just said that 1 tsp. was the basic dose and that more can be given if that doesn't work. No advice, no Epi-Pen prescription. Maybe he thought I understood it all, but I was clueless. I thought her allergy was mild, and I thought we could just avoid the obvious sources of peanuts. When we ended up going to another doctor when DD had her first asthma attack, that doctor prescribed an Epi-Pen for the PA -- but I wasn't told when to use it. I thought I should only use it if I couldn't get DD to an ER if she had trouble breathing. Then DD had an anaphylactic reaction when we let her eat a candy from a variety bag of chocolates. So at the follow-up appointment after the ER visit, my regular doctor offered to prescribe an Epi-Pen, but still offered little advice. But he did refer us to an allergist, who did allergy testing and gave us an emergency plan and lots of information. And my regular doctor filled out a school form with very emphatic directions to never feed her peanuts. So he seems to understand the seriousness of it now, even if he isn't good at advising me about how to handle it. I'm not mad that he didn't educate me more about the risks we were facing, I'm just kind of amazed to find out all I didn't know even though I'd talked to a doctor about it. Do you find that most doctors understand PA if your child doesn't start out with an anaphylactic reaction? DD's allergy progressed very slowly, so it was a mystery at first and then it didn't seem very serious with only hives. You know, I'm not sure he even believed me at first. When I told him about the time we knew for sure it was peanuts causing her hives, I told him she was drooling as she was complaining that her throat was stinging, he said that little kids drool for lots of reasons, like if they don't like the taste or the sensation. I do think she was drooling because it hurt when she swallowed, not that her throat was swelling shut, but still... Do you switch doctors over one issue that is now being addressed by a specialist? He seems otherwise up-to-date. I've thought of switching to the doctor that prescribed the Epi-Pen, because she took the PA more seriously (and DD likes her), but it's not like she gave me advice about using the Epi-Pen or avoiding food that may contain peanuts. Well, enough rambling. Tell me what you think.

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