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Posted on: Fri, 05/02/2003 - 5:54am
MeCash's picture
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Joined: 04/18/2001 - 09:00

Sounds like you're doing great, becca, with your daughter. That also sounds like a great school. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
Regarding your hearing issues in bars and with competing noises, one last recommendation to look into. Central Auditory Processing Dysfunction (CAPD - my son has it) is multi-faceted, and one of the symptoms of it is not being able to differentiate different/competing sounds. This can be very distracting and annoying, as I, too, have this problem. My son's was so bad, combined with hypersensitive hearing, that he would cover his ears and scream at loud sounds (motors, alarms, fire engines, rides or parades and more). His hearing 'acuity' is perfect. But, I knew there were issues with his hearing and had him testing by an audiologist who can do testing for CAPD (also common in children with autistic spectrum disorders).
We did AIT (Auditory Integration Training) about 1.5 years ago with extreme success. It was a 10 day program of listening to about 10 minutes of scientifically enhanced audio. To be honest, I'm not exactly sure HOW it worked, but he doesn't cover his ears and scream anymore and get annoyed with ME for not being able to hear him if the TV is on, music is playing or people are talking.
Try a search on either Central Auditory Processing Dysfunction or Auditory Integration Training. There are also some home programs that can help with this, too, but I didn't try any of them. And this disorder can be caused by certain ototoxic antibiotics.
~Melanie

Posted on: Fri, 05/02/2003 - 5:59am
MeCash's picture
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Joined: 04/18/2001 - 09:00

This is a long link, but one of the better ones on CAPD:
[url="http://www.ldonline.org/ld_indepth/process_deficit/capd_paton.html"]http://www.ldonline.org/ld_indepth/process_deficit/capd_paton.html[/url]
~Melanie

Posted on: Fri, 05/02/2003 - 7:26am
cathlina's picture
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Joined: 06/29/2001 - 09:00

Just read this article about Aspergers...
LONDON, May 2

Posted on: Fri, 05/02/2003 - 7:45am
McMelon's picture
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Joined: 09/21/2002 - 09:00

Mommabear, I forgot to thank you for the blankie tip. I think I traded my blankie in for my hubbie. I snuggle with him until his heat becomes unbarable and I start to sweat. I then spend the rest of the night trying to escape the hot side of the bed. Sorry about the tangent there. DH made a last minute decision to go on a weekend fishing trip, so kidders and I are off to granny's house 3hrs away tomorrow. It is a shame that a one nighter requires as much baby equip as a week long furlough. I am nervous about staying outside of our environment.
Cathlina, thanks for the article. I will be near big bookstores this weekend and plan to buy a book on the subject. I think my son my be on the verge of this as well, I hope. I feel a book will be a great place to start. It will at least be able to help me understand him and hopefully shed some insight as to how to help him.

Posted on: Fri, 05/02/2003 - 7:53am
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Joined: 09/21/2002 - 09:00

River thank you too for the article you posted on this subject. I think this is turning out to be a very informative post. You all have been so kind to offer your ideas, infor you have gathered and personal stories.
Becca your second para. describes my guy too. Especially the scream. He used to make people hit the deck, literally. I have been told his scream sounded like a wounded animal or a fire alarm. It was positively brain piercing. He was my precoius little fire alarm, though. Melody

Posted on: Fri, 05/02/2003 - 8:55am
becca's picture
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Joined: 05/22/2001 - 09:00

Melody, my dd really loves to scream. It is hard for her to restrain herself and she has some genetic vocal cords(inherited from her Auntie Mary) that make the whole family laugh and groan at the same time(they remember)!
A German Nanny was caring for 4 girls who love to scream(I really do think it is also a girlie thing as they sure can scream) 2 doors down from me. She said she would put them in the car, doors closed, and tell them they could scream and screan to their delight. They loved it and she said it really helped. My dd seems mostly over it, but it was unbelievably loud. I really thought she caused me some permanent damage when she did it one time(angry) at 2 years old. Hers was mostly just a gleeful thing, but just too painful for *anyone* to tolerate, and she has done well learning to control herself.
It is funny. I just love all these little things about her. I guess we all just are so in love with our children! I really just started reading some of this stuff and had been thinking she was so unique. I still feel that way, but it is great to learn how to maximize our children's potential, whatever makes them "tick." Best wishes! Becca

