*Different* Notice in PA Child\'s Class To-day - What Do You Honestly Think?

Posted on: Mon, 02/24/2003 - 6:38am
Anonymous's picture
Anonymous (not verified)

To-day, I end up having to physically go into Jesse's classroom when school was over to hurry him up. He is the last one out of class every day. While I'm standing there hoping that he'll focus on getting ready, I look up at the chalkboard and just beside it.
Just beside the chalkboard is where information about Jesse's peanut allergy is posted (not his emergency medical plan or pic, but a newspaper article with his pic).

Now, a new thing is up there. It is a typed notice from a parent of a child. It's entitled BAD FOODS FOR (CHILD'S NAME). The foods included all prepared meats, hot dogs, peanut butter, Cheez Whiz, processed cheddar cheese, regular cheddar cheese with the provision that white cheese (don't know if that means Mozzarella) is okay. It goes on to say that if the child ingests these foods, they will become ANGRY AND EXCITED.

So, to me, I look at the luncheon meats and hot dogs and think, okay, MSG. I can't eat MSG either because it's one of my migraine triggers. The cheese, perhaps lactose intolerant, but then why would some white cheese be okay? The peanut butter, I don't know.

In Ember's class near Christmas we received a notice home saying that there was a child in her class that was allergic to red dye. Her symptoms are that her blood pressure INCREASES. The principal sent the letter home without having medical documentation from the parent.

At Valentine's Day, Ember was adamant with me about not sending chocolate in (treat size Smarties). Why? Because there is supposed to be a child in her class allergic to chocolate. However, I haven't received notice about that.

If our schools are food obsessed, as they do seem to be here, perhaps it is appropriate that parents send these types of lists into the school so that their children won't be fed things they shouldn't be fed.

If I wasn't a PA parent, could I send a list in saying that my children are not to be given anything with red dye, sugar, or chocolate because it makes them bounce off the walls?

Can you see where I'm going with this one?

I am having great difficulty with this particular school as far as Jesse's peanut allergy. To have parents popping out of the woodwork with lists of food like this is actually undermining to what I am trying to do.

The child next door to me is lactose intolerant. Have her parents sent in a note to the school saying that she is and they would like it posted in the classroom? No.

Do all of us not have foods that we see our children eat that we would prefer them not to because of the adverse effects (i.e., my two are now bouncing off walls after trying the great new "safe" Rolos by Nestle and having a hot chocolate)? Does the school have to be aware of this situation? How large of a part of feeding our children should the school be taking?

Because it's Jesse and Ember's classes that have been affected by these things, it really does make me look like Psycho Mom from He**.
I am serious. I am not saying that the parent does not have the right to say they don't want their child to eat something or other, but can anyone, besides me, see how this could be potentially undermining to my efforts and actually belittles Jesse's PA?

Any thoughts would be greatly appreciated.

Many thanks and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

Posted on: Mon, 02/24/2003 - 11:19am
katiee's picture
Offline
Joined: 05/09/2001 - 09:00

Well Cindy, for myself anyway I would "question" a school that posts such "requests" that have not been sanctioned by a medical doctor otherwise, if every Tom, Dick and Henrietta is making demands like this because they don't want their child to eat this particular food for anything other than specific medical reasons to me anyway is undermining the efforts of parents like us who have children who could die if exposed to their particular allergens.
There is a world of difference between eating a food that would "sugar up" a child or agitate them and a FA/PA child eating something that could kill them. Apples and oranges to me. Are you (parents of kids in the class) being asked not to send in the particular food or are you only being told that this child can not eat this food? Either way, I don't think this belongs on the wall of the classroom. Sounds to me like someone might be messing with your head. Just my opinion.
Take care,
Katiee

Posted on: Mon, 02/24/2003 - 1:07pm
kelly01's picture
Offline
Joined: 03/19/2001 - 09:00

Cindy:
I am sorry, but based on your above post, I don't agree that this parents list is undermining your efforts.
I think it is dangerous to make assumptions about how other parents are handling their situations. It might not seem important to you that certain foods make this child anxious, but apparently it is important to someone.
You have mentioned before that this teacher seems lax when it comes to your sons PA...perhaps this list is posted as a reminder to her.
Regards,
Kelly
P.S. your daughter Ember sounds like she is a sweet, empathetic child. Lots of parents choose not to send notices home regarding food allergies. The fact that she is aware and adament about making sure not to exclude a child from her class is very gracious of her.

Posted on: Mon, 02/24/2003 - 2:00pm
hannah mom's picture
Offline
Joined: 10/12/2001 - 09:00

Cindy
I don't intend to sound harsh or judgemental, so if my reply comes across this way, it's just because it is late at night and I want to type this in quickly and call it a night.
I know you have had a lot of trouble with your kids' school this year, and I think perhaps this is affecting your interpretation of this issue. It seems to me that for health reasons these parents simply wish to have some control over what their children are fed at school -- something that we as parents of PA kids should understand. While there may not be fatal reactions involved, it is not our place to judge the severity of someone else's heath concern. Also, the actions requested are not as "drastic" as those we request for our kids, the note doesn't ask others not to consume the items. Perhaps in the one case, these foods trigger hyperactivity in the child -- which would affect the child's ability to learn and possibly interfere with all the children in the class.
As far as not providing medical proof of allergies, I don't feel we have the right to demand to see proof from other parents, that is up to the school to request if they feel it necessary.
This reminds me of something Mommabear asked in a completely different thread -- are we willing to "give as good as we get?" or words to that effect.
As far as the Smarties for Ember's class go, many people have posted here wishing treats were not always food items, maybe this would have been a good time to send a non-food treat?
Sarah
PS at my daughter's preschool there is a child with many food allergies that can trigger very serious reactions, including one to red dye.

Posted on: Mon, 02/24/2003 - 9:29pm
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

Just a question as to this situation? Are the parents just saying their child can't eat such and such a food without impacting other children about what they can/can't bring in? That would opposed to our situation in which PA kids really can't/shouldn't be exposed to peanut products in the classroom because of anaphylaxis.

