Do You Think or Hope That Your PA Child Will Be One of the 20% to Outgrow It?

Posted on: Sun, 02/11/2001 - 10:04am
Anonymous's picture
Anonymous (not verified)

pBased on redtruck's thread, and also The National Post article posted under Media, do you think or hope that your PA child will be one of the 20% to outgrow the allergy?/p
pThe reason I'm asking is this. I don't think or hope that Jesse will be one of the 20%. First of all, he has no other food allergies that he has outgrown or to outgrow./p
pThen, in speaking with his allergist last month, I asked him directly about this. I consider his allergist reputable. He said that given the severity of Jesse's reactions (3, 2 of which were anaphylactic) HE did not think that I should hope for this. What he did suggest is that I look forward to the vaccine in about ten years time that may lessen the severity of his reactions./p
pThe whole thing with this is, I feel really terrible that I don't have hope. It's not like I wish PA on Jesse and wish for him to have it forever. It's just that given his immune system and given what not only the allergist but probably about what 4 other doctors have told me, he won't outgrow it./p
pI do so wish that I could be hopeful. I also wish that he was going to be one of the 20%.br /
Am I terrible or what?/p
pI would appreciate any input, even if you are hopeful or think that your child may outgrow this. I think hope is a wonderful thing to have and would never condemn it./p
pBest wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]/p
p------------------/p

Posted on: Sun, 02/11/2001 - 10:12am
AmyR's picture
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Joined: 09/26/2000 - 09:00

I would absolutely love for my son to outgrow PA. However, just last week I was at the allergist and he didn't want to re-test him. He said that even if he were to test negative, I should still never let him have peanut products. He believes the research in this area is too young and the studies aren't long enough to know whether these people re-develop the allergy or even react later in life. Based on this, I certainly hope my son can outgrow this allergy but it also makes me nervous. If he "outgrew" the allergy, I think I would be a nervous wreck letting him eat whatever peanut products he wanted.

Posted on: Sun, 02/11/2001 - 10:22am
shannon's picture
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Joined: 05/15/2000 - 09:00

I Dont hold out much hope that Evan will ever outgrow his PA, it is his only food allergy, and the only reaction he has ever had was anaphalactic. In many years, I may wish to have him retested, but for now I am resigned to the fact that he will always be PA.

Posted on: Sun, 02/11/2001 - 11:13am
Anonymous's picture
Anonymous (not verified)

Shannon, you know, I've never even thought of having Jesse re-tested. I'm sorry to say almost, but I was glad to see that I wasn't the only person who felt the same way as I do. I think we all have good reasons - what our doctors have told us and how our children have reacted.
I'd still like to hear from people that do have hope though.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
[This message has been edited by Cindy Spowart Cook (edited February 11, 2001).]

Posted on: Sun, 02/11/2001 - 11:18am
ARI's picture
ARI
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Joined: 12/14/2000 - 09:00

Cindy,
I have to admit after reading that article I secretely daydreamed that my son was one of the 20%, and to be honest somewhere deep inside maybe I really believe it. Its probably not going to happend given he's a Class 5 but between the article and the hope of this shot it helps me get by.
Ari

Posted on: Sun, 02/11/2001 - 12:50pm
creek14's picture
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Joined: 06/13/2000 - 09:00

I agree with AmyR, even if the tests said he was clear, I just couldn't let him have that Butterfinger. I am putting pretty much all my eggs in the vaccine basket. I know that is years away, but I think that it holds great promise.

Posted on: Sun, 02/11/2001 - 12:56pm
Imalulu's picture
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Joined: 02/11/2001 - 09:00

I don't hold much hope for my son to outgrow, but I don't feel badly about being realistic. I only know how he is today. Yet I am going back for another RAST anyway (last was two years ago.) Data cannot hurt. Trust me HE will never himself touch a peanut product anyway. At age 8, he is more realistic than me. But to lose some of the fear would be unbelievable. I vote for losing fear and staying abstinent and still going anti-IgE in several years. My eggs are in all the baskets at once.

Posted on: Sun, 02/11/2001 - 1:58pm
Merri - Kim's picture
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Joined: 01/31/2001 - 09:00

I still have HOPE!! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] This allergy drags me down, keeps me from housework, keeps me from certain family gatherings etc. and it does lots of other negative things. BUT - I am still a happy, strong mommy that hopes to never loose hope! I have faith that God will keep my son safe and whether it be through healing (growing out of it) or through a protective hand, I have hope that he will be OK!! I also have confidence in those things. I am going to become organized with this allergy this week (the stack of messy papers has got to go - I can't live like this!) and I am going to have time to do things with my kids! This allergy is not going to run my life in every aspect. I will always have hope - even if this allergy lasts into adulthood for my son. Who knows?!? Not me, not my doctor (for definate) maybe he will grow out of it. I have no idea what the future holds, I can only hope for the best! Now, time for my regular disclaimer. That being said, yes, I will of course still be careful and I will never let my guard down. But, this will just be another life change, not a life controller! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] I'm feeling good tonight! (singing - I feel good, da na na na na na nt, I knew that I would, da na na na na na nt I feel good, da na...go with it ladies!) [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img] So sorry for that interruption, my DH gave me coffee tonight! Take care all! Kim
[This message has been edited by Merri - Kim (edited February 12, 2001).]

Posted on: Sun, 02/11/2001 - 10:39pm
e-mom's picture
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Joined: 04/23/2000 - 09:00

Cindy,
I actually do have a lot of hope that my son will outgrow his peanut allergy especially after listening to the talk that was given by Dr. Michael Young (allergist who specializes in PA) a couple of months ago.
In so many words, he stated that if your child has not had an anaphylactic reaction EVER that their chances of outgrowing the peanut allergy are 20%. This to me is excellent news because Ethan has never had this reaction!!!
I don't know anything about the vaccine so I don't feel I can comment on that yet.
However, after many years, if my son did show that he was no longer allergic to peanuts would I give them to him---NO WAY!!! But I don't think that I would have to read the labels anymore--although after doing something like that for years how could you really stop?

Posted on: Sun, 02/11/2001 - 11:55pm
blackmoss's picture
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Joined: 12/26/2000 - 09:00

Do I believe Stephen will outgrow his allergy?? I don't know, but his allergist seems to think he will. I'm kinda in a mindset that he won't mainly for his safety. I think if I allowed others (aka my family) and possibly myself to believe that he'll outgrow it they won't be as cautious. I don't know if that makes any sense or not.
Jami

Posted on: Mon, 02/12/2001 - 12:16am
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Joined: 05/28/2009 - 16:42

blackmoss - your family needs to know that if there's to be ANY hope of outgrowing the allergy, Stephen must not have ANY reactions, or contact with items that may cause a reaction.
This should make them even MORE cautious (I hope!) - his future is in their hands. Do they want it to be a dangerous future, complete with the landmine food allergies? Or are they willing to be careful now, to perhaps give him a more carefree future?
Cindy - since Cayley has kind of outgrown her milk allergy, we may have hope, but realistically, my DH has more hope than I do that she'll outgrow it. Perhaps I'll be more optimistic after her next allergist appointment in 18 months, if we see the now mild milk allergy completely gone (now she's still a 1+).
Having said that I don't have much hope, I can see myself being completely devasted by a still-severe positive peanut test, if I got my hopes up even a little bit, so I'm not even going to go the hopeful side. I think it would be like going through the initial PA diagnosis all over again - newly scary and newly devastating.

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