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Posted on: Wed, 09/10/2003 - 4:46am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by MommaBear:
[b] [i]I'm all about provacative questions. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img][/i]
[/b]
Now, if only I could spell it. LOL.

Posted on: Wed, 09/10/2003 - 7:18am
becca's picture
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Joined: 05/22/2001 - 09:00

The director of our preschool has diabetes(has for the past 30 years). She, myself and the mother of the other PA child in my dd's preschool were having a real conversation about the similarities of the issues. She shares with the children(or this other boy, anyway, was telling his mom) how Wendy cannot have some foods either because of her diabetes. So, she tries to make them feel like they are all in it together and she understands and its not so bad... It is very nice. That is why I think she has really tried to be so accomodating about the "no peanuts/tree nuts" policy at the school and is refining it this year, to my delight. Despite some other debates here in the past, it is our diabetic preschool director who has banned the peanuts and peanut butter, not any parent. I did not request a ban, and I do not believe the other mom did.
Anyway, on the insulin/meds issue... She was sharing her regimen with us, because she wears an insulin pump, in her case. She has always been a very "brittle diabetic", which means her sugar is very hard to regulate. So, she actually needs a constant steady administration of the insulin and this pump does it. It is indwelling at all times and she can actually hit it for extra if her sugar is high, and if she exercises alot she can eat more carbs, etc... A long day or night out would definately need monitoring. Anything not routine would. She mentioned an all day bike ride, and how she can(even needs) to then eat more carbs or can enjoy "cheating".
So, not having read the link, but in comparing diabetes to PA, I think it can take quite a bit more detain to manage moment to moment. It also can vary greatly from person to person, since some can manage it with diet and exercise as well.
Ok, checked the link. The general gist. I think both diabetics and food allergic individuals should be allowed their meds and whatever else goes with that into a concert. Or an asthmatic for that matter.
Not sure what you were looking for MB, but I thought I could contribult to help e-mom with her query. becca

Posted on: Wed, 09/10/2003 - 8:02am
e-mom's picture
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Joined: 04/23/2000 - 09:00

Phew, just got back from a ridiculous amount of errands and re-doing the kids bloodwork!!!!!
Anyway, I will read all of this and comment.
I just knew it was going to be a loaded question. [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] LOL

Posted on: Wed, 09/10/2003 - 8:41am
joeybeth's picture
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Joined: 09/01/2006 - 09:00

when i was insulin dependent, i had to have my meds and supplies with me everywhere. it was a lot of work to stay healthy...but do-able.
joey

Posted on: Wed, 09/10/2003 - 8:59am
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Joined: 11/08/2000 - 09:00

emom had a valid question, not loaded at all. And mommabear had a good point in pointing out that "normal" (aka clueless) people could ask the same question about PA. It's all about education, isn't it ?
I took it that she was just pointing out the irony of the question.

Posted on: Wed, 09/10/2003 - 10:44am
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Joined: 09/23/2002 - 09:00

I don't think I could imagine this thread taking off any better. Nice straight trunk, branches balanced, at a pleasant height. Every one isn't exactly the same, but the pieces [i]fit[/i].
Becca, thank you (again)!.... your clarity still amazes me.
darthcleo, I sense a really patient person.
e-mom, you keep things moving, even when it might prove uncomfortable.
SandraY, you seem to know when to be direct, it is a [i]gift[/i], *personally speaking*.
Joeybeth, thank you for your sense of fairness. By far, it is one of the things I find most uplifting in life.
domesticgoddess, I really wish I had thought of that name! (I love my home). I am glad you felt comfortable enough to post what you wanted to say, instead of possibly not posting it at all. Personally? It would be a shame to let a pressing thought or question go because one was pressed for time.
To answer: I honestly believe *in our personal, highly individual, and unique situation* my son is where he [i]should[/i] be, [b]given the situation we encountered[/b]. I just feel a sense of injustice regarding the situation. For a [i]variety[/i] of reasons. Knowing what we (my family) know. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
and no, haven't had anyone from "the outside" in to instruct our child from the school system since deciding to homeschool. We have not pursued the "homebound" path. For a [i]variety[/i] of reasons. Knowing what we (my family) know.
However, I will state that my child would most likely benefit from certain programs the public school system provides (given an ideal situation). Currently, he recieves [i]none[/i]. Primarily since he is not able to safely access the school, given the *personal, highly individual, and unique* situation.
Thank you for your words and sentiment, it is greatly appreciated.
MommaBear [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Posted on: Wed, 09/10/2003 - 11:23am
darthcleo's picture
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Joined: 11/08/2000 - 09:00

Quote:Originally posted by MommaBear:
darthcleo, I sense a really patient person.
MommaBear [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img][/B]
LOL!! not according to my kids!
My motto is "God, please give me some patience, but do it quick!"

Posted on: Wed, 09/10/2003 - 11:30am
e-mom's picture
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Joined: 04/23/2000 - 09:00

