Celiac Results....

Posted on: Sun, 01/28/2007 - 9:01pm
KIMMO's picture
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Joined: 11/04/2006 - 09:00

Hi, everyone. I just got my Celiac test results a few days ago, & they were negative. I'm ready to scream!! The dr. did say that he would like for me to try to go wheat free, gluten free, dairy free, & egg free for a few months to see if my slits/excema improves any. I have painful slits on both hands that are on my finger tips, cutiles, you name it...they really hurt & my fingers are swollen from the slits..Even typing hurts them...grr.....

Anyways, the diet my dr. is talking about sounds really difficult...so I'm going to start some research on the restrictive menu.

Between my Celiac test being neg. & my SPT & RAST tests being neg. I keep thinking that this is all in my head. I had to take Benadryl the other night. I was at my parent's house & I started itching after I ate. There were no nuts in what we ate, I checked with my parents on all of the ingredients. I don't know if there was pnut xcontamination. I ended up having to take 2 benadryl because I was really itcy, on my face, scalp & arms...no rash or anything. My nose was slighty red on the sides.

Sorry, I just had to update & vent.

thanks for listening.

Posted on: Sun, 01/28/2007 - 9:09pm
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Joined: 05/28/2009 - 16:42

KIMMO,
You sound like my twin LOL!
Some days I'm very itching in specific spots, other days nothing. Not really a rash, but just plain itchy. Right now I think my skin is just plain aggravated by the dryness of the air.
Since I'm highly allergic to nickel, I do suspect specific foods that are high in nickel. Sometimes though, I think triggers will never be discovered. It stinks, doesn't it!?!
ETA--I have two painful fingers, too, on my right hand. A painful slit on my right index finger, and a dry, flaky, raw spot on my right thumb. Handwashing, which I do a lot, doesn't help things one bit. Lotion sometimes stings. What a pain.
[This message has been edited by ryan's mom (edited January 29, 2007).]

Posted on: Sun, 01/28/2007 - 11:16pm
krasota's picture
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Joined: 04/24/2000 - 09:00

The blood tests aren't all that hot for ruling CD out--the rate of false negatives is relatively high.
Have you had clear skin near your slits/sores biopsied to rule out dermatitis herpetiformis?
Give the diet a try. Really. Give it a good, thorough try for several weeks. And research cross-contamination. I noticed significant improvement in a lot of my symptoms quickly, but my rash (similar to yours) took a few months to clear up.
ygg

Posted on: Mon, 01/29/2007 - 5:18am
KIMMO's picture
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Joined: 11/04/2006 - 09:00

thanks for the input. I thought that I may try the restrictive diet for 2 months to figure out if my skin gets better. Did your skin get better from just doing GF?

Posted on: Mon, 01/29/2007 - 5:28am
chanda4's picture
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Joined: 12/14/2006 - 09:00

My fingers(thumbs mostly) crack and bleed too, right at the end of my fingernail. I chaulk it up to washing hands all day....I change 2 kiddos with diapers(who poop non-stop) then making meals, touching pets...I wash probably 30 times a day, so no wonder they bleed. I just keep them wrapped up/bandaides with neosporin(sp?)....lotion does burn like heck!! Sorry about the negatives, sometimes you just need to *know* have a *diagnosis*....it's the *not knowing* that is so hard, I undertsand that completly! HUGS
ps they tested my 3yr old for celiac disease, his GI doc really thought he had it. Turns out his stomach pain(after 3 endoscopy's and a few rounds of steriods) may be foodor/inhalation related and cauing Esophiliac Esophigitis(spelling that waaaay wrong, sorry). Good luck, I hope they can figure things out.
------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig)
Savannah-1 (milk and egg)

Posted on: Mon, 01/29/2007 - 10:52am
KIMMO's picture
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Joined: 11/04/2006 - 09:00

Chanda, you summed up my feelings exactly. I wish that I had an actual diagnosis & knew whether or not I'm over reacting. But I do know that the slits are horribly painful. I know that I wash my hands way too much also. I have 3 young ones at home.
Thanks for the info

Posted on: Mon, 01/29/2007 - 11:42pm
Naer74's picture
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Joined: 11/03/2003 - 09:00

Definitely try the diet! My (now 4 yr old) son was tested for celiac about 2 or so years ago. The blood test results were inconclusive. His IGA & IGG levels were almost zero! That was the last time any dr's or specialists mentioned Celiac's. However, we knew that so many of his 'problems' started when he first began infant cereal. Dh and I decided we would attempt the gluten free diet and see if we noticed any improvements. Let me tell you that within 4 days things improved! I was amazed!! Still to this day if he accidentally consumes something with gluten we notice. The bloating, swelling, changes in bowels, changes in his personality, & attitude! Keep us posted on how things go when you begin implementing the diet.

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