As a parent with a child with LTFA, have you ever felt...

Posted on: Fri, 02/02/2007 - 5:58am
carpediem's picture
Joined: 01/08/2007 - 09:00

like you were starting to become overly obsessive about coming into contact with the allergen or even a little crazy?

Posted on: Fri, 02/02/2007 - 6:47am
gw_mom3's picture
Joined: 02/14/2000 - 09:00

YES! on a regular basis.

Posted on: Fri, 02/02/2007 - 6:51am
momofmatthew's picture
Joined: 09/06/2005 - 09:00

All the time!!!!

Posted on: Fri, 02/02/2007 - 1:12pm
solarflare's picture
Joined: 02/07/2002 - 09:00

Yes, but it was fairly early on. We've been dealing with this for 6 years now, and it's allowed me to loosen my comfort zone a bit.
Cheryl, mom to Jason (9 MFA including peanuts, tree nuts, shellfish and egg)
Joey (7 NKA)
Allison (4 milk allergic, suspect shellfish, avoiding PN/TN for now)
Ryan (1) nka *knock on wood*

Posted on: Fri, 02/02/2007 - 2:15pm
anonymous's picture
Joined: 05/28/2009 - 16:42

This is why God invented "happy pills"
Been on them for a while now, and boy do they help. I would definately be in the "NUT" ward by now.
I know it is not just you or me, we are everywhere! hee hee
Stacie - Mother to:
11 yr. PA
8 yr. TNA
3 yr. PA&TNA

Posted on: Fri, 02/02/2007 - 4:32pm
NicoleinNH's picture
Joined: 06/21/2003 - 09:00

[This message has been edited by NicoleinNH (edited June 10, 2007).]

Posted on: Fri, 02/02/2007 - 10:09pm
lalow's picture
Joined: 03/24/2004 - 09:00

for the first 6 months to a year after my ds was diagnosed I think I felt like that alot. now i feel much more comfortable. I think as time goes by you know what you can and cant do. I dont worry about things I used to. For example, when he was first diagnosed i remember freaking out cause I took him in a chick fil-a cause I didnt know about the peanut oil. He didnt eat anything but after i realized I kept imaginaing peanuts protein on every surface. Now I know he probably would have even been ok had he eaten a chicken nugget or two from there (although we do try to avoid peanut oil) but at the time I was a little hypersensitive to it all.
James 5 yrs, NKA
Ben 4 yrs, PA and MA

Posted on: Sat, 02/03/2007 - 12:26am
Anonymous's picture
Anonymous (not verified)

Best wishes! [img][/img]
There but for the Grace of God, go I.

Posted on: Sat, 02/03/2007 - 1:44am
Sandra Y's picture
Joined: 08/22/2000 - 09:00

No, I never felt crazy or obsessive. I did feel extremely anxious for the first year or so after his severe reaction and diagnosis. Once he started talking and I felt that he had a basic understanding of his allergy, I felt much better. The hardest time, in terms of anxiety, was when he was a toddler.

Posted on: Sat, 02/03/2007 - 4:58am
anonymous's picture
Joined: 05/28/2009 - 16:42

I experienced an awful lot of anxiety for the first year or so and then again whenever we had a big transition (moving and changing pre-schools, and then transitioning to 1st grade).
We've been dealing with it for 6 1/2 years now, and while the allergy is of course always on my mind, the anxiety is far less. DS is 8 1/2 now and is becoming more and more proficient at managing his allergy himself, which makes it a lot easier than when he was younger.
I wouldn't say I ever felt crazy or obsessive, although I'm sure that many people who knew me when DS was little would disagree. I just did what I needed to do to keep DS safe. People who don't really "get" food allergies don't understand how consuming this can be at times. I'm often envious that they have never had a need to worry the way that I have. Ignorance is bliss, they say...
I will say this...where a person crosses the line is when they become afraid of items or situations there is no need to be afraid of. This has happened to several children on the board, and probably some of the adults if they were willing to talk about it. A person may become afraid to go to the park, or to the grocery store, or to the movie theater. Yes, there is some risk involved, but it can be managed. Or a person may become afraid to eat foods that they know are safe and have eaten frequently before. I think that if someone reaches that point then the anxiety has simply overwhelmed them to the point where they need a little help to get it back under control. Does that make sense?
If you need to talk to someone please feel free to email me. I love to chat and I completely understand how overwhelming all of this can be at times.

Posted on: Sat, 02/03/2007 - 6:24am
chanda4's picture
Joined: 12/14/2006 - 09:00

Honestly I take this with a grain of salt. I know there are millions of people that have to live with this, if they can do it, so can we! I make adjustments to keep my kids safe, but by no means is it ossessive. Many might even consider me too lax. I usually trial and error....I try something one way, if it becomes a problem I change it.
I do have times where I feel panicked, overwhelmed....then I refocus myself and realize we are getting along just fine. And we keep doing that until the next problem arises.
My allergist once told me. I explained to him I was scared to death to have to ever use the Epipen. He reminded me to be prepared, there will come a day that I will need instead of running from it, prepare for it. I am prepared now!
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig)
Savannah-1 (milk and egg)


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