Posted on: Mon, 02/24/2003 - 11:04pm
hannah mom's picture
Offline
Joined: 10/12/2001 - 09:00

Ryan's mom, I'm not sure I understand exactly what you mean in your post, so I may be misinterpreting it. But, no I don't think this situation is "opposed" to the view of parent with PA child, just different from it. These children may react on ingestion only, not by contact or smell, and perhaps not even by trace ingestion. This doesn't mean their parents don't also have a valid concern.
Sarah

Posted on: Tue, 02/25/2003 - 1:50am
MommaBear's picture
Offline
Joined: 09/23/2002 - 09:00

Quote:Originally posted by hannah mom:
This reminds me of something Mommabear asked in a completely different thread -- are we willing to "give as good as we get?" or words to that effect.
[/B]
hannah mom:
You made my day. You will probably never know how much it meant to me that you remembered. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
MommaBear

Posted on: Tue, 02/25/2003 - 2:05am
Anonymous's picture
Anonymous (not verified)

Harsh and judgemental? Yes, everyone but Katiee was. I think somehow I must have posted so that people were not looking at the *big* picture. Or, perhaps I should also have posted again about how Ember's teacher sent home rice krispie squares with the parent who made them saying that there was someone in the class "allergic to rice krispie squares". Not rice, not an ingredient in rice krispies or the marshmallows, but the actual rice krispie squares.
I did speak with the principal yesterday regarding this and she agreed that it does undermine those of us whose children have a deadly allergy, especially when they pop out of the woodwork mid-year.
The principal cannot or is not supposed to send out notices re an allergy, i.e., the chocolate, until she receives written medical documentation. Once she receives that, she is required to say that there is an allergy to a particular food item in the classroom.
I'll have to re-read my original post later and see where I came across as not caring about how other people deal with their children's health or food issues. In the mean-time, I'm going to send a list to the school asking that my children not be allowed to eat chocolate, red dye or sugar because it makes them hyperactive and they crash badly.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Tue, 02/25/2003 - 2:13am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

Cindy - you asked what people "honestly" thought and they all tried to put their thoughts on this issue as nicely as possible. We can't all agree on everything, can we?
My thoughts are that if a parent takes the time to detail behaviour changes in their child through a food diary (I don't know if those parents have done this, but it sounds carefully detailed) then they certainly have the "right" to have it posted in the classroom as a reminder to the lunch staff. Any negative behaviour in the classroom affects the entire class - it sounds like this child may have a behaviour problem and the parents are trying to avoid medication. That's all. Not undermining your efforts at all - 2 different ballgames, IMO.
Carolyn

Posted on: Tue, 02/25/2003 - 2:14am
MommaBear's picture
Offline
Joined: 09/23/2002 - 09:00

Quote:Originally posted by Cindy Spowart Cook:
[b]
I'll have to re-read my original post later and see where I came across as not caring about how other people deal with their children's health or food issues. In the mean-time, I'm going to send a list to the school asking that my children not be allowed to eat chocolate, red dye or sugar because it makes them hyperactive and they crash badly.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[/b]
I have found P!$$!#& contests to be nonproductive and exhausting.
MommaBear

Posted on: Tue, 02/25/2003 - 2:23am
ABreitner's picture
Offline
Joined: 07/02/2002 - 09:00

Cindy, I am not in agreement with you on this one [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
My daughter is lactose intolerant. The worst reaction was one day she ate something with cheese at school and while I was braiding her hair she leaned over and threw up in her own lap. Even when she does not vomit or have diarreah, it cause her huge discomfort. Other people are always trying to get her to eat things with milk and it is very hard for her to get them to take it seriously. She is not allergice but very intolerant.
Ben reacts to red dyes by screaming and pulling at his hair. When I tell the doctor about this he says "hmmm". Hardly the reaction I would need to get this documented. Ben can't eat uncooked tomatos, black grapes, raisens, watermelon, as well as his medically confirmed allergies to peanut, dairy, and egg. Of course the one that I worry to death about is peanut but the others are quality of life issues. There is something in teddy grahms that makes him break out in a rash that you can't see but feels like sandpaper. I know that the few times I try to tell people about the reactions that are not peanut, they look at me like I have lost my mind.
I don't think having these intolerances posted undermines the severity of your son's life threatening reaction.
Ann

Posted on: Tue, 02/25/2003 - 3:37am
Anonymous's picture
Anonymous (not verified)

Momma Bear, it's interesting that you should find pissing contests non-productive, etc., since you're usually the FIRST one involved lately in them on the board, scaring many a member away that does not understand your sardonic wit or the taste for Merlot. And the perpetual disclaimers when you post links, I have found personally confusing, inquired about them, and received no response. Is is humour? Is it sincerity?
There is a lot I *could* say in response to this thread except that as a couple of people have mentioned food allergies and food insensitivies are like comparing apples and oranges. That's why I don't appreciate seeing the orange notice right beside the apple notice at the front the classroom. I don't see apples and oranges together in the grocery store and I don't think it was appropriate.
I am extremely upset that anyone would think that I didn't respect other people's requests (i.e., by sending the Smarties in - we support the Nestle Safe to Share and they were actual Valentine's) and that I don't have compassion for other children's health needs at school
With the amount of time I have spent in the last three years on this board dealing with PA, and other issues as I have been approached off-the-board, I can't even begin to imagine someone questioning my compassion, caring and concern.
Yes, disagree with me. Tell me why. I have, many a time, learned a lot of things or a different perspective by looking at a post that was in direct contrast to mine.
At any rate, I do think my time has been well spent here. I appreciate every single person who has taken the time to respond in any thread (particularly the ones where my head was going to explode) but this board has become far to volatile, and may I even say, clique-y, for my liking (of course, another member accused us of being clique-y before and I see that she has again been accepted into the fold).
Many thanks everyone, Stay Safe, and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Tue, 02/25/2003 - 3:48am
ACBaay's picture
Offline
Joined: 03/19/2002 - 09:00

Hi Cindy,
Maybe people are realizing and caring about all of the junk that these kids are fed in school. This could actually work to your advantage. If people can eliminate all, or at least some, of the excess junk foods that are sent into the classrooms, that will only increase the safety of the food allergic ones. My non-allergic older son was in public school for 3 years, and although I didn't send a list of food that I didn't want him to eat, I really disliked all the junk foods and parties that seemed to happen almost on a daily basis. And the food rewards are, IMO, ridiculous (decent behavior should be expected, and learning is its own reward! sorry off topic).
I think that a parents' wishes for what their child eat should be respected, whether allergic or not, BUT it should be stressed (if not an allergy), that it is not an allergy, so that nobody misunderstands that extra caution needs to exist for a life-threatening allergy.
Anyway, Cindy, I am sorry that you are having this difficulty. When it rains, it pours.
Take care,
Andrea

Posted on: Tue, 02/25/2003 - 3:59am
kelly01's picture
Offline
Joined: 03/19/2001 - 09:00

(Sorry about all the edits. I originally was fairly steamed about my post being called harsh and judgmental...but I have decided not to pursue this one any further...)
[This message has been edited by kelly01 (edited February 25, 2003).]
[This message has been edited by kelly01 (edited February 25, 2003).]
[This message has been edited by kelly01 (edited February 25, 2003).]

