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Posted on: Wed, 05/21/2003 - 9:39am
erik's picture
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Joined: 05/15/2001 - 09:00

Quote:Originally posted by patsmommy:
[b] I like this thread. Sorry this post is not debating anything. I have a 7month old on my hip who is not happy.[/b]
Hi Patsmommy,
It's fine.. you don't need to debate in order to post here in this thread.
The purpose of this thread is to allow those who dislike debates/never-ending discussions/etc (and those who dislike when a thread starts to veer to another topic) the opportunity to by-pass it by staying out of this thread. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 05/21/2003 - 9:57am
patsmommy's picture
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Joined: 10/31/2001 - 09:00

Quote:Originally posted by erik:
[b] peanut-free ones? [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]
[/b]
of course!

Posted on: Wed, 05/21/2003 - 10:01am
patsmommy's picture
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Quote:Originally posted by erik:
[b] Hi Patsmommy,
It's fine.. you don't need to debate in order to post here in this thread.
The purpose of this thread is to allow those who dislike debates/never-ending discussions/etc (and those who dislike when a thread starts to veer to another topic) the opportunity to by-pass it by staying out of this thread. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] [/b]
then this is perfect for me, since I have been told I can go on and on about things and I tend to veer off topic only to go back to the first one!
btw, can everyone tell me who is pa in their family?

Posted on: Wed, 05/21/2003 - 10:19am
erik's picture
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Joined: 05/15/2001 - 09:00

Quote:Originally posted by patsmommy:
[b]btw, can everyone tell me who is pa in their family?
[/b]
I am PA. No one else in my family has PA.
Yes.. you are welcome to debate, post long replies, veer off topic, etc... this thread has no real guidelines. Many people get irritated when threads go off topic or get bogged down in never-ending discussions, so this thread is a great place to post for those of us who want the freedom to post anything and debate anything without us having to worry that we are irritating others [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 05/21/2003 - 10:25am
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Joined: 08/16/2000 - 09:00

Quote:Originally posted by MommaBear:
[b] Would such a regulatory body (if indeed, that is what the "committee" is) be required to "walk in step" with any laws, licensing regulations, etc,... of any "higher authorities"? Ie: local, state, federal? [i]Provincial[/i]???, etc.....?
[/b]
Hmmmm, the school allergy committee is a new concept in my region anyway. Has anyone heard of the like elsewhere?
There are no legal "requirements" imposed on us --we're charting new terrain here. The Allergy Committee is "answerable" to the school Governing Board, but does not have to adhere to any set rules/laws re: allergy management protocol because NONE exist (locally, regionally, provincially, or federally).
We have been approved by and officially recognized by school administration, staff, and parent representatives.
We have a clear opportunity to set precedent here, and shall I dare say, start the ball rolling in terms of regulating by enforceable measures those critical PPP's and SoC's; given the sanction by the aforementioned school representativesroups.
I say "start the ball rolling" because I recognize that the allergy committee is not a perfect solution (we only "apply" to our school).
Say, wouldn't it be nice if school allergy committees started popping up all over the place? Gee, think of the possibilities...
------------------
[img]/peanut/boards/images/%%GRAEMLIN_URL%%/smile.gif[/img] [i]"I cannot keep from talking, even at the risk of being instructive."[/i]
Mark Twain

Posted on: Wed, 05/21/2003 - 10:29am
erik's picture
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Joined: 05/15/2001 - 09:00

Quote:Originally posted by Cayley's Mom:
[b]Not only are most of us not in a position to homeschool, but homeschooling should be a personal choice. It should not be something we are forced to do because public schools won't accomodate a child's safety. Instead, fight to have the school make accomodations for PA kids, to pave the way for lasting changes.
I "paved" the way for Cayley's preschool, but fortunately for me, someone else had already paved the way for us by the time she hit kindergarten.[/b]
Hi Gail (and whoever else wants to answer):
Regarding what Cayley's Mom wrote... what do we do if we are in a situation where the school does not have the policies/procedures/standard of care etc. up to the standards expected by Momma Bear and others?
I am seeing various opinions here... Anna Marie says a peanut ban (no guarantees) is a work of art and needs fine tuning (ie: Rome wasn't built in a day theory). Momma Bear says that it would be too dangerous to send children to a school like this as a peanut ban like this should be junked ("it's an ambulance siren away").
So what does everyone think? And another question... if we [b]can't[/b] homeschool, [b]what are we to do[/b] if this peanut ban classroom (with no guarantees) is the only option available to us? What options do we have?
[This message has been edited by erik (edited May 21, 2003).]

