Calling all CT families...

Posted on: Sun, 04/01/2007 - 11:30pm
stephbillalec's picture
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Joined: 02/22/2006 - 09:00

I am in the process of setting up a 504 eligibility meeting for my PA/TNA dd. She will be entering K in the fall. Just from my initial conversation with the nurse at registration, I don't think it's going to be as difficult as I had initially anticipated (fingers crossed!). However, my main concern is the availability of her epipen/benedryl. From what the nurse tells me, meds are kept only in the nurse's office and only a nurse can administer. I have a huge problem with this. And I am so, so very worried about the bus ride. She won't be allowed to wear an E-belt. How can this be? She doesn't go anywhere without her epi/benedryl. Does anyone know CT law regarding students carrying their own medication? Thanks...

Posted on: Mon, 04/02/2007 - 1:57am
gvmom's picture
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Joined: 08/24/2005 - 09:00

Here are a couple links that might be helpful:
[url="http://www.foodallergy.org/Advocacy/advocacy-schools.html"]http://www.foodallergy.org/Advocacy/advocacy-schools.html[/url]
[url="http://www.nasbe.org/HealthySchools/States/Topics.asp?Category=D&Topic=2&Mode=Print"]http://www.nasbe.org/HealthySchools/States/Topics.asp?Category=D&Topic=2&Mode=Print[/url]
There also is an AAAAI position statement that might be good too. Maybe someone can post a link to it. I don't have it handy at the moment.

Posted on: Mon, 04/02/2007 - 2:19am
notnutty's picture
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Joined: 03/15/2004 - 09:00

AAAAI Position Statement:
[url="http://www.aaaai.org/media/resources/academy_statements/position_statements/ps34.asp"]http://www.aaaai.org/media/resources/academy_statements/position_statements/ps34.asp[/url]

Posted on: Mon, 04/02/2007 - 2:37am
notnutty's picture
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Joined: 03/15/2004 - 09:00

[url="http://www.cga.ct.gov/2006/rpt/2006-R-0665.htm"]http://www.cga.ct.gov/2006/rpt/2006-R-0665.htm[/url]
Looks like if you search around this website a bit you may find additional information about CT law. Specifically,
"The law further provides that students with life-threatening allergies cannot be denied access to school transportation solely due to the need to carry a cartridge injector while traveling (CGS

Posted on: Mon, 04/02/2007 - 2:54am
SydNoahsmom's picture
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Joined: 03/01/2007 - 09:00

Hello- I also live in CT and am in the process of getting a 504 eligibility meeting for my daughter (who will enter kindergarten in the fall). From the talks I have had with the school nurse... she said that generally the epi is kept in the nurses office, however depending on parent comfort they will allow it to stay with the students teacher. I definitely want the epi in her room with her... not in the nurses office. All of the teachers at her school are certified to give epi.
The bus situation for us... I will be driving my DD to and from school. I have opted to do this because the busdrivers are not certified to give epi and I am not comfortable with the fact that if she has a reaction on the bus it will take a bit of time for emergency personell to get to her. I do not know of the laws involved for either of these situations. I think each town has different guidelines. From looking at your profile we are nearly neighbors- we live in Guilford. Good luck and hope you find the answers you are looking for!
------------------
Mom to:
Sydney 4 1/2 EA, PA, asthma
Noah 2 1/2 allergic to Penicillin

Posted on: Mon, 04/02/2007 - 8:59am
stephbillalec's picture
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Joined: 02/22/2006 - 09:00

Thanks everyone for the replies! After posting I did find the CT GS that prevents a student from being denied access to transportation due to carrying an epi. It's the district's policy that states only high schoolers may carry their epis. I have no problem fighting that! DD has an appt with the allergist next week so I'm hoping to get the "letter" from him so I can request the 504 meeting.
SydNoahsmom, yes we're very close. I'm in North Haven. I'll be able to pick DD everyday but unfortunately she'll have to ride the bus in the AM. That's why I have to push for my transportation requests. Also, from your signature, our younger kids are similar...both have an allergy to penicillin. Thanks again.

Posted on: Mon, 04/02/2007 - 11:09am
JaneyL's picture
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Joined: 06/11/1999 - 09:00

We are in southeastern CT. We faced all these problems back in 1998 when my son started K.
We ended up with an IHP/504 plan. His epi and benadryl were in a fanny pack which the teacher had in the classroom. A hook was installed at the door at about eye level for an adult for the pack to hang from. The teacher carried it to the lunchroom, specials , etc. The teacher also delivered it to the bus driver-since they would not allow him to carry it in school. We were okay with this because it was always with him and the adult was responsible for it. He was and still is prone to losing things.
The bus situation--took two years of us carting him to school and going back and forth with the school system. Solution starting in the 2nd grade was that he rode a small van to school (these drivers are employees of the school system and could be trained to use epi-we felt he was too little to be expected to self-administer). I had to hand the epi-bag to the driver who handed off to the duty teacher. My son could not carry it.
4th grade we give permission for him to carry medicine and self-administer--school finally agreed. He begins to ride reg. bus with driver aware of him and that he may need to call for paramedics if child becomes ill. (Didn't expect much from the reg. bus drivers-high turnover, contracted company)Announcements made about no eating on bus.
He's in the 7th grade now at a private school. He carries his epi-bag in the front pocket of his back pack. All teachers, and nurse at school know where it is and are trained to use it. He rides public school transportation to the private school. Still have his 504 in place and very glad we learned about it, pursued it, and got it in place for him.
Search under legislation for CT bills that have passed concerning meds and food allergies. I'll try to bump them to the top.
Take care,

Posted on: Mon, 04/02/2007 - 11:33am
TwokidsNJ's picture
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Joined: 05/28/2005 - 09:00

go to Google.com and search on
"Managing Life Threatening Food Allergies in Connecticut Schools"
The Dept of Education issued this 84 page document. The support you need should be there. I'm very familiar with the MA document which is very similar (I think CT modeled theirs after MA). CT is way ahead of the game. NJ just passed a law and we're hoping the state dept of education comes out with something like this as well.

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