Doctor going against xtra epi\'s for specials

Posted on: Thu, 09/16/2004 - 5:57am
MQriley2's picture
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Joined: 05/25/2004 - 09:00

Another question

My son has it in his 504 plan that he has to have an epi on him at all times and an epi with his teachers and the nurse's room. He has started specials (art, music, p.e.) and these are in another building. Not a few feet away from the main building, but still in other buildings. I am supposed to have epi's for these teachers as a backup for the one he carries on him. The teacher and the nurse may be who knows where when he is at specials.

I just called his ped. doc asking for three, one for each teacher and he called back to say this was "overkill" and so did his nurse. They even said that just because it is in the 504 plan, that the doctor doesn't have to do it or agree to it. I felt really hurt. I am not overreactive by any means. I am just doing as I have been told was necessary. He said he thinks we are getting into the "what ifs" and we could do that all day. I told him that I was only asking because the people with the epi are gone when he is at specials and yes..

...what if they misfire the first one or it takes longer than 15 min. to get to the second one. I probably should have went to our allergist for this, but we are military and we go through the military pharmacy and it was just easier (or so I thought).

I wished I hadn't of asked because now I feel doubt with his new ped. doctor. I know people have diff. opinions, but I had hoped my new doc. would feel the same as the others. What do you guys do when your kids are in specials, are they in another building?

My doctor didn't even find it necessary for my husband and myself to carry a second one, isn't that weird?

Renee

------------------
Renee asthma/EnA
Quinton: PA/TNA/Soy/EnA/Severe Asthma/whole egg/onion/cocoa bean/chicken/turkey/string beans/potato
Mykiaja: EnA/asthma
Taylor: EnA/asthma

Posted on: Thu, 09/16/2004 - 6:16am
DebO's picture
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Joined: 03/15/1999 - 09:00

Hi Renee
I think it may be hard to have to give an epi to each "special" teacher. What I do is have my children carry 2 epis each on them at all times, in case of a misfire or problem. A third backup epi is in the main office just in case. I find that this way I have the same number of epis each year no matter if the kids have to go out for remedial work, gym class, French, etc.
good luck and take care!
deb

Posted on: Thu, 09/16/2004 - 6:23am
MQriley2's picture
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Joined: 05/25/2004 - 09:00

Thanks Deb! As much as I didn't want the double epi holder for the ebelt, I am now wishing I would have. I didn't think I would have to run into all these epi's. A double one would have made it much easier.
Unfortunately I cannot afford to buy another belt lol.
Anyone know of anybody or any reports where a double one was needed? I think ATM needed this with her son (sorry ATM, I can't remember if it was you or not).
Renee

Posted on: Thu, 09/16/2004 - 10:09am
meadow's picture
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Joined: 10/21/2003 - 09:00

I am learning that different doctors have different philosophies on EpiPens. Our doctor will give us as many as we ask for. Right now we have 8-12 in our possession. They are in my diaper bag, my daughter's medical pouch, kitchen, medical cabinet etc...
If you are troubled, try discussing the issue with your allergist if you have one, or consider going to a doctor who shares your philosophy.
Sorry to hear the difficulties you're having.Best of luck!!!

Posted on: Thu, 09/16/2004 - 10:27am
Kay B's picture
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Joined: 12/30/2002 - 09:00

>>Anyone know of anybody or any reports where a double one was needed? <<
Yeppers, right here. When I went into anaphylactic shock, my husband handed the epi to the EMT. He tried to use it upside down and shot it into his hand. Luckily we had more.
Kay

Posted on: Thu, 09/16/2004 - 1:22pm
momma2boys's picture
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Joined: 03/14/2003 - 09:00

Is this ped. related to your school nurse by any chance? Geez, he doesn't have to pay for them! He doesn't have to carry them. Why is it an issue? I would ask him to put it in writing that he doesn't think you need two Epi Pens and refused to prescribe them, just in case anything happens.
Of course you probably couldn't do anything with it, but it would make him think, what if...
My ds has an aide that carries the med. bag and stays with him through all specials, so I can't help you there. I would call the allergist, and even have him send a letter to the ped. explaining the seriousness.

Posted on: Thu, 09/16/2004 - 1:24pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by Kay B:
[b]>>Anyone know of anybody or any reports where a double one was needed? <<
Yeppers, right here. When I went into anaphylactic shock, my husband handed the epi to the EMT. He tried to use it upside down and shot it into his hand. [/b]
[b]OH, OWWWWWWWWWWWWWWWWWWWWWWWWWWW[/b]!!!!!
I have little spine tingles just thinking about it.

Posted on: Thu, 09/16/2004 - 11:39pm
Gwen 5's picture
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Joined: 01/24/2003 - 09:00

My dd has a fanny pack that is with her at all times at school. She is in 1 st grade and the teacher takes it with her to all special classes ie. Music, Art library- the PE teacher takes it with him.
At lunch and recess her a teacher(same one) is responsible for wearing it!
In the fanny pack I have 2 Epi's, asthma meds and Benadryl. I keep 1 extra Epi in office and Benadryl.
The traveling fanny pack works really well at school and out with us as well (2 different fannies!)

Posted on: Fri, 09/17/2004 - 2:09am
BS312's picture
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Joined: 09/05/2001 - 09:00

Your doctor is an idiot. Unless he has a food allergy in his family, he doesn't understand what you have to go through to keep your child safe. You should have as many EpiPens as you think you need, and your doctor should trust your judgment about this. Our PA DD wears an Epibelt with two EpiPens at all times at school. Her school nurse has two more, and we keep four additional at home.

Posted on: Fri, 09/17/2004 - 2:29am
California Mom's picture
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Joined: 07/14/2000 - 09:00

I am like Meadow. Our insurance will currently pay for 2 epipens at a time, and will refill after two weeks. So, that is basically how we have our prescription written: 2 epipens with four refills. (total of 10)
I am upset that your doctor won't give them to you. It is no skin off his neck; it is your decision how to keep your son safe, IMHO.
I agree with BS312 that maybe he doesn't "get it" because he hasn't had to live it.
[img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] Miriam

Posted on: Fri, 09/17/2004 - 2:53am
Kathryn's picture
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Joined: 02/17/1999 - 09:00

MY son wears the double epi-belt so he has two at all times. There is another one at school in his homeroom in case he forgets one day to put on the epi-belt. If he does forget then he puts the spare in a waist pouch that is also left at school and wears it all day. My husband and I do not carry additional epipens unless we are going to a rural setting where a hospital is more than 30 minutes away. We make sure that the epipens in his belt are from different manufacturing batches and have different expiries. I should also note that paramedics carry epinephrine in our area.

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