Sorry it's taken me so long to reply. Errands, dinner, baby wanting to play and giggle--just couldn't resist that one.
Ok, here we go.
Hmmmm, where should I start.
In my first marriage (very young--lasted 6 months) my ex was a diabetic. He had been a diabetic since he was 4 years old. At that time he needed 4 shots a day. As an adult he only needed 1 shot a day. He injected himself every morning.
He never carried any diabetic medication or supplies. The only time he took medication and supplies with him was when we went on our honeymoon.
As I remember, his insulin needed to be refrigerated. And when he discarded his syringes he just threw them into the garbage can--he did not wrap them in anything, etc.
He never seemed to have any problem controling his diabetes. He would on occasion have to eat a candy bar to "adjust" his levels. He drank alcohol frequently.
My grandfather also developed diabetes at an old age. He had to have his leg amputated because of it.
This is what I know about diabetes.
Obviously, things have changed in the last 12 years. I know that new devices have been made to inject the insulin. Other than this I don't know what else has changed.
I have read the case.
Question #1--Why does a diabetic need to carry an Epi-pen? I thought that the insulin took care of any life threatening reaction.
Question #2--Does a diabetic need to have 5 syringes while attending a concert?
I'm just going to copy this one from the case:
[b](vi) Although guests shall be permitted to use their lancets and syringes at their seats, they are encouraged to do so in other appropriate places in the venue, such as the First Aid Room or rest rooms. Guests are encouraged to be mindful of the safety of others around them in using such equipment.
(vii) Guests may not use lancets or syringes in those circumstances where, because of active dancing or similar movements, such use poses a significant risk to the safety of others.[/b]
In my experience when attending music concerts (the Tweeter Center is a music concert for bands) I have never witnessed anyone NOT dancing. Although some weren't dancing all that great and it could be questioned if, in fact, you could qualify it as dancing, they were dancing. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
I can't imagine that a diabetic would be able to give themselves a shot unless the person on each side of them came with them and the diabetic told them not to dance for a minute.
Let's compare an Epi-pen to a syringe full of insulin.
An epi-pen has all of the medicine already in it. You pull the cap off and can inject it right through your clothes.
A syringe starts out as empty. The diabetic needs to extract the insulin from a small glass bottle. The diabetic then needs to tap out any air bubbles from the syringe. The diabetic then needs to expose skin (my ex always did it in his thighs but I guess you could do it anywhwere?) as the needle won't go through clothes (is this part correct?)
Both are life saving devices/medicine. Both are needed on person at all times.
Before I forget, I want to state that I believe that if a diabetic person needs to carry their medicine and supplies with them at all times, I have absolutely problem with this. I never have, never will. (I just didn't think that some needed to [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img])
Another copy from case:
[b]4. Guests who are permitted to bring syringes and/or lancets into a venue shall take them out of the venue when they leave (i.e., they shall not dispose of them in or near the venue).[/b]
This one's a big one for me. Unless the syringe is wrapped in something what's gonna stop someone from grabbing it out of the garbage can? I know this sounds disgusting, however, it is known to be done by people with drug problems. Or say someone who can't afford needles or are covered by insurance. (this may be a stretch but you never know).
I personally, when done with an expired epi-pen, have disarmed [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] the epi-pen therefore extracting the medicine and then bending the needle to avoid being used for god knows what or poking someone, etc. I then to be really safe package it in it's original container and then wrap it in something soft, i.e., several paper towels or newspaper. I really don't want someone to get hurt from these being in the garbage.
One more thing about the case that I found interesting. This case can be used as an example for PA or other life threatening diseases/food allergies that requires a needle of some sort. I see it as an advantage to our struggles with schools.
Ok onto MB's questions.
Quote:[b]Could persons who do not fully understand Life-Threatening-Food Allergies and the Management of such ask similiar questions of us?[/b]
Yes they could. And when they do I will educate (changed because I like Darthcleo's word better) them. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Quote:[b]Is this question supposing that diabetics just discard their syringes and needles on the ground? It is my understanding that part of diabetic teaching is the proper and safe disposal of such items.[/b]
I think I answered this one above.
Quote:[b]Do you imagine there may be some variance in activity at a concert? Possibly some occasion to injest food? Reason to monitor blood sugar? Address such results accordingly? Shouldn't a diabetic be allowed to address an endocrine and metabolic function that in some instances, may become incompatable with life? Does a 2 hour concert really take 2 hours?[/b]
1. yes, lots of dancing
2. I suppose if you were hungry, sure or needed it to adjust your levels.
3. & 4. I do not know the answer to this question but how often does a diabetic need to check their blood sugar- once every 1/2 hour, once every hour, etc.?
5. I don't know how to answer this question.
6. The actual concert--yes if it's slated for 2 hours then I'll give it 2 1/2 hours. However, the entire night of getting there and driving home or going out after the concert if you are a real partier then yes, absolutely would take much longer--all night. However, diabetics are not supposed to drink alcohol? This one I know the answer to. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
Sandra, yes I was asking a question as a viewpoint--I should have said that. Thank you. Also, thanks for clarifying that diabetics have something to disposed the needle into. The last time I saw an insulin needle it only had the little orange cap to protect the needle.
And I agree what Becca said that both diabetics, food allergic individuals and asthmatics should be allowed their meds and supplies into a concert. I just didn't think that all diabetics needed to carry insulin at all times because of my experience with one.
MB, I love that you challenge me. You make me think more [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
Didn't you like how I took the bait, line AND sinker? [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
[This message has been edited by e-mom (edited September 10, 2003).]

Posted on: Wed, 09/10/2003 - 11:46am
e-mom's picture
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Joined: 04/23/2000 - 09:00

Quote:Originally posted by joeybeth:
[b]when i was insulin dependent, i had to have my meds and supplies with me everywhere. it was a lot of work to stay healthy...but do-able.
joey[/b]
Joeybeth,
If I remember correctly, you were insulin dependent due to your pregnancy. Is this right?
Is this different from a regular (I know this isn't the correct word I want to use)diabetic? I really don't know this answer.
Sorry, off topic, I hope things are going better at home.

Posted on: Wed, 09/10/2003 - 11:47am
Sandra Y's picture
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Joined: 08/22/2000 - 09:00

Oops. I misjudged. Actually, I really thought e-mom didn't have a point of view but was just asking a question and she was going to come back on the thread and get all offended at the way MB answered and then I thought our big happy family would be spatting again. See what a busybody I am. That's OK, misjudging social situations is one of my greatest strengths.

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