Asthma/Anaphalaxis Symptoms to close to tell

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Okay, No I am not new to this.Have been doing the whole pa/tna thing for 9 years. Here's the thing: Bryson has had a classic anaphalactic shock reaction to peanuts 1 time. Now that school is starting tommorrow I keep having this thought pop into my head: When this reaction was happening it was so close to his severe asthma attacks how would I know or anyone else know the difference? I am certainly not convinced I would know! Reason I am having these thoughts is b/c 2 weeks ago while at a family members house we went on a hay ride and Bryson puffed up his whole face his lips everything.He started to wheeze,glazed eyes,grey skin the whole 9 yards I knew he didn't have anything to eat he was not supposed to but you never know what kids eat while their parents aren't looking.(Have never had Bryson eat anything without my permission ever)but again you never know. So,how would I know? Even our pa action plan is to close to asthma which he of course has too! ~Jenna

On Sep 6, 2004

Hi there,

I think maybe you should ask your doctor for the difference in symptoms. Perhaps he/she can best describe it?

My son has asthma, but has [i]never[/i] had an asthma attack, if that makes sense. His asthma is cough variant asthma and is directly related to his environmental allergies. He has had some bad episodes of continuous coughing but never to the point of choking off his breathing. Sorry I can't help you more.

I definitely can recognize an anaphylactic reaction. But the symptoms you described, I would think that was anaphylactic! What does your doctor think?

Good luck. All the best,

On Sep 6, 2004

That's just the thibg it wan't a reaction to anyhthing! It was an asthma attack solved by simple ventolin. He has every type of asthma there is catogorized as severe.Does not matter what steroid he is on what allergies are bothering him or not bothering him he will have an attack. he is allergic to anything god made.To stop the attacks I would need a bubble world for him to live in. It is the doctor who makes up the action plan for both his asthma and his pa/tna and I read last years and there symtoms are the same.Exactly.I would be able to tell if were home b/c ventolin gives pretty quick results.It wouldn't if it were anreaction. H e has never had a reaction at the school but has had an attack of asthma. The school is allowed to give him 2 puffs in the morning or in the afternoon if he requires more they are to call home for me to pick him up.I imagine if he were to either have a bad asthma attack or reaction to anything they would call immediately. I will definelty be making an appointment. ~Jenna

On Sep 6, 2004

About 2 or 3 years ago, before we were better educated about PA, my son had an episode where he was having serious breathing diff. I rushed him to the ER where his pulse ox. level was 88. They couldnt get it to go up. Finally they gave him racemic epinephrine. He got much better.

After we switched allergists, I asked him if that could've been an allergic reaction. His response was "yes, but whatever it was, you should've used the Epi anyways, it would've helped his breathing instantly."

I don't know if this will help you at all, but if they use the Epi it will help, not hurt. How often does he have these serious attacks? If they are not often, you may want to be safe and have them use the Epi if they are unsure.

On Sep 7, 2004

I hear you Jenna, especially since my PA son's last two reactions were very atypical for him. No hives at all, but his voice got very high and squeaky (think Mickey Mouse on helium), said his throat was squeezing, and then he started wheezing. Much more like an asthma attack than a reaction, but they were definitely reactions.

The truth is that for a severe asthma attack, the treatment is basically the same (although for a reaction we would also give Benadryl). Nevertheless, it is unnerving.

Amy

On Sep 7, 2004

Hi

When I was little, ventolin didn't exist. Many times the treatment I received for my severe asthma included an injection of adrenaline (also known as epinephrine, which is, of course what is in the epipen).

In my experience with my own asthma and my son's severe asthma, there is no way a severe attack will be resolved with just two puffs of ventolin. If my son has an asthma attack that is that severe I would expect him to be sent to emergency where the proper protocol can be followed - at our hospital that is ventolin together with observations and proceeding to prednisone if necessary. There is no way I would want the school to deal with a severe attack - it is a risk for him and unfair to the school, in my opinion. The teachers and principals should be teaching children and not observing my child to see if he is getting better or worse. I would far rather have that done by nurses at a hospital.

Since administering the epipen will not do any harm and will help asthma anyway, at my school they are told to err on the side of caution. If there is any possibility it may be a reaction, administer the epipen and send the child to the ER. In the case of an asthma episode, administer his ventolin and still send him to the ER. If it turns out to be a reaction, my child will be in the right place to receive the proper treatment.

I admit I will try ventolin and observe if it is me at home, but at school I don't want a teacher or principal to make that judgement call since they are not as familiar with my child as I am.

take care

deb

As an aside, if your child is having frequent episodes then their asthma is not controlled. It took several years to find the correct medicine but now my son has not had a severe episode in 2 years and I have not had one in 5 years. If your doctor does not have the knowledge/experience to control the asthma I would be asking for a referral to a respirologist.

good luck!

