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Posted on: Sat, 02/06/1999 - 5:35am
tracy's picture
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Joined: 02/03/1999 - 09:00

<p>Regarding the correct dosage of the epi-pen jr, I agree with *all* of you about the need to administer the epinephrine immediately versus taking the time to find the vial, tap out all the air bubbles, break the top of the glass vial open, get the syringe, prep the syringe, measure the correct amount, and the stab it in -- these are the steps the nurse led us through. She neglected to mention what we do when we acidentally fumble the vial and spill the epinephrine everywhere (I forgot to ask about this too because I guess I was too freaked out at the time). </p>
<p>In addition to these 2 doctors, my husband is being ultra-conservative about this, which I think may be in response to the stress we've both suffered since learning about our son's allergy -- he has supported both doctor's opinions, and my comments right now aren't convincing him. However, in the event of an emergency, I'm probably going to grab the one epipen jr that we have.</p>
<p>Again, we are going to another allergist, one who specializes in children's allergies, so I'm going to bring this issue up with him.</p>
<p>Regarding anaphylaxis, our first allergist diagnosed my son based on his first reaction:<br />
"anaphylaxis: possibly to peanut"</p>
<p>(This was before the blood test confirmed he had a positive allergy.)</p>
<p>During this first episode, my son vomited, his face swelled and got red, he itched and he got a few hives. This is what we told the doctor. To my knowledge, my son did not have problems breathing. We gave him benedryl, he threw that and the rest of his stomach up all over me (I was dripping, head-to-toe), we gave him more benedryl and he was fine.</p>
<p>But I have also been confused about what exactly "anaphylaxis" means. I had originally thought it was a shutdown of bodily functions (breathing, heart, etc.), or something like that. Now I don't know because I've heard the term so much in reference to lots of different symptoms.</p>
<p>Just another thing to ask the new allergist...</p>
<p>I'm going to start another thread on this main discussion board titled "Questions to Ask." I've got a running list of questions I'm going to ask the new allergist and am interested in hearing of any and all suggestions. I'm learning that you really need to ask the right questions... </p>
<p>--Tracy</p>

Posted on: Fri, 05/21/1999 - 2:16pm
amraff1's picture
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Joined: 05/17/1999 - 09:00

I am glad I am not the only one who gets the run around from the Busy allergist. I am 26 and just found out that I have this allergy I got a 6 on the IGE and my rast was 969 what does this mean? I was given and Epi-Pen and Zyrtec and pantanol drops. I can practically eat nothing it seems. Is it possible to eat so much of this product that I made the allergy come out. I have been eating crunchy peanut butter as a protein. haha and just found out that all of my make-up just bought in the last year L"OREAL contains peanut oil. I was having serverely swollen eyes and hands for the past year and finally went to an allergist.
He thinks I'm nuts and so does everyone else because I keep saying WHAT CAN I EAT THAT HAS ANY TASTE. I chew or used to chew gum constantly and I love Spicy food. Now I am on a BLAH diet. I am a fat free freak but this is pathetic. I can't even put dressing on salad. HELP

Posted on: Sat, 05/22/1999 - 1:47am
Kathryn's picture
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Joined: 02/17/1999 - 09:00

Amraff1, perhaps a consultation with a dietician might help? I am also puzzled by the extent of what you can't eat. Are you allergic to more than just peanuts? My son is allergic to peanuts and tree nuts ( all types) and I have no trouble finding brands of mayonnaise, salad dressings and other packaged foods that he can eat. I do check ingredients and call manufacturers if they do not specify the source of plant or vegetable protein on their listing. If it is not a peanut or tree nut protein then it is safe for Troy. He does not react to any other legumes such as soy or peas. Our allergist told us to be aware of related food families but also told us that if Troy did not react to other foods then they are safe for him. In fact, Troy tests strongly positive for egg allergy but can eat cooked eggs, probably because the egg protein is changed slightly when it is cooked. It is hard living with this allergy and avoiding the things you have to, so you need to know very definitely what they are, what you actually react to. Just my opinion but maybe a consultation with another allergist might help also?

