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Posted on: Sat, 05/13/2006 - 11:47am
MimiM's picture
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Joined: 10/10/2003 - 09:00

In Baltimore at the Johns Hopkins outpatient center.

Posted on: Sun, 05/14/2006 - 10:18am
mommamia8's picture
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Joined: 11/13/2005 - 09:00

Thanks for the info! Could you tell me his protocol? Does he prefer RAST or spt? Do you get a RAST before your appt. or after and a call with results? How often do you go?
Thanks!

Posted on: Sun, 05/14/2006 - 10:27am
MattsMommy's picture
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Joined: 07/29/2002 - 09:00

Yup we see him too and I ADORE him! We had our ped do a RAST before we saw him last summer. Before this year's appointment he said to simply call and he'd order the proper tests (so he coudl get results from his preferred lab). I did that and 2 days later, yes just 2 days, his nurse called me with the results. They really are on top of things, and follow through.
He's a fantastic base of knowledge, but on a personal level he was great with Matthew (4 the first time he met him), and answered all of my questions.
Here's the impressive part. I'm having trouble with my son's school (entering public kindergarten this fall) and before I met with the school the first time, I called Wood's office to ask what he'd back me up on (peanut free room, epi pen IN his classroom, etc...). The nurse gave me some preliminary info and off I went to my meeting.
As I was walking into the school building my cell phone rang. Dr. Wood had called my home, talked to my dh, gotten my cell phone number from my dh and THEN called me! He literally caught me moments before I met with them and he went to a lot of trouble to do so. Not many doctors of his caliber are that accessible and I couldn't be happier with him after that experience. Not only does he have the scientific knowledge, he's fantastic as a person!
ETA: We see him annually because at this point he feels Matthew has a great chance at being part of the 20% that outgrow PA.
[This message has been edited by MattsMommy (edited May 14, 2006).]

Posted on: Sun, 05/14/2006 - 11:02am
mommamia8's picture
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Joined: 11/13/2005 - 09:00

Wow! He sounds great!
Could you give me a run down on Matthew?

Posted on: Sun, 05/14/2006 - 10:32pm
samirosenjacken's picture
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Joined: 09/30/2002 - 09:00

We go to see him too.. at Johns Hopkins. He is definitely worth the trip!
He has advised us and friends of ours that see him NOT to get bloodtests before visits. They like to do it there at the hospital. He takes time for the visit.. didn't rush us thru at all... he answered every single question I had and was very relaxed in the visit.
I've had to call there a few times with questions and either he's called me back or someone from his staff in a very timely manner.
I wouldn't go anywhere else. I even switched our insurance so we could see him.

Posted on: Mon, 05/15/2006 - 12:37am
Kathy L.'s picture
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Joined: 07/30/1999 - 09:00

Isn't he the one who is also allergic to peanuts?

Posted on: Mon, 05/15/2006 - 1:39am
samirosenjacken's picture
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Joined: 09/30/2002 - 09:00

Yes, very severely allergic.

Posted on: Mon, 05/15/2006 - 6:04am
MattsMommy's picture
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Joined: 07/29/2002 - 09:00

Quote:Originally posted by mommamia8:
[b]Wow! He sounds great!
Could you give me a run down on Matthew? [/b]
I assume you're asking about his chances for outgrowing it?
Matthew had one bite of pb sandwich at 14 mos. He immediately had hives, vomiting, wheezing, excess mucus, etc...
His CapRAST was near 20 at that time. We tested him annually after that. The next year his CAPRAST was 1.09, the next it was 1.96, last year it was 3.35, and this year sadly it was 4.26.
Wood said Matthew STILL has a good chance of outgrowing it. He said most of his patients' test results go up every year. He said it's unusual to see it go down to next to nothing the following year like Matt's did. He said the fact that it went down, and has (in his words) stayed down, is a really, really good sign. In fact he had us schedule a food challenge (must do so several months in advance) just in case the numbers looked good enough to do the food challenge.
I have to admit I was sorely disappointed it went up again almost a whole point this year. I had it in my mind (wishful thinking? denial?) it would go down low enough to do an oral challege, but no such luck.
For now we keep avoiding, set up measures at school to keep him safe, and pray that maybe next spring the numbers will have gone down again. We shall see.
Something Wood told me that gave me some comfort. He said "Even if his CAPRAST is too high to do the oral challenge, and he never outgrows the allergy, by the time he's in high school, there will be a vaccine out there, there will be other treatments besides "avoidance" to help him."
It does make me feel better to konw that at SOME point, maybe this will be a non-issue for Matthew. For now, we'll keep plugging along, doing what we always do and avoid it like the plague. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Mon, 05/15/2006 - 10:34am
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Joined: 09/05/2001 - 09:00

Dr. Wood's nurse practitioner always sends us the form for blood tests so that we can do the tests at Hopkins ahead of time and the results are available when DD sees Dr. Wood. We do blood tests only at Dr. Wood's lab. Unfortunately we experienced a false negative blood test at Quest Labs when DD was four. This led to a peanut challenge (with a different allergist) and DD was almost killed.

Posted on: Tue, 05/16/2006 - 10:48pm
mommamia8's picture
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Joined: 11/13/2005 - 09:00

I want to say thanks for all the info! We have an appt. for November! Yeah!
MattsMommy: Thanks for sharing your story. I wish all the best to Matthew!
BS312: Wow! How scary! We currently use Quest but will definitely use the lab at Hopkins from now on.

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