DD passed peanut challenge yesterday

Posted on: Thu, 07/31/2008 - 3:11am
KaraLH's picture
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Joined: 10/11/2006 - 09:00

My 4 yo dd passed her peanut challenge yesterday. It is an amazing feeling to be a this place now. I feel like we are going in reverse now. 2 years ago I had to learn how to decifer labels and food ingredients and now, well, she has been declared peanut and tree nut and shellfish allergy free. There is so much more to the story but this is the short of it!

We do still have egg, pork, turkey and chocolate to deal with so, some things will stay the same, but to be able to cut the list in half is an amazingly surreal feeling.

I pray that more of you will be able to say the same thing someday. As for now, keep up the good work being the good parents, caretakers, and friends that you are. You all deserve honors for what you do everyday. I will keep on fighting our fight of food allergies and will not quickly or easily forget our "peanut- free" days. This is part of who I am now.

I pray that in the years to come my home will be "food allergy free". I don't know if that will happen or when it will, but you can be sure that if it does, I will continue fighting for the safety of everyone else that has food allergies.

Take care,

Kara
mom to 4
6 yo dd; severe eczema
4 yo dd; egg, pork, turkey and chocolate, eczema
3 yo ds; environmental
21 mos dd; kna

Posted on: Thu, 07/31/2008 - 3:34am
MommyOfTwo's picture
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Joined: 11/08/2007 - 09:44

YAY!!! THAT IS AWESOME!!!! I'm so very truely happy for you!!!!!
I may be able to go back and find the history but if you don't mind could you post your DD's history? Reaction, diagnosis, spt results, blood results, etc....
So nice to hear some positive happy endings!

Posted on: Thu, 07/31/2008 - 3:37am
SkyMom's picture
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Joined: 10/27/2001 - 09:00

So happy for you and your dd!!!!!!!!!!! That's great news. Have you tried anything yet? I hope the same happens for the other allergies as well. I know when my dd outgrew her egg allergy I was relieved beyond words. Thanks for updating I was wondering how it went. All the best to you and your family.
Ps. Thanks for all your time spent here and sharing your experiences.

Posted on: Thu, 07/31/2008 - 3:37am
cjsmommy's picture
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Joined: 02/03/2005 - 09:00

Congratulations!

Posted on: Thu, 07/31/2008 - 8:37am
KaraLH's picture
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Joined: 10/11/2006 - 09:00