Posted on: Fri, 06/02/2006 - 5:23am
tidina's picture
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Joined: 01/26/2005 - 09:00

my sons bloodwork has two numbers on it. the one with the >35 and then a different number underneath it. a few nuts came out as absent but the number under them was low or moderate. we were told to avoid all nuts. do the two numbers mean two different tests are done and came out with different results? help?

Posted on: Fri, 06/02/2006 - 6:32am
luvmyboys's picture
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Joined: 05/25/2006 - 09:00

Maybe I can help if yours is the same as mine was...Mine gives 2 numbers (ku/L which goes from <0.35 to >100 on the scale and % response which goes from <70 to >6000 on the scale). My readout says...Immunocap allergen results may be expressed in either ku/L or as a % response of the patient response compared to the 0.35ku/L calibrator. Ku/L is preferred by the majority of physicians. Anyhow, 0.35 ku/L or higher and 71 or higher in % response are a positive result.
I THINK the % is an adjusted number based on your reading for something you tested negative to, but I could be totally wrong on this.
luvmyboys
luvmyboys

Posted on: Fri, 04/25/2003 - 2:54am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

I have three thoughts about this for you:
1. Is it possible that a mistake was made in processing your test (I am assuming this was a RAST test of some sort)? Are you sure that the test was measuring "peanut specific IgE" and not total IgE or IgG? It is also possible that the test procedure wasn't followed correctly- that the lab made a mistake, in other words.
2. While rare, it is possible to have a RAST result which shows few antibodies but to still have clinical symptoms of allergy- have you considered a skin test to complement the blood test? (If you have a positive skin test, this would explain a lot)
3. Is it possible that you are actually allergic to something other than pn? Like tree nuts? Or soy?
Unfortunately, I think you will have to insist that with your reaction history, more testing is ESSENTIAL. You cannot simply accept the "no allergy" result on this test.
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Good luck with this.

Posted on: Fri, 04/25/2003 - 4:14am
Anonymous's picture
Anonymous (not verified)

My son, now seven, tested negative on the CAP RAST last year. He has experienced 2 anaphylactic reactions, and has also reacted to cross contaminated items. His last skin test was 2 years ago, not only was it positive (17 mm wheal w/ psuedopods), but he physically reacted with diarrhea, throat itching, and cough. He underwent a food challenge and experienced a reaction. Two months later he reacted again while on vacation. Just thought I'd let you know that you're not alone in this confusion!

Posted on: Fri, 04/25/2003 - 6:43am
Sandy's picture
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Joined: 05/27/2002 - 09:00

Even though your blood test was a 0 doesn't mean you are allergy free.
My son's blood test was a 0 on shellfish, but when he went for a skin test afterwards it said he was a 3!! The allergist suggested NOT to eat shellfish.
I know it is confusing. Try a scratch test. Or better yet, a controlled test in the hospital.
good luck, and stay away from peanuts.

Posted on: Fri, 08/25/2006 - 7:17am
kandomom's picture
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Joined: 01/12/2006 - 09:00

Personally- I don't need to know a number, but many people do like to have as much information as possible. To me, allergic is allergic. My DD has only reacted w/ hives too (18mths) and she is now 10 ans still allergic. She has never had a RAST (blood) test, but has been skin tested.
Looks like you are on the search for allergist #3!
In the meantime, do you have an Epi-pen? Read labels, stay away from peanuts and avoiding tree nuts until you child is older is a good idea.
You don't need to test yearly (skin prick or blood), but many people do. Again, to get as much info as possible.
The number from the test does not predict the severity of reaction and reactions can worsen upon subsequent exposure.

Posted on: Fri, 08/25/2006 - 7:40am
Sharonagain's picture
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Joined: 08/13/2006 - 09:00

Hi. We have Epipens. The allergist told us to give him shelled walnuts, etc. when he can chew better since the mixed nut skin test was negative. He has eaten honey nut cheerios, and probably other things with nuts for the last 6-8 months with no reactions. I am calling the companies whose packages say "may contain tree nuts" and ask them if they use peanuts, peanut oil, etc. in their facilities. If they don't, we are continuing to give him these foods since he is not allergic. It is possible that he could become allergic to tree nuts, but he could also become allergic to milk, eggs and a variety of other things, too.
Sharon

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