Do You Consider This Website Your Support Group? Why?

Posted on: Tue, 01/30/2001 - 3:37pm
Anonymous's picture
Anonymous (not verified)

pDo you consider this website your support group? Why? /p
pI do consider this website my support group.br /
I live in a very small town where my son is the only PA child at his school. Now, I know that if I were to advertise, I could probably start my own support group (I do not have transportation to get to a support group anywhere other than in my town)./p
pHowever, and this may surprise many people, I am not the kind of person who would be very good at being part of a support group, never mind leading one! I am actually very introverted and quiet. I can see myself sitting in a group of other PA parents and not uttering one word. Seriously./p
pI also consider this my support group because it connects me with people everywhere, not solely in my community. I understand why a group within your community would be beneficial when it came to addressing certain concerns (especially schools, doctors, etc.)./p
pI have found this site to be a wealth of information, support, caring, concern, encouragement. And, I don't have to leave the comfort of my own home (or have people exposed to the discomfort of mine! LOL!) and I can receive support 24 hours a day./p
pAnyone else?/p
pBest wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]/p
p------------------/p

Posted on: Wed, 01/31/2001 - 12:05am
Anonymous's picture
Anonymous (not verified)

Cindy, absolutely...this is my support group!
It is so nice to be able to discuss situations, give advice, take advice and know that what you are saying is validated and that you are being heard. As everyone on this board knows, talking to the "outside" about peanut allergy, you get a blank look and you know they just don't understand. (In the beginning, it took me a while to understand and I guess I shouldn't expect others who don't deal with it on a daily basis to understand it or what we, here, go through day in and day out). I love being able to share my thoughts and stories here and read other people's thoughts and stories posted on here and know exactly where they're coming from.
This is my release and where I receive validation. And in reading other's posts, I can sit back and say to myself there are different ways of handling situations and my ways are not always the best. I love getting different perspectives from the other members.
This is the best support group I can think of for me, personally! We all may have different ways of doing things, but we are all here for the same reasons...to keep our children safe. (I also love reading the posts from the peanut allergic adults).
Great thread, Cindy!
------------------
Stay Safe.

Posted on: Wed, 01/31/2001 - 4:18am
MattsMom's picture
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Joined: 09/17/2000 - 09:00

Yes, I do consider this my main PA support group. I'm also involved in 2 others, though. One is a "real-life" support group for parents of food allergic kids, which has just been started here in the DFW area. (Dallas, Tx) We've only had one meeting so far, but we do have a mailing list that a few of us (trying to get more!!) are on as well, so we can 'talk' to each other more frequently.
The other is another mailing list (I'm addicted to them, let me tell you!) that is world-wide. It is also for parents of food-allergic kids, but drug allergies, latex allergies, and anaphylaxis, are all "on-topic". This list is VERY active (LOTS of emails a day) as there are almost 700 members. Both mailing lists work the same way. You send an email to one address, and it gets delivered to ALL members of the mailing list.
That said...if anyone is in the DFW (or north TX) area, email me for info on joining the support group/mailing list. And if anyone wants info on joining the world-wide mailing list, you can email me about that too. My email is [email]wmcasey@ntws.net[/email] =)
[This message has been edited by MattsMom (edited January 31, 2001).]

Posted on: Wed, 01/31/2001 - 5:17am
anonymous's picture
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Joined: 05/28/2009 - 16:42

YES, YES, YES, YES, YES!!!!!!!
Yes, this is my support group! For all the reasons that have been mentioned already, and I'm sure more.
I consider the information here to be absolutely invaluable!! I have learned more here than from any other source!

Posted on: Wed, 01/31/2001 - 5:51am
Anonymous's picture
Anonymous (not verified)

Connie, thank-you for the compliment! You are always so gracious. And they are very much appreciated, especially from someone else who starts good threads.
Matt's Mom - I'm simply going to ignore the fact that I could e-mail you and have access to 700 other people in a single e-mail! Just thank heaven, okay! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Wed, 01/31/2001 - 5:54am
DMB's picture
DMB
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Joined: 02/22/2001 - 09:00

Yep! We don't know anyone else who has a peanut allergy. I have learned so much from this website. Deanna

Posted on: Wed, 01/31/2001 - 11:46am
AmyR's picture
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Joined: 09/26/2000 - 09:00

Most definitely. I have learned so much over the past few months. I also love that I can feel comfortable coming in here and posting any questions/concerns I have (which I seem to have a lot of lately). Especially the other day when the allergist wasn't very helpful, I knew I could post here and get the answers I needed.
My husband jokes with me when I get on-line at night and will say, "have fun talking to your friends". The "off topic" threads have become a great area. They're a lot of fun to read and helps us get to know people better.

Posted on: Wed, 01/31/2001 - 5:01pm
MattsMom's picture
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Joined: 09/17/2000 - 09:00

Cindy- LOL! There is sooo much information shared on there, which has a lot to do with the # of people there, I'm sure. hehe Most is not PA related, though, since the list is for food allergies in general. This site is still the #1 place for PA/TNA info!! =)

Posted on: Thu, 02/01/2001 - 12:47am
Linda-Jo's picture
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Joined: 07/30/1999 - 09:00

Absolutely! Whenever I question anything, I always come to these boards and usually find my answer! And in turn, I love to offer advice to anyone who needs it. We are all a comfort for one another. We are all dealing with the same thing and it is very supportive to learn how someone else deals with this allergy. I think these boards have kept me 'sane' on a daily basis!

Posted on: Thu, 02/01/2001 - 7:52am
Melanie Dillard's picture
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Joined: 12/04/2000 - 09:00

Cindy,
This is a great website to use for support. I am still trying to begin a local group here in Atlanta, Georgia, but just knowing that I can come to a place each day and see that other people (or their children) are just like me - then I feel like I'm not alone.
However, the bad side is that sometimes when I read posts I become very scared and even panic striken. But I guess that the panic is good, because I can learn from others experiences and not have a deadly reaction.
It's scary enough living in the world we live in and having to worry about whether or not I can eat the chicken dinner on the restaurant menu, because it could have peanuts in it. But like my husband saids, I could have a disease far worse than my peanut allergy, where I can simply double check with the restaurant manager for an indegredient listing.
Everyone stay safe and peanut free,
Melanie

Posted on: Thu, 02/01/2001 - 8:05am
Anonymous's picture
Anonymous (not verified)

This site is absolutely my main support! What a relief to know that I can log on and moan to other people who know just what I am talking about. Not to mention the amount of info - it is truly a miracle.
I am fortunate (I guess my fortune is their misfortune) to live in a town with many other PA children, so I have some support here as well. As a matter of fact, I saw 4 other parents of PAs today, at separate times throughout the day. We always buck each other up, especially after one of the kids has an accident (one of the middle-schoolers had a bad reaction last week). Additionally, I just heard that a local hospital here may be starting a support group for the kids -- I'll keep you all posted on that.
Amy

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