[This message has been edited by DebO (edited September 07, 2004).]

On Sep 7, 2004

Okay,as I am reading I observe that everyone else is more observant than I am. I always think of these things once someone else has posted it. The epi-pen is prescribed for both the asthma and the pa/tna.I also never give the whole thought process for some reason. My brain focuses on one problem and next to none of the obvious solution. No is asthma is not controlled. hasn't been for quite some time now. It is frequently severe with hospital stays.I ahve done everything my respirologist has told me too.And then some.I do have an exellent family doctor who discovered that he alone couldn't control my sons asthma and sent us refferal and all years ago.6 to be exact. My son is 9. I do not expect my school and the teachers to be reading him for every sign and symptom,they do call when things are suspect immediately.They are very good. It is not just them I woory about b/c they are more likely to call for an ambulance faster than I would.They in fact took it upon themselves to registar him with the ambulance directly with the specs of his needs. With the attack I mentioned that happened 2 weeks ago the ventolin with 2 puffs as first dose did not solve the problem immediately but did bring immidiate relief. It was just so close to the raection he had at camp that I was scared,it has been along time since I have been scared of an asthma attack of his. His asthma has also never come on that fast and hard before. It usually takes 3-4 days to get that bas and by then I have already started the prednisone.This summer has been a real weird summer as far as weather goes and the weather really seems to coincide with his attacks. His pa symtoms really pose as asthma and I wondered if he is the only one? There has to be some other way od differenciating the 2 or can they really be that closley related? I guess anyting is possible. One thing I will be double checking is the epi-pen usage directions b/c I do not think it is listed as one of the in emergancy things to do as far as the asthma. I had forgotten that I could use it for asthma to be honest.Sounds bad I know but I truelly am so close to a hospital and ambulance bays that I take them for granted. That's an eye opener considering. Thanks for the reminders gals! ~Jenna

On Sep 7, 2004

Funny you should ask this because I just asked the doctor, for the 100th time, the same question.

My FA DS had to go to the doc today for non stop coughing that has been going on for a few days now. But, it started out with red blood shot eyes (FA symptom), stomach ache, pale face. Of course, the life threatening part is not gonna last this long, but it could be the thing to cause the asthma exacerbation.

A year 1/2 ago we had three episodes, all late in the night, where we had to call 911. DS couldn't breathe was looking blue, neb. wasn't helping. Ambulance got there and said I hear no wheezing, must be croup. Forgot to mention that he gets croupy with stridor when he has asthma probs.

I was not fully educated about the ana. reactions with the food or when to use the epi, thanks to a lovely allergist. We got to the hospital and they did xrays of his throat to prove that it wasn't croup. Couldn't hear asthma wheezing cause the stridor was too loud, so the E.R. doc says asthma attack. This happened three different times, this severe.

After we hashed out the incidents and the things happening in the days of the incidents, we noticed that they were either around holidays (parties at school) or they had something in the classroom (before we went PA free). Looking back, the allergist says we should have used the epi. He, of course, almost cried because he realized that saying "stay away from the nuts" wasn't what he should have said and it could have killed my son.

I have also been told by the pulmonologist that asthma and severe food allergies is a toss up and very hard to distinguish. He said to use epi first. It shouldn't hurt and then asthma meds until getting to the E.R. The food reaction could be asthma exacerbation and in my son it is. I had no reason at the time to consider this being food reactions. It was usually an hour or two after bed. There were signs ..like a lot of coughing..sounding a little croupy..before getting into bed, but how in the heck do you know it isn't just asthma or croup and not food. Days later we knew it wasn't croup because it lasted a long time and during the day as well. He also said these would be considered bi-phasic reactions. He had mild ones when he came home from school and within four to six hours had a severe one after bed.

I am not completely convinced what I will do when it happens again because it is SO confusing. Right now he is back on steriods..so what if he gets that way five days from now. Is it food or asthma attack? I can use the epi, but gosh..I would feel so bad if it didn't work and feel worse if I should have used it. I should also mention that in each of these incidents, his pulse ox was normal..98 to 99. He looked like he was dying and turning blue. After three hours in the hospital, without epi., he worked his way through it.

It took a week for him to recoup, but months for the wheezing to go away.

Sorry so long, but I am just as unsure and I feel the same about the school issue because I can't give them a straight answer to the question. My doc said to use the epi. ugh!!

