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Posted on: Sat, 03/11/2000 - 10:29am
AnMaMc's picture
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Joined: 01/25/2000 - 09:00

pAfter spending 3 hours in my son's allergist's office where he was tested positive for PA 4 1/2 years ago (along with other allergies), the first thing I did was go home and call another allergist (my husband's old allergist) for a second opinion. I took a copy of all his results and had an hour long consultation going over all his findings. The doc with the second opinion was in complete agreement with his present allergist. I was truly terrified at the time, (I had never heard of PA) but was extemely glad that I got that second opinion. His allergist had absolutely no problem with that, either. (VERY GOOD DOC)./p

Posted on: Sat, 03/11/2000 - 1:19pm
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Joined: 05/28/2009 - 16:42

pMy pa daughter's pediatrician said she felt the RAST test was more accurate. But, maybe she felt it was the best route to take since my daughter had already had an anaphylactic reaction. The dr. said that the normal allergan level is between 60 70 and my daughter tested at 500. I have read several posts with all kinds of different umbers for the RAST test. Does anyone actually know what the numbers mean. I just read one post with a "6" number and recently read a post somewhere on this website with a "1500" number. HELP -- I'M CONFUSED!/p

Posted on: Sat, 03/11/2000 - 10:48pm
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Joined: 02/09/2000 - 09:00

pI don't know if this chart will help you any ... or if you have it already. The following was given to me with Adam's last RAST testing. /p
p{%Reference} (Class) [Clinical Significance]/p
p{Less than 60} (0) [None Detected]br /
{60 -70} (1/0) [Equivocal]br /
{71 - 110} (1) [Very Low Positive]br /
{111 - 220} (2) [Low Positive]br /
{221 - 600} (3) [Moderate Positive]br /
{601 - 2000} (4) [High Positive]br /
{2001 - 6000} (5) [Very High Positive]br /
{6001 - greater} (6)[Extreme High Positive]/p
p(Sorry the chart is a mess ... can't figure out a better way to present it! The % Reference numbers are 0 - 6000 and greater. The class numbers are 0 - 6.)/p
pThe RAST testing was sent and performed at Quest Diagnostics, Inc. in San Juan Capistrano, California and the chart was on the sheets I received from the lab through the allergist. The recommendation from the lab was that "Patients with a class reaction of 2 or greater against food allergens may benefit from the removal of the specific food from the diet". We tested for many things ... and it was costly (the nurses at the office said this several times to me as if that would change my mind in doing the tests ... it was sort of odd. Insurance covered most thank goodness and I still needed to know what he is allergic to and how allergic!)/p
pI also wanted to mention that Adam's allergist handed this stack of test papers back to me and said that "You will find this pretty self explanatory ... so I will see Adam back at ..." Here I am sitting there with a stack of papers that inform me that my son is class five on pretty much everything we tested for and this doctor tells me NOTHING about the test results! No desire to give any hope ... any information on what might be going on in the medical field that may someday help my son ... no wish on his part to answer any questions I might have, suggestions on any books I might read, etc. I have come across several allergists like this and I think it is a shame. Needless to say, I am glad we had the test done and we have found another allergist to take my son to. Just needed to vent. I hope that the numbers above will help you in atleast a small way! Have a good day. Susan /p
p[This message has been edited by adamsmom (edited March 12, 2000).]/p
p[This message has been edited by adamsmom (edited March 12, 2000).]/p

Posted on: Sun, 03/12/2000 - 1:46am
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Joined: 05/28/2009 - 16:42

Adamsmom-
Thank you very much for the numbers. When our pediatrician gave us the results, it was over the phone and she did not offer me a list of numbers to go by as you have provided in your post. We have an appointment to see her next week and I will ask for more info... In the meantime, does anyone know if those numbers can change over time, i.e., as a result of future exposure to the allergen?

Posted on: Sun, 03/12/2000 - 1:27pm
Renee's picture
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Joined: 09/02/1999 - 09:00

Ashleys Mom,
RAST scores can go up with every exposure, and can go down when there is no exposure. It is my understanding that the two allergies that are rarely out grown are peanut, and fish. I am luchly enough to have one of each in my children.

Posted on: Mon, 03/13/2000 - 4:10am
Chris LaPlaca's picture
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Joined: 12/22/1999 - 09:00

My daughter had a RAST test and scored between 3 - 5 depending on the nut. Question, though, is this test the same as the CAP RAST test? I was not aware of the scale in the 1000's. Is the CAP RAST better than a normal RAST?

Posted on: Mon, 03/13/2000 - 8:08am
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Joined: 07/18/1999 - 09:00

Adamsmom -- I also want to thank you for the RAST chart and information. I also had a non-informative allergist for our son; only succeeded in scaring me even more than I was (which has it's good points, but, come-on! a little hope, support and guidance would have been greatly appreciated!). Anyway -- found my own allergist (luckily our insurance allows for self-referrals) and am much happier. All I can say, is THANK GOD for MOTHERS/FATHERS like all of us! We're resourceful, we're brave, we're supportive! (Whew-- I needed a little cheer.) Thanks everyone.

Posted on: Mon, 03/13/2000 - 9:21am
adamsmom's picture
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Joined: 02/09/2000 - 09:00

Hi Chris. I have been looking through the allergy books I have here at home and also searching on the internet and I haven't come across anything saying that there are different types of RAST testing. In my search I did find that RAST stands for Radio-Allergosorbent Test ... I didn't know that. On the lab sheets that I have for Adam it does specifically state "Reference ranges for Pharmacia Cap System" if this helps any. I will let you know if I find out anything ... sounds like a good question for the allergist!
Nina ... thank you for the cheer ... it was a good one! Susan

Posted on: Mon, 03/13/2000 - 11:17pm
Nina's picture
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Joined: 07/18/1999 - 09:00

I meant to also write that the doctors have told us that the score on the RAST does not necessarily correlate with type/severity of reactions. Our son scored 723 (a category 4) -- he has only had one reaction (on his second exposure to peanut butter) and it was anaphalactic (sp?). I have inquired several times with various allergists/pediatricians if he is likely to have a reaction (or a severe reaction) to touch and/or airborne and they have all said we won't know until it happens! This is frustrating and makes me wonder what good the RAST categories are -- either he's allergic or he's not. Can anyone verify this (i.e., no correlation between score and type/severity of reaction)? Sorry for the ramble. Nina.

Posted on: Mon, 03/13/2000 - 11:38pm
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Joined: 10/13/1999 - 09:00

My daughter's allergist and Dr. Sampson (over the telephone) told me that there is no way of knowing what the next reaction will be, regardless of the RAST test. Dr. Sampson said that people with low scores can have anaphylactic reactions and high scores can have mild reactions and visa-versa. So, basically, being allergic to peanuts is like being pregnant. Either you are or you're not. Unfortunately, there's no way of knowing the severity of the next reaction. I personally have talked to people who have had no reaction at all after an anaphylactic reaction, and then the next one was bad again. Perhaps the most frightening part of all is that there are no clear answers. What separates all of us from the millions of others out there, however, is that we are informed and we are prepared. That is all we can do. The danger comes from ignorance. So many parents of peanut allergic children do not take the allergy seriously because of initial mild reactions. Most fatal and near fatal reactions occur when the victim doesn't receive immediate epinephrine.

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