I really want to give you the history in as short as possible; warning, it might not be that short!!
When our daughter was 18 months old she was having extreme behavioral "issues". In the form of fits that where she would throw herself down, arch her back, roll her eyes back as scream, anywhere from 15 minutes to at times 90 minutes, without a break.
That prompted a CT scan to rule out seizures. All they found was a major sinus infection. But, 4 rounds of antibiotics later, she continued. Even in the middle of the night. Miserable.
in the spring of '06 we started to see hives after meals. Never thought of food. (very food allergy naive) Finally after a summer of stomach problems, continued fits and hives, we got a RAST drawn. That was Sept. of '06.
Results were: egg: 20.8; wheat, 0.51; milk, 0.45
Pediatrician said "avoid everything."
Saw and allergist early October. SPT results: Egg 4+; peanuts 3+.
wheat and milk neg. We were given and Epipen and ushered out the door. We made only one reaction connection to ingestion of peanuts, at my parents house after eating peanuts with my dad. looking back, we figure it must have been a GI reaction.
November we went back for more testing after connecting hive break outs to pork and beef.
SPT positive for Turkey and chicken.
Since she had clinical reactions to pork and beef, we were told no beef, chicken, turkey or pork. She ate a lot of lamb!
things improved somewhat but then her behavioral issues got worse again. She was avoiding Egg, peanut (tree nuts because of pos. peanut SPT, also shellfish, jsut because of multiple allergens)
Saw a new allergist beginning of 2007. He didn't believe in testing too often. His thought was "does it really matter if she never eats a peanut again??? (or egg?) Didn't want her tested again.
One year ago I asked that she have a RAST drawn and SPT done again because I wanted her to go to Threeschool. Rast was positive for Egg at 12.8 and Wheat at 0.44. SPT was postive for cashew, almonds, and shellfish mix, also egg. (didn't test for many things, only 12 I think.) Anyway, never saw the allergist or talked to him. It was all through the nurse. Very frustrating. We were told to stay away from Egg, tree nuts, peanuts, shellfish and all fish. Along with pork (still had reactions) and deli meats to which we thought she had a preservative intolerance. Oh yeah and she does have an intolerance to milk. Just can't drink straight milk.
So this past February, we finally figured out a trigger to her behavioral issues was chocolate so we also cut that out of her diet. a chemical trigger that causes mood swings and headaches.
Fast forward to July this year. Saw a 3rd allergist who skin tested for inhalants and lots of foods, 64 total SPT. Only positve to Egg, turkey and trees. So she ordered a RAST and Egg white was 4.3; egg yolk 18; turkey 13.5; negative to everything else.
Which is what prompted the peanut challenge which she passed-
and tree nuts, and shellfish we were advised to proceed with caution at home because she never had a clinical reaction to them.
We did figure out that the deli meats is probably not the preservative we thought it was but a true turkey allergy and since she had reaction to pork and ham in the past she is probably still allergic since she has throat discomfort and behavioral problems when she ingests deli hams.
So now, we have been cleared, I know that was long and probably confusing, but that is our history. I did not tell about the egg reactions but those were bad. She is contact reactive. We neve made a trip to hospital, but the last reaction which was almost a year ago, probably should have used the epi.
anyway. Long story. Hope that was as clear as mud!!!!!!
hope you may be able to gain insight.
Kara

Posted on: Thu, 07/31/2008 - 9:20am
SkyMom's picture
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Joined: 10/27/2001 - 09:00

Are you going to still hang around? I hope so, but if not I can understand.

Posted on: Thu, 07/31/2008 - 9:22am
KaraLH's picture
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Joined: 10/11/2006 - 09:00

yes, I will lurk for a while I think. I am feeling torn. This place has been a great resource for me and quite frankly is part of my life. (I don't let go easily!!!!)
Kara

Posted on: Thu, 07/31/2008 - 9:27am
SkyMom's picture
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Joined: 10/27/2001 - 09:00

:) Remember all the experience you can share with newbies should you choose to stay. You have been there and still are living with fa's.

Posted on: Thu, 07/31/2008 - 10:44am
Mrsdocrse's picture
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Joined: 01/16/2007 - 09:00

I am curious if they told you to put peanuts in her diet regularly? Did she ever have a reactions to peanuts? or just tested positive?
Therese

Posted on: Thu, 07/31/2008 - 9:58pm
KaraLH's picture
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Joined: 10/11/2006 - 09:00

Yes, they said that she needs to have them at least once a week.
She tested positive and it is sketchy whether or not the abdominal pain and screaming was a reaction or not.
Apparently an egg allergy is forerunner to a peanut allergy (according to our allergist) so they would recommend that with a positive test and sketchy history to avoid anyway. Besides she has a history of reactions to her other allergens.
Allergies can be so gray area. I tend to be more conservative in my approach, but I am happy to be at this point now.
kara

Posted on: Fri, 08/01/2008 - 2:54am
SkyMom's picture
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Joined: 10/27/2001 - 09:00

Interesting that your allergist would mention the egg allergy and peanut allergy. When my dd had her spt at 10 mths she was strongly positive to eggs and peanut. Thankfully she outgrew the egg. However, I have no idea which one she developed first.

Posted on: Fri, 08/01/2008 - 7:33am
cristym's picture
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Joined: 11/19/2007 - 17:26

Congratulations!!!!!
I was very interested by the egg peanut comment too, have never heard it before. My DS used to get hives from just waking into a breakfast restauraunt. He has out grown it.

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