Anyone keep adding allergies???? UGH!!! Pls read

Posted on: Thu, 10/14/2004 - 1:05pm
Danielle's picture
Joined: 04/08/2003 - 09:00

I know there is a thread on this but I can't pull it up. I feel a bit overwhelmed....we were going along well and then boom in the past 6 weeks it looks as though we have to add soy and corn to out no-no list.
We seem to keep adding to our list and it always helps to read that others deal with this too.
Between my 2 sweet little girls - peanuts, nuts, wheat, egg, rice, barley, oats, amaranth, soy, blueberry, apple, corn. UGH!!!! And then there is me - ANA to sulpha drugs and sorghum flour.
On a good note though, they are both growing well and doing very well on the growth charts and very happy children. I do thank my lucky stars for that.
What are you dealing with??? Pls respond.

[This message has been edited by Danielle (edited October 14, 2004).]

Posted on: Thu, 10/14/2004 - 2:07pm
nancy023's picture
Joined: 12/12/2002 - 09:00

Danielle, on the bright side, at least you still have milk. The soy and corn will be tough. I feel for you.
My poor boys have a bunch, too.
Son 1: peanuts, nuts, uncooked eggs, soy, turkey, legumes. We haven't tried fish or shellfish, yet.
Son 2: milk, wheat, eggs, barley, strawberries, peanuts, turkey, chicken. He hasn't tried nuts, legumes, soy, fish, or shellfish, yet.
I hope your girls and my boys have reached the end of their lists or they will be eating like the survivor contestants, the same thing everyday.
[This message has been edited by nancy023 (edited October 15, 2004).]

Posted on: Thu, 10/14/2004 - 8:06pm
new2PA's picture
Joined: 10/18/2003 - 09:00

How did you find out your son was allergic to "uncooked" eggs? My son is allergic to eggs as well, 9.89 to egg whites, .87 to egg yellow. During one discussion w/the allergist, he said egg protein changed when it was cooked, and I have wondered if DS could have eggs in baked goods, just not eggs that were cooked on the stove, as I'm relatively sure he has eaten cookies/cakes, etc, before w/i reacting.
The dr said DS's RAST would have to be about a 3 before he'd consider a food challenge

Posted on: Thu, 10/14/2004 - 8:13pm
kajc's picture
Joined: 06/09/2002 - 09:00

Danielle- How old are your girls? When kids get older things usually start getting better. When my daughter was little (around two or younger) I thought the list of allergies would never stop growing! Let's see if I can remember the list:
1. Peanuts/Treenuts
2. Milk
3. Soybeans
4. Legumes
5. Shellfish/Fish
6. Eggs
7. Chicken
8. Pork
9. Broccoli
10. Waterchestnuts
11. Corn
There must be more I forgot because her list was up to 13 at one time! Anyway, she is 13 years old now and has outgrown everything except the 5 or 6 on the top of her list (eggs are iffy again!) I was just overjoyed when she outgrew chicken and pork! Beef and turkey were getting very old! Also, I am allergic to wheat, so I know what a pain cooking for multiple allergies can be. I just give up and cook two things most of the time!

Posted on: Thu, 10/14/2004 - 9:37pm
saknjmom's picture
Joined: 04/02/2003 - 09:00

I have also felt so overwhelmed with my son's allergies. He has had severe eczema since he was a tiny baby. He has environmental allergies which trigger asthma attacks, peanut, tree nut, strawberries, egg whites, soy, shellfish. He has had episodes that have triggered hives and asthma for for weeks from new carpet. He has been receiving shots for environmental allergies for almost 2 years.
It is a lot to deal with both emotionally and mentally. Simple tasks with him are difficult. Worry is there about their safety. Hang in there. My son is possibly starting to grow out of some of these allergies, which is a miracle in my book considering the severity of some of his allergies.
I also am curious about the uncooked eggs. My son had tested positive for egg whites, but i didn't really take eggs out of his diet as far as baked goods etc.
I have never just scrambled eggs without removing the whites.
I have noticed that he has reacted with skin irritation and itching in the past at Easter when he is handling the eggs and if he cracks one and touches the white.
our new allergy tests show that he has outgrown the egg and some others too.
We didn't talk about a challenge, but i have been wondering if i should let him touch raw egg to see if it is a problem.

