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CreaMy name is Kimberly and I am new to this site. I - Peanut Allergy Information

CreaMy name is Kimberly and I am new to this site. I

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CreaMy name is Kimberly and I am new to this site. I scrolled to see if any of the questions posted matched mine but I did not see anything. This may be long so please bare with me. My 16 year old sophomore was diagnosed last summer with an airborne peanut allergy. She has eaten peanuts/products her whole life. She has had several episodes of red face and hives and benedryl has taken care of it immediately. We have had to use epi 4 times. First, when we realized she was allergic after eating a mini snickers at a ballpark and we used a teammates pen. Second, a student slapped a Reeses wrapper on her chest and it went down her shirt and she immediately showed signs of reaction that Benedryl was not relieving. 3rd time she self injected while home alone after getting a kiss goodbye from someone who had eaten peanut butter at lunch (5.5 hrs earlier). Yesterday was the last time to use and she used AuviQ after a reaction occurred right after running 2 miles outside. It was from either the locker room peanut smell, or sharing of team water bottles during break. Benedryl was administered but she was already having breathing issues so AuviQ was given. My issue is the school nurse is trying to say Kinley can not carry benedryl or zyrtec in her allergy kit with her during school. She wants it stored with her and the trainers. We have 2 different Dr. notes stating she must. Her previous high school absolutely is in agreement with us saying she is responsible and must have it. Does anyone know of legislation or have had similar issues? We are going to meet with Admin and I want to be more prepared. My concerns are a) the school is large and she may not have time to get to where the benedryl is locked up quick enough. b) the nurse is not there after school and may or may not be in her office at all times. c) the trainers may or may not be in their offices due to multiple sports and student trainers can not carry or administer meds. d) she goes with friends or drives home from school and will need it with her.

I know there is a big debate over epi vs benedryl and that is not my argument. Every student is different and our first line is benedryl. I appreciate any help on my legal question. Thank you all!!!te a Discussion/Ask a Question

By smithdcrk on Aug 28, 2014

I am glad you are here. Your reasons for keeping ALL of her medications accessible are sound and logical.

While I can sympathize with a Nurse who does not want students running around with meds (OTC and Rx) in their back pockets, students with severe allergies must have immediate access to theirs. This is a matter of life and death.

Your Doctors have agreed that she is mature enough and responsible enough to carry and self-administer. If the Nurse won't listen to you, have your Doctor call her to explain how serious this allergy is and the treatment required.

Not all school systems are as a well informed as your former school. When we transferred to TX we carried a 504 plan that outlined what the original school had done to keep her safe. Now in HS, DD has been "licensed to carry" and self-administer AUVI-Q, zyrtec & cortaid since sixth grade as part of her 504 plan. Under the 504, she was allowed to carry a cell phone even in MS!

For information on setting up a 504 see this post http://www.peanutallergy.com/boards/schools/504-plan

Here is a copy of the Allergy Action Template we use - on page two your doctor can specify "may carry and self-administer" in the notes. http://www.foodallergy.org/document.doc?id=234

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