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Posted on: Thu, 07/24/2003 - 3:55pm
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Anonymous (not verified)

When Jesse was skin prick tested for everything but PA, I got back about five false positives. I couldn't figure it out so I posted about it here. It was because he had ezcema on his back where the serum and skin pricks were placed. All of the things that he tested positive for were false. This would have been when my daughter was 3, so 3 years ago and I did have to raise several questions here (what else is new [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] ) to get it figured out. Other members really really helped me with that a lot because one of the false positives was to latex.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Thu, 07/24/2003 - 4:37pm
e-mom's picture
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Joined: 04/23/2000 - 09:00

Thanks Cindy!!
The whole idea that these tests are showing a lot of false positives has me very frustrated.
I can't believe that some allergist/chemist hasn't come up with a more accurate way of really finding out once and for all. UGH!!!
I really hope that in the near future this will all change for the better.

Posted on: Fri, 07/25/2003 - 12:10am
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Joined: 05/03/2002 - 09:00

e-mom,
My daughter was skin tested for peanut at 17months old. I honestly don't even remember the allergist making a big deal about it. He obviously never educated me on the liklihood of anaphylaxis with peanut allergy. It was within the past year that I found out from our new allergist. Long story, but we left the first allergist after he screwed up my daughter's prescription for pulmicort. He wrote the Rx for double the concentration she had been previously taking. She was only about 3 at the time and started to complain about chest pains with her breathing treatments. I noticed the label on the box of pulmicort was .5 instead of her usual .25. I called a 24 hour pharmacy and they told me that it was possible that chest pain could occur with a higher dosage. I called the office the next day to find out that he had messed up when the prescription was written. It was to be REFILLED...not for a higher dosage...ANYWAY, we decided then that we would not be going back....within weeks we ended up in the ER with Pa ds. Found us a WONDERFUL allergist and got an appointment within a week. Been with DR. Levy in Spartanburg ever since. She was the one who told me about dd positive skin prick test when I asked if she could be tested also (since ds was positive). She decided not to test since dd now eats peanut without problem.
HOWEVER...in her toddler years (she lived on pbj)...she often had asthma attacks, and horrible eczema on her face and hands. In hindsight i have a feeling that maybe she could have exhibited allergic symptoms and we overlooked them as illness....
take care...
allison

Posted on: Fri, 07/25/2003 - 1:28am
e-mom's picture
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Joined: 04/23/2000 - 09:00

Allison (Austin2001),
Thank you for sharing your story. Thank goodness that nothing serious happened to your daughter while taking the double dose.
I think I would have wrapped my hands around that allergist's neck. [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img]

Posted on: Tue, 07/29/2003 - 8:29am
nikky's picture
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Joined: 11/14/2000 - 09:00

austin2001,
You mean your daughter was skin tested positive at 17 months and continued to eat it with no reactions? (except maybe the excema and asthma?) Did she retest negative now? I'm confused. Was this maybe a "minor" peanut allergy? My one allergist told me that his daughter had excema and hives from peanut as a child but now eats it with no problems. He said it was just a mild allergy.

Posted on: Tue, 07/29/2003 - 9:21am
becca's picture
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Joined: 05/22/2001 - 09:00

e-mom, because my dd reacted to peanuts from eating them, the doctor only skin tested her for tree nuts, not peanuts. He also did sesame. I wonder if her skin tests were *all* falsely positive after reading here!
When she was re-tested(CAP-RAST) a year later, the tree nuts and sesame were "negative"(He gave me no numbers), and her egg and peanut were still positive, but remarkably lower than a prior RAST done by our regular ped for just those 2 allergies. They went from over 10 down to 1.10 each.
Now, it is a whole year later, and she skin tested psotive to egg again, so the doctor did not proceed to bloodwork. He said the skin testing is "more sensetive", so did that first as it is easier for my dd as well.
I just wonder if he checked her blood if she might have outgrown the egg, truly. I think it only needed to go below 1. He has no plan to check her peanut bloodwork until 5(okay with me). That will still be before kindergarten based on her birthday.
So, I know she has eaten sesame, and never reacted. He said in the absence of reaction, there is no allergy, but I do not exactly feel confident giving her sesame on purpose these days!
Then he also said, this last time, he *would* consider her allergic to tree nuts based on her skin results, even though the CAP_RAST was negative, saying the skin is the more sensetive of the two tests. Now, I know he does not believe in children with any single nut allergy eating any nuts, so perhaps he just does not feel it is much worth persuing. But the peace of mind factor is important to us parents!
So, I am a bit perplexed at this point. He seems to be waffling a bit on his take on the significance of the skin tests. Although, I also know he feels it best to wait til 5 to persue the nuts allergies. Says he would not introduce the allergen to a child younger with a previously known sensetivity. Also does not like having little ones get blood work if there is really nothing to gain practically(like changing their diet) from it at present. I can understand this. He is very sensetive to young children not having to get needles and bloodwork if not needed. becca
[This message has been edited by becca (edited July 29, 2003).]

Posted on: Tue, 07/29/2003 - 11:53am
e-mom's picture
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Joined: 04/23/2000 - 09:00

Thanks becca!! It is VERY frustrating. All of these stories have been incredibly helpful for me as well as confusing as far as understanding the many if's of these tests.
These tests seem so confusing to me. Sometimes there could be false positives, but do not give peanuts, etc.; sometimes showing low levels, but do not give peanuts, etc.; however, you might be able to outgrow it; although you still could have a reaction down the road. UGH!!!!
When does it end?
I'm thinking of another question, hmmmmmm.

Posted on: Tue, 07/29/2003 - 10:11pm
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Joined: 05/28/2009 - 16:42

Confusing the issue even more, Ryan's allergist said some of his patients have a high CAP RAST score for a particular food/allergen, and can still eat X food with no problems. His allergist really examines the actual medical/reaction history to the allergen along with the CAP RAST. He told me, not in these exact words, that the CAP RAST is an inexact science.

Posted on: Tue, 07/29/2003 - 10:34pm
e-mom's picture
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Joined: 04/23/2000 - 09:00

Quote:Originally posted by ryan's mom:
[b]Confusing the issue even more, Ryan's allergist said some of his patients have a high CAP RAST score for a particular food/allergen, and can still eat X food with no problems. His allergist really examines the actual medical/reaction history to the allergen along with the CAP RAST. He told me, not in these exact words, that the CAP RAST is an inexact science.[/b]
Yes, I'd have to agree. I am beginnng to think that all of these tests are inaccurate most of the time. Which leaves me to believe that by doing an oral challenge, it just might be the only way to know, although, come to think of it, that also could be false because if a person does an oral challenge, and have no reaction, I'll assume that the next time they eat the suspect food that, in fact, they could then have the reaction.
So, I think that we basically end up with only one sollution--DO NOT EAT THE SUSPECT FOOD. UGH!! I think that this might hold true for our little ones. So I think that adults can do whatever they'd like because they are the only ones that knows them the best.
I carumba!!!

Posted on: Wed, 07/30/2003 - 12:16pm
Anonymous's picture
Anonymous (not verified)

e-mom, yes, it is really confusing. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] I didn't have Jesse tested for PA since I already knew. They placed the serum on his skin regardless but without pricking the skin and it developed a huge wheal where the peanut serum was so the allergist was able to confirm what I already knew. Because of what happened with Jesse (the five false positives and then raising all the questions here trying to figure it out), I've really just decided for me, that unless something else should *seem* to develop, I'm not having him tested again. That's why I can never enter into a discussion re scores and stuff because I don't have them. I just know Jesse is PA only and hopefully will remain solely that (touch wood).
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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