Clarified Skin Test Results with Allergist To-day Finally!

Posted on: Mon, 01/08/2001 - 3:25am
Anonymous's picture
Anonymous (not verified)

Okay, as some of you may know, this has been a continuing saga even before I took my children to be allergy tested on October 30th. I was in here asking questions before the tests and in here dazed and confused after the tests. Now, my discussion with the allergist at the time of the appointment was definitely hindered by having both children tested at the same time and no one to really watch them while I spoke with the doctor. Also, Jesse did not deal well with having the tests done so there was much upset surrounding that even.

At any rate, I came home from the appointment told that Jesse had tested positive on skin prick tests on his back to latex, dog hair, trout, walnuts and eggs.

I was not concerned about the dog hair, trout and eggs. I was actually pretty sure that he wasn't allergic to eggs. The walnuts, well he never eats them anyway because of the cross-contamination issue.

However, I was concerned about him testing positive to latex. Especially after I posted the information here and so many people were able to provide me with support and information and I learned that you can have repeated exposures to latex without a reaction and then have an anaphylactic reaction.

Well, I was anxiously waiting for the allergists' report to go to the doctor. When the family doctor finally got it last month, I was in here posting again. My child was "atopic" and the test results were inconclusive. No test scores were provided.
So, the family doctor suggested I contact the allergist.

To-day was the first Monday he has been available to contact in some time. I must say I felt he dealt with me excellently. He actually phoned me himself which I thought would be difficult to have done.

He reviewed Jesse's file and said that he had only tested 1+ for all of the allergens noted above. I told him that I was mostly concerned about the latex. I explained to him about him having his baby bottles and pacifier. He told me just to be sure, to get a pacifier, let Jesse try it again, and see if there is any reaction whatsoever. He also said that he does not believe that Jesse is allergic to any of the allergens above. I asked him if I should have Jesse RAST tested for latex because that was the one I was concerned about. He said no. Do the pacifier thing first and see if there is any reaction, but, again, he doesn't believe he is allergic to latex. I also asked him, if he had felt, based on the inconclusive tests if he would have ordered a RAST test if he felt one needed to be done. Yes, he would have. He also explained that they are also inconclusive.

The only thing he confirmed again, which we already knew was that Jesse is PA. This was confirmed, for him, by the skin reaction when Jesse merely had the peanut allergen serum placed on his skin but the skin not pricked.

He said that you usually only have a child allergy tested when you suspect that they are allergic to something because I told him this was basically a waste of time, if we're going to come out so dazed and confused and not be clear.

So, get a pacifier, let him try it and if no reaction, have ALL of the above-noted allergens removed from his MedicAlert card.
This is another mistake I made. I called MedicAlert and had them put the allergens above on, as soon as we had the tests results in. I thought it was better "safe than sorry" but now, I believe it's another example of how I do things before I should.

I just wanted everyone to know what finally transpired between the allergist and I. He does not feel that Jesse needs re-tested for anything. He also did go on to explain that allergies can change and new ones occur.

Oh, and this is I don't know, the 4th doctor to tell me this, the first allergist to tell me this - I asked him what he thought about Jesse outgrowing this allergy. He said that given the severity of his reactions to-date, he does not believe that Jesse will ever outgrow this allergy. He did go on to mention the research being done into the once a month shot that will potentially lessen the severity of reactions, but he said that he strongly believed that Jesse would not outgrow his PA.

Also, I did confirm with him that his associate is Dr. P. Varas, who was mentioned in the Canadians thread near Christmas time, buying European chocolate bars and testing them for peanut products that are not labeled. When I spoke with him about this, he also advised that PA patients NEVER buy any European chocolate!

Thank-you for everyone who has posted in response to all of my allergy related threads in the past three months. You don't know how much it meant to me to have caring, supportive people listening to me when I was so dazed and confused by these tests.

So, in the end, I basically set out to accomplish what I had wanted to to begin with - that my daughter is not PA. I only had Jesse tested because I was taking Ember. I needed to know if she was PA or not before she enters the school system next year. On second thought, now, I should have just left Jess be and not had him tested at all, for all the good it did!

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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Posted on: Mon, 01/08/2001 - 4:57am
BENSMOM's picture
Offline
Joined: 05/20/2000 - 09:00

Cindy,
I'm glad you don't have to worry about all those other allergies. With skin prick tests being so inaccurate, I don't see why they test for things there's been no problem with. FAN says you have to have a combination of history of reaction to go along with a positive skin prick test before a diagnosis can be made. Ben's allergist wanted to test him for bunches of environmental allergies. I said no, I didn't want to put him through that, and what good would it do me to know that he's allergic to ragweed, or grass or whatever. Anyway, I'm glad you're just back to worrying about one thing!

Posted on: Mon, 01/08/2001 - 7:05am
Anonymous's picture
Anonymous (not verified)

Bensmom, thank-you for your kind response. I actually think of you often when I'm here, when I'm paragraphing out posts!
The funny thing about environmental allergies - Jesse does have them and yet he did not test positive for any or perhaps they didn't even test him, I'm not even clear anymore.
But I know he basically has the same environmental allergies as I do and I have been controlling them well with Claritin since he was 2-1/2. I wouldn't be giving him a daily antihistamine unless he was suffering some discomfort from something, which he obviously was. Also, when the ped. saw him that summer he did say that he could tell from the colour in Jesse's nose that he suffered from environmental allergies.
So, I'm not clear why they didn't show up as positive. I'm not even going to call back to see if he was, in fact, tested for them. I do control them well with Claritin and I don't believe in allergy shots anyway, so why bother? I don't mean that to sound as if I have a horrible attitude it's just that I found this whole experience frustrating.
Had I known it would turn out the way it did, I wouldn't have had Jesse tested. I know he's PA, I don't need a allergy test to confirm that, never have. I just needed to know about my daughter. With that wonderful 20/20 hindsight, if I had to do it again, I would only have had Em tested.
I like the advice you posted in your post - that you usually don't test unless there is an allergen suspected. Well, I didn't have any with Jesse except his environmental ones.
Oh well.
Thanks again for your kind words.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Mon, 01/08/2001 - 8:31am
MattsMom's picture
Offline
Joined: 09/17/2000 - 09:00

I'm glad you got the results clarified, Cindy! =) It's great to hear that he probably is NOT latex allergic!!! I agree with the don't bother to test unless there's been a problem, for the most part, but that wouldn't have worked with Matt this time. lol Reason being, he has had numerous "mystery rashes", but up until Oct of last year we had NO idea they could be allergy (of any sort, let alone food) related, so we had no idea what to suspect! Maybe all of them? LOL He's only had two rashes since (they've been a lot less frequent since we eliminated the nuts from the house in Oct of 99) we knew what to look for and only one of them did we have a true suspect. That was the Hershey's choc chips. As it turns out, it WAS the choc chips, but not because of cross contamination issues, simply because he is allergic to chocolate! Go figure! I have a feeling that has been the culprit for a lot of the rashes right there.
I did suspect watermelon, carrots, and poss coconut though. The first two because he won't eat them. He MIGHT put it in his mouth and chew for a few seconds, but that is it. And the coconut after I realized it was in the formula we used when he was an infant and having what I later learned could be allergy symptoms. Most of the rest of the things we tested for, we did because the allergist wanted us to test some things that he DID eat to see if we could find a way to get rid of the rashes.

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