Disappointed in latest RAST results

Posted on: Sun, 07/15/2007 - 6:22am
Kathy L.'s picture
Joined: 07/30/1999 - 09:00

I know the topic of disappointing Rast results has come up before, and now it's my turn. My dd just turned 12. She's had no reactions since she was 4. EIGHT years!! Even her eczema went away. Her previous rast to peanuts 2 years ago was 99 (extremely high back then). Just to see if the numbers have changed, she had another test done last week. Now it's 100+, class 6.

She actually was glad she is still allergic. She was afraid she might be asked to do a food challenge. So there is no change in our lives, but now that she's getting older, I'm more nervous than I used to be.

Posted on: Sun, 07/15/2007 - 6:47am
chanda4's picture
Joined: 12/14/2006 - 09:00

as with everyone who goes through this, I will say I am sorry your results didn't change. I come to expect this when we test, seriously, that way I am not let down. I've seen my kids outgrow some food allergies, but I have some to accept the peanut and tree nut will never change. Sorry and HUGS
Chanda(mother of 4)
Sidney-8 1/2(beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 1/2(peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-4 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 1/2 (milk and egg)

Posted on: Sun, 07/15/2007 - 12:20pm
Ree's picture
Joined: 12/31/2004 - 09:00

I'm sorry things didn't change. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] I can understand how she feels...the thought of a food challenge is very scary to me.

Posted on: Sun, 07/15/2007 - 12:42pm
PennMom's picture
Joined: 08/01/2006 - 09:00

Sorry about the results. Congratulations though on 8 reaction free years! My DD has only been diagnosed for one year- I would love to think we can go another 8 years reaction free- you and your daughter are definitely doing great managing her allergy- although all of us with this allergy know that isn't always easy! My DD's First RAST (last year) was also high, the doctor said at our recent appt (we haven't got the results yet)......that he fully expects that it will get higher this year (she's 4). Oh well, we can keep up the hope for a treatment/cure to come in the future to at least make the reactions minimal.

Posted on: Sun, 07/15/2007 - 9:37pm
anonymous's picture
Joined: 05/28/2009 - 16:42

I'm in the same boat as you. Ryan's 3 blood tests were >100, 64, then just last month >100 again. This was over a span of 5 1/2 years. It's been 6-7 years since a reaction. Can't remember the exact year of the last one.
The good news about this? Our kids should be snatched up right away for clinical trials if we are interested. And schools look at these numbers as proof positive for severe peanut allergies and 504's.

Posted on: Sun, 07/15/2007 - 11:20pm
jtolpin's picture
Joined: 05/28/2003 - 09:00

What else can be said...
You know the drill. And so does she.
[b]* Beyond Obsessed * [/b]

Posted on: Sun, 07/15/2007 - 11:25pm
GinaC's picture
Joined: 11/11/2006 - 09:00

There is some amazing work being done right now with immunotherapy. Dr Wesley Burks was quoted as saying that there will be a treatment for food allergy in 5 years. Not a cure--but a treatment. I know, I'll take it.
Between that and the Chinese Herbal Formula, I truly believe there is hope.
You and your daughter are doing a great job!
Take care ,

Posted on: Mon, 07/16/2007 - 2:20am
Kathy L.'s picture
Joined: 07/30/1999 - 09:00

Thanks for the sympathy! Nobody understands like you all.

Posted on: Tue, 07/17/2007 - 11:37am
LDR's picture
Joined: 09/28/2001 - 09:00

In the same situation myself. After almost 6 years of no reactions and earlier test results suggesting "she may outgrow the allergy," we just got test results back that she's >100. I also think the good news is this is a way of life for her, for us. Aside from the fear associated with a food challenge, I just can't imagine feeling comfortable about introducing peanut into her diet, and that's what we were advised to do if she were to pass a challenge. You're not alone, especially here. I keep telling myself everyone has something, and this is what we need to deal with, which we've been managing without incident for years.

Posted on: Tue, 07/17/2007 - 12:36pm
Kathy L.'s picture
Joined: 07/30/1999 - 09:00

LDR, you wrote what I was thinking but couldn't verbalize it. There are worse afflictions than peanut allergy.

Posted on: Wed, 07/18/2007 - 11:08am
blackcml@cox.net's picture
Joined: 12/19/2005 - 09:00

That is disappointing. You all must be doing a great job managing it, with no reactions for so long. My son's went up this year also to > 100 and it is difficult news to accept that things are not changing. For me it's a good thing to get him tested again - kind of a reminder to keep being careful.

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