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Posted on: Thu, 03/09/2006 - 7:23am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by samirosenjacken:
[b]Ok, with the risk of being totally tarred and feathered, what is the negativity surrounded FAAN? [/b]
[i]you asked[/i].

Posted on: Thu, 03/09/2006 - 7:58am
Gail W's picture
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Joined: 12/06/2001 - 09:00

And I asked:
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/000914.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/000914.html[/url]

Posted on: Thu, 03/09/2006 - 10:52am
mom2two's picture
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Joined: 06/09/2000 - 09:00

"honestly? This infuriates me. This is completely wrong for *my* child on the Autism Spectrum[/i]. In so many ways. My child *needs* to be with his classmates. Especially at lunch. But I only speak for myself......My child."
And mine, she has never had a definitive diagnosis putting her on the spectrum but the last series of testing done did suggest NLD. And to put her at a seperate table was just not an option for us.

Posted on: Fri, 03/10/2006 - 10:05am
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

Quote:Originally posted by Christabelle:
[b]I dislike FAAN because schools seem to look to them as THE authority - and who says they should be? [/b]
I don't believe that here in the U.S. any other organization comes [i]close[/i] to doing for the Food Allergy Community what FAAN has. There basically [i]is[/i] nobody else. FAI comes closest, but they are really more dedicated to fundraising for research.
I have no axe to grind with FAAN. I don't have to agree with everything they say to be completely, totally grateful and appreciative for all they do. On the food ban issue, I don't think that one size fits all for any situation, and I would like to see them show a little flexibility there. I personally have never sought one for my son; in our own situation it has not been necessary. (His nursery school went peanut free of their own volition - early years where kids eat in the classroom is one area where I think bans are often necessary.)
Like Peg, I've been at this a long time (not as long as Peg [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] ) and there was absolutely no other information available when we started on this journey. We had no internet access. We got woefully inadequate information from our allergist. FAAN launched us on the right path, and later on this site enhanced our knowledge.
You'll never, ever hear me slam FAAN. And BTW, I think their conferences [b]rock[/b].
Amy

Posted on: Fri, 03/10/2006 - 10:29am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Hi Amy ! ! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I'm just wondering out loud... Question: Are those who are satisfied with FAAN those who've had a relatively 'easy' time with their schools? And those who don't like some of FAAN's positions those who've had a more 'difficult' time with their schools?
Maybe that an overstatement... but I sort see somewhat of a pattern.

Posted on: Fri, 03/10/2006 - 11:05am
momma2boys's picture
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Joined: 03/14/2003 - 09:00

Gail, I think it also has to do with how you got educated in pa, and how long ago it was. If you notice, those that are happy with FAAN, got most of their info from them because there was nowhere else to go.
Me, I got my info here. I didn't even know FAAN existed until after I was here. So they weren't my main source of information or my salvation.
Who knows. To each their own.

Posted on: Fri, 03/10/2006 - 11:31am
gvmom's picture
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Joined: 08/24/2005 - 09:00

When we found out my DS was allergic, the only place we found that other people had heard of the allergy was FAAN. Our pediatrician had heard of it at a minimal level, enough to send us to an allergist. But nobody in our lives knew a thing about it. I think it helped DH and I know that we weren't crazy. Aside from that, I look at FAAN as a resource -- like a dictionary, or an encyclopedia, and I use it like I would use other reference materials. It provides something that I think is useful. I would think that there is room in the FA community for other groups to put themselves just as much at the forefront of the issue if they felt as though there were discrepencies in FAAN's information or in things they provide.
edited to add: As far as that relates to our experience with DS's school - they at the moment, are going by what we give them. I think that right now if we provide FAAN informational tools to the school, they are filtered and presented through us -- so our interpretation, relative to our situation with our DS is what the school receives. So far, the problems we have with the school, I don't think, would be addressed by FAAN in any form anyway.
[This message has been edited by gvmom (edited March 10, 2006).]

Posted on: Fri, 03/10/2006 - 12:06pm
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

Quote:Originally posted by Gail W:
[b]Hi Amy ! ! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I'm just wondering out loud... Question: Are those who are satisfied with FAAN those who've had a relatively 'easy' time with their schools? And those who don't like some of FAAN's positions those who've had a more 'difficult' time with their schools?
Maybe that an overstatement... but I sort see somewhat of a pattern. [/b]
Great minds think alike! [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] I was wondering the same thing. And yes, for the most part I've had an easy time with my son's schools. Perhaps FAAN's school guide had something to do with it. (Couldn't resist, LOL!)
I also agree that perhaps the timing has something to do with feelings about FAAN. They really were the only resource out there 10+ years ago.
Amy

Posted on: Mon, 03/06/2006 - 11:16pm
qdebbie1's picture
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Joined: 02/10/2005 - 09:00

It has been said that faan gets some of its funding from Kraft, who owns Planters.
Some have speculated that this influences statements coming from faan.
There has been much discussion about this.
I would suggest a search but I imagine it would be too big to weed thru.
Maybe someone who holds this subject dear will link some of those for you.

Posted on: Mon, 03/06/2006 - 11:18pm
momma2boys's picture
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Joined: 03/14/2003 - 09:00

Ok, so since my comment was specifically mentioned in your post, I will reply here. I am the mother of a peanut allergic child, and an egg allergic child. If I take a stand and announce it to the world are you going to take my word as the authority on food allergies? Because I do have the same qualifications.
Yes, they have medical advisors, but I wonder if they have every statement FAAN utters approved by Dr. Sampson and Dr. Wood? Do those doctors feel that one approach fits every single child with a food allergy?
I personally have never in the 6 1/2 years I have been dealing with this allergy said "I'm so happy we have FAAN on our side!"
More often I feel that we are put in the position where we need to fight to overcome something that has been declared by FAAN. They have never seen my child, don't know a thing about him, so I don't think they have the right to tell my school what the best option is for him.
What specifically can you say that FAAN has done to advocate for you? Just curious.
For the record, I haven't asked for a peanut free school, but we do have peanut free classrooms.

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