Renee

------------------ Renee asthma/EnA Quinton: PA/TNA/Soy/EnA/Severe Asthma/whole egg/onion/cocoa bean/chicken/turkey/string beans/potato Mykiaja: EnA/asthma Taylor: EnA/asthma

On Sep 7, 2004

Hi again

Yes, here in Ottawa at least, this has been a particularly poor month for my asthma, which is very unusual. No attacks but I have felt "tight" often despite the advair!

My son's asthma did not get under control until he was placed on 250mg of Advair twice daily. Advair is a combination long term broncho dilator (serevent) and Steroid (flovent) and has made a huge difference for us. He is on a high dose, but we attempted to reduce him to 100 mg about 6 months ago and there was just no way.

How recent was your testing done? Could there be a new food allergy causing the problem? Try keeping an asthma diary to note when symptoms are worse - maybe you will identify a pattern. It is worth a try.

Good luck and take care

deb

On Sep 8, 2004

Well Debo we are in Ontario too and that explains alot of the asthma issues. Bryson is on 500mg of advair 1 puff twice a day as well as singular and nasonex. Nothing works I have no idea why the doctor took him off the pulmicort b/c we ahve had more episodes since he did. He wanted to try something else for summer. We go to see him next week. He will be told then that he can keep his singulair and advair.This is the second time we have had this combo and it was worse this time.The doctor seems to thik it is something I am or am not doing right. I think he can get off my case b/c I would give both my healthy lungs to my son if I thought it would work.I don't get why he is getting worse instead of better? My husband and I actually considered moving out of this province to go out west just to help him. My mom lived in Alberta for over 20 years with no problems and moved back here and flared right up and has been sick since comming back here. Don't get it.If I never hear "OH,he might grow out of it!" it would be to soon! I get awhole lot of stories and examples and such but I have been told already by several different doctors that it may ease up but will always be there. I know thta if ehw ere to have a sudden fit at school they'd handle it.I would just like to know hat the difference between them are. WE cany flr a man to the the moon,have robots on mars but a lowly peanut is not figurable? HUH? ~Jenna

On Sep 8, 2004

People can have anaphylactic reactions to many things besides food. What happened to your son on the hay ride sounded like anaphylaxis.

I might suggest you try the epi because you'll lose too much time trying to differentiate between FA and asthma.

The wheezing is also part of the anaphylaxis so it is entirely possible you are seeing that and not "just" asthma.

I mean hay is a horrible allergen, it could have been the culprit.

Peg

On Sep 8, 2004

I was just talking about this with the school nurse, because they were looking for a difference in the reactions. From what I understand from some reading, If a child has asthma and food allergies, he is that much more likely to go into shock. My son has both. And to make it more complicated, when he was 3 he woke up in the night hardly able to cry out to me because his voice box was swollen shut, we rushed him to the doctors (in Europe, another whole experience) and it turned out to be croup! He was hospitialized for croup twice and had two other bad eppisodes of it. My younger son also has asthma that we cannot seem to control, but so far no nut allergies.

On Sep 8, 2004

That whole asthma/anayphylaxis issue is confusing. My thought is that if more than one "system" is affected, it's anaphylaxis. (meaning breathing difficulty + hives or swollen lips, etc.) Or if the wheezing comes on suddenly and it's obviously not exercise-induced, then it's anaphylaxis.

I wanted to comment on your other issue of your son's asthma that's not under control. We had that problem for years. My son was sick all the time and we never knew when he was going to wake up having a severe asthma attack in the middle of the night or with exercise.

Well, for different reasons, I started using non-toxic cleaning supplies, natural soaps and lotions, etc. and his asthma has improved ALOT. It has cut our trips to the ER/doctor's office and use of meds by 75%, maybe more than that. He still has asthma and allergies, but it is under control now and much less severe. I just wanted to mention it. If you want resources, email me.

On Sep 8, 2004

Yes, I know people can have other allergies he has them. Yes it did sound alot like anaphalaxis to me and my husband but it wasn't that's just the thing. Bryson has gone into shock and I have read that it affects different systems but so does his asthma.I can't convey just how bad his asthma has been this year.Or rather this summer.I also can't convey how it was since it really was one of those you had to be there situations.Plus Bryson tends to ignore his asthma attacks and trys to work through them on his own.Kind of like when a child is first potty trained and they are to busy to bother going pee and end up leaving it untill they pee their pants you know? We bought a 1000.00 dollar air machine approved by respirologists. Wasted. We pulled all carpeting out. Not a waste since hardwood is good.I got rid of pets.I covered all pillows and mattresses.I was bedding in hot water once a week.I try not to use harsh cleaning products.I do not clean with him here anyways.Evrything we have been told to do we have done. It is frustrating to everyone that our lives seem to be taken over by this disease.I hate the meds he hates the meds and worst of all it is not the pa/tna holding him back from life. He can not go to his friends homes not b/c of the pa/tna but b/c they have animals. It sucks.Childhood for him has been limited. ~Jenna