Posted on: Fri, 05/02/2003 - 9:07am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by McMelon:
[b] It is a shame that a one nighter requires as much baby equip as a week long furlough. I am nervous about staying outside of our environment.
[/b]
So were we. We recently became the enthusiastic owners of a modest Recreational Trailer. Barely 24 feet long, hopefully, it will provide the ammenities of home on a much smaller scale. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] It is equipped with every family members needs in mind. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img] Best of all, we can enjoy it at Our Leisure. Our Cave away from Can, er Cave. We embark on are Maiden Voyage this Mother's Day Weekend. Praying for safety and a love filled weekend,
MommaBear and Clan [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
PS............. There [b]is[/b] a Class A Motor Home that caught our [i]particular interest[/i]. Imagine that. Maybe it was the wood-look floors. (I already have a flokati rug in mind).
Disclaimer: This post not intended as advice in any manner or form. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sat, 05/03/2003 - 2:49pm
teacher's picture
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Joined: 11/02/2000 - 09:00

For you parents who have autistic children and for those of you wondering if you do, may I strongly recommend that you read this book:
[url="http://www.amazon.com/exec/obidos/tg/detail/-/0767908724/qid=1052023516/sr=2-1/104-2197711-1447167?v=glance&s=books"]http://www.amazon.com/exec/obidos/tg/det...=glance&s=books[/url]
[i]The Highly Sensitive Child [/i] by Elaine N. Aron.
We have spent 2 years seeking a diagnosis on our son because of various things that led many professionals to believe he could be in the Autism spectrum. We were stunned to have it ruled out. The child psychiatrist recommended that we read this book. It states that many children who are thought to have ASD or Aspberger's are actually highly sensitive children and nothing more.
The book is brilliant! Run to your bookstore and buy it today!

Posted on: Sat, 05/03/2003 - 10:56pm
DRobbins's picture
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Joined: 07/19/2001 - 09:00

Teacher, thanks for the recommendation for "The Highly Sensitive Child". I've just requested it from our public library, and it sounds like it might help me help my eldest son (the PA one) who can be extraordinarily sensitive to things that don't bother most kids, but does not have Asperger's (although we had him evaluated for it a few years ago).
Becca, if you do think your daughter might possibly have neurological issues, there's a highly regarded program not too far from you geographically where you could have her tested. It's called the LADDERS program ([url]http://www.ladders.org[/url]) and it's located in Wellesley, MA. It's affiliated with Mass General Hospital.
Also, for sensory issues, there's a place in Watertown called OTA (Occupational Therapy Associates, I believe) that does evaluations, and I have to say that *every* child I know who has been evaluated there has been determined to have sensory integration disorder. I'm sure they do good work in OT, but I wonder if they're a little overboard in diagnosis. Another place that's geographically not too far away is Children's Therapy Associates in Natick. I took my eldest there for an occupational therapy screening a few years ago and was impressed that they identified a handful of issues for him, yet suggested we wait a bit to see if he outgrew it before diving into therapy, since he was really borderline. We currently use them for speech therapy.
FWIW,
Debbie
[This message has been edited by DRobbins (edited May 04, 2003).]

Posted on: Sat, 05/03/2003 - 11:10pm
becca's picture
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Joined: 05/22/2001 - 09:00

Thanyou Teacher and Debbie. I will check that book out.
As I have mentioned, My dd does seem a bit diferent than her peers, but it is so fringe, and I mostly worry about her interactions with friends when she is frustrated.
We have a very relaxed ped. who is young, but was right on target with the egg and PA, and has listened very thoughtfully to any concerns I ever have. He generally says to watch for a bit before rushing into testing and diagnosis, and I tend to agree, on many non-emergency issues. I actually have not discussed this stuff with him because I only recently started wondering if there were enough little things that it might be worth looking into it more. Even if just talking and reading.
Going to check that book. becca

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