\But My Child\'s PA Isn\'t Severe\

Posted on: Tue, 02/20/2001 - 1:32pm
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Anonymous (not verified)

pHow many times am I going to hear this sentence uttered by other PA parents or about other PA children/people? How many other people have heard this?/p
pFirst of all, I would like to say that when Jesse was first diagnosed as PA, I didn't realize the severity of it. His first reaction was very slight. I did, however, have a prescription for an Epi-pen filled.br /
When he had his first anaphylactic reaction, I recognized it immediately for what it was.br /
It was only then though that I tightened up my comfort zone to what it is currently (as an aside I would like to say that his reaction had nothing to do with my comfort zone)./p
pNow, when I first met with Jesse's principal re the implementation of a "peanut free" classroom for Jesse at his school, she did say that she had one other child at the school, much older than Jesse, but their PA was not severe (I chose not to argue or go into it)./p
pThen, thinking I had found out who the other child was, a child that lives three doors away from me, it turned out that it isn't even this child. The school is not aware that he is PA. The child, himself, about 12 years old has said, my PA is not severe. I only break out in a rash. I did, however, make sure that at Hallowe'en he received peanut free treats and he did say that he did go through all of his treats when he got home. However, this child remains anonymous at school. I know that a lot of parents decide that this is okay./p
pThe pharmacist that re-filled my last Epi-pen prescription VERY quickly when Jesse had his third reaction (2nd anaphylactic) has a daughter who is PA. I had been meaning to send him information re this site. I had sent him the school board policy for this area so that he could have a "peanut free" classroom implemented for his child. Recently, he was speaking with another PA parent that posts on this board and basically said that he didn't need to use this site because his daughter's PA wasn't as severe as Jesse's. He, of course knew, that Jesse had had an anaphylactic reaction./p
pTo-day, I was in a store and was speaking with the shopkeeper. She also knows the severity of Jesse's PA (or the two anaphylactic reactions he has had). She has a child that will be a year old next month and is wondering how she could determine if the child is PA because both of her sisters, with no history of any allergies, both have PA children. And again, I heard, but their PA isn't severe./p
pI went on to explain to this person that I have read on this very board about adult PA people who may go 20 years suffering from what might be considered "slight" reactions and then one day they have an anaphylactic reaction./p
pNow, I will be the first to admit that I actually had to see Jesse's second reaction to realize the severity of PA. This was before I had a computer and the wealth of information that is to be found on-line re PA. It was before I had a doctor say anything to me about it at all, except I never had a problem getting an Epi-pen. I realize that I was terribly ignorant./p
pIt took Jesse's Father witnessing his third reaction, where he almost died, for his Father to get over his denial of the severity of Jesse's PA./p
pI'm wondering a couple of things. Do we, as parents actually have to witness our child in anaphylactic shock to finally "get it" (I actually believe if I had found this website when Jesse was first diagnosed I may have been different, but that does not excuse me)?/p
pAnd also, when we are dealing with schools and non-PA parents, how much more difficult is it for us when you do have PA parents saying that their child's PA isn't severe?br /
Is that why the people posting here are considered fanatics by some?/p
pI know that there are people posting on this board whose children have never had a reaction period. I know people posting whose children have never gone into anaphylactic shock. And they all seem to deal with PA the same way the parents of children who have suffered anaphylactic shock do./p
pBut, how are we to educate people when there will be PA parents that come out with the phrase above? I tried very hard to get across to this woman to-day that you never know about the next reaction. I even went so far as to explain that because Jesse's last two reactions were anaphylactic, I'm expecting his next one, should there be one, will also be. But, I told her that this is also wrong. That his next reaction could be considered slight. That you never know./p
pIs it even possible to get this message out there? I'm just wondering if a lot of people are going to have to go through first, the hell that I went through to recognize the severity of my son's PA (and the guilt, etc. that accompanies that). Then, having educated myself about PA and enforced what I consider a fairly strict comfort zone, how do I get it across to non-PA parents and people at the school?/p
pI'm not wishing that any of the children whose parents have uttered this phrase ever suffer any more than a "slight" reaction. I just wish the distinction wasn't made and PA is recognized for what it potentially can be - life threatening./p
pAny thoughts?/p
pBest wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]/p


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