Posted on: Fri, 10/15/2004 - 1:37am
docd3122's picture
Joined: 01/16/2001 - 09:00

Our daughter is allergic to 11 foods and the list is growing. I can understand the overwhelming feeling of helplessness you are experiencing. Our DD experiences ezcema and asthma when she eats foods she is allergic to. I would like to recommend a few cookbooks that might help you: Special Diet Solutions, by Carol Fenster, Ph.D. and the Bette Hagman series of Gluten-Free cookbooks. You may want to check them out at your library first, before buying them. You can order them on Borders site with free shipping over $25.00. Feel free to email me with any questions or concerns.
Deanne ( peanut, tree nut, soy, wheat, corn, gluten (rye, oat, barley, spelt), red food colorings, cantaloupe and watermelon, and environmentals)

Posted on: Fri, 10/15/2004 - 2:20am
kkeene's picture
Joined: 10/20/2003 - 09:00

My son is allergic to Peanut & Egg
He only tried cooked eggs a few times & both time he got a rash (like a heat rash).
Once scrambled & once hard boiled.
He had cooked goods that had egg & now looking back he would get like 1 mistery hive? & I was unable at that time to put 2&2 together.
But then one day he reached in the trash & pulled out an egg shell with raw egg white
BINGO I know immidiately it was egg whites.
My Dr said that it is much stronger raw! & that because it changes when cooked, and it is such a small amount when in other foods that we just weren't seeing it bother him. But let me tell you Boy is RAW egg different. I saw hives on arms & eyes & asthma within sec's
[This message has been edited by kkeene (edited October 15, 2004).]

Posted on: Fri, 10/15/2004 - 6:37am
nancy023's picture
Joined: 12/12/2002 - 09:00

Quote:Originally posted by new2PA:
How did you find out your son was allergic to "uncooked" eggs? [/b]
He had turned beet red when he ate meringue one time, but he was just a baby and not diagnosed with the other allergies, so we just avoided meringue after that. When he got a bit older, he ate baked goods ok. After the big peanut reaction, we took him for allergy testing and he tested very allergic to both egg yolk and egg white. Since he had appeared to be ok with baked things that included egg, I just let him continue eating them.
Since that time, he has reacted to contact with uncooked eggs with swollen eyes (making cookies) and hives and wheezing (from a bite of something with egg whites), and it makes him itchy and a bit wheezy to be in the room when I'm frying eggs, so I make him leave the room. I don't feed him just plain eggs, either. I even cut the amount of egg back in recipes.
I sometimes wonder if feeding him the eggs at all isn't making his allergy hang on longer, his test numbers are not improving, but being able to eat the eggs baked in things makes life much easier.

Posted on: Fri, 10/15/2004 - 12:38pm
rebekahc's picture
Joined: 12/02/1999 - 09:00

Unfortunately Logan also has multiple food allergies. His most recent skin test and CAP RAST tests (we only consider him allergic if he shows similar results on both tests and/or has had a reaction) showed allergies to:
lima beans
string beans
pistacio (not on test but had ana. reaction)
so we avoid all legumes and tree nuts
so we avoid all fish and shellfish
And in order of severity:
potato, white
milk, cow
We completely avoid all those things except we only eliminate whole wheat (we let him have white flour); we limit soy; and we let him have milk. The poor kid has to have SOMETHING he can eat other than fruit.
PS I forgot to mention all his enviros. I won't list them but just figure if it lives or breathes he's allergic to it. He was negagive for cockroach and very low for ragweed which is weird since those are so highly allergenic.

Posted on: Sat, 10/16/2004 - 10:41am
Danielle's picture
Joined: 04/08/2003 - 09:00

Thx everyone for your responses. I love holidays but this is the hardest time for all of us and of course our kids. I hope and pray that 2010 (the magic number for food allergy initiative- they aim for this date to have a vaccine or? for food allergies)brings us some hope.

Posted on: Sat, 10/16/2004 - 11:20am
smartalyk's picture
Joined: 07/20/2004 - 09:00

Quote:Originally posted by Danielle:
[b]Thx everyone for your responses. I love holidays but this is the hardest time for all of us and of course our kids. I hope and pray that 2010 (the magic number for food allergy initiative- they aim for this date to have a vaccine or? for food allergies)brings us some hope.[/b]
Hi Danielle,
I am just wondering about these new allergies you have discovered. Has your child had a reaction or was the result from a test only?
The reason I ask this is because I was overwhelmed when my son tested positive to wheat and soy last year. But after speaking to a pediatric allergist about his results, he told me that if he has never reacted to them, then he isn't really allergic. He has had wheat everday for six years and never reacted! And he lived on soy milk, soy cheese when he was younger before he outgrew his dairy allergy. So we knew he never reacted to soy (loves soy sauce on rice).
He continues to eat these with no problems despite his RAST test results that showed he was allergic.
Hope that helps,


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