On Sep 8, 2004

I am right there with you..**saying this as my six year old takes his night meds that would put an elderly man to shame**

Renee

On Sep 9, 2004

WEll, he's flaring really badely today!It has been about 16 hours since the first sign. It's only been a possible 2 weeks since his last flare. It'll take nother 2 days before he gets so bad we are at the hospital providing that I can't get control over it. The only thing different is the weather. It is very grey and wet outside but,not raining.Frustrating. Prednisone started.Atrovent started. With ventolin every 2 hours.Plus of course the advair at 500mg twice a day. This is how I know it is not anaphalaxis. But the attack he had a few weeks ago did not come on slowly.I am calling the respirologist now.Well, the appoinment will be next week.I will be complaing heavily to him about these "wonder drugs".Not only do they cost alot of money (I pay 100% for) they don't work! It wouldn't be such a hard thing tho hand over 400.00 a month for things that work. This will also be a very god appointment time as well b/c I need the precious school form signed and an new action plan made up to help differenciate between the pa thing and asthma. It will also include the epi-pen for asthma use as well. I guess I technically should have put this topic in the off topic board! It has turned out that it is more about the asthma than the allergy! ~Jenna

On Sep 9, 2004

MQriley: This will sound really nieve but I am unfamiliar with the term stridor? Can you clear this up for me? I was also curious about what meds your son takes? I am familiar with all the possible meds and what they do. What I am unfamiliar with is what meds will work for us! Bryson has all kinds of asthma from exercise induced to ild to severe requiring hospitalization. Even in the I.C.U on more occasions then not. I do do what I am told to do and have never had a problem with the doctors after I tell them what I was doing to prevent an attack that required round the clock obsevation in the I.C.U. They always send down 3 or 4 different people to aske the same bloody questions to get the same answers and it is only after the 4th person comes down that they are satisfied that I was doing everything I possibly could. Makes me feel reall inadequite Sp? AHHHHHHHH! Stressing. ~Jenna

On Sep 9, 2004

Forgive me if this was already said because I didn't have time to read the entire thread and wanted to respond.

PA DD has asthma. She has never had respiratory distress due to peanuts, as far as we know, though she has been in acute respiratory distress due to asthma.

During one particularly bad asthma episode, the covering pediatrician gave her an epi-pen in his office when usual meds were working. I didn't know it was a med for it.

Did a search on google for epinepherine asthma and got several sites, including this from [url="http://survivingasthma.com/Shots.htm:"]http://survivingasthma.com/Shots.htm:[/url]

"The Epi-Pen is wonderful. When suffering from an asthma attack, you can give yourself an Epi-Pen (Epinepherine) shot and will make your breathing easier until you can get medical attention. Nevertheless, remember it contains adrenaline. It releases adrenaline but in a smaller quantity than the shot you may get in a hospital or your doctor's office. The Epi-Pen is a lifesaver. This drug will also save your life if you have major allergic reactions to eggs, milk, bee stings and other allergens."

So from my perspective, as far as treatment is concerned, it doesn't matter which occurred, asthma or reaction. After a reaction, however, I always trace the source of the reaction so I can prevent the same mistake from happening again. If I can't find the source and it was only respiratory, I'd assume it was asthma.

BTW, my PA child is anaphylactic to hay.

On Sep 9, 2004

I raised an older thread in the Main Discussion Board with similar question. In that thread, a physician posted. Thought you might find it helpful.

My 6 year old son has asthma as well as PA and I've asked the same question to my doctor. His final answer, if respiratory symptoms only, give ventolin, repeat in 10 minutes (or less),if there is no effect. If he is still in difficulty, give epi as it will open his airways whether they are narrowed from anaphylaxis or asthma. Talk to your doctor, you may get a different answer but this is what we were advised to do. Every child is different.

Take care,

Katiee

On Sep 9, 2004

Stridor is that horse cough when they breathe in and out. You know, the one that you can hear a block away and sounds scarier than it really is (that is when dealing with croup). It is really scary when dealing with asthma.

He gets stridor because his throat swells and becomes so irritated (this is the only theory the ENT could come up with) from coughing unstoppable and breathing so fast. This is why it has been so confusing for me cause..why is his throat swelling? only thing I can think of is food, especially when his neb. doesn't work. And since food can take some times cause a reaction or a bad one, it makes it really hard to know if he has come in contact.

My DS is on pulmicort respules .50mg two times a day in nebulizor (sp) and albuterol in neb. four times a day. Two puffs of albuterol at noon at school. Singulair, one tablet a day. Epi-sol nose spray. And then of course the on again off again oral steroids when ever necessary.

