\"Chicken Soup for the Severely Allergic Soul\"

Posted on: Wed, 01/23/2002 - 2:15am
smack's picture
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Please if just reading this, if you haven't already read on Main discussion board, "What about a book about peanutallergy.com?" posted by TLSMOM go their now and read all.
I don't know how to bring all that here so if there is a way perhaps that can be done?
Let me know.
Thanks
Sylvia

Posted on: Wed, 01/23/2002 - 4:49am
TLSMOM's picture
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Smack:
I just got my reply from Chris. He thinks it's a wonderful, do-able idea.
I wanted your e-mail, but will give Chris permission to give you mine if you prefer.
He was'nt offended in the very least! I was afraid of stealing an idea that he might have been already working on if you know what I mean.
I was wondering if there are any members on this web-site that are writers? I think this book could be a best seller in the food allergy community and beyond.
I agree that it should profit only PeanutAllergy.Com, Food Allergy Initiative etc. Whatever is most appropriate for our community.
The reason I originally posted on the " main discussion" board was because I was testing the waters so to speak to see if anyone else thought such a book could fly. Obviously I was'nt alone!
I mentioned to Chris that I have a sister here in Chicago who is a writer. She has experience writing stories, and has done some technical writing for companies. I will call her today. Unfortunately she is a very hard person to get a hold of. Maybe she would be interested in putting it together for those who want to participate.
Please let me know more. Thanks so much Smack! you're got VISION!!!
Love Erin (TLSMOM)

Posted on: Wed, 01/23/2002 - 7:20am
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Erin,
I believe I did already give Chris permission to give you my e-mail address.
As my computer is for business mainly, I am very careful with this because I don't want to be worried about getting a virus from other people, re: Cindy computer problems.
I will e-mail Chris again if I don't get your e-mail address from him. Is he going to e-mail me with it, or do I have to e-mail him to ask?
If this idea doesn't fly with CS, than perhaps your sister would be another avenue we could explore. I have writer instincts (it's what I have always wanted to do) but would have to pay an incredible amount of money for a editor Ha Ha.
Plus, this story is not mine. It's everybody's. So, with that in mind maybe it will be the start of a Beautiful thing.
(Maybe, I will write a screenplay)
Where is everybody else's input on this? I wonder what everybody else thinks and we haven't gotten a ton of feedback from poster's,
Come on everyone, let us know your thoughts on this. We need your help!
Sylvia

Posted on: Wed, 01/23/2002 - 8:03am
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Joined: 11/14/2001 - 09:00

I ate early, so I guess everyone's eating right now? Hope so, I'm starting to feel a little alone with a few exceptions, you know who I mean. Anyway, please guys, let us know what your thoughts are.
I'll check back later.
Maybe I'll have some desert? [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Posted on: Wed, 01/23/2002 - 10:03am
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Smack:
I don't think necessarily that others have lost interest, it's that weve moved to another board!
I know that others really put some of their "nitty gritty" feelings on these boards end up feeling ostrasized, but I'm willing to stick my neck out on the chopping block by telling others my PERSONAL point of view. Have done it many times. I don't think it is necessary to have all others agree with my point of view, but I'm willing to LISTEN to others in hopes that I can learn something. It can be a big step to be willing to share experiences in a book as opposed to writing on these boards so I can understand some peoples reluctance. But I still maintain that for the greater good and for those that are interested it's a great idea.
Maybe others are reluctant for a variety of reasons. Some don't want to get involved, and thats their perogative. It's not a judgement. I think some on these boards get too much into the view of being judged. I don't. I think everyone has their own reasons for handling PA their way. If there is one thing I think PA has taught me is not to judge other parents, whether their child has severe food allergies or not.
I think since Chris approves and is interested in the idea that perhaps those that want to get involved and rewrite some of their stories could just contact him and we could start to get together a list of people off line that want to get involved and are interested in submitting their stories and experiences.
I've tried to get in touch with my older sister today. She has'nt called back yet, but I think she would definately be interested.
It will take alot of work, but I think that if we can orchestrate a team to take it on,it could happen. Many great things start with a little idea and alot of hard work. I would be willing to help out as much as I can.
I noticed Cammie Carver is very interested also. I would think Cindy Spowart Cook would perhaps be interested as well as others that write exstensively on this web-site.
I e-mailed Chris that he could release my address to you. So you would have to e-mail him. "
Have you heard from the "Chicken Soup" people yet?
I'm still with you on this. I wish others would let us know as well. All great idea's come with vision and commitment.
TLSMOM

Posted on: Wed, 01/23/2002 - 10:33am
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Joined: 10/30/1999 - 09:00

