Can we get a list going of foods that are *known* to have caused an exposure?

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Original:

I have read so much in so many different places. I am interested in hearing from everyone who have either had a reaction from a food or physically seen peanut in a food thought to be safe. Restaurants too. By "thought to be safe" I mean that there are no peanuts in the ingredients.

For instance, I think I read on here somewhere that someone reacted to Froot Loops. Also, I read somewhere that someone found a PB Ritz in a box of regular Ritz.

But all I have are "someone who knows someone who knows someone...." I am interested in the concrete - you, your child, or your extremely close friend/relative.

For all our concern over Kellogg's, Nabisco, ConAgra, Tide/Bounce, McDonald's, etc. has anyone actually had a reaction?

Carolyn

[This message has been edited by tcperrine (edited April 22, 2003).]

On Apr 22, 2003

While I understand what you are trying to do, I am not sure it is an appropriate idea for an internet message board. That info, (manufactors, chnage in plants, change on the lines, special warnings and all). Things change so fast and any list we would create would be quickly outdated.

Also, I would be afraid that a new PA parent or person would come upon it and take it as the truth. Look at the Manufactors board and see how some of the threads shift from safe to unsafe. Also, there are many different countries on this board and the safe KitKat bars in CA are not safe in the US.

So, I guess, my answer is that a simple combined list would be useless and quickly outdated. And if it was a seperate thread, it would be miles long and no help to anyone.

I wish it were different! I would love to just hand out a list to school, family etc...

On Apr 22, 2003

Quote:

Originally posted by Chicago: [b]While I understand what you are trying to do, I am not sure it is an appropriate idea for an internet message board. That info, (manufactors, chnage in plants, change on the lines, special warnings and all). Things change so fast and any list we would create would be quickly outdated.

[/b]

You are right that it should not be a list to "live by."

I guess the reason I was asking for the imformation is so that I know if my obsessive behavior is warranted. I mean, do people REALLY have reactions to "may contains?" If a peanut-free facility really all that necessary? I know that is an issue I must determine my own comfort zone with, but this is one way for me to do so - collect data.

So, maybe I should rephrase my question. Let's not make a list. Can you just tell me if you ever had a reaction to something NOT labeled with peanuts as an ingredient.

Carolyn

On Apr 22, 2003

Quote:

Originally posted by Chicago: [b] Look at the Manufactors board and see how some of the threads shift from safe to unsafe. [/b]

That is why I am asking. I mean "safe" and "unsafe" by whose perception? Did someone actually have a reaction to make something go to "unsafe?" that is what I am after.

Quote:

Originally posted by Chicago: [b] And if it was a seperate thread, it would be miles long and no help to anyone. [/b]

hmmmm... I am not after a list of SAFE foods. I think everyone should develop their own after research. I am after known foods that were at one point unsafe to someone who consumed them. Any list would hopefully be short! And it would not be passed out to others as a list of foods to buy.

Carolyn

Sorry to make 2 replies out of this!

On Apr 22, 2003

I can see what you are asking. People say to avoid Kraft, ConAgra, Nestle USA, Pillsbury, Nabisco, etc...

You are asking.. what products have people actually had reactions to.

For me, I have never had reactions to anything from a major food company (ie: Kraft, Nabisco, Nestle, Kelloggs, etc). It has always been baked goods from a bakery, or a no-name chocolate bar.

On Apr 22, 2003

Hi My dd had a reaction from Nestle Flipz pretzels (chocolate covered pretzels). This was a quite a while ago, maybe 4-5 years I'm not sure. I gave her one and she took a bite. She cried telling me that there was peanuts in there. I told her there wasnt (oops! didn't understand how this all worked) I rinsed her mouth out with water. She ended up vomiting, but was okay. I then checked the label and it did say "may contain".

She has however had other "may contain" products without problems. She tends to know better than I would if there are pn in something and this seems to work for us.

Maggie

On Apr 22, 2003

Our son had a reaction to a "may contain" popsicle. He also had a reaction to a cheesecake from a bakery with no warning at all on the package. No more bakery items for us.