Posted on: Tue, 02/25/2003 - 4:36am
MommaBear's picture
Offline
Joined: 09/23/2002 - 09:00

Quote:Originally posted by Cindy Spowart Cook:
[b]Momma Bear, it's interesting that you should find pissing contests non-productive, etc., since you're usually the FIRST one involved lately in them on the board, scaring many a member away that does not understand your sardonic wit or the taste for Merlot.
[/b]
Sour grapes? (couldn't resist)
As for my "disclaimers": I offered an explanation in one of the posts (maybe more). Don't know if you saw it. I also posted much in the "jacket" thread regarding the asthma/recess issue. Don't know if you saw that either. Anywho.......
BTW, I don't know how to interpret your "Best Wishes" on many of your posts either. Small world. LOLOLOLOL
MommaBear

Posted on: Tue, 02/25/2003 - 4:45am
Gail W's picture
Offline
Joined: 12/06/2001 - 09:00

Cindy,
May I respectfully disagree with you as well? I don't think what you described is undermining your efforts either. Like someone else who posted, I'd also think of it as positive. Doesn't it show that the school is trying to respect every parent's "comfort zone"?
I'm confused-- and I hope you'll try to help me understand-- because in another thread (Anyone in your child's life you find TOO safe by teacher, main board) I thought I understood that you belive that it is the parent's comfort zone that should be adhered to.
I DO support you, Cindy. I'm just trying to be supportive AND honest. It's okay to disagree with you, right? [img]http://uumor.pair.com/nutalle2/peanutallergy/confused.gif[/img]
Gail

Posted on: Tue, 02/25/2003 - 5:08am
river's picture
Offline
Joined: 07/15/1999 - 09:00

Maybe something that is in the back of Cindy's mind is whether or not some parents are insisting on these postings as a way to passively aggressively protest the peanut-free thing.
ie:If you're going to say that your child is 'special' then mine is too. Nah nah!
Unfortunately, I've seen this before. Whether or not this is what has happened here, who knows?
I can see posting serious allergies and other serious medical conditions such as diabetes, and epilepsy but why would you post information like that---unless the kid goes completely berserk and attacks people? This type of thing should be in the student's file but posted publicly seems a little extreme and odd. Should you post which children are on Ritalin and other mood altering drugs as well?
I can see why Cindy has an uncomfortable feeling about it.

Posted on: Tue, 02/25/2003 - 5:16am
Gail W's picture
Offline
Joined: 12/06/2001 - 09:00

I wondered that, too, river, but with a slightly different twist... I think some parents want to know that a child's PA doesn't give them "special priveledges". For example, they may not think it's fair if only the mom of the PA child provides snacks for the class.
Parents can be quite competitive with a school's limited resources.

Posted on: Tue, 02/25/2003 - 5:29am
Sandra Y's picture
Offline
Joined: 08/22/2000 - 09:00

Actually, this thread is interesting. The question Cindy raises is a good one.
The entire problem is caused by the over-use of food in schools. It is really out of control, ridiculous and bordering on insanity. Don't schools realize there is an epidemic of obesity and diabetes among school-age children?
My non PA daughter is ten years old and skinny, I mean frighteningly skinny. This is not the school's fault, but the last thing on earth she needs is a candy bar reward at 10 in the morning. She eats that and dumps the lunch. I am SICK of it. Her obese teacher perhaps is trying to fatten her up, but it really bothers me.
I have decided not to address this issue with the school. With all my son's food issues the last thing I need is to be pegged as the food-disorders-mom. The school my kids go to is amazingly overweight--the teachers, parents, kids. It's pretty shocking (Chicago, what can you expect). If I weren't dealing with PA I would probably follow up on the problem, but I have bigger fish to fry.
Parents have a right to monitor their children's eating habits. In fact, it's a parental responsibility. Schools should eliminate all incoming food. Let kids bring only what they need to eat--dump the food parties, food rewards, food entertainment, food lessons, the whole sick sugar-infested, fat-laden mess. The ONLY people who give my kids food without asking me first are teachers. NOBODY else ever does it. Even in grocery stores they won't give free samples to kids unless parents say it's OK. Why do teachers think it's OK?
By the way, I admire and revere teachers. My parents are teachers. However, this is one area where schools need to re-think the way they are operating. Schools really are promoting a junk-food culture and they should stop.

Posted on: Tue, 02/25/2003 - 6:30am
California Mom's picture
Offline
Joined: 07/14/2000 - 09:00

Cindy, I see that I am in the obvious minority: but I [b]totally[/b] agree with you. In fact, this has been something that has rubbed me the wrong way ever since we started dealing with Leah's severe food allergies, when she just a tiny infant. So many people are so [i]quick[/i] to blame foods for non serious issues. Yes, it's important to be respectful of other parents' wishes for their children, [b]but[/b] I do think it can diminish the seriousness of pa (and other severe food allergies) in many people's minds. I would be extremely distressed if a notice like that was posted near Leah's information. The only positive I can see is that Jesse may feel less alone in being restricted from eating certain foods. In fact, we have a family friend who insists that both of her children have milk allergies, and that she - herself - is allergic to multitudes of foods. She gets NAET treatments, in fact, and I just mentally grit my teeth any time she mentions it. On the one hand it totally annoys me. [b]But[/b], I do think Leah appreciates not being the only "different" one when she is around this other girl. The funny thing is that both kids are adopted. When they adopted the second one my dh sarcastically said "I wonder if this one will have a milk allergy, too?" Sure enough...
Take care, and try not to let this thread get you down. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Miriam

Posted on: Tue, 02/25/2003 - 7:04am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

[img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
[This message has been edited by Syd's Mom (edited April 28, 2003).]

Posted on: Tue, 02/25/2003 - 7:10am
MommaBear's picture
Offline
Joined: 09/23/2002 - 09:00

hic---uuuuup. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 02/25/2003 - 7:13am
erik's picture
Offline
Joined: 05/15/2001 - 09:00

After reading this thread I think I need a bottle of merlot! (I think I have to re-read it a second time as I don't quite remember anything I read as I am not sure what is being discussed)
(I usually drink Tropicana orange juice by the way) [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
p.s. Syd's Mom - the "War" thread is great, as we all have such vastly different opinions, yet we are all debating it in a very friendly way and I really like that [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by erik (edited February 25, 2003).]

Posted on: Tue, 02/25/2003 - 7:18am
California Mom's picture
Offline
Joined: 07/14/2000 - 09:00

Syd's Mom, I think what you wrote to Cindy was very nice and very true.
I think that some of the humor that's been on the boards lately has been a bit passive agressive.
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Miriam

Posted on: Tue, 02/25/2003 - 7:22am
KayMarks's picture
Offline
Joined: 01/10/2000 - 09:00

