Anyone NOT have any anaphylactic reactions since testing positive for PA?

Posted on: Wed, 10/01/2003 - 4:50am
deegann's picture
Joined: 07/27/2003 - 09:00

I just assume it's inevitable that I'm going to have to deal with an anaphylactic reaction with my son some day. We are careful about avoiding the danger list foods, restaurants, etc., but I was just wondering if anyone has not had a reaction since they started being careful, and at what level of the allergy did you test? (I'm not going to use this as a way of minimizing my diligence, just curious)

Posted on: Wed, 10/01/2003 - 5:00am
sport's picture
Joined: 10/01/2002 - 09:00

My daughter tested to be as allergic as the chart would go. She has not had a reaction since finding out when she was three. My son has never had a reaction, but tests to allergic as well. I am so thankful that they have not had any reactions, but remain to be very cautious and never leave home without epi-pens. Oh, and by all means, having this allergy has definetly increased my prayer life.

Posted on: Wed, 10/01/2003 - 5:21am
StaceyK's picture
Joined: 05/06/2003 - 09:00

My daughter tested positive at 1 year. She is 3 1/2 and has never had an anaphylactic rxn.

Posted on: Wed, 10/01/2003 - 5:46am
Kim M's picture
Joined: 06/09/2001 - 09:00

My daughter had her first and only reaction at 14 months, and she is now 5. We just had CAP Rast testing done a couple weeks ago, and she came out as a Class V. We are very careful about avoidance, without being fanatical. (I have let her stay at a playgroup that was serving PB&J, for example, while watching like a hawk. On the other hand I was out of an Easter Egg Hunt like a bolt of lightning when a messy two year old started eating peanut butter candy.)
So, it is definitely possible to stay reaction free, even at a high-testing allergy level. You just need to be careful and allert at all times.

Posted on: Wed, 10/01/2003 - 6:34am
smack's picture
Joined: 11/14/2001 - 09:00

My son had his one and only reaction 4 months before his 3rd birthday.
I can't say it was anaphylactic because I wasn't there but his was a respiratory reaction with no hives.(1st time that he ever had something made with peanut butter inside.)
Since then he has had full blown body hives that were caused from something other than peanut.
edited to add he is 6 yrs. old now
[This message has been edited by smack (edited October 01, 2003).]

Posted on: Wed, 10/01/2003 - 10:09am
momma2boys's picture
Joined: 03/14/2003 - 09:00

My ds is 5 1/2 and tested positive at 16 mos. He is 4+ on skin test and class v on rast.
He has never had an ana. reaction, before or after.

Posted on: Wed, 10/01/2003 - 10:54am
kelly01's picture
Joined: 03/19/2001 - 09:00

Hi Deegan:
My son had an analphylactic reaction at 2.5 years that led to him being tested for PA. I don't know his specific numbers...but he is considered highly allergic.
We have not had another reaction since we became aware. He will be 7 this winter.

Posted on: Wed, 10/01/2003 - 1:40pm
megans mommy's picture
Joined: 08/26/2003 - 09:00

We knew at 6 months old that Megan was reacting to peanuts through breastmilk. She has never had any peanuts/peanut products firsthand. She tested negative on RAST and positive on skin-test. The doctor didn't give us any numbers with that (I am curious...some mention 2+, 4+....what does that mean?? How do they get those numbers?)
She reacted through breastmilk with vomitting that had lots of mucous. Never had hives (except with milk allergy). Never had any trouble breathing. Allergists/doctors don't recommend epi-pen and don't think she will be anaphylactic. (We requested an epi anyway!!)
I was wondering if anyone tested at low-levels and has had an anaphylactic reaction?? Megan's doctors seem to think there is no risk whatsoever. I am still extremely cautious.

Posted on: Thu, 10/02/2003 - 12:55am
Melrose Mum's picture
Joined: 01/23/2002 - 09:00

My DD was diagnosed PA at 3 yrs of age. Her score was >100 on her first cap rast test. We have been lucky to have never had an anaphylactic reacton. She just turned 5, so it's been two years for us. She HAS had contact reactions, hives, etc. But we (thankfully!) have never had to use the epi-pen.

Posted on: Fri, 10/03/2003 - 6:45am
BENSMOM's picture
Joined: 05/20/2000 - 09:00

My son tests off the charts and has never reacted despite some exposure to peanuts. An anaphylactic reaction is definitely NOT inevitable. I know of two adult PAs and neither has ever had an anaphylactic reaction even though one will start to have a reaction to smell in an enclosed area.

Posted on: Fri, 10/03/2003 - 7:49am
becca's picture
Joined: 05/22/2001 - 09:00

My dd's reactions were never anaphylactic and were mild enough it took me a bit to put it together(the last one being quick and more dramatice, but I would not say anaphylactic). She was around 18 months, and tested 10.14 CAP RAST, or around there. That rates "highly allergic", even though it seems like a low number.
She has never had any other reactions since we realized she was reacting to peanuts, and we did some stupid things early on, out of ignorance. Taking a cookie out of a tin with nutty ones, and letting her have the ones that were not nut-free. Not alot, but we just did not know about the contact issues until I found this site.
Her last CAP RAST had her numbers down to 1.14 or there abouts. becca


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