bracelet wording

Posted on: Sun, 01/01/2006 - 10:02am
CDMom's picture
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Joined: 12/30/2005 - 09:00

I'm about to order my ds a sport band from Medical ID. I have read past threads about wording for these bracelets, and that helped me alot! However, I still wonder about something. He has had a severe reaction to scrambled eggs but can tolerate them in baked things. He also has had a severe reaction to soy milk but not traces in things. He tested positive for both on his skin test. Would you list those two along with his PA/TNA like this:

Name
Life-threatening allergy to peanuts/nuts, eggs, soy
Needs Epi-pen Jr.
Call 911 (would you put this, too?)

Of course, he absolutely can't have any traces of nuts but the others he can. I'm just confused! I want to get this right for him!

Thanks!
Jamie

Posted on: Sun, 01/01/2006 - 10:37am
dgood's picture
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Joined: 03/27/2004 - 09:00

I would be interested to hear what everyone else suggests.
I ordered one from Medic Alert a few days ago that says,
"Severely allergic latex, all eggs, peanuts and all nuts. Use EpiPen Jr."
(this is the max that fits on her little emblem.
I didn't use anaphylactic because I didn't think everyday people would necessarily know what it meant (I didn't prior to my daughter's allergies). I listed latex first because I felt emergency personnel would need to be aware of this. It's easy to forget to tell them when there is another issue at hand.
I also didn't say "tree nuts" because, again, I don't know if everyone knows what nuts are from trees.

Posted on: Sun, 01/01/2006 - 11:48am
lmw's picture
lmw
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Joined: 11/12/2005 - 09:00

When my dd was diagnosed as allergic to almonds and hazelnuts, about 10 years ago, I was told to get her a medic alert bracelet. At the time, the forms were available at the drugstores, and mailed in. I wrote ' allergic to almonds, hazelnuts, has Epi-Pen' on the form. The bracelet I received says 'allergic to all nuts, needs Epi-Pen'. Whether it was a space thing, or what, I never changed it - she IS allergic to nuts, who cares what kind! (this was 10 years ago, and in Canada)

Posted on: Mon, 01/02/2006 - 4:50am
lilpig99's picture
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Joined: 12/22/2005 - 09:00

hi!
I just ordered two bracelets. My dd had TNA and this is what we had engraved:
'asthma
anaphylaxis to cashews, tree nuts, peanuts'
I did not have 'admin. epi pen' engraved and am now wondering if I should go ahead and change it (will cost me another $40.00...shoot!) My daughter is only 5 and the only time she is in the care of others is at preschool and they know they'd have to give her an epi. Should I re-engrave anyhow? Help?
Anyhow, I think the fact that all sorts of nuts are engraved on my dd's bracelet...one would assume that is what the problem would be..at least I'd hope.
Good luck to you,
Jill

Posted on: Mon, 01/02/2006 - 5:20am
Alyssasmom's picture
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Joined: 10/09/2005 - 09:00

CDMom: I have a 7y.o. daughter w/ PA. Her bracelet has Call 911 on the back. (the front of the bracelet has her allergy listed and "has Epi-Pen."

Posted on: Fri, 01/06/2006 - 7:07am
lmw's picture
lmw
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Joined: 11/12/2005 - 09:00

As DD is now allergic to peanuts, I had to order a new bracelet. I ended up having to phone, and had quite the discussion with the service agent. We agreed that 'allergic to all nuts' and 'needs epi-pen' would stay, she added 'allergic to all peanuts' - meaning all forms, and said the Oral Allergy Syndrome should also be engraved. The question I wasn't prepared for was ' is this anaphalaxis, or allergy?'. DD has never had an 'ana' reaction to any of her allergens, so I left it at 'allergic'. I wasn't sure what to say at that point. I guess I'm thinking treatment wouldn't be any different.