He was on a lot more but I finally said NO more. He is also having a hard time this week. Wouldn't stop coughing and finally put him back on prelone for five days and his neb every two to four hours. Then our A/C went out today..ugh it is awful for him.

Have you had a C/T of his sinuses? Most of my son's asthma exac. were from sinus infections. He had to have two sinus surgeries and multiple..(10) cat scans of his sinuses. He has had completely full sinus cavaties since he was one with the SAME infections. Finally ...as of last week..the last scan said it was gone..YEAHHH. And then he starts with another asthma exac. I don't think it ever ends!

Send me an email if you wanna chat. I know there is one other person who also deals with this on this board so we are not alone.

Renee Had to add..holy cow!! I didn't know that the epi would work for asthma. You just do not know how good that makes me feel. Now I will not hesitate because it will relieve him when his meds won't. I wish my docs would have told me that! ------------------ Renee asthma/EnA Quinton: PA/TNA/Soy/EnA/Severe Asthma/whole egg/onion/cocoa bean/chicken/turkey/string beans/potato Mykiaja: EnA/asthma Taylor: EnA/asthma

[This message has been edited by MQriley2 (edited September 09, 2004).]

On Sep 9, 2004

Just returned from E.R.Respirologist came down from his office. That was really wonderful, he is not required or paid to do that.He does work in the same hospital though. (politics ) thought it was great of him. Bryson went in and his stats were loooow! 88 to be exact. That is terrible despite that I had given him ventolin every 2 hours the school called and Bryson said not to come get him. Perfect example of him trying to pass it off as nothing. I of course went and got him and rightfully so. The Resp. doc(his not the e.r's)said to keep appointment for next week which I will for sure there was no doubt.Said we would be getting a new review and acton plan. He also said not to bother with refilling the singulair b/c it was obviously doing nothing. (not first trip to e.r this summer since starting singulair) I will definetly bringing up some very good thought provoking things that Laurensmom and MQriley2 brought to my attention. I did not know it was possible to be ana. to hay!:O nor had even occured to me.Me the queen of allergies! The whole sinus infection! Hummmm... I have chronic sinitis have for quite along time(due to broken nose,eye socket and cheek bone) but again never thought to question that. Feeling alittle dense about now!SO, obviously he has not had a ct done. Funny too b/c this morning I was thinking of giving him a sinus pill.Came down to over drugging him and decided not too. Bryson was given a drug I have never heard of before today. Dexamethasone? Supposed to be prednisone only hopped up.Looked it up,no different principle than prednisone except it works faster for longer.Only have to take it for 3 days instead of 10. That is a good thing 10 days of prednisone is hell.The nurse was telling me that they taste test everything there when they first start,helps them to understand what they are giving to thier patients! Immpressive! I do the same thing. I will also be asking about going back to the nebulizer just for the daily preventitive steroids they seem to work better via nebulizer. Despite the fact that I have been told they don't. My thinking is this about that: he does not have to coordinate his breathing to get the full benefits of the med.It goes deeper b/c he is not trying to hard therefore works better. Doesn't that make sence? I know that when he is having out of control asthma I give ventolin via neb. and it seems to work better. He doesn't have to work for the relief.Just a thought. His resp.doc knows I want a new action plan for both asthma and pa/tna so he'll have it ready he said. I hope his night is better than it was last night. I would also like to add that his school did a terrific job off handleing him today. They called for me to come get him and when I got there the priniple was with him and the teacher was just comming to check on him [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] couldn't ask anymore than that. ~Jenna