Cindy- I see what you are saying. I had similar experience with a mom who bluntly told me my dd's pa/tna were overshadowing her son's metabolic disorder.
As homeroom mom, I called her because I noticed her son had a sign listing things he couldn't eat. She was angry- not so much at me but at the school- and at first didn't want to talk. I explained that I saw no reason why I couldn't make sure her son got the same treats for parties. She softened up and said it was hard to see all the information on pa/tna going out and nothing on her son's condition. I had a 504- she didn't know what one was. We talked a bit and I think she felt better. But, she says it still bothers her that her son isn't taken as seriously. I think she feels like you do and I can see why. If I hadn't called her, I feel she would have caused some problems with my dd (based on her personality)
But, I do have to say, I have heard that there are foods out there that do indeed affect behaviors. From what you said, the notice seemed a little too casual. I swear I heard somewhere that some kids are diagnosed with behavioral problems such as ADD and when certain foods were eliminated, their behavior improved.
I've run into alot of people who have what I consider "easy" problems but to them they are big problems. I sometimes feel if that's all they have to deal with, they should be down on their knees with gratitude. For instance, there is a boy in my dd's class whose mother insists he be told to go the bathroom at 10 am for his morning bowel movement. No, there is nothing wrong with him, she just wants him to be regular. And yes, there is a notice- can you imagine??? I talked to her once and she was so worried he'd get constipated during the 2 and 1/2 hours he was school. That, I thought was dumb and I felt it was an unnecessary embarassment to this kid.
I'm rambling, but Cindy, maybe the kid really does have behavior issues and the parents were just too casual with their notice. I wish you guys had nurses in your schools. I don't know what I'd do without ours.
I think Jessie's allergy just isn't taken seriously and I feel for you. Maybe you should find out if that kid really does have issues and if he does, tell the parents that casual notices don't work and maybe you two could work together and make some better changes. Hope it works out. Take care

Posted on: Tue, 02/25/2003 - 7:23am
MommaBear's picture
Offline
Joined: 09/23/2002 - 09:00

California Mom,
Actually, I think there has been some stuff that is just plain aggresive and not really humorous.
[This message has been edited by MommaBear (edited February 25, 2003).]

Posted on: Tue, 02/25/2003 - 7:40am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

Quote:Originally posted by KayMarks:
[b]I do have to say, I have heard that there are foods out there that do indeed affect behaviors. From what you said, the notice seemed a little too casual. I swear I heard somewhere that some kids are diagnosed with behavioral problems such as ADD and when certain foods were eliminated, their behavior improved. [/b]
You are right on - wheat and red dye have been documented as negatively affecting certain kids with ADD. Once removing wheat and or red dye, the ADD is minimized in certain children.
Now, over to the issue of the posted notice maybe the parents of this child in Jessie's class feel that Jessie's teacher not only doesn't get the seriousness of Jessie's PA, but also needs poster-sized reminders put up for her to maybe get their childs food intolerances as well. The teacher sounds like the route of the problem as to why notices have to be lifesized in order for her to "remember" to handle them correctly - and even when they are posted, she doesn't follow them properly. Just my thoughts.
Warm regards [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 02/25/2003 - 8:12am
arachide's picture
Offline
Joined: 08/16/2000 - 09:00

Cindy, I`m going to go out on a limb here and assume that I am the member you speak of who is back in the fold after the `clique`issue of two years ago. Ah, I remember that cash crop thread well... Sorry you still hold a grudge about that. I`ve preferred to see it as water under the bridge. I did step back from posting for quite awhile for many reasons.
I still hold the same views about the board though. It remains to me personally (did everyone get that, p-e-r-s-o-n-a-l-l-y) a primary source of info, not a social arena ---HOWEVER, that ill-fated thread was before the existence of the OFF TOPIC forum, where friendly banter and non-peanut topics have their place and I am more than happy to join in the fun.
In case anyone is wondering what I`m talking about, here`s the old thread:
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/001147.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/001147.html[/url]
As to the point of this thread, I agree wholeheartedly with Sandra Y. The problem is the over-use of food in school. I don`t think the other notice undermines your fight regarding pa. In fact, it can be seen as only bringing more focus to the problem of food in school period.
[This message has been edited by arachide (edited February 25, 2003).]

Posted on: Tue, 02/25/2003 - 8:40am
krasota's picture
Offline
Joined: 04/24/2000 - 09:00

Having cared for children with behavioural or relational disorders (I'm not a professional, I was just an available babysitter who could work well with kids), I can vouch for the effectiveness of certain diets in some cases.
You can find more information by researching diets for autism, ADD and ADHD; eg, the Feingold diet.
Angry and exciteable is almost an understatement. I've dealt with young children who could be extremely *violent* after consuming certain food additives, dyes, and preservatives. Have you ever tried to restrain or calm a child who is going through a chemically-induced bout of psychosis? It's not easy and it's far better for the child, the adult, and *other children* for that child to not experience such episodes. These are children who would be perfectly fine in a compassionate classroom provided those food triggers aren't introduced. Any child has a right to an education and the schools must do what they deem fit to accomodate those with different abilities, not just disabilities.
If the classroom has frequent aides who come and go, or substitutes, that information is very important. I don't necessarily think it should be posted where everyone can see it, but maybe that's the best method for that classroom. Maybe it's not.
PA is a serious and potentially fatal disorder, but I think it's important to remember that other dietary intolerances and restrictions are also very serious.
ygg

Posted on: Tue, 02/25/2003 - 8:50am
Anonymous's picture
Anonymous (not verified)

arachide, thank-you for posting the link you did above. That was a good thread to re-read. It really clarified things for me here. I'm just not clear why I didn't take the many hints a long time ago and kept banging my head against a brick wall here when I have to do that enough at my son's school.
For anyone not understanding, the useage in ALL of my posts, of Best Wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] at the ending, well, I don't know. Have a Good Day, Stay Safe, Love This Site, Best Wishes! Best wishes for a good day. Best wishes for a reaction free day. Best wishes. Not clear how that could be misinterpreted. However, does not matter any more.
And you all know I could never just sit back and lurk. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Tue, 02/25/2003 - 9:05am
williamsmummy's picture
Offline
Joined: 03/26/2002 - 09:00

On the subject of food , parents and children, I find that notices like the ones you saw at school are all to common.
There is a basic lack of understanding about food with concern to children. Many parents are simply ignorant about what food they should feed their child.
My life before I had two many children to work , was with children . The parents always stunned me with the foods they brought in , or asked to be given to their child.
Lots of mothers thought that chocolate made there child hyper, they blammed the chocolate. Not the fact that a child of 3 and under was simply reacting to an over dose of sugar.
Or take weaning an infant. I have been instructed to give infants the following over the years, 6 week infant, teaspoons of 'juice' from a tin of baked beans. A three month old infant, a fish finger ( thats cod in breadcrumbs....frozen)
6 month old veggie child, a huge bowl of brussel sprouts and baked beans...followed by fruit.
8 month old baby daily diet of.breakfast,..2 weetabix with formula, soft boiled egg and toast( instrutions to please add salt!!)drink of formula, Mid morning, 8 oz juice two biscuits, lunch, huge bowl of meat , veg, gravy, and fruit and custard, mid afternoon, 8oz formula, high tea, sandwichs, cake, last bottle of milk before home where he was fed another main meal with parents.
This baby was ....rather generously proportioned.....thankfully slimmed down as he grew older.
Or my SIL who sprinkled sugar on her childs meat to make her eat it!
Other blissfully ignorant comments...'we are all vegetarian in our family nothing has been killed to feed us'!! ( ...except for the infant formula you are giving your child has...beef oil in it!!!)
or ' we are vegans' ( hmmm vegan diets for children under 5 is not recomended!!!)
OR 'my child is on an organic diet, I am sure thats why he is sooo intelligent'
( oh, yes ...of course......why had i never thought of that?.....although with all these GM food these days , who knows what we are eating!!!!!)
If parents are so ignorant on what makes a balanced diet for a child, its no wonder that todays modern obession with food makes many parents blame food for causing a problem.
I am sure that in many cases it does, but usually the cause is the poor nutrition of a childs diet , rather than a whole food group being blammed and removed .
The rise of dieting trends has been firmly linked to allergies and intolerance. How many times do you hear people refusing foods at a party ,by saying they are allergic to it?
'i cant eat that , it contains wheat , I am allergic to that'!
They have no idea what allergies atually ARE. To them allergies mean food preferance, or they have just decided that wheat was making them fat , with out going on an intolerance elimination diet to confirm this.
Look at the amount of malnorished children growing up with distorted views over food. Is it any wonder that we find explaining the extreme nature of life with a real food allergy hard?
This is just a reflection on the sad state of our childrens lives today.
It doesnt surprise me , only saddens me .
sarah