On Apr 23, 2003

Kelloggs Raisin Bran (USA) believe to be a tree nut reaction.

Graeters ice cream. (in OHIO)

Bath and Body Works Lotions (skin reaction from tree nut oil)

Jaime

On Apr 23, 2003

TWO PN reactions (hives, oral itching/swelling) from two different lots of canned coconut milk- Thai Kitchen brand. (pn are handled in a physically separate portion of the facility, coconut processed on a dedicated line... was assured no risk of cross-contamination-more than once.)

EGG reactions (hives/queasiness) from salad dressings without any warnings/ingredients on labels- Bernstein's light as well as Kraft. Egg reactions also from cross-contaminated pasta, not labeled with egg.

On Apr 23, 2003

Corvallis Mom, What kind of pasta was the egg cross-contamination? Andrea

On Apr 23, 2003

It was (I think) American Beauty pasta- just a taste that dd got accidentally before I could call to verify their protocols. While they are exceptionally good for those who are PA/TNA, they comingle lines with egg/egg-free products... though their cleaning protocols sounded very good to me, the CSR and I were both forced to the conclusion that this might (sadly) not be enough for some who have a very low threshold for reactions. To the best of my knowledge, Barilla is the only widely available (in the US) pasta that is run on dedicated egg-free lines... [i]however[/i](ominously) they include pn oil in some of their filled pastas. (What a trade-off, eh?) And yes, I do understand this is a risk... but it seems the smaller one to me since it is pn *oil* which is low in protein to start with... and it isn't in everything that they make. The other pastas are very clearly cross-contaminated with actual egg protein. (Just so I don't get slammed for this.)

[This message has been edited by Corvallis Mom (edited April 23, 2003).]

On Apr 23, 2003

My daughter definitely went into anaphylaxis from plain M&Ms. It was one of the first times we started putting 2 + 2 together about may contains.

Kay

On Apr 23, 2003

Ok - no offense, I hope, regarding my earlier post. I didn't really understand what you were asking (and am still not sure I do - reactions to may contains or not marked or both...)....and I do worry about new folks taking old info as THE WORD when it is outdated and the things referenced are now either safe or not safe. Also, in the states, the labeling of may contains, traces etc... has really increased (I have been looking at US labels for the last 6 years at least)so a reaction that someone had on an unmarked product a few years ago, might now be a marked product.

Also, even though this is a PA board, many of us (me too!) are dealing with other food allergies and some of the reactions will be from other ingredients. And we have Canadians and Americans and others contributing and often things are different (Hooray for the Canada Safe Kit Kats!!!)....

So I have put all of my disclaimers up and I guess I feel better that no one is reading this thread w/o "background".

Just to add my .02, my dd has not eaten any may contains since we learned of the PA/TNA allergy. We have had more trouble in resturants.

My name is Carolyn too!

[This message has been edited by Chicago (edited April 23, 2003).]

On Apr 23, 2003

Quote:

Originally posted by Chicago: [b]Ok - no offense, I hope, regarding my earlier post. [/b]

None taken! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

I didn't word my request perfectly - something I am often guilty of. I have a bad habit of thinking people can fill in the blanks between what I am asking and what I mean. If you cuold do that, you wouldn't be here, right? [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

I guess I am looking for reactions from may contains, or from no warning on the label at all. I am asking for my own research and I request that no one reading this thread years (or even weeks) from now takes it as gospel. We all know ingredients change almost daily. I am just trying to get a handle on how many times there have been "issues" where there should not have been any.

Thanks for all the replies and for clarifying your intent Chicago Carolyn! I really want the info for my own use. Research on establishing a comfort level.

Carolyn (Melbourne)

On Apr 24, 2003

My son reacted as an infant to something in Tide regular detergent with severe eczema and wheezing. He is 7 now, and we have not exposed him to Tide again, nor will we. He is only allergic to peanuts and sage brush.