On Sep 14, 2004

WEll,had my answers given to me on a rather stiff note yesterday. I was questioning if Bryson's action plan had in it to use his epi-pen for asthma. The answer was NO! Yesterday was his b-day it started out horrendous. He left for school at 5 minutes to 8 so he could make try-outs for the cross country team. >at 10 minutes past 8 the Vice Prin. calls says he needs his inhaler but it's empty (why he has an empty inhaler at school when I dropped a full on off last wednesday?)I told her so and said goodbye all in a huff. >I run around getting dressed yank baby out of bed get him dressed >as I am getting him dressed and grabbing new inhaler my phone is ringing i ignore it b/c I know it's the school and I am on my way >get to car phone there is ringing too I buckle baby in and off I go >get to school wher v.p is outside watching for something (had a feeling)I run in fast as I can carrying a 35 lb child who is now stiff and unwelcoming to this awakening >people all around clear way for me to get through I grab old inhaler and YEP! it's empty! I threw it across room and hit the garbage can on the first try while plugging new inhaler into areo-chamber >then I get my first look at my b-day boy! > thta was a schock and a half in and of itself just the look oh him >am told the ambulance has been called >try to get some puffs into him which was in vain it was way past inhaler ask where his epi-pen is handed the epi and ambulance finnally arrives >his blood sats are down to an astonishing 79 they take off with him sirens and lights that scares the hell out of me when they have my kid in there and using that it means get out of our way we have situation here. >between the first call and the second to tell me ambulance called was a possible 2 mins between second and the arrival of said ambulance was almost 13 minutes! I told principle that epi-pen was for asthma too but unfortunetly since it was only 8:30 she would not have received the revisions I made to medicinal administrations. So,I left peeled into friends house just about through baby at her and screaming "I gotta go Bryson's in ambulance" I spilt got to hospital and it was like nothing happened! His breathing was back to normal. I know that at that time of day traffic is bad and I am not that far from sick kids but it was about 15 mins before I got there. Was immediatley questioned about his allergies but I knew for fact it was not that(PA) b/c of the circumstances.They said no not likely but they wanted to be sure what Bryson had told him was correct.He's so aware of what the doctors need to know and that is heartbreaking. There was nothing Bryosn said to them that I wouldn't have and he missed nothing even told them about being on the dexamethasone last week name and all! Let me discribe here what he looked like: Ever see a burn victim just healing? When thier skin is really white an splotchy? That was him.He had a rim out pure white around the outside of his face,white rim around moutn,with purple/blue lips,white rim around his eyes like a coon.Where it was not white or purple it was a colour red I have never seen in my life.Yet he was grey? does that make sence? I am proud of my school they did exactly by the book what his action plan said just faster and they couldn't have done better with the information they had. The other kids on his team were spectacular they raced into action mode they did not skip a beat. The coach had just told them about hte girl on thier team with a heart condition and what to do. These children did for mine what was supposed to be for her. one child stayed with him ,one ran for the coach,one ran for the priniple.No one panicked or hesitated. The nurses at the hospital were wonderful. They found out it was his b-day went and got a gift for him.The docs were great. In all this bad I now know my school will be able to handle it. He is home with me today just for morning. Wants to go this afternoon. We now have a perfect example of when and how to use epi- what it looks like. The school was only going by what I said.I know this is the worst way to see it but it is also the best b/c now there is no doubt. It did look very much like ana.shock. This was his first exercise induced flare I have nenver seen it quite like that.Have appoinment with resp on friday and new action plan ready for his approval. ~Jenna

On Sep 14, 2004

Holy Cow Jenna! Is he ok now? What a birthday [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] . How scary though. My son had an episode, I don't know if it was croup, a reaction, or asthma, but his sats were at 88 and I panicked! I can't even imagine what he looked like at 79.

So what did they do for him at the ER? You def. need to see the resp. to get this under control. I might hold off on the cross country for a while too.

I really hope he is ok. I can sense the panic in your writing, so I hope you are ok too.

On Sep 14, 2004

He's great now was fine ten minutes later in fact.They didn't really do anything for him in the e.r. They gave him ventolin via nedules and some oxygen but that's normal when he's there nothing different. He of course is on prednisone for 5 days.He is usually at 88 when I take him in for one of his "normal episodes. He was not even supposed to go to school today but,he did after lunch. He also went to cross country practice after school. I went with him and he was a bit wheezy (to be expected)and I only let him do 2 laps instaed of 5 with the instruction stop immediatley if he was having a problem.He was in need of his inhaler after the 2 laps but was at a "normal" wheeze. I know my judgment may be "suspect" or even considered "impaired" however there is method to my madness. I have always tried to teach him that the disease DOES NOT control him.He had said last night that he was never going to do cross country or antything like ever again. I told him he would change his mind when the fright wore off. Didn't take long! As for the resp. appointment I have had this appointment since the 9th and even if this wasn't happing I would still be going. Now I will for sure.He's good now I'll post updates! ~Jenna

On Sep 15, 2004

Poor baby. Tell him to be careful and thank his friends and teammates. And tell him happy birthday.

Did the hospital put him back on the prednisone? It sounds like he needs it a few more days at least. After one my son's asthma hospital stays the doctor said that even if his wheezing goes away for normal activities it might take awhile for his lungs to improve enough so that he could exercise without having asthma.

Good luck to both of you.

On Sep 15, 2004

Jenna, Glad he is feeling better.

And to you...big hugs...I know after an exeperience like that, I'd be shaking for days.

On Sep 15, 2004

Jenna,

I feel so bad for you and your son. What an awful birthday. I could only hope that my son adjusts and overcomes so easily when he is as old as your son.

I also have severe asthma, mostly exercised induced. I know how he feels and what he was going through. As a young child, I played every sport, no matter how I felt. Sometimes, this would leave me out for weeks because I never gave myself time to heal.