Posted on: Tue, 02/25/2003 - 9:09am
MommaBear's picture
Offline
Joined: 09/23/2002 - 09:00

Cindy,
You posted in this thread:
"For anyone not understanding, the useage in ALL of my posts, of Best Wishes! at the ending, well, I don't know. Have a Good Day, Stay Safe, Love This Site, Best Wishes! Best wishes for a good day. Best wishes for a reaction free day. Best wishes. Not clear how that could be misinterpreted. However, does not matter any more.
And you all know I could never just sit back and lurk."
In reference to above:
Quote:Originally posted by Cindy Spowart Cook:
[b]Momma Bear, it's interesting that you should find pissing contests non-productive, etc., since you're usually the FIRST one involved lately in them on the board, scaring many a member away that does not understand your sardonic wit or the taste for Merlot. And the perpetual disclaimers when you post links, I have found personally confusing, inquired about them, and received no response. Is is humour? Is it sincerity?
There is a lot I *could* say in response to this thread except that as a couple of people have mentioned food allergies and food insensitivies are like comparing apples and oranges. That's why I don't appreciate seeing the orange notice right beside the apple notice at the front the classroom. I don't see apples and oranges together in the grocery store and I don't think it was appropriate.
I am extremely upset that anyone would think that I didn't respect other people's requests (i.e., by sending the Smarties in - we support the Nestle Safe to Share and they were actual Valentine's) and that I don't have compassion for other children's health needs at school
With the amount of time I have spent in the last three years on this board dealing with PA, and other issues as I have been approached off-the-board, I can't even begin to imagine someone questioning my compassion, caring and concern.
Yes, disagree with me. Tell me why. I have, many a time, learned a lot of things or a different perspective by looking at a post that was in direct contrast to mine.
At any rate, I do think my time has been well spent here. I appreciate every single person who has taken the time to respond in any thread (particularly the ones where my head was going to explode) but this board has become far to volatile, and may I even say, clique-y, for my liking (of course, another member accused us of being clique-y before and I see that she has again been accepted into the fold).
Many thanks everyone, Stay Safe, and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[/b]
I guess when someone has just unjustly tore me a new orifice, I find "Best Wishes" an odd, if not sardonic, sign off. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
[This message has been edited by MommaBear (edited February 25, 2003).]

Posted on: Tue, 02/25/2003 - 9:12am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

ABreitner and Krasota basically said my thoughts that I couldn't get together at 7:00 this morning in my usual dullard mode.

Posted on: Tue, 02/25/2003 - 1:37pm
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

I have to agree with Cindy on this one, guess I'm too of the minority! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I understand what the others are saying about food causing a behavioral problem and other issues, but I still think it may undermine the pa issues. I agree that the child shouldn't have the food, if that's the parents preference, but it shouldn't be exploited the same as a child with a FATAL allergy. There is a huge difference. Is the child going to have the same reactions if he accidentally touches the offending food or the residue from it, no. The reaction that the child may have if ingested is not at risk of dying or have serious breathing problems, not saying that their preferences should not be adhered to or even taken seriously. But with the amount of fighting and determination that we as parents have to go through to get people to understand the seriousness of PA, it is not helpful or productive to have something no where near the seriousness of a fatal food allergy to be protrayed in the same manner.
And with all the trouble Cindy has had at Jesse's school/teacher, I wouldn't be surprised that this wasn't a parent "mocking" Cindy's hard work and concern for Jesse.
Just my two cents worth.
I would like to add, that I hope you don't leave Cindy, you have been such a blessing to me, because you do always respond and definately give back 150% to the people at this board. You have always made the "newbies" feel welcome on this board. When otherwise they wouldn't have felt it. You provide alot of valuable experience and advice on this board. I for one know what it feels like when a thread has gone bad, don't let other peoples comments take away your very much needed support.
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 02/26/2003 - 12:12am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

Well I'm totally lost as to why this thread veered off... but anyway...
I guess, based on the information in the original post, my answer still stands that it's probably not a "conspiracy" against Cindy but perhaps a way to help the teacher "teach". Teachers who do not have EA's (educational assistants) but who have several "behaviour problems" in the class have it rough, to put it mildly. How are Johnny and Jane supposed to learn 2 + 2 = 4 if Jack is throwing desks around the room? And the answer to the behaviour problem is diet change? How lucky those parents are! I have a close friend who has a daughter with Asperger's Syndrome (a milder form of autism) and believe me, she only *wishes* she could post a list like that to effect positive behaviour. She has told me a few times she'd trade PA for Asperger's in a heartbeat - because behaviour issues are a constantly draining 3 steps forward; 2 steps back kind of struggle where the social challenges facing your child [i]for life[/i] are heartbreaking to watch. So, I reiterate, if the diet effects positive changes - it only helps the *entire class including Jesse* do what they're supposed to be doing - [i]learning[/i].
But, I guess you have to know the "whole story" of Cindy's teacher, but since I don't, I guess my honest answer was "wrong"? In most situations I would support posting a list of food intolerances - in Cayley's classroom I would certainly feel such a list would be none of my concern, but she/we have a supportive teacher/school (which is why I don't post here very often - folks sometimes don't like to hear positive stories because they can come across as crowing).
Carolyn

Posted on: Wed, 02/26/2003 - 12:20am
MommaBear's picture
Offline
Joined: 09/23/2002 - 09:00

You have a gift, Carolyn. A gift of Clarity. Thanks for wording it so well.
P.S. I look forward to your "War!!" posts and other political commentaries. You are a wealth of info!
MommaBear

Posted on: Wed, 02/26/2003 - 12:25am
erik's picture
Offline
Joined: 05/15/2001 - 09:00

