Child with PA and Eczema....do you use protopic?

Posted on: Tue, 05/11/2004 - 6:52am
MattsMommy's picture
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Joined: 07/29/2002 - 09:00

Hi all,

A friend of mine is dealing with some new food allergies in her 3 yr old. He has a rash (on his face around his mouth) that when she applied some of my son's protopic (a no-no I know) it cleared it right up. We were only visiting for a week and since we left the rash around his face is back in full force.

Her allergist agreed to give her protopic since it'd worked SO well when she borrowed ours. He gave her the .03% dosage (while she'd borrowed my stronger strength .1%) and it's not doing anything for him.

Her son is due to have surgery on a long lasting cyst type thing on his eye next week but those docs won't operate if he has any open sores on his face (and he does right now). She called allergist to ask for the higher strength Protopic and he told her aboslutely not as pediactric patients never receive the higher dose.

Well my son (almost 3) has been on the stronger dose since 18 mos...has seen two allergists and two different peds (we've moved) and all agree and continue to prescribe the stronger dose.

If your child is on Protopic is it the stronger dose by chance? Just curious (for her sake and mine!)

Thanks in advance.

Maddy

Posted on: Tue, 05/11/2004 - 8:05am
Sandy's picture
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Joined: 05/27/2002 - 09:00

Is protopic a cortisone cream?

Posted on: Tue, 05/11/2004 - 9:04am
momtomitchell's picture
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Joined: 04/20/2004 - 09:00

I use .03%, but when his eczema is really bad I have to resort to HC, other wise I'll just put on the protopic when I first see it breaking out. If the child needs to get rid of his opens sores on his face now I'd use HC.
On a side note, I've never known anyone else to use protopic, just elidel. Glad someone else is finding it useful [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 05/11/2004 - 10:26am
Renee111064's picture
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Joined: 07/05/2001 - 09:00

I received some samples from our allergist and it cleared up my son right away. (7 at the time).
Protopic is not a covered drug under my childrens prescription plan and is very expensive so we do not use it.
When my son was an infant he had weeping sores on his face. I used Triamcinolone acetonide ointment usp 0.1% and desowen oinment combined to clear up his bad eczema.
Hope this helps.
Renee

Posted on: Wed, 05/12/2004 - 1:17am
JacquelineL-B's picture
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Joined: 02/14/2002 - 09:00

My son, who's 4, has used Protopic since it was approved a few years ago. We first had to use the 0.1%, but finally switched to the 0.03% this year! When I think of the first year of his life when we had bloody sheets every night, I get angry that it wasn't FDA approved when he was a baby.
The eczema has gotten so bad that the Protopic wasn't doing any good. We had to put him on oral steroid of a week to clear up the skin.
Hopefully your friend can consult a pediatric dermatologist. It wasn't until we did so that we were able to get a handle on the skin problem.
Jacqueline
[This message has been edited by JacquelineL-B (edited May 12, 2004).]

Posted on: Wed, 05/12/2004 - 2:30am
ABreitner's picture
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Joined: 07/02/2002 - 09:00

My son with multiple food allergies and severe eczema has used Protopic .03% since he was a few months old. Elidel, hydrocortisone, steroid creams are not as effective for him. Our allergist wrote the prescription even though it was not approved because his skin was getting infected frequently, once requiring a week in the hospital on IV steroids and antibiotics.

Posted on: Wed, 05/12/2004 - 3:27am
new2PA's picture
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Joined: 10/18/2003 - 09:00

My 18 mo PA son was given Elidel at about 6 months b/c eczema on his feet. It worked wonderfully for a few months. We went back to the allergist in April and he gave him an Rxs for Erythromycin, Atarax, and Lidex ointment. He said alot of times, the skin is trying to heal but cant b/c of infection, so he gave the 2 oral meds for infection. We give him the meds at bedtime and rub the ointment on the affected areas. His feet look alot better, although now they just look like dry skin. Compared to before, he now has "soft" skin on his feet.

Posted on: Wed, 05/12/2004 - 3:30am
jtolpin's picture
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Joined: 05/28/2003 - 09:00

We've bene using Elidel (non-steroid cream) for almost 3 yrs now.
We were in a pre-fda clinical study for it... For us, it works VERY well. The protopic, however, did NOT... I've heard the reverse form people as well... YMMV.
It does NOT work on the tough areas -- the ankles and hands..Those spots ALWAYS have eczema (just like their mother)...
Jason
Caitlin 4-17-00 Allergic to Dairy, Egg, Wheat, Bananas, Grapes, Rye, Sesame, Beef, Garlic, Mustard, Onion, Peas and Avoiding Latex and all Nuts
Sara 2-13-98 NKA (avoiding nuts)
Meghan 2-28-03 Outgrown Reflux - Alimentum feeder, Stopped Zantac - RAST neg to big 8
[url="http://community.webshots.com/user/jtolpin"]http://community.webshots.com/user/jtolpin[/url]

Posted on: Wed, 05/12/2004 - 4:23am
becca's picture
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Joined: 05/22/2001 - 09:00

Very timely to see this thread. 4 month old ds has a ped appt on Friday and I want to ask for something. I was thinking Elidel, but saw another post elsewhere that it might be carcinogenic? Anyone heard about this? I do not know anything about protopic. What are the differences? Is 4 months too young for either?
Jason, I emailed you. Hope that is okay! Just wanted to pick your brain a bit about the baby and testing. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] becca

Posted on: Wed, 05/12/2004 - 5:12am
momtomitchell's picture
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Joined: 04/20/2004 - 09:00

My understanding is that Protopic is not yet FDA approved for children, however many people including myself find it to work alot better than Elidel. Of course that was my explanation last year from the ped. Alot can change in a year though [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 05/12/2004 - 5:57am
chuser's picture
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Joined: 07/21/2003 - 09:00

We have tried Protopic (0.3%) twice and found that it was not a effective as the cortisone creams. It took about a week to see any improvement in the skin or reduce the itch.

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