Now that my son is like this, I have mother paranoia. I have also told my son to not let this disease control him and he is as active as they come. I was wondering though, has your doctor told you to keep him out of activities for a week or so to let his lungs heal?

We just finished our five day course of Pred. and the doc said that if I notice wheezing, shortness of breath, coughing,etc.. then he should stay out for the duration of the steriods and then see if he improves this week, which he has. His pulse ox was not low and the last time it was, they made him stay out of physical activity for two weeks. He had to have a normal week of breathing/pulse ox.

I know your son wants to play, but do you think sitting out for a week would help him fully recover instead of a day? I am sure you have dealt with this before and maybe it doesn't really make a difference if he waits, but for myself and my son the extra few days helps a lot. I hope your son gets better and I hope that he can continue with his running. As he gets older, the exercise will do wonders for his asthma control.

Renee

------------------ Renee asthma/EnA Quinton: PA/TNA/Soy/EnA/Severe Asthma/whole egg/onion/cocoa bean/chicken/turkey/string beans/potato Mykiaja: EnA/asthma Taylor: EnA/asthma

On Sep 15, 2004

Thanks all,I really need to know I cn spill this out to peeps who are listening.I am not for one second calm cool or collected. I can just win oscars for my performances that's all.I am not a panicker,never have been,I do not know where that comes from b/c you would think with all the stuff I have gone through with him in 9 years I would be a basket case.My fight or flight instinct kicks in really quik. Bryson has never seen me cry over him when he's sick and if I have anything to say in that matter he won't see it.That does not mean I don't cry far from it! I do talk to myself alot when things are bad and the main dialog is "get a grip! this is not helping or productive,Bryson's counting on you to be his rock" it works and I have to do it he has enough going on than to worry about me. I called an ambulance for him before and he was apologizing to me! Wanted to give me his allowance to help pay for the ride!he knows things are not free he sees the news and the way our health system is going he is a very intelligent kid (I will brag here about the 10 A's he got on his last report card!). The doctors have never told me to hold him back.Maybe I should have yesterday but,he really wanted to try again. I could've said NO WAY! but that only hinders him. I just decided to control it alittle more and say only half a practice and I am comming(he rolled eyes at this). I have kept him home before when he was sick with pneumonia and admitted to hospital even though the docs said he was good to return to school. The resp. appointment on friday will give me more oppertunity to seek a educated opinion on what sports he should be in.However whe I told him 5 years ago I put him in hockey he actually told me I probably wasted my money as Bryson wouldn't likely be able to tolerate the cold and the exercise togather. He was so wrong! Bryson has had a total of 3 incidences where he needed his puffer,2 of them were this summer! Not to worry though I have kept him from hockey when he has had a paticularly bad day/week or night with his asthma. This is emotionally draining.I hope we can figure out a good drug plan for him that actually works. ~Jenna

On Sep 15, 2004

Jenna- Hugs your way. Paula

On Sep 15, 2004

TY!

On Sep 15, 2004

Beyond Medicine For Asthma Changes in the home environment can be as powerful as medications in treating asthma, according to an exciting study in the September 9, 2004 New England Journal of Medicine. Researchers in the Inner-City Asthma Study Group followed almost 1,000 elementary school children with allergic asthma severe enough to require at least one hospitalization or two emergency visits. The study lasted for two years. Half of the children received routine asthma treatment. The other half had 5 to 7 home visits by environmental counselors during the first year of the study in order to identify and reduce allergens in the home. The visitors looked for dust mites, passive smoking, cockroaches, pets, rodents, and mold, and helped with home changes depending on the child

On Sep 15, 2004

Check,Check,Check,Check,Check,Check and Check.All that is done to my home and in his room.Then even more!Carpeting removed,pets never in this home.No smoking. Central air,hepa on furnace,hepa on vaccum,and a hepa machine seperate. We did go 2 years with no hospital visits let alone stays.Do not know what is suddenly up with him.New allergy? I thinkit is drug rejection,immunity if you will. That study is pretty acurate considering we were not in a study I was just following doctor's orders.I wonder why he didn't mention the fact that less attacks means less scarring of the lungs? Asthma attacks scar lungs every time. Bryson missed a total of 4 days last year from school and 2 od those we for dentist and regular check up at gp. We were doing really really well.Hadn't been on prednisone for over a year. But the study showed nothing new to me thta I have ot done. I also wonder where it was done in the u.s? Beacuse it cost 1000.00 just for the air filter I have.Cost nothing in the grand scheme of things really. Where did you find that study? Were there more? Anything I am not already doing or thought of I am open to trying [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]I was actually told to start giving him caffein! In tea or something wonder if that would help? Interesting thought though. Thanks for the suggestions I wish I wasn't already doing them,then I could atleast do something! Instead of just standing idly by feeding him streoids. ~Jenna

On Sep 16, 2004

HI Jenna

When I was younger I was told that the tannic acid in tea could actually help asthma and my Mom often gave it to me.