Posted on: Wed, 05/21/2003 - 12:01pm
Gail W's picture
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Joined: 12/06/2001 - 09:00

Quote:Originally posted by erik:
[b] Hi Gail (and whoever else wants to answer):
Regarding what Cayley's Mom wrote... what do we do if we are in a situation where the school does not have the policies/procedures/standard of care etc. up to the standards expected by Momma Bear and others?
...if we can't homeschool, what are we to do if this peanut ban classroom (with no guarantees) is the only option available to us? What options do we have? [/b]
Lots of options because I believe MommaBear's standards are achievable. You can obtain them by setting that standard as your goal. You can press to keep FA issues on the school's agenda. You can keep it on the school's agenda by doing everything humanly possible to keep an open dialogue. You persist. You take the leadership role if required because it is (excuse me for be so bold to say) it is your duty as a parent to do so and no one else is as motivated (dare I say [i]obligated [/i]) as you, the parent. You can persistently show your principal and other administrators that it is their duty to create such policy if none exists. That not only is it their duty, but that it will protect them as well as your child.
My school had no (zero) experience with peanut allergy. None. It took 2 1/2 years to create district-wide guidelines. It was not easy and often felt like a part to full-time job. I think since this "debate" began I have realized, from MoommaBear, that it truly was our full-time RN who was vital in the process because they had a level of care (SoC) that I could [b]expect [/b]the school to give... precisely [b]because [/b] they have a FT RN.
When I read MommaBear's posts (that inevidebly have multiple links), I believe that what she is doing is arming readers with amunition. I wish readers would view it as her giving valuable tools and try to use them to make your own situations (w/ your schools) better.
I think (correct me MommaBear if I am wrong) that when MommaBear asks, "Gail did you scream? fight? did you [i]need [/i]to?" that what she is getting at is this... if you show the school administrators the how the full-time school nurse is obligated to fulfill her professional duties, that a parent shouldn't [b] need [/b] to fight. Once these professional standards are revealed, they should "illuminate" (was that your word, MommaBear?) the path that leads to PPP and SoC, because they are obligated to do so.
I really, really liked synthia's recent question to MommaBear (something like) "MommaBear, if you were a school nurse, what would you think your duties would be do ...?" I think this was an excellent question, and shows (to me, at least) that what is sometimes missing is a practical application of how to actually use the information that MommaBear is trying to give.
Am I reading you correctly, MommaBear?
Gail

Posted on: Wed, 05/21/2003 - 12:08pm
erik's picture
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Joined: 05/15/2001 - 09:00

Thanks Gail - a very informative post. As I am not a parent at this time, I have lots of time to learn from all of you parents here at PA.COM so I will be more prepared when the time comes. All of these postings provide such valuable reading. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Posted on: Wed, 05/21/2003 - 1:34pm
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Joined: 09/23/2002 - 09:00

Originally posted by Gail: [b] "Yes, our school nurse developed annual training documentation for all staff. Staff meet individually w/ the nurse, watch the Dey slide show (in her office), practice epi-pen training, review Mariah's Action Plan, and disucuss any questions. Then the nurse and staff member sign the "check list". [/b]
And
[b]"Yes and No. It is not individualized for Mariah specifically. There are now other PA students (other grade levels) and the same letter (to parents) is used for their grade-level as well. It states the school district's protocal on PA and emphasizes the need for cooperation f rom "the community".[/b]
Personally, and with respect to my own individual and unique situation (and whom in my own family that entails)and not in any manner or form offering advice or recommendations for anyone else.............:
AMAAAAAAAAAAAAAAAAAAAZING! Are you indicating that a professional body of sorts was able to develop a Standardized Policy, Procedure, or Protocol that not only adequately addressed the needs of several persons with a similar diagnosis as well as an individual????? (Picking jaw up off floor) As well as a method of imparting this knowledge? As well as a method of verifying appropriate comprehension of the same???? (Now posterior end joining jaw on floor) Waaaaaaaaaaaaay? Who wulda thunk it?
Side note: In no way am I belittling the accomplishments of your school nurse

Posted on: Wed, 05/21/2003 - 2:13pm
Gail W's picture
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Joined: 12/06/2001 - 09:00

Hi MommaBear,
Re the letter to parents, it's pretty straight forward. I've seen the signature return forms and think they're a good idea. The school's attitude is that it's "no food" in the classroom period. It is [i] strickly [/i] enforced. Doesn't matter if you understand it or not. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
For example, Mariah's class is currently studying plants. A recent exercise involved planting lima beans. First, the teacher got permission from the principal and nurse. After that, she contacted me by email and asked me my thoughts. I responded that "lime beans" (I accidently made a typo and called them lime beans) would be fine for Mariah to handle. The teacher e-mailed me back, just to "make sure" that "lima beans" were okay since I stated "lime beans" in my email. I found this correspondance very interesting as clearly she was making sure that there was absolutely no question in my written documentation to her.
Re the 504... I regret not getting it. It was just part of our unique prcess ("the dance") with our school. I recently had correspondance w/ the district 504 coordinator, and she confirmed that there is still not a student in our district (w/ PA) w/ a 504 plan. Something we still consider... but frankly, I'm not hurrying ahead to be another "first" in the district. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Our situation is that we are in the midst of ironing out some other special needs (LDs).... so it probably will end up that Mariah's IHP will be folded into an IEP beginning next school year.
I swear, sometimes figuring this all out is just way too complicated. I think that a parent could really benefit from a class on "advocating for your child with special needs" or something to that effect.
Gail
p.s. arachide, hope to address your committee questions tomorrow. I'm very glad you're in this conversation. You too, patsmommy. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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