My daughter, now 2, reacted last year to the Banana Boat Baby Boat, Hypoallergenic SPF 36. It was a severe hive reaction. She is only allergic to peanuts and nothing else.

Neither of these items list "peanut" as an ingredient nor do they say "may contain."

Since my son's diagnosis of PA, he has not had a reaction of any kind. We don't buy anything which says 'may contain' or peanuts at all. And if they ever react to anything, I can tell you, I will assuredly post it here, because it would be an 'unlabeled' item.

~Melanie

On Apr 24, 2003

My son has had a reaction (anaphalactic) to a couple of bites of a Chips Ahoy cookie (NO pn warning). He has also had a severe reaction to Kellogg's Frosted Rice Krispies (again no warning) and to Kellogg's Waffles (again no warning).

This is USA specific. HTH, Valerie

(I think this thread is a wonderful idea... helps to know what to avoid! If I had seen a post such as this I would have stayed away from these items!)

(Edited to add "Frosted" - forgot it the first time [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] )

[This message has been edited by CVRTBB (edited April 24, 2003).]

On Apr 24, 2003

My daughter had a pretty icky reaction to Nabisco Barnum's Animal Crackers.

There is no allergy warning of any kind on the box. And to our knowledge, she's not allergic to wheat (she eats wheat toast all the time) and there are no eggs listed on the ingredient panel.

Kris

On Apr 24, 2003

Quote:

Originally posted by beansmama: [b]My daughter had a pretty icky reaction to Nabisco Barnum's Animal Crackers.

[/b]

Ooooohhhhh, thanks for this one. I have been very leary of animal crackers. Everyone tries to blow off my concerns since they don't make a peanut variety animal cracker. Duh, like there is NOTHING else made in the plant!

Carolyn

On Apr 24, 2003

Haagen Dazs supermarket ice cream. No warning, BTW. Haagen Dazs maintained that they clean equipment thoroughly between runs, and no peanut flavors are run on that equipment. However, pistachios and pecans are so...

Yes, my son is also TNA.

Amy

On Apr 24, 2003

I have seen peanut chocolate flavour of Haagen Das at the supermarket.. I wonder if they were correct when they said they don't use peanut on that equipment. hmmmmmm

On Apr 25, 2003

Interesting Erik. This was quite a few years ago and at that time they said they did not have peanut flavors in supermarket cartons - perhaps it was just in that particular factory. Who knows? They also have almond flavors. I must say I was impressed at how seriously they took it. They made follow up phone calls for days, getting more and more specific information.

In any case, it was a sad day in this house. It spelled the end of our Haagen Dazs consumption. Probably all for the better as far as our waistlines are concerned!

Amy

On Apr 25, 2003

My son had a reaction to Wise brand white cheddar cheez doodles -- no may contain warning on the pkg. I called the company & were told they were made on shared equip. with pb crackers -- who ever would have thought. This was in March of 2003.

On Jun 14, 2004

My dd had a minor coughing/itchy reaction after eating Stauffer's ABC cookies. And since then, she does not want these anymore. It figures, since we still have a lot of the 5 gallon mega jar from Costco left.

I've read other posts about people being uncomfortable with Stauffers, I would have to agree now!

On Jun 15, 2004

Driving Me Nutty, I'm fairly sure that here, in Canada, I can't buy Stouffer's products because they are labeled "may contain". Fairly sure, like 99.9%. I've never had them in my home so there must be a PA reason why.

It continues to baffle me how Canadian companies, very often times owned by American companies, label IMHO *better* than American companies do. What is with that?

I remember having a horrendous time with Pillsbury. Pillsbury Canada was very good to speak with. Pillsbury U.S. sent me on a wild goose chase.

