Do I Agree with Allergist or not?

Posted on: Mon, 02/05/2007 - 6:25am
Anonymous's picture
Anonymous (not verified)

Okay, I have only been aware of this website for DAYS, but might I say that I am sooooo thankful that somehow I stumbled upon it. 12 mo. old DS is allergic to peanuts, egg white and yolks, wheat, milk, soy, rye and bananas...
I'm "trying" to get him off of formula since he just turned 1 year old, and tried Milk at the advice of both my pediatrician and allergist, because his RAST numbers were only Level 2 for milk?
Whatever Level 2 means? I couldn't get allergist to say anything other than it's low enough to not worry about avoiding milk.

Having said that, I tried Milk and DS reacted with bad eczema spots, red eyes, and BAD diaper rash after 2 days...so needless to say, lower numbers or not milk SHOULD be avoided! My dilemma now is this:
Do I try soy milk next, or since he also showed being allergic to soy on the RAST testing, should I NOT put my DS through that and just keep him on his current hypo-allergenic formula as his "milk" til we can hopefully outgrow this milk or soy allergy sometime soon?
Can y'all give me some tips, pointers, advice?

Posted on: Mon, 02/05/2007 - 6:48am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

I'd tell your allergist what you observed with milk. That way he/she understands WHY you want to do another skin test and an in-office challenge. On the other hand, you have to go with reaction history. Period.
My DD who is 7 has a milk allergy as well-- though she skin tests negative. Doesn't matter. I know what I've seen, and the fact that DD doesn't [i]want[/i] cheese (which she [i]loves[/i] )becuase of how it makes her feel is good enough for us.
We know how to make the nutrition work without it. Rice milk and fortified juices for calcium and other vitamins, a little extra protein, and an otherwise well-balanced diet to make up the rest.
One thing to think about, though, is that some kids can have positive RAST results to things any clearly NOT be allergic to them... mine was one of these. Her wheat allergy [i]still[/i] shows up. So it isn't necessarily the case that all the positive results are "real" KWIM? This is probably why your allergist gave you the advice to try it and see.
But make sure your allergist knows what you're up to and why.

Posted on: Mon, 02/05/2007 - 7:22am
chanda4's picture
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Joined: 12/14/2006 - 09:00

OMG...,my son has a level 2 to milk and I would never give him cows milk!!! He's had *trace amounts* with no problems...but never would I attempt giving him straight milk. I would go against what they suggested and note the reaction. I have my youngest two on rice milk, my 1yr old drinks about 3-4 bottles of rice milk a day.
My daughter is much more sensitive....I took 1 bite of a small mini choc bar once and she got horrible stomach cramps and flaiming diarrhea(which caused horrific diapper rash)....from just what she got through my breast milk....from that 1 small bite!
So I would honestly have to say, it's best to avoid cows milk in your sons situation. When my kids have well-child or allergy appt's I just state to them, "they are on rice milk only". Good luck
------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig)
Savannah-1 (milk and egg)

Posted on: Mon, 02/05/2007 - 7:29am
Momcat's picture
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Joined: 03/15/2005 - 09:00

I think I would keep him on the formula he is tolerating for now. You can start offering him rice milk occasionally to get him used to the taste, but I don't think it has enough fat and protein for one year olds to drink exclusively (unless this is made up by a very good solid food diet.) He will get the nutrition he needs from the formula.
Cathy
[This message has been edited by Momcat (edited February 05, 2007).]

Posted on: Mon, 02/05/2007 - 7:32am
chanda4's picture
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Joined: 12/14/2006 - 09:00

Sorry...Momcat is right, continue on the formula for now, it's not neceassry to take him off if he can't go to cow's milk. Rice milk is very low calaorie and low fat...but my daughter can't tolerate the hypo-allergenic formulas, so I still breast feed her....and she gets 3-4 small 3oz bottles of rice milk druing the day as well. I should have made that clearer..sorry
------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig)
Savannah-1 (milk and egg)

Posted on: Mon, 02/05/2007 - 7:34am
Anonymous's picture
Anonymous (not verified)

thanks for the QUICK and great responses...i'm NOT that familiar with Rice Milk's nutritional content, but it is NOT calcium or Vitamin D fortified is it? or is it?
i guess I just don't know why you'd even drink Rice milk, if it isn't?
Corvallis Mom
you mentioned to tell the allergist i want another skin test...we haven't had any skin test done on DS...and haven't done any in-office challenges? is that strongly advised to get a handle on the severity of his allergies? i've just been going by reactions and have completely avoided nuts and eggs...
does everyone agree we need to do a peanut skin test?
i'm just wondering if i should be super cautious about peanut allergy NOT yet knowing what his reaction will be, since he has NEVER reacted yet?
or is it wise to just be VERY cautious? i just hate thinking i was being too overly cautious, if all he ever does, reaction-wise, is break out in hives or something...
do all PA's react to peanut touch or do some just react to ingestion only?