Quote:Originally posted by Cayley's Mom:
[b]I guess my honest answer was "wrong [/b]
Hi Carolyn,
Your honest answer was not "wrong". If we are afraid to post our honest opinions than what benefit would this board be to anyone.
Everyone has different opinions and you are not "wrong" to post your honest opinions. The "War" thread is an excellent example of many people's strong opinions being posted in a friendly manner (which could easily have deteriorated into a name calling free for all insult-fest but it didn't). [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 02/26/2003 - 1:20am
Anonymous's picture
Anonymous (not verified)

Okay, since this is my last thread here, I cannot let it go without some type of response to what has been posted here. I was going to try to go back to the first post and respond to each person as I usually do, but that to me, at this point in time, is too difficult.
What I believe I should have done is directed everyone to the other threads that I have had running under Schools re the difficulties that I have had with this particular school and Jesse's teacher so they would have the full scope of the situation on-hand before responding. I apologize for not doing that.
I do believe those other threads are really necessary reading in order to post to this one, IMHO.
I respect how other parents deal with their children's food intolerances or sensitivities, if they take the time to do it. However, as I believe has been made fairly clear, a deadly food allergy and an intolerance or insensitivity are like comparing apples and oranges.
Although Jesse's teacher has certainly been lax regarding his PA, I do not think that she needed to post a reminder beside his PA information about this particular child? Part of my reasoning behind this is that on the list of foods, how many of those foods would a school actually be giving to the child? Deli meats? Hot dogs if approved and paid for by the parent. Peanut butter. Well, not in the peanut free classroom. Cheese, yes, perhaps in this case when the child receives a snack from the snack program.
What I found interesting about this notice is that it was not given to me, the person running the breakfast program that actually feeds this child breakfast every morning. Do her parents know or care what she consumes there? Do they know that if she misses the program she comes looking for extra pancakes with syrup or cinnamon toast? Yoghurt, fruit and Nutrigrain bars have also been given to this child, by me. That's the food that is starting her day off, so perhaps I should have been aware of her situation as well?
On the other hand, how much responsibility is the school supposed to take when it comes to food issues? (That's a contentious question so I best not go there). Are we, as parents, not supposed to be feeding our children and feeding them what they are supposed to be fed?
When I learned about the red dye allergy in Ember's classroom, it was actually because the Mom of the child was saying to me (not knowing I was the PA parent) that all of these accommodations were being made for the peanut allergic kid and NONE for her child.
Do you know why? Because she had not let the school know that her child had an allergy to red dye. So how can you get upset about that? I suggested straight away that she speak with the principal. The principal and her did talk and I told the principal that if the woman required any more help with the issue that she was certainly free to give her my phone number. I came home, called another PA.com member and asked her if the child had the *right* to a red dye free classroom. She does, if she is anaphylactic or with proper medical documentation. It has not been followed-up on by the parent. A notice did go home from the classroom saying that the child was red dye allergic.
As far as the child with the chocolate allergy. If I am not supposed to send chocolate into Ember's class, I have to be made aware, with a written notice from the school, that I can't. I can't go by the word of a 5 year old (Ember couldn't even remember what child it is that is allergic to chocolate). My best male friend here says that he is allergic to chocolate. Why? Because it triggers severe migraines. Is that an allergy or a migraine trigger?
Then, you have the wing nut of a teacher of Ember's saying that a child has a rice krispie allergy.
All of a sudden, this community, not at the beginning of the school year, has been hit with all of this. I understand in the case of the notice in Jesse's classroom, that yes, the parents may have been keeping a diary and just came to the conclusion that yes, the child should avoid these foods. So, yes, have it show up mid-year.
The red dye and chocolate allergy issues should have been dealt with at the beginning of the school year when you fill out any information regarding your child, including medical information. They weren't. They were thrown into the fray of a really big mess re Jesse's PA, his teacher not checking for "may contains" in the classroom and has left this community both reeling and angry.
I can't blame them.
As for people that have a caring teacher and great school, I have never understood why they wouldn't post regardless when other people are having problems at school. Perhaps you could tell us how exactly your child's school does it. None of us would ever see it as gloating (that's not the word that was used) but very much appreciate seeing how another school, another teacher, handles the PA situation.
I have a wonderful school policy from this school district that I wanted to post here.
It is the most comprehensive written plan I have ever seen for a school (of course, that's my opinion).
For everyone that has encouraged me to stay, I really appreciate that. But I also think you'll see what's becoming a very strong undercurrent of members that would just as soon see me leave.
There are certainly enough older (not in age) members that can help the new members as well, if not better than I can. I'm only hoping that a newcomer doesn't get a "burp", "slurp" or "drinking Merlot with red painted finger nail in glass" as a response to question that really really needs an answer.
I have found that type of posting absolutely ludicrous in threads where people need genuine help with their difficulties and questions.
Momma Bear, yes, you did post several asthma links for me that were greatly appreciated.
You also posted some wonderful links re the Ontario Human Rights Commission. I believe I explained in that thread (no policy re asthma in Ontario schools) why the Ontario Human Rights Commission would be the last step *most* of us would take regarding this issue (separate from the one Deb O. has and is taking to the Ontario Human Rights Commission), because we're taking on school boards throughout Ontario. Tough job to do.
I honestly believe it has to be started at the grass roots level and continued up. Ultimately, I do believe, one would find that it does get to the Ontario Human Rights Commission, but you have to go through various other redundant (probably) steps before you approach them and before you take on school boards throughout Ontario (especially if you have a child in the school system and do need the school board on your side for whatever reason).
arachide, I didn't realize that having a good memory meant that I was holding a grudge. That equation is kinda confusing for me.
Speaking of *good* memories, joeybeth, should you happen to read this, I do remember that I owe you Smarties for getting through that post a couple of weeks ago. I do remember and will 'til you get them (even if it's two years from now [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] )
erik, certainly, differing opinions are what make this board the great discussion forum that it is. I have, of late, actually asked people if I could respectfully disagree with them? And I meant it? I was being respectful but disagreeing with them at the same time. I think that's the key (and I'm certainly no one to talk because although you didn't come right out and say so, it's probably me that turned this into an insult-fest to begin with).
At any rate, how many times can one member be hung out to dry and keep coming back? I remember people's names from when I first started posting here three years. Do you know that I rarely see any of them anymore?
Usually it only takes one skin stripping experience and a person leaves the board. I feel I've taken my share, I feel I deserved some of what I got, not all of it, and sorry, this old skin just isn't as tough as it perhaps should be.
I do have a fairly extensive group e-mail list off-the-board. If I have offended anyone so much throughout this thread or others, and you do happen to be on the group e-mail list, please let me know and I'll take your e-mail address off of it.
I do not mind being disagreed with, contrary to what is becoming popular belief. What I do appreciate is that people at least know the whole story (and I recognize that by not directing people to the other school threads)
before tearing a strip off of me. I just couldn't believe yesterday when I read that people thought I was uncaring or unsympathetic about another child's health concerns (be it food, be it asthma, be it whatever). I cannot begin to tell you how many people I have contact me off-the-board every week asking for advice or just thanking me for information I have posted.
My main goal here was to make sure that no other PA parent or PA child ever went through what Jesse and our family went through. Jesse almost died when he had his second anaphylactic reaction. Everyone knows the story and I'm sure everyone is sick of hearing it. That was my main goal. And since everyone has heard it and is sick of hearing it, my goal has been accomplished.
I thank each and every one of you for that.
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I completely understand how food can affect behaviour. I understand how behaviour can affect a classroom. I see it on a daily basis in Jesse's class. If I was presented personally with a behavioural problem, then I would certainly try food elimination diets rather than medication. I understand that.
I am not belittling that. I am also not questioning any parent who does choose to medicate their child.
Katiee, river, California Mom, and Cam's Mom.
I believe you were the only people who remembered (which is okay) the whole story about my year of he** at school with Jesse this year, including him having an anaphylactic reaction. I have to say that your comments were dead on the money as far as I'm concerned.
Thanks to Syd's Mom and Tracey who have very graciously taken over the PA Penpals and Smarties threads for me. I am sure things will work much better with them co-ordinating as they aren't as dazed and confused as I am half the time. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Many thanks and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by Cindy Spowart Cook (edited February 26, 2003).]

