Anti-IgE hopeful

Posted on: Thu, 01/01/2009 - 2:48am
4mykids's picture
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Joined: 09/01/2008 - 09:15

I think my daughter has been approved for Anti-IgE therapy! I will find out for sure when the allergist gets back to the office next week.

This drug has been my greatest hope for her for years. I am so excited but also nervous that we might be dissappointed.

Has anyone had experience with this yet? The brand name is Xolair, used by injection. It is being used to treat her asthma, but the research I have seen shows great potential for decreasing extreme peanut allergy reactions.

Posted on: Fri, 01/02/2009 - 9:01am
NONUTSFORA's picture
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Joined: 07/08/2008 - 06:14

Good luck to your daughter. She and you are so brave for taking part in this research. My son has said he is too afraid to take part in any trials. I hope this is the answer you (and me) have been waiting for--for all the kids.

Posted on: Sat, 01/03/2009 - 10:44am
Mom2angels's picture
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Joined: 02/07/2008 - 20:14

Wow---our allergist mentioned Xolair almost a year ago. He said that it shows hope for peanut allergy sufferers, but is not INDICATED for peanut allergy YET! With a price tag of around $1000 per injection (1 inj/month), we'd have to wait for it to be approved for PA by insurance.
This is two-fold. I can understand your reservations, but at the same time, this may be a huge breakthrough for PA. I wish you and your daughter the very best and be sure to keep us posted on how things go.

Posted on: Sat, 01/03/2009 - 12:29pm
4mykids's picture
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Joined: 09/01/2008 - 09:15

I have been hopeful about anti IgE since the 2004 article published in the New England Journal of Medicine. I found it again here:
[url="http://content.nejm.org/cgi/content/full/348/11/986"]http://content.nejm.org/cgi/content/full/348/11/986[/url]
She is not actually involved in research (we tried to get her in on a trial for using Xolair to treat asthma in children two years ago but she was ironically booted out because of her PA). She has actually been authorized to use it for treating her asthma! But of course I am excited and hopeful that it may eliminate tons of anxiety in her life if it happens to eliminate cross contamination and contact problems. She is so sensitive, and allergic to so much now, that life is becoming very difficult.
I am still scared it may all fall through, but I hope to hear more on Monday.
I will definitely keep everyone posted.

Posted on: Sat, 01/10/2009 - 1:33am
4mykids's picture
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Joined: 09/01/2008 - 09:15

The latest update.
I have been told we have insurance authorization! I think now we are just trying to work out getting the actual drug since only two companies deal with it.
So we are still waiting.... but still hopeful. I will let you know what happens.

Posted on: Mon, 01/26/2009 - 2:03pm
4mykids's picture
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Joined: 09/01/2008 - 09:15

She had her first anti-IgE injections today. She received two shots and will repeat this every other week from now on.
Her allergist said the effects are immediate. If she stops the injections she goes right back to where she started.
We will not really test for any change, just monitor her symptoms and hope for a general decrease in allergic responses.
I really don't know what this will do for her yet, but I am hoping her life will be more normal. Maybe she can ride horses without misery, maybe she won't have a peanut free table anymore, maybe she won't have to be so concerned about how things are manufactured, maybe she can sit on an airplane or in a friend's car without problems.....
Maybe I'm dreaming, but I do hope.

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