Posted on: Mon, 02/05/2007 - 7:44am
Anonymous's picture
Anonymous (not verified)

so, DON'T even bother trying the soy milk...just keep him on current formula?

Posted on: Mon, 02/05/2007 - 7:55am
chanda4's picture
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Joined: 12/14/2006 - 09:00

Some people test and some don't. For my kids, I get them skin tested(the little scratch test) as well as the blood draw(cap rast). I've done it yearly for all of them. But deff see the allergist, you want to know what he is and isn't allergic too so you know what to avoid and what not to avoid. As for the soy, has he had a reaction to that then, so you're avoiding? I started my 3yr old on Soy milk once we knew for sure(through tests and reactions) that he was allergic to milk. But after a year(and lots of diarrhea) his previous negative soy reactions, turned positive. So that is why we do rice milk...and for his younger sister, I didn't want to take the chance of it happening again, so I went the rice milk route.
Here is some info off our rice milk....
they both prefere Vanilla Rice Dream. It's enriched with vitamins A, D & B12. Rich in Calcium too. It only has 130 calories per 8oz and 2.5 grams of fat...so I agree, kids(toddlers) need more calories and fat(the reason I am still nursing too). On the side of the carton it even states..."not for use as an infant formula, for children under age 5, consult with your child's doctor."
I need to ask the others...someone said they were allergic to safflower...ricemilk has that in it, what is it??? Thanks [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig)
Savannah-1 (milk and egg)
[This message has been edited by chanda4 (edited February 05, 2007).]

Posted on: Mon, 02/05/2007 - 8:00am
Corvallis Mom's picture
Offline
Joined: 05/22/2001 - 09:00

With your list of MFA and him already testing (+) to peanut, I wouldn't even try soy.
Peanut is one that most allergists would rather you took the "better safe than sorry" route.
In spite of what you may hear, there isn't really a "mild" version of a peanut allergy. There are mild symptoms. There are less sensitive individuals. But all peanut allergies have the potential to be deadly. You are right-- you don't really "know" he's allergic. But I don't know if I would do a skin test anyway... he's too young for you to be giving it to him anyway with his history of FA, right? So why not wait to find out for sure until he's old enough-- like 3-4 yo?
Usually, in our experience, DD's eczema flares can be correlated to an allergen exposure... but not always. What does your allergist think?

Posted on: Mon, 02/05/2007 - 8:02am
Carefulmom's picture
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Joined: 01/03/2002 - 09:00

Quote:Originally posted by Hawknz:
[b]does everyone agree we need to do a peanut skin test?[/b]
I would not skin test for peanut, since it is an exposure. Your initial post says he is allergic to peanut. Is that by cap rast? You will be avoiding peanut for the next several years anyhow, even if he were not allergic. So if he already has a positive cap rast for peanut, you pretty much have your answer. If hasn`t been tested for peanut (sounds like from your original post he has been though), I would wait a few years a do a cap rast. Cap rast tends to run very low at age 1, so it is not all the accurate. In fact, the cutoff for a challenge goes up at age 2.
About the milk, my dd is a class 2 and she had a cross contamination reaction. Class 2 doesn`t always mean not very allergic. By the way, Rice Dream is on shared equipment, at least it was when I last checked a few years ago. Don`t know if that is in your comfort zone. There are some on this board who will give it, others not. I personally don`t.

Posted on: Mon, 02/05/2007 - 8:09am
chanda4's picture
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Joined: 12/14/2006 - 09:00

Rice Dream is on shared lines??? It doesn't say anything on the carton.....Geeeez I hate this, just label darn it!!!!!!!!!!!
Now I'll have to look into this, this ticks me off....what the heck can I give my kids then, I hate this!
------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig)
Savannah-1 (milk and egg)

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