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Posted on: Mon, 05/15/2006 - 12:37am
Kathy L.'s picture
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Joined: 07/30/1999 - 09:00

Isn't he the one who is also allergic to peanuts?

Posted on: Mon, 05/15/2006 - 1:39am
samirosenjacken's picture
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Joined: 09/30/2002 - 09:00

Yes, very severely allergic.

Posted on: Mon, 05/15/2006 - 6:04am
MattsMommy's picture
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Joined: 07/29/2002 - 09:00

Quote:Originally posted by mommamia8:
[b]Wow! He sounds great!
Could you give me a run down on Matthew? [/b]
I assume you're asking about his chances for outgrowing it?
Matthew had one bite of pb sandwich at 14 mos. He immediately had hives, vomiting, wheezing, excess mucus, etc...
His CapRAST was near 20 at that time. We tested him annually after that. The next year his CAPRAST was 1.09, the next it was 1.96, last year it was 3.35, and this year sadly it was 4.26.
Wood said Matthew STILL has a good chance of outgrowing it. He said most of his patients' test results go up every year. He said it's unusual to see it go down to next to nothing the following year like Matt's did. He said the fact that it went down, and has (in his words) stayed down, is a really, really good sign. In fact he had us schedule a food challenge (must do so several months in advance) just in case the numbers looked good enough to do the food challenge.
I have to admit I was sorely disappointed it went up again almost a whole point this year. I had it in my mind (wishful thinking? denial?) it would go down low enough to do an oral challege, but no such luck.
For now we keep avoiding, set up measures at school to keep him safe, and pray that maybe next spring the numbers will have gone down again. We shall see.
Something Wood told me that gave me some comfort. He said "Even if his CAPRAST is too high to do the oral challenge, and he never outgrows the allergy, by the time he's in high school, there will be a vaccine out there, there will be other treatments besides "avoidance" to help him."
It does make me feel better to konw that at SOME point, maybe this will be a non-issue for Matthew. For now, we'll keep plugging along, doing what we always do and avoid it like the plague. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Mon, 05/15/2006 - 10:34am
BS312's picture
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Joined: 09/05/2001 - 09:00

Dr. Wood's nurse practitioner always sends us the form for blood tests so that we can do the tests at Hopkins ahead of time and the results are available when DD sees Dr. Wood. We do blood tests only at Dr. Wood's lab. Unfortunately we experienced a false negative blood test at Quest Labs when DD was four. This led to a peanut challenge (with a different allergist) and DD was almost killed.

Posted on: Tue, 05/16/2006 - 10:48pm
mommamia8's picture
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Joined: 11/13/2005 - 09:00

I want to say thanks for all the info! We have an appt. for November! Yeah!
MattsMommy: Thanks for sharing your story. I wish all the best to Matthew!
BS312: Wow! How scary! We currently use Quest but will definitely use the lab at Hopkins from now on.

Posted on: Fri, 05/12/2006 - 3:16am
njm's picture
njm
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Joined: 03/16/2003 - 09:00

Dr. Wood is great. He is very concerned about his patients and takes time out of his busy schedule to talk to you. He had more time to spend with patients when he had his suburban office (and not just his JHU office) but he is still accessible. He has PA too so he's very interested in finding a cure. He's on the cutting edge of research and has a lot of good advice. My only complaint is that it's difficult to get an appointment with him. He's already booked through mid-November.

Posted on: Fri, 05/12/2006 - 3:33am
MimiM's picture
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Joined: 10/10/2003 - 09:00

We go to Dr. Wood and in fact we were just there last week. It was the first time that we had a visit with him at the downtown location. Prior to this, we saw him at the office in Lutherville where things were a bit more personal.
His office now is in the outpatient pediatric area which is a pretty busy place.
All of that being said however, all of our needs were met and that office staff was organized, friendly and have the whole operation amazingly down to a science!
I consider us to be so lucky that we live in an area so close to one of the top specialists in peanut allergy. If you have an opportunity to see Dr. Wood, I would certainly encourage you to do so. After all, he is at the forefront of all of the research! He does take the time to talk to you and explain everything to you. He also, makes sure you have a chance to ask him your questions (have a list ready).
I have never had trouble getting in touch with him if I've had a concern, and I do feel confident that all the information that he gives to me is very accurate and up to date.
So, bottom line is, if you have the opportunity to see Dr. Wood, I would definately advise it! But schedule an appointment ASAP because he is a popular guy!

Posted on: Fri, 05/12/2006 - 5:48am
mommamia8's picture
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Joined: 11/13/2005 - 09:00

Thank you both for the replies. When ds was diagnosed 6 months ago, I didn't know Dr. Wood existed and his connection to research. So, I went to a ped. recommended allergist.
Is his Lutherville office now closed? Did you have trouble parking at Hopkins?

Posted on: Fri, 05/12/2006 - 6:41am
BS312's picture
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Joined: 09/05/2001 - 09:00

We see Dr. Wood. He and his nurse practitioner are great. Parking at the JHH Outpatient Center is very easy and safe. There is a very long wait for food challenges, though. We called in mid-April and the first available is at the end of August.

Posted on: Sat, 05/13/2006 - 11:16am
TwokidsNJ's picture
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Joined: 05/28/2005 - 09:00

Where is his office?

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