Posted on: Thu, 11/13/2003 - 12:28pm
erl's picture
Joined: 10/06/2001 - 09:00

So yesterday was my 5th reaction in 15 months (peanut, tree nut, sesame seed and chick pea allergic). It was from an artisan bakery (which I'm sure makes other breads with nuts). But I have had this same bread for a few years now without problems until yesterday. The reaction was at breakfast time in my own house (which is generally free of everything I'm allergic to).
I'm struggling with a new comfort zone. I have given up chinese food, many other ethnic cuisines, ice cream parlors and limit desserts outside the home. I don't eat at work potlucks. I do enjoy good quality breads. As a working mother with two small boys, I don't have time to bake my own all of the time. And where do you stop- many pizza restaurants have some sort of pesto topping, most restaurants have nuts or sesame seeds, etc. It seems like cross contamination is almost always a potential hazard if you worry enough. Other reactions were to ?bouillabaise (probably cross contamination in a restaurant that had a "special system" for people with food allergies), breadcrumbs in a casserole (family member prepared and "checked"), catered event (after lengthy discussions with caterer and extensive efforts on their part), pesto (after specifically inquiring about pesto, pinenuts, walnuts etc; after reaction, took 5 times of questioning the chef for him to recall what was in his dish), and the bread.
I don't know what to do about catered events and bread. We buy other breads that though they are not labelled as "made in a facility..." most likely are. I have not had any problems with them over a period of years.
I apologize for the long post. I'm still on steroids and feeling a bit moody.

[This message has been edited by erl (edited November 22, 2003).]

Posted on: Thu, 11/13/2003 - 1:22pm
Jana R's picture
Joined: 02/09/1999 - 09:00

I'm so sorry to hear about all your reactions - yesterday's especially. Don't apolgize for the length of the post (it certainly isn't too long!). I hope it helps some to get your frustrations written out. Have you always been allergic or is this adult onset? Please take care.

Posted on: Thu, 11/13/2003 - 10:47pm
ANTHRCDN's picture
Joined: 11/14/2003 - 09:00

I am sorry to hear about your reaction. I am dealing with the exact same problem.
I really do not have a good idea on what my comfort zone should be. Right now I am just starting to loosen up my zone. I find that as an adult I have a lot more trouble with the TNA then the PA. It seems people get the PA, but not the TNA. I am also finding that TN's are in a lot more dishes at restaurants, especially salads.
I know this does not help, but I gave up wheat, and will now only eat rice based dishes. Since then I have not had an allergy attack, and I feel a lot more healthy. (less overall environmental allergies)

Posted on: Fri, 11/14/2003 - 12:01am
Anonymous's picture
Anonymous (not verified)

Prior to finding out about *trace amounts* being a real threat, I was having reactions daily.
All the breads that I was eating ran on the same lines as sesame seeds. I now make my own bread, buns, pizza dough, bagels, etc.
In the last 15 years I've only eaten in one restaurant, and I don't buy very much pre-packaged food. (This last is very unfortunate, because though I'm good at baking, I'm not such a good cook [img][/img] )
ERL, do you have a breadmachine? Load it up, push a few buttons and just wait for the beep. As there are no preservatives, the bread doesn't last as long as store-bought - but that's what freezers are for. [img][/img]
btw, fancier breads are more likely to have been in contact with nuts and seeds.
I'm not trying to say you should do what I've been forced to do - just offering suggestions which you are free to take or ignore. And wishing you the best of luck whatever you do.

Posted on: Fri, 11/14/2003 - 12:03am
Anonymous's picture
Anonymous (not verified)

Quote:Originally posted by ANTHRCDN:
[b] but I gave up wheat, and will now only eat rice based dishes. Since then I have not had an allergy attack, and I feel a lot more healthy. (less overall environmental allergies)
I recall you posting pa/tna. Did you give up wheat because it was causing problems, or because of cross-contamination reactions?

Posted on: Fri, 11/14/2003 - 2:57am
ANTHRCDN's picture
Joined: 11/14/2003 - 09:00

I have tested negative for wheat, but most of reactions involved a P/TN in some type of wheat based product.(i.e. cake, bread, cookie)
I was also finding that when I ate wheat, I would get very tired and sluggish. I always thought it was because of all the chemicals in the over-processed wheat. Perhaps it was because of cross contamination.
For dessert, I now consume a lot of Kozy Shack puddings.... lol...

Posted on: Fri, 11/14/2003 - 7:13am
erl's picture
Joined: 10/06/2001 - 09:00

Thanks for your support and ideas. I spoke with the company today and educated them about food allergy and proper labelling of their products. I'm not sure I'm ready to give up altogether on store bought bread. I'll try baking some with my Kitchen Aid for now. We just sold our bread machine because we really didn't use it much. I'm going only to restaurants I've eaten at before. I may give up on catered events or just ask for a fruit plate. I have had all of my allergies since early childhood except for chick pea which developed ?teenage.

Posted on: Fri, 11/14/2003 - 12:28pm
Anonymous's picture
Anonymous (not verified)

erl-so sorry about your reaction. My son has the same allergies as you plus some fruits and penicillin. He has never had sesame, but tested postive on RAST, same for chickpeas, lentils, peas, and a variety of other foods.
He has eaten Pepperidge Farm breads safely for several years. They seem to label well for peanuts/nuts and for sesame. My son is picky and only eats the Canadian White and the Cinnamon Swirl, but has tried a few other kinds. There hot dog rolls have been ok for us too, but the hamburger rolls list sesame on the label, but there are no seeds visible, so I suspect there may some crosscontamination. May be worth calling Pepperidge Farm about how they label for sesame cross contamination in general. I am worried about sesame cross contamination, but not as obsessive about it as I am with peanut/tree nuts because we have never had a sesame reaction.
I realize that it is not the same as some of the yummy breads you may have been eating...but thought I would mention it as a possibility for you to check out since Pepperidge Farm makes a wide variety of breads. I haven't checked them all out. If I call them again soon, I will post their response regarding sesame cross contamination.

Posted on: Wed, 11/19/2003 - 5:00am
erl's picture
Joined: 10/06/2001 - 09:00

Me again. 6 days later, last night I had a signifigant airborn/contact reaction. I was at a phone a thon in a board room. I did not eat anything there except a sip of water from a new bottle. There were plain M&Ms which I had them remove, just being careful/paranoid I thought. After 15 minutes or so, I began to feel flushing in my neck and throat. I began to have my repetitive cough. I couldn't believe I was really reacting. I called my husband. And silly me drove myself to an ER 3 minutes away. I gave myself epi while talking to the triage nurse, not wanting to wait another 5 minutes for the paperwork. It got worse until after the other IV meds. I called this morning and found out that they had chinese chicken salad a couple of days ago in that room and that they frequently snack on nuts, peanuts, candy etc. I'm still a bit stunned and drugged (antihistamine, steroids).

Posted on: Thu, 02/12/2004 - 10:47am
packrat's picture
Joined: 10/09/2001 - 09:00

erl, I'm just writing to give you a big hug and let you know that I'm thinking about you. You have been through some rough times. Take care of yourself and I hope you feel better.

Posted on: Fri, 02/13/2004 - 6:12am
erl's picture
Joined: 10/06/2001 - 09:00

thanks for your hug. After the November reactions (3 in total), I haven't had epi for almost 3 months. I have used Benadryl several times for airborn reactions and it seems to have worked. I'm getting used to being very conscious/vigilant of where I am and what food is around me. And I ordered some Vermont nut free chocolate...


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