It's all very baffling. [img]http://uumor.pair.com/nutalle2/peanutallergy/confused.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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On Jun 15, 2004

Quote:

Originally posted by MacAllister's Mom: [b]My son had a reaction to Wise brand white cheddar cheez doodles -- no may contain warning on the pkg. I called the company & were told they were made on shared equip. with pb crackers -- who ever would have thought. This was in March of 2003.[/b]

I'll watch out for these! Thanks for the heads up! Love this site Synthia

On Jun 15, 2004

Quote:

Originally posted by Driving Me Nutty: [b]My dd had a minor coughing/itchy reaction after eating Stauffer's ABC cookies. And since then, she does not want these anymore. It figures, since we still have a lot of the 5 gallon mega jar from Costco left.

I've read other posts about people being uncomfortable with Stauffers, I would have to agree now![/b]

Driving Me Nutty,Did you call the company?,If so what did they say?

Also was there a warning on them? Love this site Synthia

On Jun 15, 2004

Hi all,

My DD had a reaction to Tyson Chicken tenders. Rash, terrible cough, Vomiting. Nothing on the Label Re: Peanuts. I called and was told that they did not contain any Peanut products. She is only allergic to Peanut and Antibiotics.

Meleldredge

On Jun 15, 2004

We've had several reactions to things - can't swear that they were all from peanut though as there are lots of food allergies involved.

DS reacted to Koala Krisp cereal with vomiting. I had called the company and felt comfortable with their manufacturing process - not dedicated lines, but used for one week at a time with each type of cereal and thoroughly cleaned. The pb cereal was run 3 weeks before the Koala Krisp.

DS also reacted (anaphylactic) to chocolate covered pretzels - can't remember the brand at this point (not a *big* brand) and to milk (anaphylactic). He's not allergic to milk; the Dr. and I can only guess that the dairy had been feeding their cows lots of peanut products.

As for myself, I've reacted to cappucino (anaphylactic) at the restaurant where I worked. I called the supplier and was told that sometimes manufacturers "cut" the coffee with nuts/peanuts?!? I now avoid all coffee at restaurants. I also had a serious reaction to graham cracker crust. Usually from manufacturer cross contamination I will just get an itchy throat, so judging by the way this reaction felt there were definitely peanuts or hazelnuts in the crust - not just contamination.

None of the reactions above were to products with any kind of nuts labeled or any warnings on the packages.

Rebekah

On Jun 15, 2004

This is our list that we avoid like the plague... Kellogs nutri grain minis and cereal bars Mini oreos in the round container Holiday Christmas hershey kisses Burger king chicken nuggets suspected apple cinnamon cheerios (wheezing..may have been asthma flare) The hershey kisses reaction only required benadryl and inhaler, all the rest were anaphylactic and required epi. FWIW we stay away from all cereal bars and most cereals. These always seemed to be the culprit behind most of DD's reactions.

On Jun 15, 2004

Canadian specific - Duncan Hines lemon cake mix. Cross-contamination hive only reaction. Called the company, they told me there was no way it could have happened. I posted about it here at the time and many Canadian members told me that they avoid Duncan Hines.

I know it was the cake mix and I know it was not another food allergy.

I only wish I had kept the remainder of the cup cakes to have tested.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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On Jun 25, 2004

Quote:

Originally posted by sebastian: [b]This is our list that we avoid like the plague... Kellogs nutri grain minis and cereal bars Mini oreos in the round container Holiday Christmas hershey kisses Burger king chicken nuggets suspected apple cinnamon cheerios [/b]

Sebastian, I'm surprised to see BK chicken nuggets on your list. I thought those were safe? Do you know what happened to cause the chicken to not be safe when your child had a reaction?

Thanks!

On Jun 25, 2004

My oldest cub has had episodes of repetetive vommitting after eating may contains. Two that I can think of specifically and it is a duplicable reaction. Happened with regularity until we "caught on" to what was happening. Oldest cub has also had an measurably anaphylactic reaction to jelly like fruit snacks labelled "Manufactured on Shared Equipment", etc. That one is documented on his medical record. We did not put it "together" for the others. Who knows, maybe we still haven't pegged those duplicable instances for what they are. Who knows.

On Jul 1, 2004

Hi,

henson here. New to the List. Wonderful site!