Posted on: Wed, 02/26/2003 - 2:20am
Gail W's picture
Offline
Joined: 12/06/2001 - 09:00

Cindy,
I don't know how to comment. I dont think I really know what's even happening here. It feels a little surreal... confusing, for sure.
I definitely do have caring teachers and a great school. If your "gloating" comment was in reference to me, I just would like to point out in my defense that I have posted my IHP and our district's policy on the boards. I have posted specific pages of it verbatum. I have pointed members to them, and mailed hard copies of them to several members. (I have also responded to your requests for information on food policies in another thread in a similar discussion.)
If I can do anything for you...if you have a specific question that you'd like me to answer... I certainly will try.
I certainly don't want you (or any one for that matter) to leave. But if you decide to pull back, please feel free to contact me off-boards. I've enjoyed your posts, and appreciate the contribution you've made here. And most of all, I wish you, your DH, Ember and Jesse best wishes.
Gail

Posted on: Wed, 02/26/2003 - 2:27am
erik's picture
Offline
Joined: 05/15/2001 - 09:00

Quote:Originally posted by Cindy Spowart Cook:
[b]For everyone that has encouraged me to stay, I really appreciate that. But I also think you'll see what's becoming a very strong undercurrent of members that would just as soon see me leave.[/b]
Cindy,
I do not think there is an undercurrent of members who want you to leave. No one has told me they want you to leave. I hope you will stay as are needed here at PA.COM and I appreciate all of your postings.
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
p.s.
"And since everyone has heard it and is sick of hearing it, my goal has been accomplished."
I do not think anyone is sick and tired of hearing about this. It is an important story that bears repeating. I know I am not sick and tired of hearing it, and I hope you will re-consider and continue to post.
[This message has been edited by erik (edited February 26, 2003).]

Posted on: Wed, 02/26/2003 - 2:36am
California Mom's picture
Offline
Joined: 07/14/2000 - 09:00

Cindy, I totally understand where you're coming from in terms of feeling "stomped on" right now. You always put yourself out there with every fiber of your being; both to help others and to share your own struggles. This is something about you that I really appreciate, by the way, because you are so very [b]real[/b]. I think that it also makes you vulnerable because people assume that you have a thick skin, when you are actually very tender. I hope this makes sense - forgive me if it doesn't. I hope a little time away will be what you need, and that you will come back soon. We will, of course, stay in touch through e-mail. You're not getting rid of me that easily! [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] Take care, Sweetie. {{{hugs}}} Miriam

Posted on: Wed, 02/26/2003 - 2:58am
river's picture
Offline
Joined: 07/15/1999 - 09:00

Cindy, don't you dare take off! Get back here! Right now! Turn that monitor back on!

Posted on: Wed, 02/26/2003 - 3:46am
sport's picture
Offline
Joined: 10/01/2002 - 09:00

Cindy, I do not know how to e-mail you so could you e-mail me. I need to tell you something personal that I don't want posted. My e-mail is [email]cammiecaver@hotmail.com[/email]. Thank you

Posted on: Wed, 02/26/2003 - 4:27am
joeybeth's picture
Offline
Joined: 09/01/2006 - 09:00

cindy: sorry to hear you are leaving but just wanted to let you know (if you are lurking a bit like i have been) that i am DONE here too. there are some really nice people here and some......well.... let's just say some that remind me of the snobby girls in my 12 yr. olds' school who recently asked a less popular but precious girl to get up and leave "their" lunchroom table.
one of the girls said to another girl as she was sitting down with her tray, "well...you just ruined the balance of our table!" what a hurtful comment and EXACTLY how i've been feeling here lately. my heart broke for that little girl who was just trying to fit in and find a welcoming place to join.
sound familiar anyone???
i realize that i tend to write lengthy and possibly confusing replies and that i get off track sometimes. however, i have been honest and fair and try very hard NEVER to exclude anyone that is at least marginally normal. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] i have found there is a group here that is more like a club and they are not very inclusive of others. hopefully i will find another peanut allergy site that is more committed to information, education, sharing ideas,etc.. and less interested in picking people apart bit by bit and/or making them feel invisible. for the record, it wasn't the being picked apart that bothered me so much, it was being completely ignored. however, seeing other people picked apart has bothered me.
for those i've bored with my comments and my overly personal info. lately, my apologies. my marriage is falling apart, i have very few options, and i have not one single friend where i currently live. having people to share PA info with was invaluable and finding other women/mothers to "talk to" was even more fun at times. however, my life is too stressful right now to deal with the petty bickering, the slamming of opinions, the ignoring of other human beings, etc..
forgive me for not being able to remember all the names, but many of you were very sweet to include me.
by the way, cindy, in case you are wondering...the comments about my writing style are not part of what i'm upset about. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] i always valued your opinions and loved getting advice from you. i tried to paragraph properly during this last post just for you. haha. i have a feeling you'll probably be back because you do seem to have a lot of friends here but i doubt that i will. maybe when the storm has passed in my home and i'm not so easily hurt and so easily affected by others being hurt.
joey

Posted on: Wed, 02/26/2003 - 4:39am
erik's picture
Offline
Joined: 05/15/2001 - 09:00

Hi Joeybeth,
I am not sure why you are leaving as I guess I haven't noticed the posts that you are referring to where you are ignored. I have never emant to ignore anyone so if I have not replied to any of your posts it was not intentional, and it may have just been you posted in different areas than mine (I have no kids so I am not as involved in children's issues).
I just feel if people keep leaving this site, what will be left? How will this benefit us in the PA world.
And if people are not replying / ignoring your posts, let us know so we can make more of an effort to notice your postings. With 50+ active threads each day I don't even have time to read all the threads at this site.
I hope you will re-consider and stay here. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 02/26/2003 - 4:44am
erik's picture
Offline
Joined: 05/15/2001 - 09:00

Hi Joey... please send me your email so we can keep in contact. My email is [email]eriktoronto@hotmail.com[/email]
(the email in your profile does not work)

Posted on: Wed, 02/26/2003 - 4:48am
katiee's picture
Offline
Joined: 05/09/2001 - 09:00

[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by katiee (edited October 14, 2004).]