Posted on: Fri, 01/06/2006 - 1:47pm
CDMom's picture
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Joined: 12/30/2005 - 09:00

Well, I just held my breath and ordered, using the best wording I could in the space allowed. I ordered sportsbands from American Medical ID. By ordering one, I was able to order another for $9.95. Good to have a backup. Anyway, here is what I opted for:
CARSON/LIFE-
THREATENING ALLERGIES: NUTS/
PEANUTS/EGG/SOY
NEEDS EPIPEN
I about drove myself crazy hoping I could have just the right wording, finally realizing that doing the best I could and getting it on him will be the important thing. I paid extra to have it expedited and they came today!
He has said all along that he doesn't want to wear it. However, when it came today, we made a big deal of it, with big brother comparing it to something Buzz Lightyear would have. Now he still has it on. What a blessing that he has accepted it and wants to even show it off! Some days I'm not up for one more battle in this thing.
I am surprised at how much comfort it brings me for him to have that now, one more thing in the arsenal to keep him safe!
Jamie

Posted on: Mon, 01/09/2006 - 7:02am
mama2aidan's picture
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Joined: 07/09/2004 - 09:00

For what it is worth I think you did a great job with the wording. For one your child has life threatening allergies & each situation is different so who's to say that it won't be anaphylaxis next time.
I am happy to hear that he wants to wear it. Aidan has one & he loves his. I know what you mean about a sense of relief about them having it. It is like a little bit of insurance. For us it is not only for school, but for if we ever get in an accident where I am unable to communicate with the EMT. & when one of his grandparents keeps him. When the number to Medic Alert is called it gives the responders an accurate dosage amount of Aidan's meds. that he has taken that day. In an emergency it relieves me that this info is ready to be accessed.
This is what his says:
ASTHMA,
ANAPHYLAXIS TO
PEANUTS & OTHER
NUT PRODUCTS,
MULTIPLE FOODS
HIS #
I let them pick what they thought was most important. I am pleased with it.
Take care,
mandi
wanted to add to suggest bringing your child to the show off our kids thread in off topic so he can see all the kids with bracelets. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by mama2aidan (edited January 09, 2006).]

Posted on: Sun, 01/01/2006 - 10:37am
dgood's picture
Offline
Joined: 03/27/2004 - 09:00

I would be interested to hear what everyone else suggests.
I ordered one from Medic Alert a few days ago that says,
"Severely allergic latex, all eggs, peanuts and all nuts. Use EpiPen Jr."
(this is the max that fits on her little emblem.
I didn't use anaphylactic because I didn't think everyday people would necessarily know what it meant (I didn't prior to my daughter's allergies). I listed latex first because I felt emergency personnel would need to be aware of this. It's easy to forget to tell them when there is another issue at hand.
I also didn't say "tree nuts" because, again, I don't know if everyone knows what nuts are from trees.

Posted on: Sun, 01/01/2006 - 11:48am
lmw's picture
lmw
Offline
Joined: 11/12/2005 - 09:00

When my dd was diagnosed as allergic to almonds and hazelnuts, about 10 years ago, I was told to get her a medic alert bracelet. At the time, the forms were available at the drugstores, and mailed in. I wrote ' allergic to almonds, hazelnuts, has Epi-Pen' on the form. The bracelet I received says 'allergic to all nuts, needs Epi-Pen'. Whether it was a space thing, or what, I never changed it - she IS allergic to nuts, who cares what kind! (this was 10 years ago, and in Canada)

Posted on: Mon, 01/02/2006 - 4:50am
lilpig99's picture
Offline
Joined: 12/22/2005 - 09:00

hi!
I just ordered two bracelets. My dd had TNA and this is what we had engraved:
'asthma
anaphylaxis to cashews, tree nuts, peanuts'
I did not have 'admin. epi pen' engraved and am now wondering if I should go ahead and change it (will cost me another $40.00...shoot!) My daughter is only 5 and the only time she is in the care of others is at preschool and they know they'd have to give her an epi. Should I re-engrave anyhow? Help?
Anyhow, I think the fact that all sorts of nuts are engraved on my dd's bracelet...one would assume that is what the problem would be..at least I'd hope.
Good luck to you,
Jill

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