I'm adding two things. You probably know about the first; a student at Brown University died when she had chili with her teammates after a game, in a restaurant. The chili had been thickened with peanut butter. Apparently this is sometimes done in restaurants.

Also, I have heard of hot chocolate possibly being thickened with peanut butter, but can't verify that it happened to anyone I know.

Thank you for all of the info. I came here after a reaction when I needed my epi. Now am on the 5 days of prednisone.... fun! [NOT]

Thank you for such a wonderful site [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Jul 1, 2004

henson, hello and welcome. Sorry to hear about your reaction. Hope you are feeling better.

I've never heard of hot chocolate, but I've come to the conclusion that these days they will put p.b. into just about anything.

Hope to see you around!

On Jul 1, 2004

A few years ago there were two reactions (in Australia) to Cadbury Chocolate- 1 was cross contamination from eqiupment not being properly cleaned and the other incorrect wrapping - supposed to be plain choc but turned out to be fruit and nut. One of those reactions proved fatal. I have been caught numerous times with cross contamination usually on sandwiches. My daughter has been caught a couple times also.

On Jul 1, 2004

Quote:

Originally posted by lisa from Australia: [b]A few years ago there were two reactions (in Australia) to Cadbury Chocolate- 1 was cross contamination from eqiupment not being properly cleaned and the other incorrect wrapping [/b]

For those of you in Canada, Cadbury Canada has very strict controls - if a product is not made in a dedicated peanut/nut-free production line, an allergy warning will appear on the label. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Jul 2, 2004

My son experienced an allergic reaction to SwissMiss Chocolate Pudding. There was no warning of cross contamination on the label. I contacted the company and they said the do make a chocolate/pb flavor...but of course, they clean their machines.

On Jul 2, 2004

.

[This message has been edited by deegann (edited February 09, 2005).]

On Jul 3, 2004

DD had the horrible reaction to WholeSoy Frozen Dessert back in 2002. It is imitation ice cream made from soy. When I called the company after the reaction they admitted that it is made on shared equipment with peanuts and milk, but they don`t state it. I had read on this board that this is very common with ice cream companies. I recently called HagenDaz regarding their sorbet. It is also on shared equipment with either peanuts or tree nuts---I don`t recall which. This is also not stated on the label. I also called Toffutti after dd had the reaction and they make their Vanilla Toffutti Cuties on shared equipment with pb Tuffutti Cuties. They don`t state it on their packaging because they state it on their website. I spoke to the owner and he feels this is adequate. Never crossed his mind that people don`t always search the website of every item they eat.

On Nov 21, 2004

Bringing this back up because someone said Tyson chicken nuggets/tenders and my daughter had a reaction to Russer German Wunderbar Bologna made by Tyson -- they said there was no peanut in it.

Also, Van's wheat-free waffles (no warning) they said no peanut in it.

Also, Con Agra Kid Cuisine mac 'n cheese (with a little piece of chocolate) was suspicious before I bought it but we were away from home and it was a snowstorm so we bought in hotel lobby [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] NO warning on that either. Seems to be the ones with no warning are worse than the ones with the warning.

On Nov 21, 2004

PS -- where I live Koala Crisp does have a warning on it and has for some time.

On Nov 21, 2004

Sebastian, (or anyone who knows) please let me know more about your bad experience with the Holiday Hershey Kisses. I am rather new to all this, but I called the hershey company twice about their kisses in general, and was reassured that there was no danger of xcontamination. I also mentioned that conversation to a representative from FAAN when I was ordering some materials, and she commented that she'd heard good things about hershey. Please let me know, I have eaten some of these holiday kisses and I am breastfeeding my PA baby! Also, why the concern with nestle, exactly? I was told by them that their chocolate chips were fine, no danger of xcontamination. Have people had bad experiences with them too?

On Nov 21, 2004

Doreen ~

Thanks for letting me know about their label changes. DS's reaction to Koala Crisp was several years ago. I reported his reaction to them and that may have prompted the label change. Since the reactions, I haven't had any reason to read their label.

Rebekah

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