Avoidance -vs- therapy for food allergies

Posted on: Mon, 12/31/2007 - 6:57am
Invisible's picture
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Joined: 08/08/2007 - 09:00

I see there are two sides (basically) on this board.

Those who do a "strict" elimination and avoidance to peanuts (and others)... and those who are trying various "therapies" to "desensitize".

Have your feelings changed over time or were you always sure you would do one or the other. And do you feel you have a risk taking personality or a cautious one?

Posted on: Mon, 12/31/2007 - 8:26am
maphiemom's picture
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Joined: 12/01/2005 - 09:00

When I spoke with my childs doctor about treatment, that is only offered for children who are air born very severe, there is a medication but it is very expensive.
I have not been offered a treatment in desensitizing, I can't say how I feel about it , that is tough, I probably be open if a study and doctor near here was offering such a treatment.
I have no problem with strict avoidance, I assume my daughter would explore other options as she becomes an adult.
Good question.

Posted on: Mon, 12/31/2007 - 11:50pm
Mrsdocrse's picture
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Joined: 01/16/2007 - 09:00

I have heard of it... I asked the dr and he said that only the very severely allergic would benefit from thereapy. I do not think they are still doing it because it is dangerous.

Posted on: Tue, 01/01/2008 - 2:07am
CorinneM1's picture
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Joined: 06/20/2002 - 09:00

If our hospital was to due introduction therapy (like Duke) I would consider it. We are at Children's in Chicago and we are part of the food allergy study, which currently is simply visting them every 2 years so that they can talk blood from our son and us (parents). They also do a scratch test.

Posted on: Tue, 01/01/2008 - 8:23am
doofusclo's picture
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Joined: 12/03/2006 - 09:00

If our allergist offered a therapy we would be in. I think you are assuming therapy is a widely available. Valid therapy isn't available either through our allergist or pediatrician. As I understand it the spots in the therapy studies are rare. There were 8 or 9 children in the Duke study for phase one of the peanut study. The next few phases will include more people.
Our allergist is Dr Wood and if he wanted to include my child in one of John Hopkins studies I would be participating unless he felt it was unsafe.
If you are speaking about NAET as a form of therapy I haven't spoken with a doctor who has thought it was a valid therapy. Having said that if it works for you good, but I follow what my doctor advises.
Cindy

Posted on: Mon, 12/31/2007 - 8:26am
maphiemom's picture
Offline
Joined: 12/01/2005 - 09:00

When I spoke with my childs doctor about treatment, that is only offered for children who are air born very severe, there is a medication but it is very expensive.
I have not been offered a treatment in desensitizing, I can't say how I feel about it , that is tough, I probably be open if a study and doctor near here was offering such a treatment.
I have no problem with strict avoidance, I assume my daughter would explore other options as she becomes an adult.
Good question.

Posted on: Mon, 12/31/2007 - 11:50pm
Mrsdocrse's picture
Offline
Joined: 01/16/2007 - 09:00

I have heard of it... I asked the dr and he said that only the very severely allergic would benefit from thereapy. I do not think they are still doing it because it is dangerous.

Posted on: Tue, 01/01/2008 - 2:07am
CorinneM1's picture
Offline
Joined: 06/20/2002 - 09:00

If our hospital was to due introduction therapy (like Duke) I would consider it. We are at Children's in Chicago and we are part of the food allergy study, which currently is simply visting them every 2 years so that they can talk blood from our son and us (parents). They also do a scratch test.

Posted on: Tue, 01/01/2008 - 8:23am
doofusclo's picture
Offline
Joined: 12/03/2006 - 09:00

If our allergist offered a therapy we would be in. I think you are assuming therapy is a widely available. Valid therapy isn't available either through our allergist or pediatrician. As I understand it the spots in the therapy studies are rare. There were 8 or 9 children in the Duke study for phase one of the peanut study. The next few phases will include more people.
Our allergist is Dr Wood and if he wanted to include my child in one of John Hopkins studies I would be participating unless he felt it was unsafe.
If you are speaking about NAET as a form of therapy I haven't spoken with a doctor who has thought it was a valid therapy. Having said that if it works for you good, but I follow what my doctor advises.
Cindy

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