In my own personal experience, one of the biggest problems is the flushed feeling I get when I have an attack. Once I am in full wheeze the panic sets in because you can't breathe so you breathe faster and wheeze more. I will often use a cup of tea or even just hot water to help. Drinking the liquid forces you to regulate your breathing - you have to pause long enough to swallow. And the hot liquid also helps relax the tension.

This is no way an alternative to using ventolin or going to emergency, but it has helped me to learn to control my asthma more instead of it controlling me. The key for me when I was young was to stop that extremely scary feeling that makes you panic.

As an aside, does your son swim? Swimming was also great for me as it made me more aware of breathing, rhythm and controlling my breathing. Singing lessons are also good because a big part of them is learning to control your breathing too.

I hope the respirologist is able to help and wish you the best of luck!

take care

deb

On Sep 17, 2004

The whole tea thing was never meant to compensate for ventolin,just to maybe enhance his immune system or boost it? The caffeine is supposed to make it your immune system speedup or something like that.Since he is on steroids daily his immune system is weaker then a normal child's should be hence making him suseptible to colds and pnuemonia.He has actually never had a cold and I did question the respirologist about this and he said Bryson's pnuemonia was likely the result of a common cold.The common cold just attacks his lungs almost instanly. Made sence. Now for the visit today.... His breathing is on target couldn't be better in fact. He is also on prednisone still though. Last thursday when i took him to the e.r they gave him 3 days worth of dexamethasone.Same as prednisone. The resp.doc said that monday's episode was likely the result of him not getting quite enough of the dexamethasone to completly calm thursday's episode down,so by monday it was likely almost out of his system hence the severe attack.He told me the next time to tell e.r docs to stick with the 5 day oral prednisone. Something in which I am familiar with and know that it should be so much for 5 days and can judge for myself. I aggree. I asked why the sudden flare ups and he said it was a combination of last thursdays attack and the pollen counts this year are elevated to extremes. I already knew that part. I did mention the whole ct for his sinuses,he said he doubted there was a problem there but it was still worth having it down to make sure.First valid suggestion I've ever had to give him.Thanks MQriley! So,we will be going for one of those.I have had one on myself this is how I know my sinuses are uchered! This the one where you are in a tube right? I have had an mri as well but don't remember and would like to prepare him as I do remeber the panic I felt having both thins done.It was on my b-day 7 years ago I had new boyfreind and new house I was totally not hinking I would ever need to really remember! The doc says he's good to continue on with all sports as is. Except of course to pre-treat him with 4 puffs of ventolin instead of 2. Thanks all for comming to my "side" with support and suggestions! ~Jenna

On Sep 17, 2004

Jenna

I am glad he is doing much better. I am also glad your doc was will to accommodate you with the ct scan. I know it took us forever to start with those and now he has them regularly. It is not the complete MRI machine in a tube. It is only the small circle that goes round and round. It is not very wide.

You sit on the table stomach down with chin sitting on the table looking out the other end of the cylinder. Then they move the table so that just your head is inside..it is not enclosed at all...and it goes round and round. Take anywhere from 2 minutes 5. My three year old has been doing them since she was two so let him know it will be okay.

A lot different than those suffocating MRI's.

Renee

On Sep 17, 2004

What is going on with this thing tonight?

On Sep 17, 2004

I have typed this twice already! Went blank on me. MQ: Did I not e-mail you? I thought I did? Maybe it did not make it to you? Should I try again? The original message I typed 2 times I am not doing it again [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]I am sick of my own voice! ~Jenna

On Sep 17, 2004

[img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img]I really didn't know you could be anaphalactic to HAY! Lauren's mom said so and guess what? She's right.I forgot to mention this in my first post after resp. appointment. I told him what went on and he said that it likely was a severe reaction and that Bryson wouldn't be allowed near they hay at the farm and espeically on the hay ride! This would also explain the horse thing too! It is not the horse so much as it is the hay! I didn't know you could be ana. to env.allergies! So,he said that if I must go to the farm(which I must) to keep him out of the barn and off the hay and to use epi for that as well. Instead of growing out he is growing more allergies.Sucks but at least I know what is going on.Good thing we are not menonites! No offense intended,although I am sure there would not be any menonites here. But,seriously wouldn't that be aweful if we made our livlihood from farming and had Bryson? I love the farm but not that much! Going to farm for grandad's 80th tommorrow as a matter of fact. Atleast Bryson can still ride the tractor! ~Jenna

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