My 11 year old daughter would love to add her two cents to a Chicken Soup for the Soul book. She is reading the ...for the Pre Teen Soul right now.
------------------
Karalot

Posted on: Wed, 01/23/2002 - 10:45am
smack's picture
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Joined: 11/14/2001 - 09:00

williamsmummy
booandbrimom
karalot
TLSMOM
ryan's mom
Laurens Mom
Going Nuts
cammie caver
Kelly
Doreen
Valerie
Renee
n5vox
Liz
twin'smom
Cindy Spowart Cook
Corvallis Mom
Should we post are e-mail address tomorrow then delete it, so everyone can get it?
Or would everyone rather get each other's from Chris?
Also, TLSMOM, I haven't contacted Chris for yours yet because I'll wait to hear what you think of my above idea on posting it for a day.
Thanks for your reply, I realize people have different views on perhaps sharing their stories or feeling whether their stories are worthy of telling ..that's not the question here.
I just would like to know how much support on this are we going to get? I don't have time to do it alone, and I'm sure you don't either.
Plus, if CS want the stories, people would have to privately submit them anyway, and then all we could do is perhaps ask people that are submitting a story to let us know, so we can run a number of how many stories were getting and under what Topic Chapter's.
Then, we would have to work out with CS a arrangement to help direct some of the profits to where we want them to go.
Everyone submitting a story would perhaps sign over the $300. they would usually get, then we could really help the cause.
I would like to hear from everyone's idea on that aspect, the money.
I believe the most lucrative would be to advertise on this web-site, that CS is looking for stories and that if you submit under the "Chicken Soup for the Severely Allergic" (not the given title, just using because we haven't came up with a title yet)
that you will be helping Research find a Cure, peanutallergy.com, Help in changing the Labelling laws.
So, that's my 2 cents worth.
I'm pooped,
Talk to you later.
-Sylvia
[This message has been edited by smack (edited February 13, 2002).]

Posted on: Wed, 01/23/2002 - 12:22pm
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Joined: 05/25/2001 - 09:00

Smack:
Your ideas are fantastic! I wanted you to know my favorite sister-in-law is named Sylvia. Her husband has a very high rank in the U.S. military services. So I can't brag about it for security reasons, REALLY!
Also wanted to add the money is not a problem for us, if it goes for the greater good!!!!!!!!!!!!!!!!!!!!!!
Anyway. I would like to be able to keep peoples e-mails private. Personally I think privacy would encourage people to be willing to get involved off-line. Because ,once your information is out there it's out there. Some people have more of a problem with that than others.
I still intend to talk with my sister. She has helped friends of hers to write books. She helped one friend write a cook book. But what she thought was the funniest was he personally could not cook! He painted the idea in her mind that you don't necessarily have to be a great writer, just have a great idea! Like we have!!!!!!!!!!!!!!!!!!!!!!!!!!
I have always been appreciative of all the Arts. My father is a retired WWII Navy man, but also an Artist! His paintings are all over my house. So my son Tom at an early age knows about ART!. The idea of a screenplay is lovely. Here in the Chicagoland area there is a thriveing theater community with many patrons to keep them going!!
Good Night.Hope to hear from you soon.
Just put my two little allergic muffins to bed. I Love them so.
TLSMOM
[This message has been edited by TLSMOM (edited January 23, 2002).]

Posted on: Wed, 01/23/2002 - 8:03pm
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Joined: 03/26/2002 - 09:00

hello, all,
yes I am happy to post my e-mail address, and would be thrilled if we raised a decent amount of money for research etc!
I think its important that we encourage input from around the world so that we can give a clear picture of how this site supports so many people. Well, you've got one from the uk for a start!!
Where do we go from here?
sarah

Posted on: Wed, 01/23/2002 - 11:47pm
smack's picture
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Joined: 11/14/2001 - 09:00

Sarah, I just got your e-mail address so later when I have time I'll e-mail you guys. TLSMOM, Chris sent me yours so Thank you.
I just changed my profile to add my e-mail
address as well.
We have to come up with a Title. So everyone can help on this one. Everyone reading this let us know your idea's on a Title for "Chicken Soup", my sister, came up with the Severely Allergic because she said " people are not only Food Allergic, there are those that are allergic to bee stings, etc. etc."
Anyway, let's get a go on this.
Talk to you later.
Sylvia
[This message has been edited by smack (edited January 24, 2002).]

Posted on: Thu, 01/24/2002 - 10:59am
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Joined: 01/13/2002 - 09:00

I'm game! Let me know if I can do any researching!?!
-Kelly

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