Posted on: Wed, 02/26/2003 - 4:49am
Gail W's picture
Offline
Joined: 12/06/2001 - 09:00

ditto, here. I tried to email you, Joey, and it was returned. Everyone is welcome at the lunch table that I sit at.

Posted on: Wed, 02/26/2003 - 4:55am
Anonymous's picture
Anonymous (not verified)

ditto, joeybeth, I just tried to contact you as well. I hope you're still lurking. Me, I'm just continuing to read the last thread.
joeybeth, I really need to talk to you about one thing in particular. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
My e-mail is [email]cin42ca@hotmail.com[/email]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
[This message has been edited by Cindy Spowart Cook (edited February 26, 2003).]

Posted on: Wed, 02/26/2003 - 4:57am
arachide's picture
Offline
Joined: 08/16/2000 - 09:00

joeybeth, I second what erik said. Often times there's so much going on in threads that I find myself being selective, not to exclude, but because I've no time, or someone's already answered, or I don't have an answer...
Sorry you've been made to feel bad. Try to stay on. The board is usually a very good place to visit.

Posted on: Wed, 02/26/2003 - 5:03am
river's picture
Offline
Joined: 07/15/1999 - 09:00

Joeybeth stay where you are!
Ultimately the orginal post raises some important questions about schools getting their act together. There have to be consistent guidelines in place. It sounds like Cindy's school is all over the place like a chicken with it's head cut off. (And she's not worried about a "conspiracy"---definitely never her word or anyone else's, she's worried about school and community attitudes that could endanger her son. All of us know what that is like.)
Why do we allow the posting of personal information about our children? The bottom line is that we feel it may prove necessary to keep them alive.
Do we like to do it? I don't, but I allow it because it is necessary. Anybody here enjoy it? If it wasn't life threatening would you do it?
Why would someone post personal and private medical information about their child if it was not necessary---by necessary I'm talking life and death? I don't know. I sure as heck wouldn't.
I have a tiny daughter with a very fast metabolism, whose behaviour goes down hill quickly if she does not eat on a regular basis. Would I feel the need to post this publicly? I think not!
Where does necessity end and nit picking begin?
It's difficult enough to convince people that yeah, peanut butter can kill. I can see how much more difficult it could be to convince people how serious a situation it is when PA is treated as just another reaction or intolerance.
PA is different, anaphylaxis is different---that's the big picture.

Pages

More Community Posts

Peanut Free and Nut Free Community

create a new community post
Latest Post by Mariaanarf Tue, 10/22/2019 - 3:53am
Comments: 0
Latest Post by mariannemvt10152 Mon, 10/21/2019 - 5:12am
Comments: 0
Latest Post by Italia38 Sat, 10/19/2019 - 10:03am
Comments: 2
Latest Post by sunshinestate Fri, 10/18/2019 - 11:59am
Comments: 3
Latest Post by sunshinestate Fri, 10/18/2019 - 9:41am
Comments: 2
Latest Post by sunshinestate Fri, 10/18/2019 - 9:24am
Comments: 1
Latest Post by Italia38 Tue, 10/08/2019 - 12:19pm
Comments: 3
Latest Post by Italia38 Tue, 10/08/2019 - 12:18pm
Comments: 1
Latest Post by penelope Mon, 10/07/2019 - 7:16pm
Comments: 10
Latest Post by penelope Mon, 10/07/2019 - 7:13pm
Comments: 13
Latest Post by penelope Mon, 10/07/2019 - 7:10pm
Comments: 9
Latest Post by mom2two Mon, 09/16/2019 - 1:03pm
Comments: 18
Latest Post by desmond Mon, 09/16/2019 - 1:00pm
Comments: 1
Latest Post by desmond Mon, 09/16/2019 - 12:58pm
Comments: 19
Latest Post by TeddyCan Mon, 09/09/2019 - 4:32pm
Comments: 10
Latest Post by DTurner Mon, 09/09/2019 - 4:31pm
Comments: 5
Latest Post by B.M.18 Mon, 09/09/2019 - 4:30pm
Comments: 3

More Articles

You might have wondered if small amounts of an ingredient can be added to a food product without being declared on the food’s label. The FDA...

Is it possible to eat your way to a food allergy cure? Scientists think it’s...

There are many reasons why you may want to substitute almond flour for wheat flour in recipes. Of course, if you have a...

Not all oils are created equal. Some oils are high in saturated fats or in trans-fatty acids – not good for general health. Some are partially...

It may never be safe to begin feeding peanut butter to your baby or toddler if you have peanut allergies in your family. If either parent or one...

More Articles

More Articles

What is a peanut allergy? It is a reaction that occurs in the body after eating peanuts or peanut...

For those with severe food allergies, flying can be a stressful process. Here are...

Approximately one out of 13 children under age 18 are allergic to at least one food, though many of them will outgrow their allergy by the age of...

Fact 1: Over a third of food allergy reactions happen after the first known oral...

The reason why some people are affected by allergies while others are not begins in their genes. Allergies are passed down from generation to...

Here’s a tip that might someday save your life, or that of a loved one: two to four times a year, review the proper way to use your epinephrine...

Lactose intolerance is the inability to process lactose, a sugar found in milk, caused by the lack of a needed enzyme. Those with lactose...

Food Allergen Labeling and Consumer Protection Act (FALCPA)

An important part of peanut allergy awareness was enacted on January 1, 2006...

Tomato allergies are very rare. They are a "type 1 allergy," which means a contact allergy. When a person with this type of allergy touches a...

Milk allergies are becoming more common, especially in babies and small children. There is some confusion about what is an allergic reaction and...

Recognizing food allergy in babies or toddlers is not always easy, but there are specific risk factors and signs that parents and other caregivers...

Burlap bags are often used to store and ship coffee beans, potatoes, rice, seeds, nuts, and peanuts. They can be one of the disguised...

People with pollen allergies need to stay away from some foods. If you have allergic rhinitis in the spring or fall, you may not realize that you...

Of course, everyone knows that if you have a peanut allergy that you should avoid peanuts, peanut butter, peanut butter cookies and foods that...

Eating at a nut-free lunch table in school is a safety precaution that causes some students to feel isolated from their peers. Unfortunately,...